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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

I'm new and this is my story...

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I'm new and this is my story...

Post  charly24 on Sat Apr 07, 2012 8:00 pm


I'm Charly, and I have suffered with Vulvadynia problems for over 3 years now, and I am 24. I have been with my boyfriend for 5 years and things used to be great! But now, I am unable to have intercourse as the pain in so unbearable! I have pain just from sitting down; some days its ok and some days its terrible! Doctors and gynae's can't seem to pin point what it is or how to treat it! Crying or Very sad

It all started after taking anti-biotics to treat a water infection and I was left with severe thrush. I treated the thrush and it went away, but I was never the same! I am dry and intercourse became so uncomfortable and its now impossible. I get burning and rawness! I had a biopsy about 6 months ago and have had so many swobs taken. I was told everything was fine and swabs always come back healthy! I was on anti-depressants to try and rule out nerve ending pain, and that didn't work; and so many creams that I have a chemist at home lol! I've decided to now research myself and try home remedies and supplements.

The gynae has given me a dilator to try and train my muscles, as during an examination they found I tensed so badly because of the pain. They believe its stress! Well of course! I'm so frustrated!! So I have started to use this, and I am hoping for good results! I have to apply numbing gel for pain, but I still have pain. I am waiting to see a therapist now to talk about these symptoms and problems.

I am going to try the Low Oxalate diet and the Anti-candida diet. I have also found on-line sources that suggest certain supplements and vitamins help. I tried these before and noticed a little improvement, but with the amount, cost and keeping up with it all, its difficult. But I have started to take this again and keep at it!

I also put tea tree oil in the bath, and apple cyder. Smells strange in the bathroom, but I find they help with soothing.

Do anyone else have any advice or remedies I could try?


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Join date : 2012-04-07
Age : 30
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Re: I'm new and this is my story...

Post  embem on Sun Apr 08, 2012 8:50 pm

Hi Charly,

I have found that the dilator helped me to recondition my body so I don't have to tense up and fear pain as much. I hope you find it helpful. Let me know if the supplements and vitamins help. I'm willing to try anything!

Good luck!


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Re: I'm new and this is my story...

Post  charly24 on Sun Apr 08, 2012 10:26 pm


Thank you for your message Very Happy .

I found on the internet a V-Kit, and it contained information about taking supplements. If you have a search for Vulvar Kit or V-kit, you should find it.

It contains supplements such as: Calcium Citrate, Flaxseed Oil, Grapeseed Oil, Olive Leaf Extract (which is very expensive, so I have not opted for that one yet!), Multi Vitamins, and applying calendula cream. I think the idea is to give your body a type of immune boost!

I am hoping it works, so I shall keep you posted Smile .


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Vulvodynia or VVS

Post  LizLemonny on Sun Apr 15, 2012 6:12 am

To answer the sex bit of your question... especially re the dryness... you must please Charly use lube and get to the psychological point that you don't feel bad about using it - build it into your routine. I don't know the right kind for you so I suggest you try some out before trying them during sex. I would use it whether or not you plan to try any penetration so you get used to it.

I've posted on this forum with some sex tips that might help you click here if interested. I DO (believe me) understand that you may not want to have penetrative sex at all and you just need to explore with your BF how this is going to work. I have found guys to be very different in their opinions about whether penetrative sex is essential. Some people on here have recommended anal sex; we tried this but weren't any good at it!

You can also get some lidocaine to have to hand to use after sex. It numbs down the pain enabling you to relax. You can also consider using it before trying sex (say around 20-30 mins before, then wipe it off using some lube so it doesn't numb your BF lol).

This also does the two things - numbs you a little bit (but still be careful as you might get hurt without being aware of it) and relaxes you (vital because tensing up does seem to make the pain get worse!).

Remember lubes can interfere with condoms so check the labels. I preferred sex with condoms to without as it was less friction on the area.

The less friction the less pain!!!

Good luck.


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Re: I'm new and this is my story...

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