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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

My story...

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My story...

Post  embem on Sat Apr 07, 2012 12:23 am

Hi, my name is Emily and I am 26 years old. I’m new to this forum, but thought I would share my story. I have had vulvodynia for 2½ years now. It started with painful intercourse and got progressively worse until I could no longer have intercourse. I was referred to a gynecological specialist. I tried creams and medications, but nothing helped. In August, I had surgery. The doctor told me there was 95% chance of me being fully cured, that I would be driving within a week or two, and be fully recovered in two months. It is now April. I am worse now than I ever was before the surgery. My recovery has been very painful. The sharp pain during intercourse is now gone, but I have new symptoms that I never had before – pain in my butt and legs. I have been going to physical therapy weekly for nearly four months, and it has not helped. The physical therapist has me doing stretches and using a dialator, which do not seem to help. My physical therapist thinks it might be pudendal neuralgia caused from the surgery. My gynecological specialist thinks that it is not the pudendal nerve, but rather a muscle issue. He said it is extremely rare for me to have these symptoms after surgery and never have had them before. He did a muscle block yesterday with injections. It was extremely painful. I’m not sure if it is helping. He wants me to go back on the medication that didn’t help me before the surgery. He also wants me to get botox, which he warned is very expensive.

I am feeling very frustrated. I now cannot wear jeans or khakis. I can’t sit for periods of time. I have to bring a cushion with me if I have to sit, and even then I’m uncomfortable. Driving is awful. I’m now able to have intercourse at times. My boyfriend of 3½ years has been wonderful. We used to have a great sex life before all of this happened. I am just feeling so frustrated. I am getting worse each month instead of better. I used to love riding my bike. I can’t go out to the movies or go on any trips. With the issues sitting, I pretty much can’t have a social life. Is there hope? Any suggestions of things to try? I’m excited that I found this forum. It’s nice to know I’m not alone.


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Join date : 2012-04-07
Age : 32
Location : NY

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Re: My story...

Post  charly24 on Sat Apr 07, 2012 8:06 pm

Hi Emily,

Sorry to hear you have had surgery and things have not well.

I am new too, and glad to have found this site. I have suffered with Vulvadynia for over 3 years and not had much luck! I have recently been given a dilator too.

Have you ever tried Yoga? I have read online that this may help?


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Re: My story...

Post  embem on Sun Apr 08, 2012 8:46 pm

I have not tried yoga. That's a great idea! Thanks!


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Re: My story...

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