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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


New and sharing my story

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New and sharing my story

Post  SThomas on Thu Apr 12, 2012 7:56 pm

I am so glad to find this site and share my problems. My story starts in 2006. I thought I had a yeast infection and treated it the way I had before... over the counter medicine. What I thought was a yeast infection was reacting differently to the medicine so I went to the gynecologist. The Dr. said I actually had bacterial vaginosis and gave me a prescription antibiotic. As soon as I was off the antibiotic and felt cleared of the infection my then boyfriend, now husband, and I tried to have sex. I burned like nothing I have felt before. I thought it was possibly because we used condoms with spermicide for the first time. But for the next 2 or 3 years, sex was off and on painful. I hated that after sex I would sometimes have to lay in the bed and not move because I burned so badly.
Finally in 2009, I was fed up with the pain and I went to my gynecologist, explained my situation, and she told me it sounded like Vulvodynia. She gave me an estrogen cream to put on as needed, I think trying to increase the elasticity in that area. And she gave me a lidocaine gel to put on my labia if I burned after sex. These two things have helped my situation, I my husband and I were able to conceive. Now I'm facing a vaginal delivery of c-section. And as much as I want to deliver vaginally, I am terrified of the trauma it was cause down there, which could make my situation worse.
Has anyone else been diagnosed with Vulvodynia after an on again, off again, extreme burning during or after sex? I sometimes still doubt I have this condition. Thanks for any feedback.

SThomas

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Re: New and sharing my story

Post  junobug85 on Sun Apr 22, 2012 11:53 pm

Sorry I cannot help answer your question, but your story made me cry because it's my exact story.... My vulvadynia was triggered or caused by a vaginal infection as well. Sex has been possible for me, but I would cry through it with the lights off so my boyfriend didn't know. Afterwards it would burn so badly I would go into the bathroom, ice and cry more. I would then have to wait a week to have sex again for the swelling to go down. I never knew what was wrong with me and doctor's were no help. 5 years later, I have finally been diagnosed and reading your story makes me feel like I am not so alone so thank you. I would definitely talk to your doctor about delivering vaginally because I know that the vestibular glands tear quite a bit during child birth and I am not sure if that would aggravate your vulvadynia. I hope all goes well Smile

junobug85

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