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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


vestibulectomy surgery next week...

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vestibulectomy surgery next week...

Post  naomi on Fri Apr 06, 2012 12:32 am

....shitttttte affraid

Its going to be a partial vestibulectomy.

I shall update folk on my progress. Im not religious but i pray this is the correct decision!!!!!

hope everyone is well xxxxxx
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Re: vestibulectomy surgery next week...

Post  Sarah001 on Fri Apr 06, 2012 11:40 am

Good luck Naomi and keep us posted. xxx
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Re: vestibulectomy surgery next week...

Post  naomi on Fri Apr 06, 2012 9:26 pm

Thanks Sarah!

I'm so worried about it but fingers crossed its not too bad! Xxx
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Re: vestibulectomy surgery next week...

Post  smile22 on Sat Apr 07, 2012 1:13 pm

good luck Smile. by the way is this with prof leusley? (luesley or however u spell it!!). try not to worry too much, it might be the best decision you could make x

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Re: vestibulectomy surgery next week...

Post  naomi on Wed Apr 11, 2012 9:51 am

Yeh it was meant to be with prof luesley.

surgery was cancelled Sad

i know it was for the best though but cant help but feel fed up and in a pissy mood.

they have cancelled the op as I had discovered I had more areas of pain which he wasn't intending on removing, so might have to be a full vestibulectomy or not at all, depends on what he thinks when I'm reassessed now in a few weeks and re book. So stressful grrr

im glad i went and prodded (hardly prod...was touching gently) and the areas he was going to remove in a partial just wouldnt have taken away all of the sore skin. Just wish I had been properly examined in the first place and not have to cancel. hey hoe.
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Re: vestibulectomy surgery next week...

Post  smile22 on Wed Apr 11, 2012 3:53 pm

oh no Sad i hope you get an appointment soon to get it all sorted, and yeah they should've checked properly Sad. do u think they are good there? it takes me 40 mins to get there then have to wait atleast 20 mins then when i go in i get 5 mins of their time and im gone without a proper solution..but then again they're better than any other gynaecologists, gps etc i've ever seen (and that's a LOT!), so can't say much really!

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Re: vestibulectomy surgery next week...

Post  Sarah001 on Thu Apr 12, 2012 11:54 am

Just be relieved Naomi, imagine going through the surgery only to find they hadn't done it right? That was a close call for you. Keep us posted on what happens. x
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Re: vestibulectomy surgery next week...

Post  naomi on Thu Apr 12, 2012 6:24 pm

Smile, yes they seem better than the other specialists ive seen. im seeing him privately so he tends to take his time. Im just not fully confident about this surgery though.

Thanks Sarah, I know it was for the best to postpone, im just impatient with this whole blummin thing now!!!
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Re: vestibulectomy surgery next week...

Post  naomi on Thu Apr 12, 2012 6:24 pm

....then again, arent we all!!!!
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Re: vestibulectomy surgery next week...

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