Log in

I forgot my password

Latest topics
» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


biopsies

View previous topic View next topic Go down

biopsies

Post  naomi on Tue Jul 27, 2010 7:20 pm

hello!

So I had external and internal biopsies done earlier with a smear test (couldnt not do any of it awake due to extreme discomfort) under anethestic. Has anyone else had these done? Im a bit worried as I expected the pain that I am in but not the amount of bleeding. It is the amount of a period (if I go for a lie down I can feel it coming out). It is def not a period as I have been on the depo injection since all my gynae stuff got bad.

Oh a good note I didnt wake up from it singing my heart out (like when I was last under anethetic as a kid) but I had awful lighthead/dizziness and passed out 3 times. V odd but I know I have low blood pressure at the best of times. Got me a ride in a wheelchair...so got my moneys worth out of Uk's NHS Very Happy and even some biscuits Smile
avatar
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Tue Jul 27, 2010 7:42 pm

The only thing I've read about bleeding afterwards is to rest with your feet elevated to slow the blood flow down and give the wounds a chance to heal. The site I read this on recommended doing this for a couple of days so if you haven't got on top of it by tomorrow you'd be better off cancelling the tribunal, your health comes first after all. Did they give you any results?
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Tue Jul 27, 2010 8:06 pm

Just thought I'd better claify, feet elevated means higher then your head so lay flat and stack pillows under your feet. No sitting up and resting your feet on pillows, that won't work!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  naomi on Tue Jul 27, 2010 9:20 pm

cheers chuck! yep doing that now. I was just a little shocked, they didnt tell me to expect so much bleeding and for it to carry on. The last time I had internal biopsies last Sept it was just a tinsy bit of discoloured discharge. eeeek!

My Auntie is on her way up on the train tomorrow for tribunal, hopefully it will all be calmer down there tomorrow night.

Friggin vaginas, how'd ave em?! Evil or Very Mad
avatar
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Wed Jul 28, 2010 11:33 am

How are you feeling today Naomi? Have you stopped the bleeding?
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  naomi on Wed Jul 28, 2010 3:51 pm

still lots of discharge but its not blood-red, so yep seems to have calmed down. I have a feeling im going to be kneeling for the tribunal tomo though. I dont think I can sit at all for any length of time. doh.
avatar
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Wed Jul 28, 2010 7:32 pm

Don't kneel it will make you feel self-conscious and inferior, stand up and lean on the back of a chair to support yourself. If you need to shift position do so, don't worry about keeping still etc just do whatever makes you the most comfortable. Good luck and let us know how you get on.xx
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Fri Jul 30, 2010 12:04 pm

Naomi do you know how long your results will be? I see the dermatologist in 10 days time and I was rather hoping the results would be pretty prompt!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  naomi on Fri Jul 30, 2010 12:28 pm

I asked one of the doctors before I went in and she was vague saying "one to two weeks". I got a letter yday in the post for my follow up appointment for 22nd Oct!!!! I DONT THINK SOOOOOOOO!!! cruddy National Health Service!

So we are currently trying to track down one of the consultants secretarys (which is no mean feat!) and going to try and get on his private patients list again, hopefully get in to see him next month

xx
avatar
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Fri Jul 30, 2010 12:39 pm

That doesn't sound great, Shocked looks like I'll be waiting months for results and follow up appointments then because there's no way I can afford to go private.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  naomi on Fri Jul 30, 2010 1:34 pm

you might be lucky hun, I think it depends on the area u live in, how busy the clinic is etc etc. I dont think the John Radcliffe hospital where I am being seen is all that great to be honest.

Just patience I suppose, something after a few yrs as hard to have!!!

Sure it would be a different matter if this was an exclusive male problem! Evil or Very Mad
avatar
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Fri Jul 30, 2010 7:08 pm

No doubt you're right, look at the effort that went into viagra and impotence isn't even painful!

I think it will be a long wait, I've had to wait 3 months for this dermatology appointment because the vulvar dermatologist only visits our county once a month! It will no doubt be another 3 months at least if I have to back to her again. It's easy to see how women spend years like this under the "care" of the snail slow NHS isn't it!!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  Julie on Fri Jul 30, 2010 8:47 pm

I've never even heard of a vulvar dermatologist! I was told by a gyno that I might have to see a dermatologist if they can't find a good solution, but no more than that. Might be something to look into... thanks & good luck =) =)

Julie

Posts : 15
Join date : 2010-07-28
Age : 29
Location : Florida, USA

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Sat Jul 31, 2010 11:55 am

Can I ask what the healing time is like for biopsies Naomi? I realised last night you mentioned you were still having to do plenty of laying down a few days after having them done and I haven't got anyone to help me to do things during the day. My partner has taken the day off to take me because I want to get doped up on Tramadol before I have to face needles in the vulva but he's only got that one day off so the following day I'm going to be back to being home alone and having to do all the normal stuff. I read some other women's accounts of it and alot of them are mentioning it takes a good week to be able to do stuff again, some even said 2 weeks! Shocked If that's the case I'm stuffed!

Also did you have stitches? I know some people do and some don't but there's a lack of stories from UK women so I'm not sure if it's the norm to have them or not here. Hope you don't mind me asking all these questions! I'm trying to prepare myself as best I can and I'm nervous already!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  julia on Sat Jul 31, 2010 3:43 pm

hi Sarah,

I had a biopsy 2 months ago; it was at about 2pm ish and I drove back home from it, but was in a lot of pain (the John Wayne stance helped a lot). I did have to take the next day of work for both the pain, but more for the back my hypersensitivity flared up from people poking around down there. I did, however manage to go back to work the next day even though I was still in pain, it wasn't unbearable.

I did get a stitch, which was dissolvable. Saying this though, it took almost a month for it to dissolve completely, and meant absolutely no sex as it was far too painful. To touch the stitch was painful too, but unless I caught it, I wasn't in too much pain. The stitch was done after they cut the piece of skin off, but to be fair the injection was the worst part of it.

The thing to bear in mind with this though, is you might be one step closer to finding out another way of dealing with this problem!

Sadly though, I STILL haven't got my results back even though the consultant said (very cryptically) about 3-4 weeks to receive them. So I'm calling up on Monday... do I have lichen scheloris or vulvodynia? Or something else? Who knows?!

Good luck with yours, it's not pleasant but it's over pretty quick and I'm sure you'll be able to do things, just make sure you rest and don't do anything too active.
xxx

julia

Posts : 31
Join date : 2010-07-21

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Sat Jul 31, 2010 6:44 pm

Thanks for that Julie, the sex thing isn't going to be an issue because I'm wayyyy too sore for that anyway!! I have no doubt it will set off my joint problems just getting into position for the biopsy so I'm expecting alot of problems in that respect too. The injection is what I'm really dreading and the reason I'm not driving myself, Tramadol makes me totally woozy so I wouldn't be safe!! I know it needs doing and I am definitely going to get it done. My GP thinks I have Lichen Planus but the super potent steroid ointment she gave me just took a layer of skin off, now that really hurt for a couple of weeks so she's not totally sure now if I do or don't have LP. Thanks for sharing your experience with me, it's really useful for me to hear real life experiences before I have to go for these things.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  naomi on Sun Aug 01, 2010 5:57 pm

hi chick, sorry I didn''t reply yday, been so low I didn't even venture out of the bedroom. Thats one of the hardest things Im finding with this condition...how low and down I get. it sucks big time!

Well this morning I finally looked down there with a mirror...only one visable biopsy point externally but right on the vaginal opening...no wonder it hurts so frigging much it feels like its splitting!...hence why I cant put pressure on it by sitting upright.

I didnt have any stitches but wish I had to be honest as i thought it was healing but earlier (sorry the next bit is waaaaaay too much info!) I was having a number 2, but as my appetite is low at the mo I was straining and unforch my biopsy bit bleed so much dammmmit Sad So yes, my advice...keep your bowels moving healthily! oh yes and ask where they are going to take biopsy from, if needs be maybe ask for stitches

love Nai xxx
avatar
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Sun Aug 01, 2010 6:01 pm

Thanks Naomi, can I suggest you send someone out to Holland and Barrett to buy you some Magnesium Oxide tablets? Take 2-3 of those a day and you won't strain even if you've hardly eaten anything. They're fantastic for getting the bowels going and softening stools, after all my years of crappy painkillers that cause constipation they're a must, even lots of codeine can't hamper my bowels these days! Get some as soon as you can so you don't put any more pressure on your biopsies, they don't cost much either.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  naomi on Sun Aug 01, 2010 6:12 pm

ace ta 4 that!...I'll get down to the health food shop tomo.

Last year (to the bloody weekend actually!) I had the worst pile and oh my god it was agony!!! Very Happy and that was a side effect of the amitriptlyne (sorry awful spelling!) I was taking to try and help with the condition (didnt help unforch) The tablets the doc put me on and even Senokot made me go the other way!!! cant win!!
avatar
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

View user profile

Back to top Go down

Re: biopsies

Post  Sarah001 on Sun Aug 01, 2010 6:26 pm

Oh that sounds awful! It's fantastic stuff, I couldn't find anything that could override the tablets the doctors were giving me for joint pain and I was constantly having problems (not good for the pelvic floor either!) and I stumbled across an IBS forum somehow where several members used it to control constipation type IBS so I gave it a go and it works. Some of them take 4 tablets a day (1000mg) and some only 2 (500mg) so I'd say start with 2 and see how that goes, it's easy to go a bit the other way with it but you'll know the day after you take it if you've taken enough, it works overnight. Definitely the Oxide version though, and definitely no calcium mixed in with it! Hope it helps you.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: biopsies

Post  Julie on Sun Aug 01, 2010 6:28 pm

Make sure you don't push too much either way! I think it took me longer to heal because I was kind of disregarding that for fear that I'd get a little too 'backed up'... especially if you have a lot of time to rest, just let things happen as they want to!

Julie

Posts : 15
Join date : 2010-07-28
Age : 29
Location : Florida, USA

View user profile

Back to top Go down

Re: biopsies

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum