I'm new and this ism my V story

It all began in October 2011 when Pap test showed ASCUS, Gardnerella Vaginalis and Ureaplasma Urealyticum. The former gynecologist said that the cause of ASCUS is a severe infections caused by Gardnerella Vaginalis and Ureaplasma Urealyticum. Approximately for 4 months he treated me with Medazol and Doxycycline tablets, Medazol vaginal tablets and Efudix cream applying by gynecologist on my cervix. After completing the first treatment with mentioned drugs a burning sensetion emerged from inside of small labia and entrance to vagina and till then I didn’t have any symptoms. These symptoms disappeared when I again began to take the mentioned drugs. During this treatment I started to feel very sick, I started to feel a pain in my stomach, I had nausea and I was always tired, exhausted. I have told my gynecologist about it but he told me that this is normal because these drugs are very strong. Because after about 4 months of treatment with this therapy I didn’t feel any better and my symptoms were still here, I decided to look for another gynecologist.
The new gynecologist told me that I have to be 4 weeks without using any drugs before we can repeate examinations. But I wasn’t able to withstand for four weeks and because of severe burning inside my vagina I had to seek for help in ER where I was examined by a urologist who ordered an urinalysis and blood tests. Urinalysis showed infection with Ureaplasma Urealyticum and Escherichia coli, while the blood test indicated a weak inflammation in the body. The urologist prescribed me Doxycycline therapy but after 3 days I started to have problems with swallowing (I felt like i had something in my throat), and the urologist interrupted therapy and prescribed me Sumamed therapy. After the therapy I have repeated the urinalysis and it was ok.
About a month and a half there was no problem, and then re-emerged this burning of small inner labia and entrance of the vagina. On my one I have took a Acidosalus vaginal tablets and it stopped but after a few weeks it has returned. I went to gynecologist who took cervical swabs which have showed HPV 18 and Pap test that showed CIN I, while the ultrasound was normal. However gynecologist said that CIN I cannot be the cause of burning sensation , because HPV infections have no symptoms, and that we will not do any procedures regarding CIN, but we'll just monitor the situation. She also told me that she can’t help me with burning sensation on my minor labia and vagina cause everything is looking alright
Since I was not satisfied with that, at the end of July I have consult a new gynecologist who had performed a colposcopy. Colposcopy findings showed soft ACE around cervical canal and about 2 mm within the same. Left of the cervical canal puncture area, very little. At 6 h another field of ACE, that disappears relatively quickly. In continuation an endocervix excohleation is done, and a sample from 6h is taken. Biopsy showed Neoplasia Intraepithelialis Gradus I (CIN I).
About a month there were no symptoms, then in September re-emerged stinging and burning on the inside of the vulva, and two small wounds appeared in the area where small inner labia are bonded. Gynecologist examine me and concluded that these is an initial HSV and asked for urinalysis with the number of germs and ABG. Results were normal. He also prescribed me the local application of Poligynax and Virolex.

Wounds didn’t heal from this therapy and burning sensation continued. Also the wounds hurt in contact with my underwear. Because the wounds didn’t heal after few weeks I decided to go to the beach one afternoon and sun myself nude thinking that maybe the sun will dry wounds, and they will heal. This afternoon the beach was full of various insects that were walking over my genitals and I gave up after 15 minutes of sun. But another day intense burning and stinging around the genitals and anus has begun and the wounds were covered with a white layer. After a few days I have also noticed on small inner labia some tiny red dots that were slightly elevated above the other mucous membranes, the same I have noticed at the exit of the urethra. I tried to put on it Kantarion oil but it didn’t help.
Again I have visited my gynecologist who prescribed me Rosalgin granules to wash myself, and told me that if they do not help me he no longer knows what to do and what to give me to relief my symptoms.
Since the situation has not improved a bit on 10 October 2011 I went to the Dermatolovenerology clinic, where a dermatovenerologist said that on the inside of small labia I have condyloma and she applied a podophyllin solution on it and said that after one week I have to come again for another application of the solution. Also I was prescribed Sebamed pH 3.8 for intimate hygiene, 2 tablespoons of extra virgin olive oil, some capsules for lifting of immunity, Betadine and Gyno-Daktarin vaginal tablets. Those vaginal tablets made my symptoms worse so I stopped using it.
She took a swab of the vulva and vagina to test it for HSV 1 – DNA and HSV 2 DNA - by PCR method, and the result came negative. She also took a swab of the cervix and sent it to test for Trichomonas vaginalis - DNA that was not proven.

She Aalso requested the following tests: Hormonal status - ok, Laboratory analysis - show little infection.
Swab of the cervix, vagina and vulva. Only cervical swab was done since the gynecologist thought that swab of vulva and vagina are not applicable tests. Cervical swab showed only HPV 18 while other STD’s were negative.

Also on 11 October 2011 I was examined by a new gynecologist, who said the following:
Genitals nullipare, neat. Vagina medium large, folded, whitish secretion, C calls, portio tapered slightly volumenised, stiff uterus, limber, insensitive, adnexa not palpable. Also according to his opinion there are no condylomata on genitals.
TVS: uterus in AVF, 3.9 x 3.2 cm, inhomogeneous, 3-4 mm endometrium, retrout. About ten ml of free fluid, both ovarian microcystic.
DG: Vulvovaginitis,
SY PCO susp.
St. Post abs pont ss VI.
Th: Dyprogenta ung outside.
Canesten vag 1x1.
Duphaston tablets 2x1 13-25 dc.
The above treatment gave no results.
How the findings of Dermatovenereologist and Gynecologists did not agree, I decided to go to vulvoscopy to determine whether I have or do not have condylomata. On 17 October 2011gynecologist who was supposed to do vulvoscopy said that there is no need for it because it vulva looks quite normal (just made the inspection), and instead he made a colposcopy, which was the alright. He also told me that he does not know the reason for my problems because my reproductive system looks perfectly normal.
Since I could not do the requested exam, on the same day (17 October 2011) I sought another opinion. That gynecologist gave the following opinion: around introitus in both sides few small condylomata. The enhanced secretion of the vagina SCII. Portio at the appearance epithelized. Also take a Pap swab was taken.
Pap showed CIN I E + +. Doctor recommended Laser treatment of condyloma on the vulva and cervix. Because the clinic still didn’t get the laser, on 22 October 2011 cryotherapy of the cervix and vulva was performed, which was terribly painful.
On 23 October 2011 I have had a scheduled appointment with a gynecologist at the Clinic for tumors who recommended applying Condilox cream and eventual another cryotherapy if the conylomata don’t disappear.
I was using Condilox wail I was waiting for laser treatment, however, the situation was not improving. The skin of the genitals sometimes was dark red, every bit of pressure on that part caused terrible burning sensation and feeling as if a thousand tiny needles are stabbing me. Swollen lymph nodes in the groin appeared. Pimples began to appear on the outer side of the genitals and they were painful to touch and they disappeared quickly (within one day). Started to feel stabbing pain in the groin. On the left side of small labia, at the exit of Bartholin gland redness have appeared that hurts under pressure. Walking and sitting only made my symptoms worse.
How till 23 November 2011 laser hasn’t arrived and the doctor said it was all a result of HPV infection and that I must be patient, I have decided to seek help elsewhere because I could no longer endure. In the new clinic I was examined by dermatovenereologist who gave the following findings:
In the vaginal introitus area from the right side a smaller erythematous change can be seen, with slight erosion on the surface, with changes that are symmetrical on left and right and are corresponding to physiological variation of the mucosa. The material for HPV genotyping was taken from erythematous lesions slightly eroded on the surface. It is necessary to do complete allergy testing because according to the description it can be to conclude that this is an allergic reaction.
Dg. Dermatitis allergica e contactu i. o. regionis genitalis.
After the exam the doctor applied on above mentioned lesions Beloderm cream shortly after which the symptoms worsened and above lesions enlarged. Because of persistence of symptoms I have called the doctor next day and she told me to immediately come to the clinic where she applied something on mentioned lesions. As a therapy she also prescribed me an Aeirus tablets.
According to the direction of doctor I made inahalacione allergic testing and test on nutritional allergens that have proved to be negative. Testing is also done on a standard series of allergens which showed contact allergic reaction to Potassium Bichromate and nickel sulfate. Before the test I was examined by dermatovenereologist who exercised testing and who wrote in his report: during the examination of the genital region, hyperpigmentation of the skin, with no other pathological changes. Dg. Dermatitis irritativa reg denitalis.
HPV genotyping of swab from erythematous lesions showed HPV of undetermined risk (undetermined type of HPV).

Since the new drug was not given the result and since the doctor still thought that this is an allergic reaction even after the allergic, on 28 November 2011 I went to another clinic where the gynecologist performed a vulvoscopy (without applying acetic acid) and said that the finding is normal. He also took swabs from the vulva for Pap test because of suspicion of genital herpes. Findings showed the following: reactive changes in cells associated with inflammation and hyperkeratosis. Serum screening for antibodies to HSV gave the following result: HSV2 negative, HSV1 positive. He also ordered the standard blood tests which showed MCV 99.5 H, basophils 00:07 H, rest was under limits.
During the examination he said that there is no condylomata and that the mucosa of the vulva is irritated and damaged probably due to cryotherapy. He wanted to wait to see what will happen. On several occasions I came to his hospital because of the unbearable burning, stinging, aching, soreness, swelling, however, I did not receive any diagnosis or drugs, I was just told to wait. Once he gave me an injection to relieve my pain because I was crying how it hurt. On another occasion I was sprayed with Lidocaine spray, however, the reaction was so nasty that the staff had immediately flushed it with a saline. Then the doctor wanted me to try applying EMLA cream which is a local anesthetic, but it didn’t help me.On several occasions I tried to draw doctors attention to the enlarged lymph nodes, however, he did not react until I told him that I was febrile for couple of weeks. Then he touched the lymph nodes and requested ultrasound of inguinal region and the internist exam.
Fever continued until Christmas Eve when it culminated and reached a height of 38.6 C. Also at that time I started to feel stronger pain in the groin, lower back, below the armpit. Urination has become a problem because the urine in contact with mucous increased the burning sensation. Hemorrhoids started to come out and hurt, and one day I had to seek emergency medical care because of it. I started to have breathing problems in a way that I cannot breathe because it hurts me. Sweating in the groin increased without any reason (eg increased activity), my underwear was all wet.

On 30 December 2011 I was examined by an internist who has made the following findings:
Karnofsky 100%, Romberg stable, Height- 167 cm, Weight - 51 kg. With normal structure, afebrile, eupnoic, very communicative, clear while giving an anamnesis. She gives the impression of psycho-physically healthy and stable person, but very concerned person. Halitosis is negative. The skin of normal color, dermographismus enhanced, adnexa bo. Lymphonods are palpable, small, fibrosing in the neck, in axillary region are not enlarged but painful on palpation, bilateral palpable inguinal lymphonods. Head inspection bo. Neck proper, normal thyroid, no distension of the venous system, no vascular noise. Thorax symmetric, vesicular breathing and heart action of 80/min rhythmic, sounds clear, no noise. TA – both sides 115/80 and 120/80 mm / Hg. Pulse regular 80 minutes. Abdomen soft, no organomegalia, sensitive in the epigastrium and left praumbilical. Kidney Lodge bo. Limbs: no deformity, and edema, venous drawing slightly enhanced, normal pulsations, slight tremor of the hand fingers, hyperhidrosis.
Conclusion:
A) The main problems is in the gynecological region, continue the controls and treatments at the gynecologists and urologists. But absolutely, there are elements of the regional L / S radiculopathia.
Conduct targeted analysis of L / S segments controlled by a neurologist.
B) Mild intermittent hyperferremia because of increased use of dietary supplements, multivitamins, Betaglucagon. The rest of the hematological and biohumoral findings are alright.
C) Lymphadenopathy on neck, axillary and inguinal, absolutely indicates:
- Ultrasound of inguinal region and cytology of lymphonods.
- Serology on: EBV, CMV and toxoplasmosis.
D) Gastrointestinal disorders due to earlier pakcreatitis (got over at the age of 10) and known family gastrointestinal history indicate:
- Breath test for Heliobacter pylori
- EGDS or less valuable diagnostic X-ray passage in the esophagus and gastrodsuodenuma in Trendeleburg.
- There are indications to test for food intolerance.
From the above tests was done the following:
Serology: anti-CMV IgG positive, anti-CMV IgM negative, anti-EBV VCA / EA IgG positive, anti-EBV VCA IgM negative, anti-Toxo IgG negative, anti-Toxo IgM negative.
Ultrasound and fine needle aspiration:
1. Ultrasound scan of inguinal region shows numerous reactively enlarged lymph nodes in length to 12 mm. Normal vascular structures of the scanned area can be seen.
Fine needle aspiration of lymph nodes in the left groin:
Cytological description: In smears are seen a lot of lymphocytes, individual transformed lymphoblastic cells, histiocytes, some plasmocytes, destroyed cells and naked nuclei, erythrocytes, and some amorphous material.
OPINION: finding corresponds to lymphocytic hyperplasia of lymphoid tissue.
2. Fine needle aspiration of the left axillary:
Cytological description: In smears are seen a lot of lymphocytes, individual transformed lymphoblastic cells, histiocytes, some plasmocytes, erythrocytes, and some amorphous material.
OPINION: Finding corresponds to lymphocytic hyperplasia of lymphoid tissue.
3. Neck UZV and fine needle aspiration of lymph nodules in the parotid gland.
Cytological description: In smears are numerous small lymphocytes and transformed lymphoblastic cells and some histiocytes.
OPINION: Elements of reactive hyperplasia of lymph nodes.

Also on 30 December 2011 at the request of an internist, a gynecologist has examine me and his diagnose was Vulvovaginitis mycotic. As the therapy he prescribed me Diflucan 150 mg, Rojazol vaginal tablets and for intimate hygiene CanesCare. The specified treatment gave no results. It was difficult for me to insert vaginal tablets because my vagina was swollen and painful. Canescare only made the burning worse.
In beginning of January 2012 the skin of the genitals started to stick to clothing that was causing terrible pain and burning. Because of the new symptoms the dermatovenerologist had send me to do bacteriological and mycological swabs. Bacteriological swabs of the skin of the genitals showed saprophytic bacteria and mycological findings were negative.
On 25 January 2012 a Pap test was repeated and he showed the following: abnormal cells, Bacillus vaginalis, parakeratosis, hyperkeratosis, CIN I (C +), plus the changes associated with HPV.
Because the gynecologist claimed that my problem is of dermatological nature and HPV infection cannot cause these kind of symptoms, again I went to see a dermatolovenerologist. Dermatovenerologist where I went by gynecologist recommendation had set a diagnosis atopic dermatitis, however, he said, and what is written in a finding that I do not have typical symptoms for that diagnosis. As the therapy he prescribed me a homeopathic cream Halicar and A derma shower gel. Regarding clinical status, he wrote: "Mild superficial infiltration of the vulva and perianal. Enlarged lymph nodes in the groin and the neck."
Since I was not happy with the way that the diagnosis was set and explanation that my symptoms do not match the disease that I was diagnosed with I sought another opinion. Next dermatorovenerologist had, only based on my verbal description of symptoms, prescribed me Klimicin lotio to be applied at the output of Bartholin gland because it hurts me and Linoladiol cream. Again the therapy gave no results and dermatovenerologist said that she does not know how to help me, and that this is obviously a gynecological problem not a dermatological one.
After I have informed my gynecologist about all of this his nurse recommended me to visit a professor that deals exclusively with viral infections. I went to that professor whose examination of me was so quick that I didn’t have time to tell him mine symptoms. He only sad that I don’t have condylomata and that my problem is gynecological nature. He also ordered tests for VDRL and TPHA, and the results came back negative.
On 16 February 2012 pelvic MRI was done. The finding was as follows:
Technique: pelvic multisequentially recording natively in the coronary, sagittal and transverse plane, the layers of thickness 3-5 mm (Siemens Magnet 1.5 Tesla). Also are done transverse and coronal layers in T1 image after the IV application of paramagnetic KS.
Findings: Several small bilateral inguinal lymph nodes. On the left side is the largest lymph node measured 12 mm in diameter. On the right side the lymph nodes are infracentimetric. Urinary bladder is empty, of tidy appearance. Uterus is in retroflexion, of the appropriate thickness. With the right contour of the uterus minimal amount of free fluid can be found. The right ovary is morphologically normal. The left ovary is enlarged with a maximum diameter of 34 mm. Within the ovary is a cyst with diameter of 25 mm. In With the border of mentioned cyst a few small cystic lesions are found, and they morphologically correspond to follicles. After iv application of 15 m paramagnetic KS the edge imbibition of ovarian parenchyma can be seen while described ovarian cystic lesions remains unchanged.
CONCLUSION: The smaller bilateral inguinal lymphadenopathy, pronounced on the left. Simplex cyst of left ovarian in diameter of 25mm. Smaller amounts of free fluid in Douglas space.
At the request of my internist on 27 February 2012 I was hospitalized at the Hematology department for hematologic analysis. When I was released from the hospital doctors told me that from hematology side I’m healthy and that I should do tests for autoimmune diseases, and they scheduled me an appointment in the Immune clinic for May 2012. In mine discharged letter as specified diagnosis is written a systemic disorder of connective tissue, the unclassified (in process).
On several occasions I have sought immediate medical help because the pain and burning were not durable, however, every time I was told that my genitals looks alright, no matter that examination was very painful for me.
My regular gynecologist last few times told me to wait to see what will happen. I think he didn’t know what else to tell me.
My mother convinced me to see my old gynecologist whose patient I was as a teenager. The finding was as follows: the external genitals pink, large labia slightly more pronounced, the appearance of the skin does not indicate a stronger inflammation, but a mere touch of the part of left big labia and putting a finger into the vagina entry causes a burning sensation and pain. I was advised to do vulvoscopy and colposcopy, and a partner a peniscopy. The skin biopsy is also recommended.
On 15 March 2012 colposcopy: a visible s-k limit. Around channel is a thin acid white epithelium. In fornix is acid white epithelium with condylomata. Vulvoscopy: On the left big labia close to Bartholin gland is an acid white epithelium. Similar epithelium is right on the lower third part of the labia minora. Excisio vulva ad PHD. PHD analysis: a piece of material with regular multilayered squamous epithelium on the surface.
Peniscopy: normal findings.
Gynecologist told me that in 6 weeks I have to see a dermatologist. In the meantime, I have got Dr. Wolff basis creme for genitals but already the first application of the same caused s terrible burning that have calmed a bit after I washed it. Then I started to apply, on my own initiative, Propolis oil from the PIP which sometimes reduces the symptoms and sometimes it doesn’t but after a while whole genital region began to peel leaving red skin and burning sensation.
I informed mine gynecologist what happened and he scheduled me for dermatovenerologist examination on 04 February 2012 who gave the following findings: On both sides of big labia is present a residual lichenification and brownish pigmentation of skin. On both sides of the inguinal region is present an erythema and desquamation. The patient slowly enters the clinic, difficulty walking. My opinion is that the patient suffers from a lichen simplex chronicus in combination with Vulvodynia. Need to do: CEA, AFP, CA125, CA19-3, and eventual examination of the neurologist because of persistent pain in the area of the pubic region. Dermatovenerologist also told me that she will still consult with a gynecologist, and in case of Vulvodynia she will not be able to help me. She also told me that if the diagnosis is confirmed it would be difficult to treat it because it is most likely that the standard drugs will have no effect because in her opinion in my case the nerves are damaged. She also told we can’t treat condylomata in side me until the problem with vulva isn’t solved is solved because it can make mine symptoms worse.
With this diagnosis I contacted the gynecologist who is the only one that had wrote something about this disease in the Republic of Croatia. I went to see her and she gave me the same diagnosis Vestibular Vulvodynia. She told me that she has little experience with this disease. She also told me that regarding the internal HPV infections we can’t do anything until the problem with external genitals isn’t solved. As the therapy she prescribed me: Seroxat 20mg tablets ½ during the first 7 days, and then 1x1 tablet, local St. John's Wort oil and grease Triderm alternately twice a day and Psychoanalysis.
I have applied Triderm grease on the evening and during the night my genitals were itching me. When I applied it in the morning I started to feel terrible burning, tingling and pain. I called a doctor who said to wash it and not to use it for three days and to try again until the skin does not get used to it.
Also from August 2011 I was three times in ER due to extremely severe headache, pain in the stomach with respiratory failure (diagnosed gastritis), breathing problems (pain when breathing).

Now I will try to describe you all of my symptoms and my observations.
I have noticed that the symptoms are the lowest couple of days before my menstruation and about three days after beginning of my menstruation. Then the pain starts at the left axilla that extends to the breast, which is why I find it hard to breathe. Also at this time my blood vessels are specifically expressed at the shoulders and arms. The pain lasts about two days during which it is not the same intensity. Last day is the strongest and then starts an awful burning and tingling of small labia and the entrance to the vagina. The slightest touch of the area is causing pain and increases the burning sensation. Urination is difficult (it is painful) and incontinence appears. Any tightening of the muscles of this area increases the symptoms. Contact of urine and skin increases burning. At the hips the blood vessels are clearly marked and visible, and spread to the groin and large labia. I have a feeling that the blood comes only to genitlane region and there it stops, for example, the veins on my legs that are usually more pronounced during that time are empty. Burning and tingling is starting to spread to the entire inguinal region and anus. Depending on the intensity of symptoms skin changes color from light brown to red and even purple. The lower part of large and small labia and the entrance to the vagina are swelling and hurting when you press it. Hemorrhoids begin to ache and burn even when they are not provoked. Sometimes on the skin above the pubic bone are appearing red stripes, and a few red pimples. I can also feel stabbing pain in the groin, vagina and hips. My skin is hot on the touch. My groins just suddenly are starting to sweat so my underwear is wet. When blood vessels at the hip are expressed they it hurts to touch them. Sitting, walking and physical activity makes it worse.
I have noticed that some of the symptoms of PMS does not occur prior to menstruation, but immediately after menstruation. Menstruation occurs 26-28 days, and now they are painful and with light bleeding (barely to have some blood).
I’m mentally and physically exhausted. I sleep a lot especially after the worst episodes. I also have frequent headaches that are extremely strong. My back, hips and knees hurts.
The only thing that minimizes problems is lying on my back with spread legs, nude and ice packs on that area.
I also have noticed that the preparations in the form of creams and ointments only worsen the situation. Besides these I have tried Acidosalus vaginaltablets, Propolis and Aloe vera cream, Aloe vera gel, Octenosept Spray, Propolis ointment, St. John's Wort Oil, Xanaxs, Immortelle ointments, bath with sage, chamomile, calendula, oak bark, a variety of herbal teas.