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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


vestibulectomy surgery next week...

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vestibulectomy surgery next week...

Post  naomi on Fri Apr 06, 2012 12:32 am

....shitttttte affraid

Its going to be a partial vestibulectomy.

I shall update folk on my progress. Im not religious but i pray this is the correct decision!!!!!

hope everyone is well xxxxxx
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Re: vestibulectomy surgery next week...

Post  Sarah001 on Fri Apr 06, 2012 11:40 am

Good luck Naomi and keep us posted. xxx
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Re: vestibulectomy surgery next week...

Post  naomi on Fri Apr 06, 2012 9:26 pm

Thanks Sarah!

I'm so worried about it but fingers crossed its not too bad! Xxx
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Re: vestibulectomy surgery next week...

Post  smile22 on Sat Apr 07, 2012 1:13 pm

good luck Smile. by the way is this with prof leusley? (luesley or however u spell it!!). try not to worry too much, it might be the best decision you could make x

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Re: vestibulectomy surgery next week...

Post  naomi on Wed Apr 11, 2012 9:51 am

Yeh it was meant to be with prof luesley.

surgery was cancelled Sad

i know it was for the best though but cant help but feel fed up and in a pissy mood.

they have cancelled the op as I had discovered I had more areas of pain which he wasn't intending on removing, so might have to be a full vestibulectomy or not at all, depends on what he thinks when I'm reassessed now in a few weeks and re book. So stressful grrr

im glad i went and prodded (hardly prod...was touching gently) and the areas he was going to remove in a partial just wouldnt have taken away all of the sore skin. Just wish I had been properly examined in the first place and not have to cancel. hey hoe.
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Re: vestibulectomy surgery next week...

Post  smile22 on Wed Apr 11, 2012 3:53 pm

oh no Sad i hope you get an appointment soon to get it all sorted, and yeah they should've checked properly Sad. do u think they are good there? it takes me 40 mins to get there then have to wait atleast 20 mins then when i go in i get 5 mins of their time and im gone without a proper solution..but then again they're better than any other gynaecologists, gps etc i've ever seen (and that's a LOT!), so can't say much really!

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Re: vestibulectomy surgery next week...

Post  Sarah001 on Thu Apr 12, 2012 11:54 am

Just be relieved Naomi, imagine going through the surgery only to find they hadn't done it right? That was a close call for you. Keep us posted on what happens. x
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Re: vestibulectomy surgery next week...

Post  naomi on Thu Apr 12, 2012 6:24 pm

Smile, yes they seem better than the other specialists ive seen. im seeing him privately so he tends to take his time. Im just not fully confident about this surgery though.

Thanks Sarah, I know it was for the best to postpone, im just impatient with this whole blummin thing now!!!
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Re: vestibulectomy surgery next week...

Post  naomi on Thu Apr 12, 2012 6:24 pm

....then again, arent we all!!!!
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Re: vestibulectomy surgery next week...

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