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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

Hello I'm new :)

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Hello I'm new :)

Post  candyD on Tue Apr 03, 2012 9:36 pm

Hey Like a Star @ heaven

I'm really glad I found this forum. You do tend to feel so alone with this condition don’t you? I don’t feel any of my friends or family would understand (and to be fair there’s some things I wouldn’t want to talk to them about) I'm 26 and I've had vulva pain for what must be about four years. I kept thinking it was thrush, constantly. Everything was so dry (it gets worse if I’m stressed). Anyway, that thrush test came back negative and I was referred to a consultant because I get vaginal spasms too. They had to knock me out to do a smear test! Anyway, so I have totally avoided relationships and sex for nearly four years (as I'm sure many of you have). I had an experience before that where the pain was so horrendous penetrative sex was impossible. It was my partner at the time who suggested I visit my GP. Ultimately the relationship didn’t last because of this problem and I felt so embarrassed and ashamed by the whole thing, I’ve given up. I really loved that my partner and I feel this condition robbed me of a great relationship. I mean there’s only so much patience a guy can have, right? My Mother (who really doesn’t understand) thinks that if I meet the right person, it will all magically fix itself Rolling Eyes and he might even come with me to get the problem sorted – meanwhile, in the real world….
Anyway the consultant has suggested that I try loads of moisturising cream in the area, I was prescribed a non-scented one but this isn’t really working. I’m used to having sensitive skin and so I don’t use scented products anyway. The other route he suggested is putting me on pills that normally people who have depression and epilepsy are given. There is NO WAY I am taking those. I’ve heard such bad press about those types of pills and plus he said ‘ooh they only make you a bit drowsy’. Really? A guy I know was like a walking zombie on epilepsy tablets, he couldn’t help it..he needed to take them for his actual problem. Surely there is some other natural way to ease or overcome this? I was thinking of Buddhist pain meditation. I’m going to try the dilators and numbing gel for the spasms and I’m going to have a chat with my GP next Friday about it all. I didn’t feel the consultant was very sympathetic to the problem…certainly not on an emotional level.
Sorry if this post was a big ramble. I didn’t realise how angry I am that the choice seems to be, take these tablets or face a very lonely life.
Does anyone have any advice or similar stories…


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Re: Hello I'm new :)

Post  charly24 on Sat Apr 07, 2012 8:39 pm


I'm Charly! I just joined this evening! Reading your story, it was like reading about me! Its good to know theres a place like this people can share their stories and know your not alone Smile.

I know what you mean about always thinkings its thrush, and then being told your thrush free! I went through a faze of buying pessary and creams like every couple of weeks! Shocked

I am dry too! Its so horrible! I'm only 24! I've tried so many things! Lubricants burn! Although, I have found that Sensilube works well, as it doesn't burn, and you can get that in most chemists and stuff. But its no use if you get spasms. I get those too! And I have recently been given a dilator, so I am hoping it works (fingers crossed). Numbing gel is a good start as it lubes and then numbs it. Just give it a little while to settle in! Its also very runny! lol. Gynaes say I need to RELAX lol. Its hard though when it hurts so bad!

I have used Bio-fem which is useful for comfort, and I often put a few drops of tea tree oil in my bath, as its good for soothing burning pain. I have also put apple cyder vinegar and baking powder in the bath when I am raw, sore and burning. Its unusual what you can put in there, but they can offer relief from pain. I found this on other on-line sites.

I am thinking about trying Yoga and different diets, as I get urinary burning too Crying or Very sad

I hope all goes will with your GP next week Very Happy


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Re: Hello I'm new :)

Post  charly24 on Sat Apr 07, 2012 8:46 pm

P.S. I tried those pills for over a year and they didnt help! I just ended up sleepy all year Crying or Very sad . I was so adamant in not taking them, but I was made to feel like I had no option! I felt like I wasted a year of my life!


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Re: Hello I'm new :)

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