Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
so happy to find you guys!! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
so happy to find you guys!! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
so happy to find you guys!! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
so happy to find you guys!! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
so happy to find you guys!! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
so happy to find you guys!! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
so happy to find you guys!! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
so happy to find you guys!! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
so happy to find you guys!! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


so happy to find you guys!!

5 posters

Go down

so happy to find you guys!! Empty so happy to find you guys!!

Post  Nic Tue Apr 10, 2012 6:37 pm

just wanted to say hey to everyone, cannot explain how happy I am to find this forum. I'm 25 and have had provoked vulvodynia for over 6 years now. The pain began when I became ill and was treated for months with antibiotics for glandular fever. I was first treated for severe thrush but when this went away and the pain remained, I was sent to the GUM clinic several times , everytime being told I was fine. After about 2 years I decided to go private and saw a bupa gp who told me I had a chronic fungal infection and advised me to change my diet. because of this I saw a nutritionist who put me on the anti-candida diet, this helped a little but still sufferring I decided to go back to my gp. I was then referred to a counsellor who after a few sessions was the one who recognised my symptoms and referred me to my local gyno David Nunns who diagnosed me with provoked vulvadynia. Since then I feel like I have tried everything - all the creams anti - depressents, lidocaine, dilators, I saw the physio but on the session i said that I felt it was helping slightly ( to me this was from pain that was making me cry my eyes out to pain i didnt cry as much!) I was told that was all she could do and I was being discharged. The only thing I feel that has helped me the most was acupunture but I just cant afford to carry this on at the moment. When I was referred to my gyno I was so pleased someone believed that I was having pain and that there was even a name for it, after researching I found that he was also involved in a lot research. However (might just be my experience) but I have not been to the hospital for over a year now as I feel like I'm not really listened to and have been asked several times if theres anything Iv seen on the internet (is it not his job to tell me whats available?!)
I feel so up and down with vulvadynia its ridiculous, iv accepted that iv got this condition and have been in a relationship for 7 years with the most supportive boyfriend i could ask for but at the moment I feel like I'm starting on the down again. Everything else in my life is the best its ever been at the moment apart from my vulvadynia which seems to be at its worst. I have a new job as an air hostess and I'm not sure if its that my body is under a lot of stress and tiredness that this is effecting it but I'm worried that me and my boyfriend are going back to not being physical at all because I know its going to be so painful again. I just dont know what to do anymore, I'm so sick of trawling the internet looking for something to take this away. I'm so sorry this has turned out to be quite a long post, got a abit carried away with typing to people that understand, can feel so alone sometimes! but anyways, hi everyone, its not great that we've all got this crappy thing but its fab to have finally found you all!! xxx

Nic

Posts : 1
Join date : 2012-04-10

Back to top Go down

so happy to find you guys!! Empty Re: so happy to find you guys!!

Post  Sarah001 Tue Apr 10, 2012 7:23 pm

Hi Nic and welcome. I'm really glad you posted that about David Nunns, I was supposed to be referred to him but it went to pain management instead and I've been mulling over whether to push for an appointment but conversations with my physio about what can he offer me that I can't get closer to home and your post have decided it for me and I'm not travelling hours to see someone who doesn't have anything different on offer, I too thought he'd be good because he's involved in research but seems he's maybe just a bit more interested but not better informed. Anyway, I was wondering if you had alot of physio or if you were given the 6 sessions then out that alot of hospitals have now? It seems a very odd point to stop physio if it started to help a bit! Did the physio look at your posture, gait, alignment as well as focus on your pelvic floor? I'm very interested in the physio side of things as that's what I'm currently pursuing but I have a couple of other complicating conditions that are making it very difficult and long winded! Have a good browse and again welcome.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

so happy to find you guys!! Empty Re: so happy to find you guys!!

Post  naomi Tue Apr 10, 2012 9:23 pm

Hello Nic and welcome to the forum!

Ur condition sounds v similar to mine. Provoked vestibulodynia/vulvodynia, all started from yeast infections, anti's.

I've been round the block regards specialists, I think David nunns was my 8th or 9th. He was useless, I saw him twice and I knew that using vibrators to stretch my vagina wasn't the way forward...tried telling him its pure agony, the skin cracks and bleeds. I gave up on him!

Was meant to have vestibulectomy tomorrow but had it cancelled today as I realised (after more painful prodding) that the sore areas were more than he was going to remove with a partial vestibulectomy. Also a part of me still thinks the doctor crandall yeast theory still gives a good fight for the reason I am where I am!

Glad u found us! I think I would have gone loopy by now without the forum and our Facebook group!
naomi
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

Back to top Go down

so happy to find you guys!! Empty Re: so happy to find you guys!!

Post  Sebby (Admin) Fri Apr 20, 2012 8:02 am

Welcome to the forum, I hope you find the support and advice you need here. You said that accupuncture helped. Is there no way you can get this on the nhs? Might be worth digging around to find out if there is a legal loophole where they have to fund it if its the only thing that's helping?
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

Back to top Go down

so happy to find you guys!! Empty hello

Post  chanel825 Wed Apr 25, 2012 7:50 am

Sorry you are suffering but please know you are not alone. My vulvodynia was so bad I could not have intercourse and with the nerve block Marcaine helped me alot. I dont know if you would like to ask your doctor about that. What I still have in no pain with intercourse but a lot of discharge and burning that has not gone away. It is very gross and very uncomfortable. God is great hope u get better

chanel825

Posts : 4
Join date : 2012-04-25

Back to top Go down

so happy to find you guys!! Empty Re: so happy to find you guys!!

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum