Vulvodynia Support
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» Hope to all my suffering ladies
so.. its not a bladder infection.. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
so.. its not a bladder infection.. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
so.. its not a bladder infection.. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
so.. its not a bladder infection.. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
so.. its not a bladder infection.. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
so.. its not a bladder infection.. EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
so.. its not a bladder infection.. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
so.. its not a bladder infection.. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
so.. its not a bladder infection.. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


so.. its not a bladder infection..

3 posters

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so.. its not a bladder infection.. Empty so.. its not a bladder infection..

Post  forever-blossoming Sat Feb 25, 2012 7:32 am

im just a high school student trying my best to fit into the norms of the society, while doing my best in high school to one day reach the fashion industry until one day in my final year of year 11 i kept running to the bathroom to the point where i had to tell teachers 'i need a drink'...ironic huh? this became my excessive excuse until teachers began to notice it becoming a habit. the moment i had to start lying about going to the bathroom, i felt so embarrassed. i was convinved it was a bladder infection. i told the doctors about it and they were convinced too, but it didnt appear in urine tests that i had a bladder infection. the doctor said ' sometimes it doesnt show in tests, but your symptoms are compatible'. for me i was reliefed that i was give some tablets for releif .. until i didnt get relief.. this has carried on for 5 months. 5 days a week at school. 6 hours a day. i couldnt go on important excursions because i felt like i need to run to the bathroom. ive missed out on so much, and my grades have gone down abit cause of this too. now im so concerned for when im older and want to go to uni and got ajob... whos going to want to employ the girl with the peeing problem, when they could hire someone who can not go to the bathrom for 7 hours.
i have my mid term exams for my final year coming up and im already planning that im going to need 6 doctors certificates !
these past five months have been a roller coaster for me.. i had a friend who would sometimes forget bout my problem and tease me a bit, and then i had another one who is incrediably understanding and would ask me if i needed to go and wouldnt blame me if we missed a bus cause i need to go to the bathroom.
thats another thing. public transport. i cant travel for long then 10ish minutes without the sensation of needing to go. i always think to myself when is this going to stop ! i hate it ! i feel like this stupid problem is controlling my life . but them there are times where i just accept it and try my best to embrace it and that now its apart of who i am.

forever-blossoming

Posts : 1
Join date : 2012-02-25

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Post  mmorgan Sun Feb 26, 2012 5:35 am

Sounds like IC, you should check out the ic forum. On my phone so can't link you. But its really helpful.
mmorgan
mmorgan

Posts : 65
Join date : 2011-07-14
Age : 35
Location : Texas

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Post  junobug85 Sun Apr 22, 2012 11:55 pm

you may have an overactive bladder, there are pills for that as well

junobug85

Posts : 14
Join date : 2012-04-22

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