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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


I'm new and this is my story...

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I'm new and this is my story...

Post  charly24 on Sat Apr 07, 2012 8:00 pm

Hi,

I'm Charly, and I have suffered with Vulvadynia problems for over 3 years now, and I am 24. I have been with my boyfriend for 5 years and things used to be great! But now, I am unable to have intercourse as the pain in so unbearable! I have pain just from sitting down; some days its ok and some days its terrible! Doctors and gynae's can't seem to pin point what it is or how to treat it! Crying or Very sad

It all started after taking anti-biotics to treat a water infection and I was left with severe thrush. I treated the thrush and it went away, but I was never the same! I am dry and intercourse became so uncomfortable and its now impossible. I get burning and rawness! I had a biopsy about 6 months ago and have had so many swobs taken. I was told everything was fine and swabs always come back healthy! I was on anti-depressants to try and rule out nerve ending pain, and that didn't work; and so many creams that I have a chemist at home lol! I've decided to now research myself and try home remedies and supplements.

The gynae has given me a dilator to try and train my muscles, as during an examination they found I tensed so badly because of the pain. They believe its stress! Well of course! I'm so frustrated!! So I have started to use this, and I am hoping for good results! I have to apply numbing gel for pain, but I still have pain. I am waiting to see a therapist now to talk about these symptoms and problems.

I am going to try the Low Oxalate diet and the Anti-candida diet. I have also found on-line sources that suggest certain supplements and vitamins help. I tried these before and noticed a little improvement, but with the amount, cost and keeping up with it all, its difficult. But I have started to take this again and keep at it!

I also put tea tree oil in the bath, and apple cyder. Smells strange in the bathroom, but I find they help with soothing.

Do anyone else have any advice or remedies I could try?


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charly24

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Re: I'm new and this is my story...

Post  embem on Sun Apr 08, 2012 8:50 pm

Hi Charly,

I have found that the dilator helped me to recondition my body so I don't have to tense up and fear pain as much. I hope you find it helpful. Let me know if the supplements and vitamins help. I'm willing to try anything!

Good luck!

embem

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Re: I'm new and this is my story...

Post  charly24 on Sun Apr 08, 2012 10:26 pm

Hey!

Thank you for your message Very Happy .

I found on the internet a V-Kit, and it contained information about taking supplements. If you have a search for Vulvar Kit or V-kit, you should find it.

It contains supplements such as: Calcium Citrate, Flaxseed Oil, Grapeseed Oil, Olive Leaf Extract (which is very expensive, so I have not opted for that one yet!), Multi Vitamins, and applying calendula cream. I think the idea is to give your body a type of immune boost!

I am hoping it works, so I shall keep you posted Smile .

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Vulvodynia or VVS

Post  LizLemonny on Sun Apr 15, 2012 6:12 am

To answer the sex bit of your question... especially re the dryness... you must please Charly use lube and get to the psychological point that you don't feel bad about using it - build it into your routine. I don't know the right kind for you so I suggest you try some out before trying them during sex. I would use it whether or not you plan to try any penetration so you get used to it.

I've posted on this forum with some sex tips that might help you click here if interested. I DO (believe me) understand that you may not want to have penetrative sex at all and you just need to explore with your BF how this is going to work. I have found guys to be very different in their opinions about whether penetrative sex is essential. Some people on here have recommended anal sex; we tried this but weren't any good at it!

You can also get some lidocaine to have to hand to use after sex. It numbs down the pain enabling you to relax. You can also consider using it before trying sex (say around 20-30 mins before, then wipe it off using some lube so it doesn't numb your BF lol).

This also does the two things - numbs you a little bit (but still be careful as you might get hurt without being aware of it) and relaxes you (vital because tensing up does seem to make the pain get worse!).

Remember lubes can interfere with condoms so check the labels. I preferred sex with condoms to without as it was less friction on the area.

The less friction the less pain!!!

Good luck.


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Re: I'm new and this is my story...

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