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» Vulvodynia is a secret
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» Looking for a friend..... and new problems
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Hello I'm new :)

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Hello I'm new :)

Post  candyD on Tue Apr 03, 2012 9:36 pm

Hey Like a Star @ heaven

I'm really glad I found this forum. You do tend to feel so alone with this condition don’t you? I don’t feel any of my friends or family would understand (and to be fair there’s some things I wouldn’t want to talk to them about) I'm 26 and I've had vulva pain for what must be about four years. I kept thinking it was thrush, constantly. Everything was so dry (it gets worse if I’m stressed). Anyway, that thrush test came back negative and I was referred to a consultant because I get vaginal spasms too. They had to knock me out to do a smear test! Anyway, so I have totally avoided relationships and sex for nearly four years (as I'm sure many of you have). I had an experience before that where the pain was so horrendous penetrative sex was impossible. It was my partner at the time who suggested I visit my GP. Ultimately the relationship didn’t last because of this problem and I felt so embarrassed and ashamed by the whole thing, I’ve given up. I really loved that my partner and I feel this condition robbed me of a great relationship. I mean there’s only so much patience a guy can have, right? My Mother (who really doesn’t understand) thinks that if I meet the right person, it will all magically fix itself Rolling Eyes and he might even come with me to get the problem sorted – meanwhile, in the real world….
Anyway the consultant has suggested that I try loads of moisturising cream in the area, I was prescribed a non-scented one but this isn’t really working. I’m used to having sensitive skin and so I don’t use scented products anyway. The other route he suggested is putting me on pills that normally people who have depression and epilepsy are given. There is NO WAY I am taking those. I’ve heard such bad press about those types of pills and plus he said ‘ooh they only make you a bit drowsy’. Really? A guy I know was like a walking zombie on epilepsy tablets, he couldn’t help it..he needed to take them for his actual problem. Surely there is some other natural way to ease or overcome this? I was thinking of Buddhist pain meditation. I’m going to try the dilators and numbing gel for the spasms and I’m going to have a chat with my GP next Friday about it all. I didn’t feel the consultant was very sympathetic to the problem…certainly not on an emotional level.
Sorry if this post was a big ramble. I didn’t realise how angry I am that the choice seems to be, take these tablets or face a very lonely life.
Does anyone have any advice or similar stories…


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Re: Hello I'm new :)

Post  charly24 on Sat Apr 07, 2012 8:39 pm


I'm Charly! I just joined this evening! Reading your story, it was like reading about me! Its good to know theres a place like this people can share their stories and know your not alone Smile.

I know what you mean about always thinkings its thrush, and then being told your thrush free! I went through a faze of buying pessary and creams like every couple of weeks! Shocked

I am dry too! Its so horrible! I'm only 24! I've tried so many things! Lubricants burn! Although, I have found that Sensilube works well, as it doesn't burn, and you can get that in most chemists and stuff. But its no use if you get spasms. I get those too! And I have recently been given a dilator, so I am hoping it works (fingers crossed). Numbing gel is a good start as it lubes and then numbs it. Just give it a little while to settle in! Its also very runny! lol. Gynaes say I need to RELAX lol. Its hard though when it hurts so bad!

I have used Bio-fem which is useful for comfort, and I often put a few drops of tea tree oil in my bath, as its good for soothing burning pain. I have also put apple cyder vinegar and baking powder in the bath when I am raw, sore and burning. Its unusual what you can put in there, but they can offer relief from pain. I found this on other on-line sites.

I am thinking about trying Yoga and different diets, as I get urinary burning too Crying or Very sad

I hope all goes will with your GP next week Very Happy


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Re: Hello I'm new :)

Post  charly24 on Sat Apr 07, 2012 8:46 pm

P.S. I tried those pills for over a year and they didnt help! I just ended up sleepy all year Crying or Very sad . I was so adamant in not taking them, but I was made to feel like I had no option! I felt like I wasted a year of my life!


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