Vulvodynia Support
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» Hope to all my suffering ladies
I'm new and this is my story... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I'm new and this is my story... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I'm new and this is my story... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I'm new and this is my story... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I'm new and this is my story... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I'm new and this is my story... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I'm new and this is my story... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
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» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I'm new and this is my story... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

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An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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Post  charly24 Sat Apr 07, 2012 8:00 pm

Hi,

I'm Charly, and I have suffered with Vulvadynia problems for over 3 years now, and I am 24. I have been with my boyfriend for 5 years and things used to be great! But now, I am unable to have intercourse as the pain in so unbearable! I have pain just from sitting down; some days its ok and some days its terrible! Doctors and gynae's can't seem to pin point what it is or how to treat it! Crying or Very sad

It all started after taking anti-biotics to treat a water infection and I was left with severe thrush. I treated the thrush and it went away, but I was never the same! I am dry and intercourse became so uncomfortable and its now impossible. I get burning and rawness! I had a biopsy about 6 months ago and have had so many swobs taken. I was told everything was fine and swabs always come back healthy! I was on anti-depressants to try and rule out nerve ending pain, and that didn't work; and so many creams that I have a chemist at home lol! I've decided to now research myself and try home remedies and supplements.

The gynae has given me a dilator to try and train my muscles, as during an examination they found I tensed so badly because of the pain. They believe its stress! Well of course! I'm so frustrated!! So I have started to use this, and I am hoping for good results! I have to apply numbing gel for pain, but I still have pain. I am waiting to see a therapist now to talk about these symptoms and problems.

I am going to try the Low Oxalate diet and the Anti-candida diet. I have also found on-line sources that suggest certain supplements and vitamins help. I tried these before and noticed a little improvement, but with the amount, cost and keeping up with it all, its difficult. But I have started to take this again and keep at it!

I also put tea tree oil in the bath, and apple cyder. Smells strange in the bathroom, but I find they help with soothing.

Do anyone else have any advice or remedies I could try?


charly24
charly24

Posts : 7
Join date : 2012-04-07
Age : 36
Location : East Midlands, UK

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Post  embem Sun Apr 08, 2012 8:50 pm

Hi Charly,

I have found that the dilator helped me to recondition my body so I don't have to tense up and fear pain as much. I hope you find it helpful. Let me know if the supplements and vitamins help. I'm willing to try anything!

Good luck!

embem

Posts : 5
Join date : 2012-04-07
Age : 38
Location : NY

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Post  charly24 Sun Apr 08, 2012 10:26 pm

Hey!

Thank you for your message Very Happy .

I found on the internet a V-Kit, and it contained information about taking supplements. If you have a search for Vulvar Kit or V-kit, you should find it.

It contains supplements such as: Calcium Citrate, Flaxseed Oil, Grapeseed Oil, Olive Leaf Extract (which is very expensive, so I have not opted for that one yet!), Multi Vitamins, and applying calendula cream. I think the idea is to give your body a type of immune boost!

I am hoping it works, so I shall keep you posted Smile .

charly24
charly24

Posts : 7
Join date : 2012-04-07
Age : 36
Location : East Midlands, UK

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Post  LizLemonny Sun Apr 15, 2012 6:12 am

To answer the sex bit of your question... especially re the dryness... you must please Charly use lube and get to the psychological point that you don't feel bad about using it - build it into your routine. I don't know the right kind for you so I suggest you try some out before trying them during sex. I would use it whether or not you plan to try any penetration so you get used to it.

I've posted on this forum with some sex tips that might help you click here if interested. I DO (believe me) understand that you may not want to have penetrative sex at all and you just need to explore with your BF how this is going to work. I have found guys to be very different in their opinions about whether penetrative sex is essential. Some people on here have recommended anal sex; we tried this but weren't any good at it!

You can also get some lidocaine to have to hand to use after sex. It numbs down the pain enabling you to relax. You can also consider using it before trying sex (say around 20-30 mins before, then wipe it off using some lube so it doesn't numb your BF lol).

This also does the two things - numbs you a little bit (but still be careful as you might get hurt without being aware of it) and relaxes you (vital because tensing up does seem to make the pain get worse!).

Remember lubes can interfere with condoms so check the labels. I preferred sex with condoms to without as it was less friction on the area.

The less friction the less pain!!!

Good luck.


LizLemonny

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Join date : 2012-04-14

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