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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

7 year old with vulvodynia

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7 year old with vulvodynia

Post  KHarris on Tue Jul 27, 2010 12:39 am

My 7 year old daughter has had vulvodynia since Feb 2010. I'm looking for othere mothers of children with this condition, as it's hard to find women in my shoes. Thanks for your help and good luck to everyone!


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Re: 7 year old with vulvodynia

Post  Sebby (Admin) on Tue Jul 27, 2010 9:12 pm

Welcome Kimberly,

I do hope you can find other mothers dealing with this.

Even so I hope we who have Vulvodynia can also offer our support and advice to you.


Sebby (Admin)

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5 year old vulvodynia

Post  Vickie22 on Sun Feb 26, 2012 8:27 pm

I think my daughter has this too. Have you found any relief or help yet? We have tried several Doctors and finally are going to a pediatric gynecologist tomorrow. It is red, burning pain in the vulva area. Very painful. I think I have linked it to her diet. She can't have fruit, citric acid, tomatoes, or spicy foods like sausage. We have had very few pain free days. Worse at night. Usually once a week it is hard to get her to school because of her pain.
I'm finally sending her own lunches. She can't have candy with citric acid or chocolate I'm now thinking causes a flare. We have learned from trial and error that sodas have phosphoric acid in it if not citric acid. So, we cut them out. Some flares last 1 day and is better by the next morning, but start all over with something else she may have eaten. The worst flares are 4 days and then some relief. She wants to go the Dr. but nobody can help us. We tried all sorts of creams, but they seem to hurt too. So, switched back to nothing but water and vaseline. We have seen a urologist who said maybe IC, but she does not go tot he restroom frequently. The IC diet seemed to work and help, but I just discovered this Vulvodynia and it seems to hit the nail on the head with her. There is a vulvodynia diet with low oxylate foods. So, now I'm trying to figure it out even more. It is so nice to see she is not the only child searching for help. We have had it since she was 2 that I know about, when we tried to get her potty trained as quick as possible, because I thought the burning was the diaper rash or urinary infection. But, the UI results always came back negative.

If anybody can help me please let me know. We have seen a dermatologist who was the first to believe me that diet caused her to flare. The others did not help: Urologist, gasterointerologist, pediatrician (of course), 2 allergist, even consulted an online doctor and soon a pediatric gynecologist.


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Re: 7 year old with vulvodynia

Post  mmorgan on Tue Feb 28, 2012 4:45 pm

I know there was a lady whose twin boys had penial pain and she was a firm believer in the low oxalate diet. Check past posts.

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Reply to child with vulvodynia

Post  Debbie627 on Tue Jul 10, 2012 3:30 am

Do you use a liquid laundry detergent like Tide free and gentle? Most liquids contain an ingredient called propylene glycol, which caused my vulvodynia. This ingredient is also in sodas, ice cream, cake mixes etc. read your labels. I'd be happy to have a personal chat with you or others if you want to explore this topic further. Let me know and I'll post my email address.

Also, most medicines prescribed by doctors to cure this condition also contain propylene glycol...read your labels and avoid all ointments and creams containing this ingredient. You will see the results within 24-48 hours.

Would love to hear how this turns out for you.

Last edited by Debbie627 on Tue Jul 10, 2012 2:45 pm; edited 1 time in total (Reason for editing : Spelling)


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Reply to child with vulvodynia

Post  Debbie627 on Tue Jul 10, 2012 3:35 am

Also be aware of wet wipes. They also contain propylene glycol.

I also found that the pain was worse at night. The reason was because I was applying al of the medicines during the day that were creating a cumulative burning sensation throughout the day. If any of you of you find that your condition is better In the AM and worse at night, then you need to consider propylene glycol as the root cause of the problem.

Last edited by Debbie627 on Tue Jul 10, 2012 2:44 pm; edited 1 time in total (Reason for editing : Spelling)


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Re: 7 year old with vulvodynia

Post  kellybeth on Thu Aug 16, 2012 11:48 pm

hi my daughter is 8 and was diagnosed with vulvodynia around a month ago. it all started when she was 3 years old and was always put down to urine infections. she is currently undergoing pain management at great ormond street hospital. she has been put on 10mg amatriptline,this does not help her one bit just makes her into a zombie :-( she spends nearly every night in pain,its heartbreaking. i wish your little one all the best
kelly xxx

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Re: 7 year old with vulvodynia

Post  LillyK on Sun Sep 02, 2012 5:05 am

I'm so sorry your little one is going through this!! I wanted to second the recommendation for free and clear type detergents. Also, NO baths, ever. Have her take a shower. All white 100% cotton underpants. And lots and lots of water. These things all helped me. Also, if she isn't terrified of it, I highly recommend acupuncture. It helped me be pain-free after just 4 months. You may also want to take her to a chiropractor to see if maybe she is out of alignment somwhere and that could be affecting her. Poor baby. This is hard enough as an adult, and as a mom myself, I know you are hurting for her. I hope you have found some success since your last post.


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Re: 7 year old with vulvodynia

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