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» Share your Vulvodynia Story and become a member of the Global Anthology!
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» The pain CAN get better - What's worked for me
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» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Girlfriend has vulvodynia, please help!

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Girlfriend has vulvodynia, please help!

Post  jdh1982 on Thu Apr 19, 2012 3:26 am

I've been with my girlfriend for the last two years and I was her first (she was a virgin). She is 24 now and within the last year or so she said when we had sex it burned intensely but from the first time of having sex it burned just not as badly, so we tried different condoms because she said her sister was allergic to latex so she figured she was too. So I bought polypropelene condoms and for a little while those worked but then a couple of months later she kept saying it still burned. Then I tried polyisoprene condoms, same result. She is a bigger girl and has quite a few health problems but recently it seems that when I try to go into her it feels different, like it's much tighter and it takes so much work to get it in and she used to be super wet but now she is super dry and doesn't want to do anything. I could see the look on her face and she was in so much pain so I stopped, this is all so new and confusing for both of us. She isn't on any kind of insurance and can't afford surgery but is there anything I can do to help her so we can work this out? I've read a lot of things on this forum and online about this disease and it's just awful and so painful, I want so much to help her through this and support her but I don't know how to start. She has the UTIs and brown discharge, she thought she had a yeast infection but I don't know. What advice can you guys give me on this? We've stopped being intimate altogether and it's killing our relationship, what can I do?

BTW, what do you all think about Dr. Glazer's Vulvodynia Survival Guide?

jdh1982

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Re: Girlfriend has vulvodynia, please help!

Post  Sarah001 on Thu Apr 19, 2012 11:27 am

Sounds to me like the initial pain from the condom allergy set up clenching in the pelvic floor. She needs to see a Women's Health Physio, I don't know where you are in the world but they have them on the NHS here in the UK. No sex while her muscles are tight and it can take a few months to see a difference but if you're finding it hard to penetrate her she definitely does have tight muscles. The dryness is a factor in vulvar pain and I suspect the pain she's expecting is interfering with her body's natural responses.

I don't recommend that book no because it's mostly statistics but I do recommend "When Sex Hurts" by Andrew Goldstein to explain it all better and list all the known causes or "Heal Pelvic Pain" by Amy Stein to explain some self help techniques for the muscles.
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Sarah001

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Re: Girlfriend has vulvodynia, please help!

Post  jdh1982 on Thu Apr 19, 2012 8:46 pm

Thanks for the reply sarah, I am located in southern U.S. (Arkansas). I'm trying to get all the info that I can to help her, she was just saying last night that it seems to hurt more when we use the condoms as opposed to without, she seems to prefer without but she says it still hurts. I will see if I can pick up a copy of one of those books, are there any creams or ointments or household items I could use to help her with the burning and to help her relax? Also, she thought she had a yeast infection so we tried the 3 day treatment and she said it burned when she would pee. I heard that ph balance and acids in the body might play a role in this, should I maybe pick up a bottle of calcium citrate to help with that?

jdh1982

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Gabapentin

Post  jdh1982 on Fri Apr 20, 2012 1:33 am

Oh and I have been reading that gabapentin seems to help with some of the irritation/burning from some women on here. Provided that it's safe, where can I order this online without a prescription? Would this be a good idea or am I getting too ahead of myself?

jdh1982

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Hello :)

Post  sadone on Fri Apr 20, 2012 4:15 pm

The best thing you can do for her right now is not to try to have penetrative sex. Do other things and let her heal. If she's anything like the rest of us here- she's probably feeling awful about the whole thing- physically and mentally. By taking the pressure off of her, she can concentrate on getting well without feeling badly about not being able to please you. It's great that you are taking an interest in her health and well-being and posting on this site. Wishing you and your gf the best!! Smile

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Hi sadone :)

Post  jdh1982 on Fri Apr 20, 2012 9:55 pm

Thank you for the kind words, I really am trying to understand this because it is so dibilitating and she already has a lot of other health problems. She has polycystic ovarian syndrome and ptsd, but it's hard to deal with them because she has no money or health insurance so a specialist is out of the question for now. I've thought about buying her some dilators and seeing if that helps her at all, it's almost like this illness is similar to fibromyalgia. Do you suppose maybe if we avoided penetration altogether for awhile that there is a possibility it will heal on it's own?

jdh1982

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Re: Girlfriend has vulvodynia, please help!

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