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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Girlfriend has vulvodynia, please help!

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Girlfriend has vulvodynia, please help!

Post  jdh1982 on Thu Apr 19, 2012 3:26 am

I've been with my girlfriend for the last two years and I was her first (she was a virgin). She is 24 now and within the last year or so she said when we had sex it burned intensely but from the first time of having sex it burned just not as badly, so we tried different condoms because she said her sister was allergic to latex so she figured she was too. So I bought polypropelene condoms and for a little while those worked but then a couple of months later she kept saying it still burned. Then I tried polyisoprene condoms, same result. She is a bigger girl and has quite a few health problems but recently it seems that when I try to go into her it feels different, like it's much tighter and it takes so much work to get it in and she used to be super wet but now she is super dry and doesn't want to do anything. I could see the look on her face and she was in so much pain so I stopped, this is all so new and confusing for both of us. She isn't on any kind of insurance and can't afford surgery but is there anything I can do to help her so we can work this out? I've read a lot of things on this forum and online about this disease and it's just awful and so painful, I want so much to help her through this and support her but I don't know how to start. She has the UTIs and brown discharge, she thought she had a yeast infection but I don't know. What advice can you guys give me on this? We've stopped being intimate altogether and it's killing our relationship, what can I do?

BTW, what do you all think about Dr. Glazer's Vulvodynia Survival Guide?


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Re: Girlfriend has vulvodynia, please help!

Post  Sarah001 on Thu Apr 19, 2012 11:27 am

Sounds to me like the initial pain from the condom allergy set up clenching in the pelvic floor. She needs to see a Women's Health Physio, I don't know where you are in the world but they have them on the NHS here in the UK. No sex while her muscles are tight and it can take a few months to see a difference but if you're finding it hard to penetrate her she definitely does have tight muscles. The dryness is a factor in vulvar pain and I suspect the pain she's expecting is interfering with her body's natural responses.

I don't recommend that book no because it's mostly statistics but I do recommend "When Sex Hurts" by Andrew Goldstein to explain it all better and list all the known causes or "Heal Pelvic Pain" by Amy Stein to explain some self help techniques for the muscles.

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Re: Girlfriend has vulvodynia, please help!

Post  jdh1982 on Thu Apr 19, 2012 8:46 pm

Thanks for the reply sarah, I am located in southern U.S. (Arkansas). I'm trying to get all the info that I can to help her, she was just saying last night that it seems to hurt more when we use the condoms as opposed to without, she seems to prefer without but she says it still hurts. I will see if I can pick up a copy of one of those books, are there any creams or ointments or household items I could use to help her with the burning and to help her relax? Also, she thought she had a yeast infection so we tried the 3 day treatment and she said it burned when she would pee. I heard that ph balance and acids in the body might play a role in this, should I maybe pick up a bottle of calcium citrate to help with that?


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Post  jdh1982 on Fri Apr 20, 2012 1:33 am

Oh and I have been reading that gabapentin seems to help with some of the irritation/burning from some women on here. Provided that it's safe, where can I order this online without a prescription? Would this be a good idea or am I getting too ahead of myself?


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Hello :)

Post  sadone on Fri Apr 20, 2012 4:15 pm

The best thing you can do for her right now is not to try to have penetrative sex. Do other things and let her heal. If she's anything like the rest of us here- she's probably feeling awful about the whole thing- physically and mentally. By taking the pressure off of her, she can concentrate on getting well without feeling badly about not being able to please you. It's great that you are taking an interest in her health and well-being and posting on this site. Wishing you and your gf the best!! Smile


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Hi sadone :)

Post  jdh1982 on Fri Apr 20, 2012 9:55 pm

Thank you for the kind words, I really am trying to understand this because it is so dibilitating and she already has a lot of other health problems. She has polycystic ovarian syndrome and ptsd, but it's hard to deal with them because she has no money or health insurance so a specialist is out of the question for now. I've thought about buying her some dilators and seeing if that helps her at all, it's almost like this illness is similar to fibromyalgia. Do you suppose maybe if we avoided penetration altogether for awhile that there is a possibility it will heal on it's own?


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Re: Girlfriend has vulvodynia, please help!

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