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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

New and sharing my story

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New and sharing my story

Post  SThomas on Thu Apr 12, 2012 7:56 pm

I am so glad to find this site and share my problems. My story starts in 2006. I thought I had a yeast infection and treated it the way I had before... over the counter medicine. What I thought was a yeast infection was reacting differently to the medicine so I went to the gynecologist. The Dr. said I actually had bacterial vaginosis and gave me a prescription antibiotic. As soon as I was off the antibiotic and felt cleared of the infection my then boyfriend, now husband, and I tried to have sex. I burned like nothing I have felt before. I thought it was possibly because we used condoms with spermicide for the first time. But for the next 2 or 3 years, sex was off and on painful. I hated that after sex I would sometimes have to lay in the bed and not move because I burned so badly.
Finally in 2009, I was fed up with the pain and I went to my gynecologist, explained my situation, and she told me it sounded like Vulvodynia. She gave me an estrogen cream to put on as needed, I think trying to increase the elasticity in that area. And she gave me a lidocaine gel to put on my labia if I burned after sex. These two things have helped my situation, I my husband and I were able to conceive. Now I'm facing a vaginal delivery of c-section. And as much as I want to deliver vaginally, I am terrified of the trauma it was cause down there, which could make my situation worse.
Has anyone else been diagnosed with Vulvodynia after an on again, off again, extreme burning during or after sex? I sometimes still doubt I have this condition. Thanks for any feedback.


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Re: New and sharing my story

Post  junobug85 on Sun Apr 22, 2012 11:53 pm

Sorry I cannot help answer your question, but your story made me cry because it's my exact story.... My vulvadynia was triggered or caused by a vaginal infection as well. Sex has been possible for me, but I would cry through it with the lights off so my boyfriend didn't know. Afterwards it would burn so badly I would go into the bathroom, ice and cry more. I would then have to wait a week to have sex again for the swelling to go down. I never knew what was wrong with me and doctor's were no help. 5 years later, I have finally been diagnosed and reading your story makes me feel like I am not so alone so thank you. I would definitely talk to your doctor about delivering vaginally because I know that the vestibular glands tear quite a bit during child birth and I am not sure if that would aggravate your vulvadynia. I hope all goes well Smile


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