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Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

My story...

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My story...

Post  embem on Sat Apr 07, 2012 12:23 am

Hi, my name is Emily and I am 26 years old. I’m new to this forum, but thought I would share my story. I have had vulvodynia for 2½ years now. It started with painful intercourse and got progressively worse until I could no longer have intercourse. I was referred to a gynecological specialist. I tried creams and medications, but nothing helped. In August, I had surgery. The doctor told me there was 95% chance of me being fully cured, that I would be driving within a week or two, and be fully recovered in two months. It is now April. I am worse now than I ever was before the surgery. My recovery has been very painful. The sharp pain during intercourse is now gone, but I have new symptoms that I never had before – pain in my butt and legs. I have been going to physical therapy weekly for nearly four months, and it has not helped. The physical therapist has me doing stretches and using a dialator, which do not seem to help. My physical therapist thinks it might be pudendal neuralgia caused from the surgery. My gynecological specialist thinks that it is not the pudendal nerve, but rather a muscle issue. He said it is extremely rare for me to have these symptoms after surgery and never have had them before. He did a muscle block yesterday with injections. It was extremely painful. I’m not sure if it is helping. He wants me to go back on the medication that didn’t help me before the surgery. He also wants me to get botox, which he warned is very expensive.

I am feeling very frustrated. I now cannot wear jeans or khakis. I can’t sit for periods of time. I have to bring a cushion with me if I have to sit, and even then I’m uncomfortable. Driving is awful. I’m now able to have intercourse at times. My boyfriend of 3½ years has been wonderful. We used to have a great sex life before all of this happened. I am just feeling so frustrated. I am getting worse each month instead of better. I used to love riding my bike. I can’t go out to the movies or go on any trips. With the issues sitting, I pretty much can’t have a social life. Is there hope? Any suggestions of things to try? I’m excited that I found this forum. It’s nice to know I’m not alone.


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Join date : 2012-04-07
Age : 32
Location : NY

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Re: My story...

Post  charly24 on Sat Apr 07, 2012 8:06 pm

Hi Emily,

Sorry to hear you have had surgery and things have not well.

I am new too, and glad to have found this site. I have suffered with Vulvadynia for over 3 years and not had much luck! I have recently been given a dilator too.

Have you ever tried Yoga? I have read online that this may help?


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Age : 30
Location : East Midlands, UK

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Re: My story...

Post  embem on Sun Apr 08, 2012 8:46 pm

I have not tried yoga. That's a great idea! Thanks!


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Age : 32
Location : NY

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Re: My story...

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