Vulvodynia Support
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» Hope to all my suffering ladies
vestibulectomy surgery next week... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
vestibulectomy surgery next week... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
vestibulectomy surgery next week... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
vestibulectomy surgery next week... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
vestibulectomy surgery next week... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
vestibulectomy surgery next week... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
vestibulectomy surgery next week... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
vestibulectomy surgery next week... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
vestibulectomy surgery next week... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


vestibulectomy surgery next week...

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vestibulectomy surgery next week... Empty vestibulectomy surgery next week...

Post  naomi Fri Apr 06, 2012 12:32 am

....shitttttte affraid

Its going to be a partial vestibulectomy.

I shall update folk on my progress. Im not religious but i pray this is the correct decision!!!!!

hope everyone is well xxxxxx
naomi
naomi
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Join date : 2010-04-09
Location : Cheltenham

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Post  Sarah001 Fri Apr 06, 2012 11:40 am

Good luck Naomi and keep us posted. xxx
Sarah001
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Post  naomi Fri Apr 06, 2012 9:26 pm

Thanks Sarah!

I'm so worried about it but fingers crossed its not too bad! Xxx
naomi
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Post  smile22 Sat Apr 07, 2012 1:13 pm

good luck Smile. by the way is this with prof leusley? (luesley or however u spell it!!). try not to worry too much, it might be the best decision you could make x

smile22

Posts : 51
Join date : 2012-02-07
Location : England

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Post  naomi Wed Apr 11, 2012 9:51 am

Yeh it was meant to be with prof luesley.

surgery was cancelled Sad

i know it was for the best though but cant help but feel fed up and in a pissy mood.

they have cancelled the op as I had discovered I had more areas of pain which he wasn't intending on removing, so might have to be a full vestibulectomy or not at all, depends on what he thinks when I'm reassessed now in a few weeks and re book. So stressful grrr

im glad i went and prodded (hardly prod...was touching gently) and the areas he was going to remove in a partial just wouldnt have taken away all of the sore skin. Just wish I had been properly examined in the first place and not have to cancel. hey hoe.
naomi
naomi
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Location : Cheltenham

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Post  smile22 Wed Apr 11, 2012 3:53 pm

oh no Sad i hope you get an appointment soon to get it all sorted, and yeah they should've checked properly Sad. do u think they are good there? it takes me 40 mins to get there then have to wait atleast 20 mins then when i go in i get 5 mins of their time and im gone without a proper solution..but then again they're better than any other gynaecologists, gps etc i've ever seen (and that's a LOT!), so can't say much really!

smile22

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Post  Sarah001 Thu Apr 12, 2012 11:54 am

Just be relieved Naomi, imagine going through the surgery only to find they hadn't done it right? That was a close call for you. Keep us posted on what happens. x
Sarah001
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Post  naomi Thu Apr 12, 2012 6:24 pm

Smile, yes they seem better than the other specialists ive seen. im seeing him privately so he tends to take his time. Im just not fully confident about this surgery though.

Thanks Sarah, I know it was for the best to postpone, im just impatient with this whole blummin thing now!!!
naomi
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Post  naomi Thu Apr 12, 2012 6:24 pm

....then again, arent we all!!!!
naomi
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