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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

I'm new and this is my story...

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I'm new and this is my story...

Post  charly24 on Sat Apr 07, 2012 8:00 pm


I'm Charly, and I have suffered with Vulvadynia problems for over 3 years now, and I am 24. I have been with my boyfriend for 5 years and things used to be great! But now, I am unable to have intercourse as the pain in so unbearable! I have pain just from sitting down; some days its ok and some days its terrible! Doctors and gynae's can't seem to pin point what it is or how to treat it! Crying or Very sad

It all started after taking anti-biotics to treat a water infection and I was left with severe thrush. I treated the thrush and it went away, but I was never the same! I am dry and intercourse became so uncomfortable and its now impossible. I get burning and rawness! I had a biopsy about 6 months ago and have had so many swobs taken. I was told everything was fine and swabs always come back healthy! I was on anti-depressants to try and rule out nerve ending pain, and that didn't work; and so many creams that I have a chemist at home lol! I've decided to now research myself and try home remedies and supplements.

The gynae has given me a dilator to try and train my muscles, as during an examination they found I tensed so badly because of the pain. They believe its stress! Well of course! I'm so frustrated!! So I have started to use this, and I am hoping for good results! I have to apply numbing gel for pain, but I still have pain. I am waiting to see a therapist now to talk about these symptoms and problems.

I am going to try the Low Oxalate diet and the Anti-candida diet. I have also found on-line sources that suggest certain supplements and vitamins help. I tried these before and noticed a little improvement, but with the amount, cost and keeping up with it all, its difficult. But I have started to take this again and keep at it!

I also put tea tree oil in the bath, and apple cyder. Smells strange in the bathroom, but I find they help with soothing.

Do anyone else have any advice or remedies I could try?


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Re: I'm new and this is my story...

Post  embem on Sun Apr 08, 2012 8:50 pm

Hi Charly,

I have found that the dilator helped me to recondition my body so I don't have to tense up and fear pain as much. I hope you find it helpful. Let me know if the supplements and vitamins help. I'm willing to try anything!

Good luck!


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Re: I'm new and this is my story...

Post  charly24 on Sun Apr 08, 2012 10:26 pm


Thank you for your message Very Happy .

I found on the internet a V-Kit, and it contained information about taking supplements. If you have a search for Vulvar Kit or V-kit, you should find it.

It contains supplements such as: Calcium Citrate, Flaxseed Oil, Grapeseed Oil, Olive Leaf Extract (which is very expensive, so I have not opted for that one yet!), Multi Vitamins, and applying calendula cream. I think the idea is to give your body a type of immune boost!

I am hoping it works, so I shall keep you posted Smile .


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Vulvodynia or VVS

Post  LizLemonny on Sun Apr 15, 2012 6:12 am

To answer the sex bit of your question... especially re the dryness... you must please Charly use lube and get to the psychological point that you don't feel bad about using it - build it into your routine. I don't know the right kind for you so I suggest you try some out before trying them during sex. I would use it whether or not you plan to try any penetration so you get used to it.

I've posted on this forum with some sex tips that might help you click here if interested. I DO (believe me) understand that you may not want to have penetrative sex at all and you just need to explore with your BF how this is going to work. I have found guys to be very different in their opinions about whether penetrative sex is essential. Some people on here have recommended anal sex; we tried this but weren't any good at it!

You can also get some lidocaine to have to hand to use after sex. It numbs down the pain enabling you to relax. You can also consider using it before trying sex (say around 20-30 mins before, then wipe it off using some lube so it doesn't numb your BF lol).

This also does the two things - numbs you a little bit (but still be careful as you might get hurt without being aware of it) and relaxes you (vital because tensing up does seem to make the pain get worse!).

Remember lubes can interfere with condoms so check the labels. I preferred sex with condoms to without as it was less friction on the area.

The less friction the less pain!!!

Good luck.


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Re: I'm new and this is my story...

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