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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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BOOKS! NON-VAGINA RELATED!!!

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BOOKS! NON-VAGINA RELATED!!!

Post  naomi on Mon Jul 26, 2010 1:39 pm

Can anyone suggest some good books (not science fiction) that are a good, interesting read? BUT......(that's a big BUT!)

...ones with minimal references to SEX! With everything that's going on I just want some escapism and I'm fed up with getting into a book, only to read about how many "orgasms Ben had given Kate last night" and how she was "gagging for it".....grrrrrrrrrrrrr!!!

Thanking you in advance


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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Sarah001 on Mon Jul 26, 2010 1:50 pm

Depends what you like, I'm a thriller fan so I read lots of Harlan Coben and Dean Koontz and stuff like that. Neither of those authors are big on sex scenes!
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  naomi on Mon Jul 26, 2010 1:59 pm

I like the easy to read, unconfusing (lifes confusing enough!), inspiring, funny, heart warming ones, ones that you finish and go "ahhhhhhhh" Very Happy

I'm going to get my bum down to the library in a bit and have a look. Thanks for the recommendations! I think my dads reading a Dean Koontz one at the mo, might steal that from him after!

I've been reading some easy going ones by Marian Keyes (chick lit) but theres way too much sex sex sex. I end up starting to resent the characters!!!

oh life!
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  julia on Mon Jul 26, 2010 4:56 pm

just been reading a brilliant bit of escapism by jojo moyes called 'the peacock emporium'. only 1 very brief sex scene and no description!


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Re: BOOKS! NON-VAGINA RELATED!!!

Post  naomi on Mon Jul 26, 2010 5:59 pm

oh ace ta 4 the recommendation!

I ended up getting some books from the library...

dean koontz odd hours

a book on greece (one can dream about holidays!)

marian keyes book -click lit i know but i thought id give her another chance, she is funny! I'll do the usual and try to skim read over the sex stuff!!

The war on pain - it has suggestions on how to deal /get through life with it, so will let you guys know if its any good.

Cognitive Behavioural Therapy for Dummies...I may be bouncing off the walls with positivity but the end of the week!...or maybe not!

So these will keep me busy for a while. I suppose thats one benefit of this condition...if you lose your job like I have and on benefits at least you have time to read Very Happy clouds and silver linings spring to mind there Laughing
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Sarah001 on Mon Jul 26, 2010 6:08 pm

I love the Odd Thomas books by Dean Koontz, be warned though they can get a bit sad in places!
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Sebby (Admin) on Mon Jul 26, 2010 9:41 pm


Dean Koontz is fantastic! I love his books.

Also I love Magaret Atwood but she is a heavy read.

Sum more books I recommed:

The Curious Incident of the Dog in the Nighttime by Mark Haddon - about a boy with asbergers written from his perspective

Anyfing by George Orwell - 1984, Animal Farm, Down and Out in Paris and London

And try sum Dorothy Parker poems for a good bit of love cynicism!

Sebby xxx
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  naomi on Mon Jul 26, 2010 10:04 pm

Ah yeh Mark Haddon books are wicked! read the curious Incident', and 'A spot of Bother' That's really good!

I forgot about Animal Farm . I'm sure I've still got the book upstairs from my GCSEs!

Right, I best get to bed and try that sleeping thing. Early start in the morning, alarm is set at 5am, ready to leave to oxford hospital at half past. urggggghhhhhh wayyyyyy to early.

Night all! xxx

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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Julie on Wed Jul 28, 2010 11:21 pm

If you like 1984, I would suggest "Brave New World" by Aldous Huxley...I loved it 27,000 times more =)

I read a ton so let me know if there are any specific types/genres & I'd love to give suggestions!

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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Sarah001 on Thu Jul 29, 2010 12:54 pm

I've just read a fantastic thriller called The Neighbour by Lisa Gardner, I was so impressed I've ordered another of her books! By the way very little in the way of sex scenes!
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Re: BOOKS! NON-VAGINA RELATED!!!

Post  Mouse on Sun Sep 26, 2010 3:07 am

I don't have the concentration for reading anymore even magazines are a challenge BUT wanted to share my Dad's latest discovery.

OK to my great shame he is devouring Danielle Steele books, he's printed a list from the internet and is marking them off as he goes. Surviving a cancer scare, subsequent op and chemotherapy has clearly done something to his brain. We didn't know he could read until now. It's turned into our private shame. My niece gave him a boxed set of movies for his birthday. He couldn't be more pleased! Crikey!

I did really enjoy The Tea Rose by Jennifer Donnolley, it looks like one of those naf romantic loads of BS but is surprisingly good. I did enjoy some of Marian Keyes, Rachel's Holiday was a great laugh and would have made a way better movie than 28 days (with Sandra Bullock) that had similar content.

Oops husband tooting - bless!

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Re: BOOKS! NON-VAGINA RELATED!!!

Post  naomi on Sun Oct 03, 2010 9:21 pm

hiya!

def agree with you on that one! 28days later was good but Rachels Hol would have been feb...i love the irish accent too so that adds to it!!

I keep picking books with sex in buy mistake so i just miss afew pages and usually they have got it out of their systems Very Happy

hope everyone is ok! Keep listing the authors and books, im writing them in my diary so when im in charity shops i can pick them out...anything to pass the time til i find some answers to this shit of a condition!!!
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