Vulvodynia Support
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» Hope to all my suffering ladies
CBT EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
CBT EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
CBT EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
CBT EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
CBT EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
CBT EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
CBT EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
CBT EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
CBT EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  naomi Mon Jul 26, 2010 2:09 pm

Has anyone ever had cognitive Behavioural Therapy?

Just I wonder if it is worth waiting for it on the NHS (can't afford to go privately).

I really get so negative with this condition that I know it is holding me back more (mentally). As when I was in Turkey on hol with my best friend a few weeks ago I managed to relax a bit for a few days, it was bliss. I cant remember the last time I had felt like that.

Wish I wasnt so hard on myself but I cant help it!!

Hope folks are ok today xxxxx
naomi
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Post  Sarah001 Mon Jul 26, 2010 6:10 pm

Funnily enough during my training in Hypnotherapy we learnt a bit about CBT and how the two compare and I always thought it to be a bit unbending and for me anyway it would be difficult to force myself to feel positive when it does't help with the pain. However saying that some people find it useful so you don't know unless you try!
Sarah001
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Post  naomi Mon Jul 26, 2010 6:36 pm

I managed to find a book in the library earlier 'CBT for Dummies'. I'll have a look but I think CBT on the NHS takes months on a waiting list where I am. Boooooo
naomi
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Post  Sarah001 Mon Jul 26, 2010 6:41 pm

I think it takes months everywhere because there aren't many CB therapists on the NHS. The book should give you a good idea of whether it seems right for you or not though, if you can wade your way through it!!
Sarah001
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Post  Sebby (Admin) Mon Jul 26, 2010 9:29 pm


I get threapy anyway as I also have anxiety and panic attacks. My therapist is multi disaplined but we have used cbt

I think actually a more person centred approach would work well for a Vulvodynia sufferer

This allows you to basically talk and talk about what you feel is most pressing. I find this approach is good to get fings off my chest and make sense of my feelings.

Its the basic talk therapy and is less structured than cbt, anyfing is worth a go tho

I highly recommend a good bit of therapy lol

Sebby xxxxxx
Sebby (Admin)
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Post  maggie Mon Jul 26, 2010 10:21 pm

Hi, i was sent for cbt last year on the nhs, and waited about 10 weeks, i was very low ,and found it hard to defocus from my pain, cbt for me at the time was not much help, all i wanted was this pain to go, then i was asked if i liked to try intensive sessions,which i found better, in the way that it changed some of my way of thinking, but to be really honest the only thing that has helped me to cope with this is taking duloxetine 60mg, mentally i'm so much better, still in pain everyday but coping better with it . I used to live the life of two people (sometimes i still do) the person that's out laughing and joking with friends and family, and the person when on her own just feels sad and want to be free of this pain. Hope cbt works for you. (Still waiting for accupunture at barts)
maggie.xx

maggie

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Post  Sebby (Admin) Tue Jul 27, 2010 9:17 pm


Hey Maggie,

Let me know how the accupuncture works. I didnt know that they did that at barts. That's not far from me.

And I can totally relate to feeling like two people. At work im like all jokes and getting on with it despite even finding it hard to sit at my desk some days.

Then I come home and im all tears and woe.

Its a blessing to have met all you girls on here

Sebby
xxx
Sebby (Admin)
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Post  julia Wed Jul 28, 2010 5:44 pm

I haven't had CBT, but I have had regular counselling in the past year that I still go to every month now. When i was feeling really low it helped me so much; the type I had was quite Freudian, ie she sits back and you talk and talk and talk and talk!... Very difficult at first with a complete stranger but gets so much easier and takes so much off your shoulders.

The woman I had (in kent) was brilliant as she would really listen and then pick out the themes in what I was saying, allowing me to make my own 'discoveries' about what I already knew about myself deep down but was avoiding... how very cheesy this all sounds. Anyway, she was good as she never told me what to do, but let me find out for myself. have you thought of generic counselling? You can get it on the NHS without too much of a wait, or go private for about £20-50 an hour, just make sure you go through the british association of counsellors so you get a fully qualified person.

julia

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Post  naomi Wed Jul 28, 2010 6:06 pm

I see a phycitrist/Psychotherapist (scuse the spelling I never get it right!) every thursday who goes through all of y medical stuff with me . Helps to chase up appointments by helping my draft letters, chase up my GP etc etc. Shes brilliant as I have to see her privately ( I wasnt mentally unstable enough to see her via NHS!...which is good i suppose!?!). Shes £100 an hr but as I see her weekly she reduced it to £60. Still a drain for my parents wallets but she does help practically.

Unforch I get so so low and down that she cant really help as my depression is reactive, ie if the gynae stuff was sorted my depression/anxiety would lift. I'd be bloody flying!!!

I just thought CBT would help. I thought id try all angles as I really struggle to even get out of bed most mornings.

naomi
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Post  Sarah001 Wed Jul 28, 2010 7:28 pm

I have to be honest and say, even though I know this problem gets us down, I'd rather spend that money on physical treatments such as women's health physio etc which at least has a chance of helping with the route cause. Reactive depression isn't going to get better by talking to someone but getting the pain and problem sorted would certainly help. Just my opinion and I actually am a therapist! If someone came to me with this kind of issue I would give them a relaxation CD to listen to and urge them to seek physical help instead.
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