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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


I'm new and this is my story...

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I'm new and this is my story...

Post  charly24 on Sat Apr 07, 2012 8:00 pm

Hi,

I'm Charly, and I have suffered with Vulvadynia problems for over 3 years now, and I am 24. I have been with my boyfriend for 5 years and things used to be great! But now, I am unable to have intercourse as the pain in so unbearable! I have pain just from sitting down; some days its ok and some days its terrible! Doctors and gynae's can't seem to pin point what it is or how to treat it! Crying or Very sad

It all started after taking anti-biotics to treat a water infection and I was left with severe thrush. I treated the thrush and it went away, but I was never the same! I am dry and intercourse became so uncomfortable and its now impossible. I get burning and rawness! I had a biopsy about 6 months ago and have had so many swobs taken. I was told everything was fine and swabs always come back healthy! I was on anti-depressants to try and rule out nerve ending pain, and that didn't work; and so many creams that I have a chemist at home lol! I've decided to now research myself and try home remedies and supplements.

The gynae has given me a dilator to try and train my muscles, as during an examination they found I tensed so badly because of the pain. They believe its stress! Well of course! I'm so frustrated!! So I have started to use this, and I am hoping for good results! I have to apply numbing gel for pain, but I still have pain. I am waiting to see a therapist now to talk about these symptoms and problems.

I am going to try the Low Oxalate diet and the Anti-candida diet. I have also found on-line sources that suggest certain supplements and vitamins help. I tried these before and noticed a little improvement, but with the amount, cost and keeping up with it all, its difficult. But I have started to take this again and keep at it!

I also put tea tree oil in the bath, and apple cyder. Smells strange in the bathroom, but I find they help with soothing.

Do anyone else have any advice or remedies I could try?


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charly24

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Re: I'm new and this is my story...

Post  embem on Sun Apr 08, 2012 8:50 pm

Hi Charly,

I have found that the dilator helped me to recondition my body so I don't have to tense up and fear pain as much. I hope you find it helpful. Let me know if the supplements and vitamins help. I'm willing to try anything!

Good luck!

embem

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Re: I'm new and this is my story...

Post  charly24 on Sun Apr 08, 2012 10:26 pm

Hey!

Thank you for your message Very Happy .

I found on the internet a V-Kit, and it contained information about taking supplements. If you have a search for Vulvar Kit or V-kit, you should find it.

It contains supplements such as: Calcium Citrate, Flaxseed Oil, Grapeseed Oil, Olive Leaf Extract (which is very expensive, so I have not opted for that one yet!), Multi Vitamins, and applying calendula cream. I think the idea is to give your body a type of immune boost!

I am hoping it works, so I shall keep you posted Smile .

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Vulvodynia or VVS

Post  LizLemonny on Sun Apr 15, 2012 6:12 am

To answer the sex bit of your question... especially re the dryness... you must please Charly use lube and get to the psychological point that you don't feel bad about using it - build it into your routine. I don't know the right kind for you so I suggest you try some out before trying them during sex. I would use it whether or not you plan to try any penetration so you get used to it.

I've posted on this forum with some sex tips that might help you click here if interested. I DO (believe me) understand that you may not want to have penetrative sex at all and you just need to explore with your BF how this is going to work. I have found guys to be very different in their opinions about whether penetrative sex is essential. Some people on here have recommended anal sex; we tried this but weren't any good at it!

You can also get some lidocaine to have to hand to use after sex. It numbs down the pain enabling you to relax. You can also consider using it before trying sex (say around 20-30 mins before, then wipe it off using some lube so it doesn't numb your BF lol).

This also does the two things - numbs you a little bit (but still be careful as you might get hurt without being aware of it) and relaxes you (vital because tensing up does seem to make the pain get worse!).

Remember lubes can interfere with condoms so check the labels. I preferred sex with condoms to without as it was less friction on the area.

The less friction the less pain!!!

Good luck.


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Re: I'm new and this is my story...

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