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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

New and sharing my story

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New and sharing my story

Post  SThomas on Thu Apr 12, 2012 7:56 pm

I am so glad to find this site and share my problems. My story starts in 2006. I thought I had a yeast infection and treated it the way I had before... over the counter medicine. What I thought was a yeast infection was reacting differently to the medicine so I went to the gynecologist. The Dr. said I actually had bacterial vaginosis and gave me a prescription antibiotic. As soon as I was off the antibiotic and felt cleared of the infection my then boyfriend, now husband, and I tried to have sex. I burned like nothing I have felt before. I thought it was possibly because we used condoms with spermicide for the first time. But for the next 2 or 3 years, sex was off and on painful. I hated that after sex I would sometimes have to lay in the bed and not move because I burned so badly.
Finally in 2009, I was fed up with the pain and I went to my gynecologist, explained my situation, and she told me it sounded like Vulvodynia. She gave me an estrogen cream to put on as needed, I think trying to increase the elasticity in that area. And she gave me a lidocaine gel to put on my labia if I burned after sex. These two things have helped my situation, I my husband and I were able to conceive. Now I'm facing a vaginal delivery of c-section. And as much as I want to deliver vaginally, I am terrified of the trauma it was cause down there, which could make my situation worse.
Has anyone else been diagnosed with Vulvodynia after an on again, off again, extreme burning during or after sex? I sometimes still doubt I have this condition. Thanks for any feedback.


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Re: New and sharing my story

Post  junobug85 on Sun Apr 22, 2012 11:53 pm

Sorry I cannot help answer your question, but your story made me cry because it's my exact story.... My vulvadynia was triggered or caused by a vaginal infection as well. Sex has been possible for me, but I would cry through it with the lights off so my boyfriend didn't know. Afterwards it would burn so badly I would go into the bathroom, ice and cry more. I would then have to wait a week to have sex again for the swelling to go down. I never knew what was wrong with me and doctor's were no help. 5 years later, I have finally been diagnosed and reading your story makes me feel like I am not so alone so thank you. I would definitely talk to your doctor about delivering vaginally because I know that the vestibular glands tear quite a bit during child birth and I am not sure if that would aggravate your vulvadynia. I hope all goes well Smile


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