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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


My story...

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My story...

Post  embem on Sat Apr 07, 2012 12:23 am

Hi, my name is Emily and I am 26 years old. I’m new to this forum, but thought I would share my story. I have had vulvodynia for 2½ years now. It started with painful intercourse and got progressively worse until I could no longer have intercourse. I was referred to a gynecological specialist. I tried creams and medications, but nothing helped. In August, I had surgery. The doctor told me there was 95% chance of me being fully cured, that I would be driving within a week or two, and be fully recovered in two months. It is now April. I am worse now than I ever was before the surgery. My recovery has been very painful. The sharp pain during intercourse is now gone, but I have new symptoms that I never had before – pain in my butt and legs. I have been going to physical therapy weekly for nearly four months, and it has not helped. The physical therapist has me doing stretches and using a dialator, which do not seem to help. My physical therapist thinks it might be pudendal neuralgia caused from the surgery. My gynecological specialist thinks that it is not the pudendal nerve, but rather a muscle issue. He said it is extremely rare for me to have these symptoms after surgery and never have had them before. He did a muscle block yesterday with injections. It was extremely painful. I’m not sure if it is helping. He wants me to go back on the medication that didn’t help me before the surgery. He also wants me to get botox, which he warned is very expensive.

I am feeling very frustrated. I now cannot wear jeans or khakis. I can’t sit for periods of time. I have to bring a cushion with me if I have to sit, and even then I’m uncomfortable. Driving is awful. I’m now able to have intercourse at times. My boyfriend of 3½ years has been wonderful. We used to have a great sex life before all of this happened. I am just feeling so frustrated. I am getting worse each month instead of better. I used to love riding my bike. I can’t go out to the movies or go on any trips. With the issues sitting, I pretty much can’t have a social life. Is there hope? Any suggestions of things to try? I’m excited that I found this forum. It’s nice to know I’m not alone.

embem

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Join date : 2012-04-07
Age : 32
Location : NY

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Re: My story...

Post  charly24 on Sat Apr 07, 2012 8:06 pm

Hi Emily,

Sorry to hear you have had surgery and things have not well.

I am new too, and glad to have found this site. I have suffered with Vulvadynia for over 3 years and not had much luck! I have recently been given a dilator too.

Have you ever tried Yoga? I have read online that this may help?

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charly24

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Re: My story...

Post  embem on Sun Apr 08, 2012 8:46 pm

I have not tried yoga. That's a great idea! Thanks!

embem

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Age : 32
Location : NY

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Re: My story...

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