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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Is this Normal?

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Is this Normal?

Post  Aubrey_rose on Tue Apr 24, 2012 11:04 pm

So, I have been suffering with Vulvodynia for about a year now.
Because of the pain I associate with sex I have gotten to the point where I don't even have the desire to try anymore. My Fiance won't initiate, because he knows it will probably hurt me. But on the off chance that he does, All I can do is roll over and say I'm tired, or maybe tomorrow. Which I know hurts him. I can hardly even give him more of a peck for a kiss, because I know what it might lead to.

So ladies, Is this normal?
Do the rest of you have no Sexual desire too, or am I just weird?


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Re: Is this Normal?

Post  Loulou on Wed Apr 25, 2012 5:23 pm

Hi Aubrey

No you're not wierd. I think most vvd suffers have experienced some sort of sexual issue - it goes with the territory unfortunately. It sounds like a pat answer but I think the important thing is to make sure you talk about it with your fiance so you understand exactly how each of you is feeling - don't close off from each other. And try not to lose all intimacy - there's plenty you can do when you can't have penetrative sex. Other threads here give more advice on how to deal with this - have a browse.



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Re is this normal

Post  Sunflower82 on Wed Apr 25, 2012 7:16 pm

I posted a reply to u, but by accident posted it as a new post, title is not weird at all. Hope this helps



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Re: Is this Normal?

Post  Aubrey_rose on Thu Apr 26, 2012 1:07 am

Thank you. And yeah, it did help. Just having people who understand is great.
And I just started an antidepressent that is supposed to help with the pain. So heres to hoping!


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I'm right there with you

Post  raquelll on Wed Jul 04, 2012 7:14 pm

The same thing is happening to me, even though it feels really out of my control! It's like...I want to desire sex but my body is saying no. I've had V for a lot of my life now that I think about it (could never use tampons, always felt very sensitive down there) but it seems that a latex allergy that developed the more I had sex really aggravated it. So over the past two years it has been getting worse.

I'm in a fairly new relationship and we're moving in together and moving across the country for jobs - that in itself is stress-inducing. And it's like I never had to face this until now - before we were long distance and I could just ignore it and not think about it when we weren't together but now we're together all the time and it's worse. We finally had vaginal sex once about a week ago but it was so painful it was like the straw that broke the camel's back - my body is just saying an absolute NO to sex and I have 0 sex drive. It's really disorienting and confusing! I always used to love having sex and had a fairly high sex drive. I feel like a part of my life is dulled.

So anyway...you're not alone - it's so easy to let our minds go bad places with this and feel like we'll never get better or have a normal sex life again!

Good luck!


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Re: Is this Normal?

Post  junobug85 on Fri Jul 06, 2012 2:50 am

Does this ever actually go away on its own for anyone like some articles say? I have suffered for 5 years now and was always hopeful one day it would disappear and my sex drive would come back and I would have great sex again and feel like a normal person and woman again but the more that time passes I think that this may be my life forever and it terrifies me.... I am single and as much as I hate being alone, it makes this condition easier because I don't have to worry about it affecting someone else..


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Hang in there

Post  jmcmil on Sat Jul 07, 2012 3:56 am

Please don't give up! Please know that we have to keep searching and trying new things to get us through this illness. I have felt like my vaginal pain is my destiny, however I refuse to stop trying new ideas or techniques suggested on this site. Your pain might go away on its own, however you could try to help reduce your pain with suggestions from this site in the meantime. The more proactive the better, that's what I try to tell myself. I know it's hard and feel your daily struggle. Thanks for sharing.


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Re: Is this Normal?

Post  SimplyBelle on Sat Jul 07, 2012 6:19 am

I too have lost a lot of my sexual desire for sexuality and intimacy, but my husband keeps trying. He's just got to be very patient. I recently went to a passion party and picked up some intimacy gel which you put on your clitoris. The consultant said that after 14 days it should help reboot my desires, I know that it kicks it up a little bit even when used a little.

My biggest problem after that is the fear and feelings of being inadequate once sexual stuff is happening. Usually I end up calling it off because of fear and being scared Sad So I get all aroused and ready to go (thanks to this gel stuff) but then I get scared because of my psychological associations with pain and sex.


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Re: Is this Normal?

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