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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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biopsies

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biopsies

Post  naomi on Tue Jul 27, 2010 7:20 pm

hello!

So I had external and internal biopsies done earlier with a smear test (couldnt not do any of it awake due to extreme discomfort) under anethestic. Has anyone else had these done? Im a bit worried as I expected the pain that I am in but not the amount of bleeding. It is the amount of a period (if I go for a lie down I can feel it coming out). It is def not a period as I have been on the depo injection since all my gynae stuff got bad.

Oh a good note I didnt wake up from it singing my heart out (like when I was last under anethetic as a kid) but I had awful lighthead/dizziness and passed out 3 times. V odd but I know I have low blood pressure at the best of times. Got me a ride in a wheelchair...so got my moneys worth out of Uk's NHS Very Happy and even some biscuits Smile
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Re: biopsies

Post  Sarah001 on Tue Jul 27, 2010 7:42 pm

The only thing I've read about bleeding afterwards is to rest with your feet elevated to slow the blood flow down and give the wounds a chance to heal. The site I read this on recommended doing this for a couple of days so if you haven't got on top of it by tomorrow you'd be better off cancelling the tribunal, your health comes first after all. Did they give you any results?
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Re: biopsies

Post  Sarah001 on Tue Jul 27, 2010 8:06 pm

Just thought I'd better claify, feet elevated means higher then your head so lay flat and stack pillows under your feet. No sitting up and resting your feet on pillows, that won't work!
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Re: biopsies

Post  naomi on Tue Jul 27, 2010 9:20 pm

cheers chuck! yep doing that now. I was just a little shocked, they didnt tell me to expect so much bleeding and for it to carry on. The last time I had internal biopsies last Sept it was just a tinsy bit of discoloured discharge. eeeek!

My Auntie is on her way up on the train tomorrow for tribunal, hopefully it will all be calmer down there tomorrow night.

Friggin vaginas, how'd ave em?! Evil or Very Mad
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Re: biopsies

Post  Sarah001 on Wed Jul 28, 2010 11:33 am

How are you feeling today Naomi? Have you stopped the bleeding?
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Re: biopsies

Post  naomi on Wed Jul 28, 2010 3:51 pm

still lots of discharge but its not blood-red, so yep seems to have calmed down. I have a feeling im going to be kneeling for the tribunal tomo though. I dont think I can sit at all for any length of time. doh.
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Re: biopsies

Post  Sarah001 on Wed Jul 28, 2010 7:32 pm

Don't kneel it will make you feel self-conscious and inferior, stand up and lean on the back of a chair to support yourself. If you need to shift position do so, don't worry about keeping still etc just do whatever makes you the most comfortable. Good luck and let us know how you get on.xx
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Re: biopsies

Post  Sarah001 on Fri Jul 30, 2010 12:04 pm

Naomi do you know how long your results will be? I see the dermatologist in 10 days time and I was rather hoping the results would be pretty prompt!
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Re: biopsies

Post  naomi on Fri Jul 30, 2010 12:28 pm

I asked one of the doctors before I went in and she was vague saying "one to two weeks". I got a letter yday in the post for my follow up appointment for 22nd Oct!!!! I DONT THINK SOOOOOOOO!!! cruddy National Health Service!

So we are currently trying to track down one of the consultants secretarys (which is no mean feat!) and going to try and get on his private patients list again, hopefully get in to see him next month

xx
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Re: biopsies

Post  Sarah001 on Fri Jul 30, 2010 12:39 pm

That doesn't sound great, Shocked looks like I'll be waiting months for results and follow up appointments then because there's no way I can afford to go private.
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Re: biopsies

Post  naomi on Fri Jul 30, 2010 1:34 pm

you might be lucky hun, I think it depends on the area u live in, how busy the clinic is etc etc. I dont think the John Radcliffe hospital where I am being seen is all that great to be honest.

Just patience I suppose, something after a few yrs as hard to have!!!

Sure it would be a different matter if this was an exclusive male problem! Evil or Very Mad
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Re: biopsies

Post  Sarah001 on Fri Jul 30, 2010 7:08 pm

No doubt you're right, look at the effort that went into viagra and impotence isn't even painful!

I think it will be a long wait, I've had to wait 3 months for this dermatology appointment because the vulvar dermatologist only visits our county once a month! It will no doubt be another 3 months at least if I have to back to her again. It's easy to see how women spend years like this under the "care" of the snail slow NHS isn't it!!
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Re: biopsies

Post  Julie on Fri Jul 30, 2010 8:47 pm

I've never even heard of a vulvar dermatologist! I was told by a gyno that I might have to see a dermatologist if they can't find a good solution, but no more than that. Might be something to look into... thanks & good luck =) =)

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Re: biopsies

Post  Sarah001 on Sat Jul 31, 2010 11:55 am

Can I ask what the healing time is like for biopsies Naomi? I realised last night you mentioned you were still having to do plenty of laying down a few days after having them done and I haven't got anyone to help me to do things during the day. My partner has taken the day off to take me because I want to get doped up on Tramadol before I have to face needles in the vulva but he's only got that one day off so the following day I'm going to be back to being home alone and having to do all the normal stuff. I read some other women's accounts of it and alot of them are mentioning it takes a good week to be able to do stuff again, some even said 2 weeks! Shocked If that's the case I'm stuffed!

Also did you have stitches? I know some people do and some don't but there's a lack of stories from UK women so I'm not sure if it's the norm to have them or not here. Hope you don't mind me asking all these questions! I'm trying to prepare myself as best I can and I'm nervous already!
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Re: biopsies

Post  julia on Sat Jul 31, 2010 3:43 pm

hi Sarah,

I had a biopsy 2 months ago; it was at about 2pm ish and I drove back home from it, but was in a lot of pain (the John Wayne stance helped a lot). I did have to take the next day of work for both the pain, but more for the back my hypersensitivity flared up from people poking around down there. I did, however manage to go back to work the next day even though I was still in pain, it wasn't unbearable.

I did get a stitch, which was dissolvable. Saying this though, it took almost a month for it to dissolve completely, and meant absolutely no sex as it was far too painful. To touch the stitch was painful too, but unless I caught it, I wasn't in too much pain. The stitch was done after they cut the piece of skin off, but to be fair the injection was the worst part of it.

The thing to bear in mind with this though, is you might be one step closer to finding out another way of dealing with this problem!

Sadly though, I STILL haven't got my results back even though the consultant said (very cryptically) about 3-4 weeks to receive them. So I'm calling up on Monday... do I have lichen scheloris or vulvodynia? Or something else? Who knows?!

Good luck with yours, it's not pleasant but it's over pretty quick and I'm sure you'll be able to do things, just make sure you rest and don't do anything too active.
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Re: biopsies

Post  Sarah001 on Sat Jul 31, 2010 6:44 pm

Thanks for that Julie, the sex thing isn't going to be an issue because I'm wayyyy too sore for that anyway!! I have no doubt it will set off my joint problems just getting into position for the biopsy so I'm expecting alot of problems in that respect too. The injection is what I'm really dreading and the reason I'm not driving myself, Tramadol makes me totally woozy so I wouldn't be safe!! I know it needs doing and I am definitely going to get it done. My GP thinks I have Lichen Planus but the super potent steroid ointment she gave me just took a layer of skin off, now that really hurt for a couple of weeks so she's not totally sure now if I do or don't have LP. Thanks for sharing your experience with me, it's really useful for me to hear real life experiences before I have to go for these things.
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Re: biopsies

Post  naomi on Sun Aug 01, 2010 5:57 pm

hi chick, sorry I didn''t reply yday, been so low I didn't even venture out of the bedroom. Thats one of the hardest things Im finding with this condition...how low and down I get. it sucks big time!

Well this morning I finally looked down there with a mirror...only one visable biopsy point externally but right on the vaginal opening...no wonder it hurts so frigging much it feels like its splitting!...hence why I cant put pressure on it by sitting upright.

I didnt have any stitches but wish I had to be honest as i thought it was healing but earlier (sorry the next bit is waaaaaay too much info!) I was having a number 2, but as my appetite is low at the mo I was straining and unforch my biopsy bit bleed so much dammmmit Sad So yes, my advice...keep your bowels moving healthily! oh yes and ask where they are going to take biopsy from, if needs be maybe ask for stitches

love Nai xxx
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Re: biopsies

Post  Sarah001 on Sun Aug 01, 2010 6:01 pm

Thanks Naomi, can I suggest you send someone out to Holland and Barrett to buy you some Magnesium Oxide tablets? Take 2-3 of those a day and you won't strain even if you've hardly eaten anything. They're fantastic for getting the bowels going and softening stools, after all my years of crappy painkillers that cause constipation they're a must, even lots of codeine can't hamper my bowels these days! Get some as soon as you can so you don't put any more pressure on your biopsies, they don't cost much either.
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Re: biopsies

Post  naomi on Sun Aug 01, 2010 6:12 pm

ace ta 4 that!...I'll get down to the health food shop tomo.

Last year (to the bloody weekend actually!) I had the worst pile and oh my god it was agony!!! Very Happy and that was a side effect of the amitriptlyne (sorry awful spelling!) I was taking to try and help with the condition (didnt help unforch) The tablets the doc put me on and even Senokot made me go the other way!!! cant win!!
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Re: biopsies

Post  Sarah001 on Sun Aug 01, 2010 6:26 pm

Oh that sounds awful! It's fantastic stuff, I couldn't find anything that could override the tablets the doctors were giving me for joint pain and I was constantly having problems (not good for the pelvic floor either!) and I stumbled across an IBS forum somehow where several members used it to control constipation type IBS so I gave it a go and it works. Some of them take 4 tablets a day (1000mg) and some only 2 (500mg) so I'd say start with 2 and see how that goes, it's easy to go a bit the other way with it but you'll know the day after you take it if you've taken enough, it works overnight. Definitely the Oxide version though, and definitely no calcium mixed in with it! Hope it helps you.
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Re: biopsies

Post  Julie on Sun Aug 01, 2010 6:28 pm

Make sure you don't push too much either way! I think it took me longer to heal because I was kind of disregarding that for fear that I'd get a little too 'backed up'... especially if you have a lot of time to rest, just let things happen as they want to!

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Re: biopsies

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