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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Quick question - peeing

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Quick question - peeing

Post  penfebruary on Sun May 06, 2012 5:29 pm

Does anyone else find, I think its pretty common, that staying very hydrated helps with pain and inflammation? I do and if so, does this mean that the pain is viral? With UTIs etc I know its important to stay hydrated so would this indicate some form of subclinical infection? I've tested negative for all these types of problems but don't really believe a word the doctor says any more. Thanks
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Re quick question peeing

Post  Sunflower82 on Sun May 06, 2012 6:38 pm

Hi,
Yeah I find the more I drink the better I feel, I'm not sure why I suffer from the burning pain after I wee, on days where I run around like a headless chicken at work and I don't drink enough I get a stabbing pain in my tummy and down below. I am really careful to just drink water and only have the odd cup of coffee and drink decaf tea, once went through a phase of liking chocolate soya milk, vey bad burned even more when I went. Also milk chocolate makes it worse ! I'm not sure that will be the same for everyone but it is for me.

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Re: Quick question - peeing

Post  smile22 on Mon May 07, 2012 10:20 pm

Hi, I also have this trouble, and I never really get thirsty so I kinda forget to drink enough most days :/. I think that its something to do with the urine building up inside being too..concentrated/strong (if they're the right words to use!) and then it stays there til theres enough to make you need to pee, which must irritate the area even more.. especially if you don't go as soon as you need to pee, which obviously is sometimes hard if you're not near a toilet or busy or whatever. I also think that it may be linked with cystitis, as the pee being a really high temp must make the vulvodynia burning worse. Sorry if this message doesn't really make sense, I'm not too good at explaining what I mean!! But just wanted to say I know what you mean and that's my very unscientific theory as to why ha ha!! I always think right I'm gonna drink 7-8 glasses of water tomorrow and I never manage it, I pretty much only drink water, but like 2 glasses :/ not good at all considering how bad my pain is I really don't help myself do I!!

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Re: Quick question - peeing

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