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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


vestibulectomy surgery next week...

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vestibulectomy surgery next week...

Post  naomi on Fri Apr 06, 2012 12:32 am

....shitttttte affraid

Its going to be a partial vestibulectomy.

I shall update folk on my progress. Im not religious but i pray this is the correct decision!!!!!

hope everyone is well xxxxxx
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Re: vestibulectomy surgery next week...

Post  Sarah001 on Fri Apr 06, 2012 11:40 am

Good luck Naomi and keep us posted. xxx
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Re: vestibulectomy surgery next week...

Post  naomi on Fri Apr 06, 2012 9:26 pm

Thanks Sarah!

I'm so worried about it but fingers crossed its not too bad! Xxx
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Re: vestibulectomy surgery next week...

Post  smile22 on Sat Apr 07, 2012 1:13 pm

good luck Smile. by the way is this with prof leusley? (luesley or however u spell it!!). try not to worry too much, it might be the best decision you could make x

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Re: vestibulectomy surgery next week...

Post  naomi on Wed Apr 11, 2012 9:51 am

Yeh it was meant to be with prof luesley.

surgery was cancelled Sad

i know it was for the best though but cant help but feel fed up and in a pissy mood.

they have cancelled the op as I had discovered I had more areas of pain which he wasn't intending on removing, so might have to be a full vestibulectomy or not at all, depends on what he thinks when I'm reassessed now in a few weeks and re book. So stressful grrr

im glad i went and prodded (hardly prod...was touching gently) and the areas he was going to remove in a partial just wouldnt have taken away all of the sore skin. Just wish I had been properly examined in the first place and not have to cancel. hey hoe.
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Re: vestibulectomy surgery next week...

Post  smile22 on Wed Apr 11, 2012 3:53 pm

oh no Sad i hope you get an appointment soon to get it all sorted, and yeah they should've checked properly Sad. do u think they are good there? it takes me 40 mins to get there then have to wait atleast 20 mins then when i go in i get 5 mins of their time and im gone without a proper solution..but then again they're better than any other gynaecologists, gps etc i've ever seen (and that's a LOT!), so can't say much really!

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Re: vestibulectomy surgery next week...

Post  Sarah001 on Thu Apr 12, 2012 11:54 am

Just be relieved Naomi, imagine going through the surgery only to find they hadn't done it right? That was a close call for you. Keep us posted on what happens. x
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Re: vestibulectomy surgery next week...

Post  naomi on Thu Apr 12, 2012 6:24 pm

Smile, yes they seem better than the other specialists ive seen. im seeing him privately so he tends to take his time. Im just not fully confident about this surgery though.

Thanks Sarah, I know it was for the best to postpone, im just impatient with this whole blummin thing now!!!
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Re: vestibulectomy surgery next week...

Post  naomi on Thu Apr 12, 2012 6:24 pm

....then again, arent we all!!!!
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Re: vestibulectomy surgery next week...

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