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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 2:13 pm by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Sat Dec 08, 2018 8:01 am by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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New and need advice and help

Thu Dec 06, 2018 2:26 am by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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Had this for 5 years, looking for people who understand

Sun Oct 07, 2018 8:46 am by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Wed Oct 17, 2018 1:35 am by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 10:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Fri Jul 13, 2018 8:45 am by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 12:33 pm by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Fri Aug 10, 2018 8:55 am by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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BOOKS! NON-VAGINA RELATED!!!

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BOOKS! NON-VAGINA RELATED!!!

Post  naomi on Mon Jul 26, 2010 11:39 pm

Can anyone suggest some good books (not science fiction) that are a good, interesting read? BUT......(that's a big BUT!)

...ones with minimal references to SEX! With everything that's going on I just want some escapism and I'm fed up with getting into a book, only to read about how many "orgasms Ben had given Kate last night" and how she was "gagging for it".....grrrrrrrrrrrrr!!!

Thanking you in advance


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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Sarah001 on Mon Jul 26, 2010 11:50 pm

Depends what you like, I'm a thriller fan so I read lots of Harlan Coben and Dean Koontz and stuff like that. Neither of those authors are big on sex scenes!
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  naomi on Mon Jul 26, 2010 11:59 pm

I like the easy to read, unconfusing (lifes confusing enough!), inspiring, funny, heart warming ones, ones that you finish and go "ahhhhhhhh" Very Happy

I'm going to get my bum down to the library in a bit and have a look. Thanks for the recommendations! I think my dads reading a Dean Koontz one at the mo, might steal that from him after!

I've been reading some easy going ones by Marian Keyes (chick lit) but theres way too much sex sex sex. I end up starting to resent the characters!!!

oh life!
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  julia on Tue Jul 27, 2010 2:56 am

just been reading a brilliant bit of escapism by jojo moyes called 'the peacock emporium'. only 1 very brief sex scene and no description!


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Re: BOOKS! NON-VAGINA RELATED!!!

Post  naomi on Tue Jul 27, 2010 3:59 am

oh ace ta 4 the recommendation!

I ended up getting some books from the library...

dean koontz odd hours

a book on greece (one can dream about holidays!)

marian keyes book -click lit i know but i thought id give her another chance, she is funny! I'll do the usual and try to skim read over the sex stuff!!

The war on pain - it has suggestions on how to deal /get through life with it, so will let you guys know if its any good.

Cognitive Behavioural Therapy for Dummies...I may be bouncing off the walls with positivity but the end of the week!...or maybe not!

So these will keep me busy for a while. I suppose thats one benefit of this condition...if you lose your job like I have and on benefits at least you have time to read Very Happy clouds and silver linings spring to mind there Laughing
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Sarah001 on Tue Jul 27, 2010 4:08 am

I love the Odd Thomas books by Dean Koontz, be warned though they can get a bit sad in places!
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Sebby (Admin) on Tue Jul 27, 2010 7:41 am


Dean Koontz is fantastic! I love his books.

Also I love Magaret Atwood but she is a heavy read.

Sum more books I recommed:

The Curious Incident of the Dog in the Nighttime by Mark Haddon - about a boy with asbergers written from his perspective

Anyfing by George Orwell - 1984, Animal Farm, Down and Out in Paris and London

And try sum Dorothy Parker poems for a good bit of love cynicism!

Sebby xxx
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  naomi on Tue Jul 27, 2010 8:04 am

Ah yeh Mark Haddon books are wicked! read the curious Incident', and 'A spot of Bother' That's really good!

I forgot about Animal Farm . I'm sure I've still got the book upstairs from my GCSEs!

Right, I best get to bed and try that sleeping thing. Early start in the morning, alarm is set at 5am, ready to leave to oxford hospital at half past. urggggghhhhhh wayyyyyy to early.

Night all! xxx

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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Julie on Thu Jul 29, 2010 9:21 am

If you like 1984, I would suggest "Brave New World" by Aldous Huxley...I loved it 27,000 times more =)

I read a ton so let me know if there are any specific types/genres & I'd love to give suggestions!

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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Sarah001 on Thu Jul 29, 2010 10:54 pm

I've just read a fantastic thriller called The Neighbour by Lisa Gardner, I was so impressed I've ordered another of her books! By the way very little in the way of sex scenes!
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Mouse on Sun Sep 26, 2010 1:07 pm

I don't have the concentration for reading anymore even magazines are a challenge BUT wanted to share my Dad's latest discovery.

OK to my great shame he is devouring Danielle Steele books, he's printed a list from the internet and is marking them off as he goes. Surviving a cancer scare, subsequent op and chemotherapy has clearly done something to his brain. We didn't know he could read until now. It's turned into our private shame. My niece gave him a boxed set of movies for his birthday. He couldn't be more pleased! Crikey!

I did really enjoy The Tea Rose by Jennifer Donnolley, it looks like one of those naf romantic loads of BS but is surprisingly good. I did enjoy some of Marian Keyes, Rachel's Holiday was a great laugh and would have made a way better movie than 28 days (with Sandra Bullock) that had similar content.

Oops husband tooting - bless!

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Re: BOOKS! NON-VAGINA RELATED!!!

Post  naomi on Mon Oct 04, 2010 8:21 am

hiya!

def agree with you on that one! 28days later was good but Rachels Hol would have been feb...i love the irish accent too so that adds to it!!

I keep picking books with sex in buy mistake so i just miss afew pages and usually they have got it out of their systems Very Happy

hope everyone is ok! Keep listing the authors and books, im writing them in my diary so when im in charity shops i can pick them out...anything to pass the time til i find some answers to this shit of a condition!!!
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