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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


My story...

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My story...

Post  embem on Sat Apr 07, 2012 12:23 am

Hi, my name is Emily and I am 26 years old. I’m new to this forum, but thought I would share my story. I have had vulvodynia for 2½ years now. It started with painful intercourse and got progressively worse until I could no longer have intercourse. I was referred to a gynecological specialist. I tried creams and medications, but nothing helped. In August, I had surgery. The doctor told me there was 95% chance of me being fully cured, that I would be driving within a week or two, and be fully recovered in two months. It is now April. I am worse now than I ever was before the surgery. My recovery has been very painful. The sharp pain during intercourse is now gone, but I have new symptoms that I never had before – pain in my butt and legs. I have been going to physical therapy weekly for nearly four months, and it has not helped. The physical therapist has me doing stretches and using a dialator, which do not seem to help. My physical therapist thinks it might be pudendal neuralgia caused from the surgery. My gynecological specialist thinks that it is not the pudendal nerve, but rather a muscle issue. He said it is extremely rare for me to have these symptoms after surgery and never have had them before. He did a muscle block yesterday with injections. It was extremely painful. I’m not sure if it is helping. He wants me to go back on the medication that didn’t help me before the surgery. He also wants me to get botox, which he warned is very expensive.

I am feeling very frustrated. I now cannot wear jeans or khakis. I can’t sit for periods of time. I have to bring a cushion with me if I have to sit, and even then I’m uncomfortable. Driving is awful. I’m now able to have intercourse at times. My boyfriend of 3½ years has been wonderful. We used to have a great sex life before all of this happened. I am just feeling so frustrated. I am getting worse each month instead of better. I used to love riding my bike. I can’t go out to the movies or go on any trips. With the issues sitting, I pretty much can’t have a social life. Is there hope? Any suggestions of things to try? I’m excited that I found this forum. It’s nice to know I’m not alone.

embem

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Age : 32
Location : NY

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Re: My story...

Post  charly24 on Sat Apr 07, 2012 8:06 pm

Hi Emily,

Sorry to hear you have had surgery and things have not well.

I am new too, and glad to have found this site. I have suffered with Vulvadynia for over 3 years and not had much luck! I have recently been given a dilator too.

Have you ever tried Yoga? I have read online that this may help?

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charly24

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Re: My story...

Post  embem on Sun Apr 08, 2012 8:46 pm

I have not tried yoga. That's a great idea! Thanks!

embem

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