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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Is this Normal?

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Is this Normal?

Post  Aubrey_rose on Tue Apr 24, 2012 11:04 pm

So, I have been suffering with Vulvodynia for about a year now.
Because of the pain I associate with sex I have gotten to the point where I don't even have the desire to try anymore. My Fiance won't initiate, because he knows it will probably hurt me. But on the off chance that he does, All I can do is roll over and say I'm tired, or maybe tomorrow. Which I know hurts him. I can hardly even give him more of a peck for a kiss, because I know what it might lead to.

So ladies, Is this normal?
Do the rest of you have no Sexual desire too, or am I just weird?


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Re: Is this Normal?

Post  Loulou on Wed Apr 25, 2012 5:23 pm

Hi Aubrey

No you're not wierd. I think most vvd suffers have experienced some sort of sexual issue - it goes with the territory unfortunately. It sounds like a pat answer but I think the important thing is to make sure you talk about it with your fiance so you understand exactly how each of you is feeling - don't close off from each other. And try not to lose all intimacy - there's plenty you can do when you can't have penetrative sex. Other threads here give more advice on how to deal with this - have a browse.



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Re is this normal

Post  Sunflower82 on Wed Apr 25, 2012 7:16 pm

I posted a reply to u, but by accident posted it as a new post, title is not weird at all. Hope this helps



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Re: Is this Normal?

Post  Aubrey_rose on Thu Apr 26, 2012 1:07 am

Thank you. And yeah, it did help. Just having people who understand is great.
And I just started an antidepressent that is supposed to help with the pain. So heres to hoping!


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I'm right there with you

Post  raquelll on Wed Jul 04, 2012 7:14 pm

The same thing is happening to me, even though it feels really out of my control! It's like...I want to desire sex but my body is saying no. I've had V for a lot of my life now that I think about it (could never use tampons, always felt very sensitive down there) but it seems that a latex allergy that developed the more I had sex really aggravated it. So over the past two years it has been getting worse.

I'm in a fairly new relationship and we're moving in together and moving across the country for jobs - that in itself is stress-inducing. And it's like I never had to face this until now - before we were long distance and I could just ignore it and not think about it when we weren't together but now we're together all the time and it's worse. We finally had vaginal sex once about a week ago but it was so painful it was like the straw that broke the camel's back - my body is just saying an absolute NO to sex and I have 0 sex drive. It's really disorienting and confusing! I always used to love having sex and had a fairly high sex drive. I feel like a part of my life is dulled.

So anyway...you're not alone - it's so easy to let our minds go bad places with this and feel like we'll never get better or have a normal sex life again!

Good luck!


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Re: Is this Normal?

Post  junobug85 on Fri Jul 06, 2012 2:50 am

Does this ever actually go away on its own for anyone like some articles say? I have suffered for 5 years now and was always hopeful one day it would disappear and my sex drive would come back and I would have great sex again and feel like a normal person and woman again but the more that time passes I think that this may be my life forever and it terrifies me.... I am single and as much as I hate being alone, it makes this condition easier because I don't have to worry about it affecting someone else..


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Hang in there

Post  jmcmil on Sat Jul 07, 2012 3:56 am

Please don't give up! Please know that we have to keep searching and trying new things to get us through this illness. I have felt like my vaginal pain is my destiny, however I refuse to stop trying new ideas or techniques suggested on this site. Your pain might go away on its own, however you could try to help reduce your pain with suggestions from this site in the meantime. The more proactive the better, that's what I try to tell myself. I know it's hard and feel your daily struggle. Thanks for sharing.


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Re: Is this Normal?

Post  SimplyBelle on Sat Jul 07, 2012 6:19 am

I too have lost a lot of my sexual desire for sexuality and intimacy, but my husband keeps trying. He's just got to be very patient. I recently went to a passion party and picked up some intimacy gel which you put on your clitoris. The consultant said that after 14 days it should help reboot my desires, I know that it kicks it up a little bit even when used a little.

My biggest problem after that is the fear and feelings of being inadequate once sexual stuff is happening. Usually I end up calling it off because of fear and being scared Sad So I get all aroused and ready to go (thanks to this gel stuff) but then I get scared because of my psychological associations with pain and sex.


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Re: Is this Normal?

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