Log in

I forgot my password

Latest topics
New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

7 year old with vulvodynia

View previous topic View next topic Go down

7 year old with vulvodynia

Post  KHarris on Tue Jul 27, 2010 12:39 am

My 7 year old daughter has had vulvodynia since Feb 2010. I'm looking for othere mothers of children with this condition, as it's hard to find women in my shoes. Thanks for your help and good luck to everyone!


Posts : 2
Join date : 2010-07-27

View user profile

Back to top Go down

Re: 7 year old with vulvodynia

Post  Sebby (Admin) on Tue Jul 27, 2010 9:12 pm

Welcome Kimberly,

I do hope you can find other mothers dealing with this.

Even so I hope we who have Vulvodynia can also offer our support and advice to you.


Sebby (Admin)

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

5 year old vulvodynia

Post  Vickie22 on Sun Feb 26, 2012 8:27 pm

I think my daughter has this too. Have you found any relief or help yet? We have tried several Doctors and finally are going to a pediatric gynecologist tomorrow. It is red, burning pain in the vulva area. Very painful. I think I have linked it to her diet. She can't have fruit, citric acid, tomatoes, or spicy foods like sausage. We have had very few pain free days. Worse at night. Usually once a week it is hard to get her to school because of her pain.
I'm finally sending her own lunches. She can't have candy with citric acid or chocolate I'm now thinking causes a flare. We have learned from trial and error that sodas have phosphoric acid in it if not citric acid. So, we cut them out. Some flares last 1 day and is better by the next morning, but start all over with something else she may have eaten. The worst flares are 4 days and then some relief. She wants to go the Dr. but nobody can help us. We tried all sorts of creams, but they seem to hurt too. So, switched back to nothing but water and vaseline. We have seen a urologist who said maybe IC, but she does not go tot he restroom frequently. The IC diet seemed to work and help, but I just discovered this Vulvodynia and it seems to hit the nail on the head with her. There is a vulvodynia diet with low oxylate foods. So, now I'm trying to figure it out even more. It is so nice to see she is not the only child searching for help. We have had it since she was 2 that I know about, when we tried to get her potty trained as quick as possible, because I thought the burning was the diaper rash or urinary infection. But, the UI results always came back negative.

If anybody can help me please let me know. We have seen a dermatologist who was the first to believe me that diet caused her to flare. The others did not help: Urologist, gasterointerologist, pediatrician (of course), 2 allergist, even consulted an online doctor and soon a pediatric gynecologist.


Posts : 2
Join date : 2012-02-26

View user profile

Back to top Go down

Re: 7 year old with vulvodynia

Post  mmorgan on Tue Feb 28, 2012 4:45 pm

I know there was a lady whose twin boys had penial pain and she was a firm believer in the low oxalate diet. Check past posts.

Posts : 65
Join date : 2011-07-14
Age : 28
Location : Texas

View user profile

Back to top Go down

Reply to child with vulvodynia

Post  Debbie627 on Tue Jul 10, 2012 3:30 am

Do you use a liquid laundry detergent like Tide free and gentle? Most liquids contain an ingredient called propylene glycol, which caused my vulvodynia. This ingredient is also in sodas, ice cream, cake mixes etc. read your labels. I'd be happy to have a personal chat with you or others if you want to explore this topic further. Let me know and I'll post my email address.

Also, most medicines prescribed by doctors to cure this condition also contain propylene glycol...read your labels and avoid all ointments and creams containing this ingredient. You will see the results within 24-48 hours.

Would love to hear how this turns out for you.

Last edited by Debbie627 on Tue Jul 10, 2012 2:45 pm; edited 1 time in total (Reason for editing : Spelling)


Posts : 12
Join date : 2012-07-10
Location : Dallas TX

View user profile

Back to top Go down

Reply to child with vulvodynia

Post  Debbie627 on Tue Jul 10, 2012 3:35 am

Also be aware of wet wipes. They also contain propylene glycol.

I also found that the pain was worse at night. The reason was because I was applying al of the medicines during the day that were creating a cumulative burning sensation throughout the day. If any of you of you find that your condition is better In the AM and worse at night, then you need to consider propylene glycol as the root cause of the problem.

Last edited by Debbie627 on Tue Jul 10, 2012 2:44 pm; edited 1 time in total (Reason for editing : Spelling)


Posts : 12
Join date : 2012-07-10
Location : Dallas TX

View user profile

Back to top Go down

Re: 7 year old with vulvodynia

Post  kellybeth on Thu Aug 16, 2012 11:48 pm

hi my daughter is 8 and was diagnosed with vulvodynia around a month ago. it all started when she was 3 years old and was always put down to urine infections. she is currently undergoing pain management at great ormond street hospital. she has been put on 10mg amatriptline,this does not help her one bit just makes her into a zombie :-( she spends nearly every night in pain,its heartbreaking. i wish your little one all the best
kelly xxx

Posts : 6
Join date : 2012-08-08

View user profile

Back to top Go down

Re: 7 year old with vulvodynia

Post  LillyK on Sun Sep 02, 2012 5:05 am

I'm so sorry your little one is going through this!! I wanted to second the recommendation for free and clear type detergents. Also, NO baths, ever. Have her take a shower. All white 100% cotton underpants. And lots and lots of water. These things all helped me. Also, if she isn't terrified of it, I highly recommend acupuncture. It helped me be pain-free after just 4 months. You may also want to take her to a chiropractor to see if maybe she is out of alignment somwhere and that could be affecting her. Poor baby. This is hard enough as an adult, and as a mom myself, I know you are hurting for her. I hope you have found some success since your last post.


Posts : 28
Join date : 2012-09-01

View user profile

Back to top Go down

Re: 7 year old with vulvodynia

Post  Sponsored content

Sponsored content

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum