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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

New and sharing my story

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New and sharing my story

Post  SThomas on Thu Apr 12, 2012 7:56 pm

I am so glad to find this site and share my problems. My story starts in 2006. I thought I had a yeast infection and treated it the way I had before... over the counter medicine. What I thought was a yeast infection was reacting differently to the medicine so I went to the gynecologist. The Dr. said I actually had bacterial vaginosis and gave me a prescription antibiotic. As soon as I was off the antibiotic and felt cleared of the infection my then boyfriend, now husband, and I tried to have sex. I burned like nothing I have felt before. I thought it was possibly because we used condoms with spermicide for the first time. But for the next 2 or 3 years, sex was off and on painful. I hated that after sex I would sometimes have to lay in the bed and not move because I burned so badly.
Finally in 2009, I was fed up with the pain and I went to my gynecologist, explained my situation, and she told me it sounded like Vulvodynia. She gave me an estrogen cream to put on as needed, I think trying to increase the elasticity in that area. And she gave me a lidocaine gel to put on my labia if I burned after sex. These two things have helped my situation, I my husband and I were able to conceive. Now I'm facing a vaginal delivery of c-section. And as much as I want to deliver vaginally, I am terrified of the trauma it was cause down there, which could make my situation worse.
Has anyone else been diagnosed with Vulvodynia after an on again, off again, extreme burning during or after sex? I sometimes still doubt I have this condition. Thanks for any feedback.


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Re: New and sharing my story

Post  junobug85 on Sun Apr 22, 2012 11:53 pm

Sorry I cannot help answer your question, but your story made me cry because it's my exact story.... My vulvadynia was triggered or caused by a vaginal infection as well. Sex has been possible for me, but I would cry through it with the lights off so my boyfriend didn't know. Afterwards it would burn so badly I would go into the bathroom, ice and cry more. I would then have to wait a week to have sex again for the swelling to go down. I never knew what was wrong with me and doctor's were no help. 5 years later, I have finally been diagnosed and reading your story makes me feel like I am not so alone so thank you. I would definitely talk to your doctor about delivering vaginally because I know that the vestibular glands tear quite a bit during child birth and I am not sure if that would aggravate your vulvadynia. I hope all goes well Smile


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