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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

Is this Normal?

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Is this Normal?

Post  Aubrey_rose on Tue Apr 24, 2012 11:04 pm

So, I have been suffering with Vulvodynia for about a year now.
Because of the pain I associate with sex I have gotten to the point where I don't even have the desire to try anymore. My Fiance won't initiate, because he knows it will probably hurt me. But on the off chance that he does, All I can do is roll over and say I'm tired, or maybe tomorrow. Which I know hurts him. I can hardly even give him more of a peck for a kiss, because I know what it might lead to.

So ladies, Is this normal?
Do the rest of you have no Sexual desire too, or am I just weird?


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Re: Is this Normal?

Post  Loulou on Wed Apr 25, 2012 5:23 pm

Hi Aubrey

No you're not wierd. I think most vvd suffers have experienced some sort of sexual issue - it goes with the territory unfortunately. It sounds like a pat answer but I think the important thing is to make sure you talk about it with your fiance so you understand exactly how each of you is feeling - don't close off from each other. And try not to lose all intimacy - there's plenty you can do when you can't have penetrative sex. Other threads here give more advice on how to deal with this - have a browse.



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Re is this normal

Post  Sunflower82 on Wed Apr 25, 2012 7:16 pm

I posted a reply to u, but by accident posted it as a new post, title is not weird at all. Hope this helps



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Re: Is this Normal?

Post  Aubrey_rose on Thu Apr 26, 2012 1:07 am

Thank you. And yeah, it did help. Just having people who understand is great.
And I just started an antidepressent that is supposed to help with the pain. So heres to hoping!


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I'm right there with you

Post  raquelll on Wed Jul 04, 2012 7:14 pm

The same thing is happening to me, even though it feels really out of my control! It's like...I want to desire sex but my body is saying no. I've had V for a lot of my life now that I think about it (could never use tampons, always felt very sensitive down there) but it seems that a latex allergy that developed the more I had sex really aggravated it. So over the past two years it has been getting worse.

I'm in a fairly new relationship and we're moving in together and moving across the country for jobs - that in itself is stress-inducing. And it's like I never had to face this until now - before we were long distance and I could just ignore it and not think about it when we weren't together but now we're together all the time and it's worse. We finally had vaginal sex once about a week ago but it was so painful it was like the straw that broke the camel's back - my body is just saying an absolute NO to sex and I have 0 sex drive. It's really disorienting and confusing! I always used to love having sex and had a fairly high sex drive. I feel like a part of my life is dulled.

So anyway...you're not alone - it's so easy to let our minds go bad places with this and feel like we'll never get better or have a normal sex life again!

Good luck!


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Re: Is this Normal?

Post  junobug85 on Fri Jul 06, 2012 2:50 am

Does this ever actually go away on its own for anyone like some articles say? I have suffered for 5 years now and was always hopeful one day it would disappear and my sex drive would come back and I would have great sex again and feel like a normal person and woman again but the more that time passes I think that this may be my life forever and it terrifies me.... I am single and as much as I hate being alone, it makes this condition easier because I don't have to worry about it affecting someone else..


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Hang in there

Post  jmcmil on Sat Jul 07, 2012 3:56 am

Please don't give up! Please know that we have to keep searching and trying new things to get us through this illness. I have felt like my vaginal pain is my destiny, however I refuse to stop trying new ideas or techniques suggested on this site. Your pain might go away on its own, however you could try to help reduce your pain with suggestions from this site in the meantime. The more proactive the better, that's what I try to tell myself. I know it's hard and feel your daily struggle. Thanks for sharing.


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Re: Is this Normal?

Post  SimplyBelle on Sat Jul 07, 2012 6:19 am

I too have lost a lot of my sexual desire for sexuality and intimacy, but my husband keeps trying. He's just got to be very patient. I recently went to a passion party and picked up some intimacy gel which you put on your clitoris. The consultant said that after 14 days it should help reboot my desires, I know that it kicks it up a little bit even when used a little.

My biggest problem after that is the fear and feelings of being inadequate once sexual stuff is happening. Usually I end up calling it off because of fear and being scared Sad So I get all aroused and ready to go (thanks to this gel stuff) but then I get scared because of my psychological associations with pain and sex.


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Re: Is this Normal?

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