Vulvodynia Support
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» Hope to all my suffering ladies
Go See Dr. Andrew Goldstein!!! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Go See Dr. Andrew Goldstein!!! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Go See Dr. Andrew Goldstein!!! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Go See Dr. Andrew Goldstein!!! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Go See Dr. Andrew Goldstein!!! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Go See Dr. Andrew Goldstein!!! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Go See Dr. Andrew Goldstein!!! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Go See Dr. Andrew Goldstein!!! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Go See Dr. Andrew Goldstein!!! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Go See Dr. Andrew Goldstein!!!

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Go See Dr. Andrew Goldstein!!! Empty Go See Dr. Andrew Goldstein!!!

Post  junobug85 Mon Sep 03, 2012 5:04 pm

Hello Ladies -
I will admit, I have posted some depressing things on here a few times but I wanted to share some positive news with everyone!
Just a recap of my story, I have had vulvadynia for 5 years, started at age 22 during an abusive relationship. The only reason I bring this up is because I went through some traumatic sexual experiences for 3 years with this guy. During this time, I developed "vulvadynia" which as we know is a term that doesn't mean much other than unexplained vulva pain. The pain only affected my sex life and the days following sex. I had extremely painful penetration followed by swelling, rawness and soreness for 4-5 days after sex. But I figured I was allergic to him so when we broke up I was so excited to feel better, wear lace underwear, tampons, and feel sexual again like a normal girl! Instead I felt the exact opposite. 2 years following our break-up I felt worse and worse and worse. I had a few brief relationships but the sex was too painful and I didn't know how to explain to these men why and what was wrong with me because I honestly I had no clue, and dating was not worth it for me. I tried 10 different doctors, was tested for auto-immune deficiencies, biopsied for an inflammatory condition..... I tried so many antibiotics, diflucan, vitamins, diets, xanex, xylocaine etc!!!..... I was finally referred to Dr. Andrew Goldstein and he is an amazing person dedicated curing this condition. First read his book, Why Sex Hurts and it may help you pinpoint your condition. Unfortunately I read it way before meeting with him but did not connect my condition with what he diagnosed me with, but regardless the book is uplifting because it made me feel like I was not alone for the first time. Dr. Goldstein works out of DC and NYC and is expensive and hard to get appointments with, but I am fortunate enough to have been able to get the money together and get an appointment. He diagnosed me with a pelvic floor condition almost immediately as a result of my past relationship, and as I am sure most of you know no doctor EVER knows what is wrong with us to make a confident diagnose in a matter of a few minutes nevermind ever! He said my pelvic floor muscles are extremely tight from anxiety which does not allow blood flow and oxygen to pass through. As a result lactic acid is produced and burns your vulva, along with your anus, intestines, stomach, urinary tract... all symptoms I was feeling but not connecting to my vulvadynia. I now use a topical valium to relax my pelvic floor, I do at home exercises and I have an appointment with a Pelvic Floor physical therapist. I am not 100% yet, but just this one week of valium, exercises and taking deep breaths to calm my nerves in general has made my daily symptoms disappear and allowed me to sleep without being interrupted with vulva pain and spasms. I still have some burning at the entrance of my vagina when touched, but I am very hopeful I will get through this. There are many other reasons for painful sex, but Dr Goldstein has dedicated his career to understanding them and I just wish everyone could meet with him and get through this. It is a one time visit and again, the visit is $1300 plus travel for most of us not in the DC/ NYC area.... but apart from physically feeling better, I am no longer depressed that I will never experience a love life. This condition lays very heavy on all of our shoulders everyday, but please know there is hope. Even if you are only able to afford his book, please read it and try to diagnose yourself and then find a Dr. in your area that will listen to you, read the book themselves and treat you properly, it is a great start! And one last thing, pelvic floor conditions are not only caused by sexual trauma, but also an injury as simple as sliding into 3rd base or lifting something heavy where the muscles tense up, birth control can cause these issues as well, or just stress, depression and anxiety in general. I hope this helps some of you. I will reach out with an update as soon as I start physical therapy.

junobug85

Posts : 14
Join date : 2012-04-22

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Go See Dr. Andrew Goldstein!!! Empty Good for you

Post  Darkhorse Tue Sep 04, 2012 7:40 am

Glad you got some answers!

That's interesting about the lactic acid building up. Thanks for sharing that.

I knew about the lack of blood flow issue, but I didn't think of the lactic acid itself causing the burning pain but it makes a lot of sense.

I've been considering Dr. Goldstein's book, and probably will get it, but I've shied away from him because in internet articles, he's talked about surgery when you've never experienced pain-free sex, and I will never get surgery. It's too invasive for me, and even though I've been in pain all my adult life, I can't do that to my vulva. I know in your case he wouldn't suggest it because you developed it after some traumatic events that caused it.

Can you tell me what the valium is in, what kind of base cream? I have such irritation in my skin that just about anything can burn too much to tolerate. Valium cream is probably compounded, isn't it?

Do you put it directly on the vulva?

I'm just into my second week of physical therapy as well, and have a lot of trauma to work through, but it's been going on for many more years in my case (partly caused by this condition being unrelenting, itself!)

I'll be interested in how it's going with you!

Darkhorse

Posts : 23
Join date : 2012-08-04
Location : Hawaii, USA

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Post  junobug85 Wed Sep 05, 2012 2:42 am

The valium is actually a rectal suppository, he said xanex usually does not work for people with pelvic floor issues since there is no blood flow to the area, the xanex never penetrates your pelvic floor. The valium is released directly to the pelvic floor and relaxes the area and for me, I noticed relief instantly. I honestly would still recommend seeing him, you might have just fallen down the stairs or something simple at a young age and not realized it or you may have something completely different that does not require surgery. And I agree, all the creams I tried really made me sore and swollen, but the valium has not bothered me at all besides insertion... not my favorite thing haha!
The surgery is the last option and is only offered (by him) to people with nerve damage. He says if when you touch your belly button you feel the same pain you do in your vulva then you probably have an overgrowth of nerves because those tissues are developed at the same time. So you can test that on that your own simply? And I have heard it is an invasive surgery but it's also something you can recover from in 2 weeks and live a pain free life if that is the solution to your problem?
I would start with physical therapy or yoga and reading his book though, the first step is understanding the root of the problem. Good luck to you and as I said I will keep you updated if I feel 100% again someday!

junobug85

Posts : 14
Join date : 2012-04-22

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