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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Is this Normal?

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Is this Normal?

Post  Aubrey_rose on Tue Apr 24, 2012 11:04 pm

So, I have been suffering with Vulvodynia for about a year now.
Because of the pain I associate with sex I have gotten to the point where I don't even have the desire to try anymore. My Fiance won't initiate, because he knows it will probably hurt me. But on the off chance that he does, All I can do is roll over and say I'm tired, or maybe tomorrow. Which I know hurts him. I can hardly even give him more of a peck for a kiss, because I know what it might lead to.

So ladies, Is this normal?
Do the rest of you have no Sexual desire too, or am I just weird?


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Re: Is this Normal?

Post  Loulou on Wed Apr 25, 2012 5:23 pm

Hi Aubrey

No you're not wierd. I think most vvd suffers have experienced some sort of sexual issue - it goes with the territory unfortunately. It sounds like a pat answer but I think the important thing is to make sure you talk about it with your fiance so you understand exactly how each of you is feeling - don't close off from each other. And try not to lose all intimacy - there's plenty you can do when you can't have penetrative sex. Other threads here give more advice on how to deal with this - have a browse.



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Re is this normal

Post  Sunflower82 on Wed Apr 25, 2012 7:16 pm

I posted a reply to u, but by accident posted it as a new post, title is not weird at all. Hope this helps



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Re: Is this Normal?

Post  Aubrey_rose on Thu Apr 26, 2012 1:07 am

Thank you. And yeah, it did help. Just having people who understand is great.
And I just started an antidepressent that is supposed to help with the pain. So heres to hoping!


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I'm right there with you

Post  raquelll on Wed Jul 04, 2012 7:14 pm

The same thing is happening to me, even though it feels really out of my control! It's like...I want to desire sex but my body is saying no. I've had V for a lot of my life now that I think about it (could never use tampons, always felt very sensitive down there) but it seems that a latex allergy that developed the more I had sex really aggravated it. So over the past two years it has been getting worse.

I'm in a fairly new relationship and we're moving in together and moving across the country for jobs - that in itself is stress-inducing. And it's like I never had to face this until now - before we were long distance and I could just ignore it and not think about it when we weren't together but now we're together all the time and it's worse. We finally had vaginal sex once about a week ago but it was so painful it was like the straw that broke the camel's back - my body is just saying an absolute NO to sex and I have 0 sex drive. It's really disorienting and confusing! I always used to love having sex and had a fairly high sex drive. I feel like a part of my life is dulled.

So anyway...you're not alone - it's so easy to let our minds go bad places with this and feel like we'll never get better or have a normal sex life again!

Good luck!


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Re: Is this Normal?

Post  junobug85 on Fri Jul 06, 2012 2:50 am

Does this ever actually go away on its own for anyone like some articles say? I have suffered for 5 years now and was always hopeful one day it would disappear and my sex drive would come back and I would have great sex again and feel like a normal person and woman again but the more that time passes I think that this may be my life forever and it terrifies me.... I am single and as much as I hate being alone, it makes this condition easier because I don't have to worry about it affecting someone else..


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Hang in there

Post  jmcmil on Sat Jul 07, 2012 3:56 am

Please don't give up! Please know that we have to keep searching and trying new things to get us through this illness. I have felt like my vaginal pain is my destiny, however I refuse to stop trying new ideas or techniques suggested on this site. Your pain might go away on its own, however you could try to help reduce your pain with suggestions from this site in the meantime. The more proactive the better, that's what I try to tell myself. I know it's hard and feel your daily struggle. Thanks for sharing.


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Re: Is this Normal?

Post  SimplyBelle on Sat Jul 07, 2012 6:19 am

I too have lost a lot of my sexual desire for sexuality and intimacy, but my husband keeps trying. He's just got to be very patient. I recently went to a passion party and picked up some intimacy gel which you put on your clitoris. The consultant said that after 14 days it should help reboot my desires, I know that it kicks it up a little bit even when used a little.

My biggest problem after that is the fear and feelings of being inadequate once sexual stuff is happening. Usually I end up calling it off because of fear and being scared Sad So I get all aroused and ready to go (thanks to this gel stuff) but then I get scared because of my psychological associations with pain and sex.


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Re: Is this Normal?

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