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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Girlfriend has vulvodynia, please help!

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Girlfriend has vulvodynia, please help!

Post  jdh1982 on Thu Apr 19, 2012 3:26 am

I've been with my girlfriend for the last two years and I was her first (she was a virgin). She is 24 now and within the last year or so she said when we had sex it burned intensely but from the first time of having sex it burned just not as badly, so we tried different condoms because she said her sister was allergic to latex so she figured she was too. So I bought polypropelene condoms and for a little while those worked but then a couple of months later she kept saying it still burned. Then I tried polyisoprene condoms, same result. She is a bigger girl and has quite a few health problems but recently it seems that when I try to go into her it feels different, like it's much tighter and it takes so much work to get it in and she used to be super wet but now she is super dry and doesn't want to do anything. I could see the look on her face and she was in so much pain so I stopped, this is all so new and confusing for both of us. She isn't on any kind of insurance and can't afford surgery but is there anything I can do to help her so we can work this out? I've read a lot of things on this forum and online about this disease and it's just awful and so painful, I want so much to help her through this and support her but I don't know how to start. She has the UTIs and brown discharge, she thought she had a yeast infection but I don't know. What advice can you guys give me on this? We've stopped being intimate altogether and it's killing our relationship, what can I do?

BTW, what do you all think about Dr. Glazer's Vulvodynia Survival Guide?

jdh1982

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Re: Girlfriend has vulvodynia, please help!

Post  Sarah001 on Thu Apr 19, 2012 11:27 am

Sounds to me like the initial pain from the condom allergy set up clenching in the pelvic floor. She needs to see a Women's Health Physio, I don't know where you are in the world but they have them on the NHS here in the UK. No sex while her muscles are tight and it can take a few months to see a difference but if you're finding it hard to penetrate her she definitely does have tight muscles. The dryness is a factor in vulvar pain and I suspect the pain she's expecting is interfering with her body's natural responses.

I don't recommend that book no because it's mostly statistics but I do recommend "When Sex Hurts" by Andrew Goldstein to explain it all better and list all the known causes or "Heal Pelvic Pain" by Amy Stein to explain some self help techniques for the muscles.
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Sarah001

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Re: Girlfriend has vulvodynia, please help!

Post  jdh1982 on Thu Apr 19, 2012 8:46 pm

Thanks for the reply sarah, I am located in southern U.S. (Arkansas). I'm trying to get all the info that I can to help her, she was just saying last night that it seems to hurt more when we use the condoms as opposed to without, she seems to prefer without but she says it still hurts. I will see if I can pick up a copy of one of those books, are there any creams or ointments or household items I could use to help her with the burning and to help her relax? Also, she thought she had a yeast infection so we tried the 3 day treatment and she said it burned when she would pee. I heard that ph balance and acids in the body might play a role in this, should I maybe pick up a bottle of calcium citrate to help with that?

jdh1982

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Gabapentin

Post  jdh1982 on Fri Apr 20, 2012 1:33 am

Oh and I have been reading that gabapentin seems to help with some of the irritation/burning from some women on here. Provided that it's safe, where can I order this online without a prescription? Would this be a good idea or am I getting too ahead of myself?

jdh1982

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Hello :)

Post  sadone on Fri Apr 20, 2012 4:15 pm

The best thing you can do for her right now is not to try to have penetrative sex. Do other things and let her heal. If she's anything like the rest of us here- she's probably feeling awful about the whole thing- physically and mentally. By taking the pressure off of her, she can concentrate on getting well without feeling badly about not being able to please you. It's great that you are taking an interest in her health and well-being and posting on this site. Wishing you and your gf the best!! Smile

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Hi sadone :)

Post  jdh1982 on Fri Apr 20, 2012 9:55 pm

Thank you for the kind words, I really am trying to understand this because it is so dibilitating and she already has a lot of other health problems. She has polycystic ovarian syndrome and ptsd, but it's hard to deal with them because she has no money or health insurance so a specialist is out of the question for now. I've thought about buying her some dilators and seeing if that helps her at all, it's almost like this illness is similar to fibromyalgia. Do you suppose maybe if we avoided penetration altogether for awhile that there is a possibility it will heal on it's own?

jdh1982

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Re: Girlfriend has vulvodynia, please help!

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