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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Hello I'm new :)

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Hello I'm new :)

Post  candyD on Tue Apr 03, 2012 9:36 pm

Hey Like a Star @ heaven

I'm really glad I found this forum. You do tend to feel so alone with this condition don’t you? I don’t feel any of my friends or family would understand (and to be fair there’s some things I wouldn’t want to talk to them about) I'm 26 and I've had vulva pain for what must be about four years. I kept thinking it was thrush, constantly. Everything was so dry (it gets worse if I’m stressed). Anyway, that thrush test came back negative and I was referred to a consultant because I get vaginal spasms too. They had to knock me out to do a smear test! Anyway, so I have totally avoided relationships and sex for nearly four years (as I'm sure many of you have). I had an experience before that where the pain was so horrendous penetrative sex was impossible. It was my partner at the time who suggested I visit my GP. Ultimately the relationship didn’t last because of this problem and I felt so embarrassed and ashamed by the whole thing, I’ve given up. I really loved that my partner and I feel this condition robbed me of a great relationship. I mean there’s only so much patience a guy can have, right? My Mother (who really doesn’t understand) thinks that if I meet the right person, it will all magically fix itself Rolling Eyes and he might even come with me to get the problem sorted – meanwhile, in the real world….
Anyway the consultant has suggested that I try loads of moisturising cream in the area, I was prescribed a non-scented one but this isn’t really working. I’m used to having sensitive skin and so I don’t use scented products anyway. The other route he suggested is putting me on pills that normally people who have depression and epilepsy are given. There is NO WAY I am taking those. I’ve heard such bad press about those types of pills and plus he said ‘ooh they only make you a bit drowsy’. Really? A guy I know was like a walking zombie on epilepsy tablets, he couldn’t help it..he needed to take them for his actual problem. Surely there is some other natural way to ease or overcome this? I was thinking of Buddhist pain meditation. I’m going to try the dilators and numbing gel for the spasms and I’m going to have a chat with my GP next Friday about it all. I didn’t feel the consultant was very sympathetic to the problem…certainly not on an emotional level.
Sorry if this post was a big ramble. I didn’t realise how angry I am that the choice seems to be, take these tablets or face a very lonely life.
Does anyone have any advice or similar stories…



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Re: Hello I'm new :)

Post  charly24 on Sat Apr 07, 2012 8:39 pm

Hey!

I'm Charly! I just joined this evening! Reading your story, it was like reading about me! Its good to know theres a place like this people can share their stories and know your not alone Smile.

I know what you mean about always thinkings its thrush, and then being told your thrush free! I went through a faze of buying pessary and creams like every couple of weeks! Shocked

I am dry too! Its so horrible! I'm only 24! I've tried so many things! Lubricants burn! Although, I have found that Sensilube works well, as it doesn't burn, and you can get that in most chemists and stuff. But its no use if you get spasms. I get those too! And I have recently been given a dilator, so I am hoping it works (fingers crossed). Numbing gel is a good start as it lubes and then numbs it. Just give it a little while to settle in! Its also very runny! lol. Gynaes say I need to RELAX lol. Its hard though when it hurts so bad!

I have used Bio-fem which is useful for comfort, and I often put a few drops of tea tree oil in my bath, as its good for soothing burning pain. I have also put apple cyder vinegar and baking powder in the bath when I am raw, sore and burning. Its unusual what you can put in there, but they can offer relief from pain. I found this on other on-line sites.

I am thinking about trying Yoga and different diets, as I get urinary burning too Crying or Very sad

I hope all goes will with your GP next week Very Happy



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Re: Hello I'm new :)

Post  charly24 on Sat Apr 07, 2012 8:46 pm

P.S. I tried those pills for over a year and they didnt help! I just ended up sleepy all year Crying or Very sad . I was so adamant in not taking them, but I was made to feel like I had no option! I felt like I wasted a year of my life!

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