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» Honey decreased my pain considerably!
Yesterday at 12:53 pm by mhhh

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Yesterday at 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
Tue Jul 10, 2018 12:27 am by srbry

» Hello. In Need of Advice, Please and Thank You. Long Read.
Sun Jul 08, 2018 3:58 am by cg1991

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


My story...

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My story...

Post  embem on Sat Apr 07, 2012 12:23 am

Hi, my name is Emily and I am 26 years old. I’m new to this forum, but thought I would share my story. I have had vulvodynia for 2½ years now. It started with painful intercourse and got progressively worse until I could no longer have intercourse. I was referred to a gynecological specialist. I tried creams and medications, but nothing helped. In August, I had surgery. The doctor told me there was 95% chance of me being fully cured, that I would be driving within a week or two, and be fully recovered in two months. It is now April. I am worse now than I ever was before the surgery. My recovery has been very painful. The sharp pain during intercourse is now gone, but I have new symptoms that I never had before – pain in my butt and legs. I have been going to physical therapy weekly for nearly four months, and it has not helped. The physical therapist has me doing stretches and using a dialator, which do not seem to help. My physical therapist thinks it might be pudendal neuralgia caused from the surgery. My gynecological specialist thinks that it is not the pudendal nerve, but rather a muscle issue. He said it is extremely rare for me to have these symptoms after surgery and never have had them before. He did a muscle block yesterday with injections. It was extremely painful. I’m not sure if it is helping. He wants me to go back on the medication that didn’t help me before the surgery. He also wants me to get botox, which he warned is very expensive.

I am feeling very frustrated. I now cannot wear jeans or khakis. I can’t sit for periods of time. I have to bring a cushion with me if I have to sit, and even then I’m uncomfortable. Driving is awful. I’m now able to have intercourse at times. My boyfriend of 3½ years has been wonderful. We used to have a great sex life before all of this happened. I am just feeling so frustrated. I am getting worse each month instead of better. I used to love riding my bike. I can’t go out to the movies or go on any trips. With the issues sitting, I pretty much can’t have a social life. Is there hope? Any suggestions of things to try? I’m excited that I found this forum. It’s nice to know I’m not alone.

embem

Posts : 5
Join date : 2012-04-07
Age : 33
Location : NY

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Re: My story...

Post  charly24 on Sat Apr 07, 2012 8:06 pm

Hi Emily,

Sorry to hear you have had surgery and things have not well.

I am new too, and glad to have found this site. I have suffered with Vulvadynia for over 3 years and not had much luck! I have recently been given a dilator too.

Have you ever tried Yoga? I have read online that this may help?

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charly24

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Age : 31
Location : East Midlands, UK

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Re: My story...

Post  embem on Sun Apr 08, 2012 8:46 pm

I have not tried yoga. That's a great idea! Thanks!

embem

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Age : 33
Location : NY

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