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Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Girlfriend has vulvodynia, please help!

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Girlfriend has vulvodynia, please help!

Post  jdh1982 on Thu Apr 19, 2012 3:26 am

I've been with my girlfriend for the last two years and I was her first (she was a virgin). She is 24 now and within the last year or so she said when we had sex it burned intensely but from the first time of having sex it burned just not as badly, so we tried different condoms because she said her sister was allergic to latex so she figured she was too. So I bought polypropelene condoms and for a little while those worked but then a couple of months later she kept saying it still burned. Then I tried polyisoprene condoms, same result. She is a bigger girl and has quite a few health problems but recently it seems that when I try to go into her it feels different, like it's much tighter and it takes so much work to get it in and she used to be super wet but now she is super dry and doesn't want to do anything. I could see the look on her face and she was in so much pain so I stopped, this is all so new and confusing for both of us. She isn't on any kind of insurance and can't afford surgery but is there anything I can do to help her so we can work this out? I've read a lot of things on this forum and online about this disease and it's just awful and so painful, I want so much to help her through this and support her but I don't know how to start. She has the UTIs and brown discharge, she thought she had a yeast infection but I don't know. What advice can you guys give me on this? We've stopped being intimate altogether and it's killing our relationship, what can I do?

BTW, what do you all think about Dr. Glazer's Vulvodynia Survival Guide?

jdh1982

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Re: Girlfriend has vulvodynia, please help!

Post  Sarah001 on Thu Apr 19, 2012 11:27 am

Sounds to me like the initial pain from the condom allergy set up clenching in the pelvic floor. She needs to see a Women's Health Physio, I don't know where you are in the world but they have them on the NHS here in the UK. No sex while her muscles are tight and it can take a few months to see a difference but if you're finding it hard to penetrate her she definitely does have tight muscles. The dryness is a factor in vulvar pain and I suspect the pain she's expecting is interfering with her body's natural responses.

I don't recommend that book no because it's mostly statistics but I do recommend "When Sex Hurts" by Andrew Goldstein to explain it all better and list all the known causes or "Heal Pelvic Pain" by Amy Stein to explain some self help techniques for the muscles.
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Sarah001

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Re: Girlfriend has vulvodynia, please help!

Post  jdh1982 on Thu Apr 19, 2012 8:46 pm

Thanks for the reply sarah, I am located in southern U.S. (Arkansas). I'm trying to get all the info that I can to help her, she was just saying last night that it seems to hurt more when we use the condoms as opposed to without, she seems to prefer without but she says it still hurts. I will see if I can pick up a copy of one of those books, are there any creams or ointments or household items I could use to help her with the burning and to help her relax? Also, she thought she had a yeast infection so we tried the 3 day treatment and she said it burned when she would pee. I heard that ph balance and acids in the body might play a role in this, should I maybe pick up a bottle of calcium citrate to help with that?

jdh1982

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Gabapentin

Post  jdh1982 on Fri Apr 20, 2012 1:33 am

Oh and I have been reading that gabapentin seems to help with some of the irritation/burning from some women on here. Provided that it's safe, where can I order this online without a prescription? Would this be a good idea or am I getting too ahead of myself?

jdh1982

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Hello :)

Post  sadone on Fri Apr 20, 2012 4:15 pm

The best thing you can do for her right now is not to try to have penetrative sex. Do other things and let her heal. If she's anything like the rest of us here- she's probably feeling awful about the whole thing- physically and mentally. By taking the pressure off of her, she can concentrate on getting well without feeling badly about not being able to please you. It's great that you are taking an interest in her health and well-being and posting on this site. Wishing you and your gf the best!! Smile

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Hi sadone :)

Post  jdh1982 on Fri Apr 20, 2012 9:55 pm

Thank you for the kind words, I really am trying to understand this because it is so dibilitating and she already has a lot of other health problems. She has polycystic ovarian syndrome and ptsd, but it's hard to deal with them because she has no money or health insurance so a specialist is out of the question for now. I've thought about buying her some dilators and seeing if that helps her at all, it's almost like this illness is similar to fibromyalgia. Do you suppose maybe if we avoided penetration altogether for awhile that there is a possibility it will heal on it's own?

jdh1982

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Re: Girlfriend has vulvodynia, please help!

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