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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Some questions about HBC

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Some questions about HBC

Post  lolainslacks on Tue May 08, 2012 7:28 pm

I haven't been here in a while, generally things have been pretty good. My pain is not at all gone, but is manageable right now because I have sort of settled into my routine of using the lidocaine and taking amitriptyline. I still have pain with penetration, but the meds have taken it from a 10 to about a 6, and the lidocaine takes most of the rest away so I'm generally okay.

HOWEVER. I was wondering about the connction between HBC and vulvodnia. I have read about this before, and I'm pretty sure it has been mentioned here in the past. I was taking microgynon for years, and it worked brilliantly. I started taking it because my periods were horrific and making me violently ill, and the microgynon made that stop. When I turned 21 though, it stopped working. Every month I would have all of the symptoms you experience before a period -- cramping, lower back pain, really sore boobs -- and this stuff would stay with me all month. So I went to my GP and she said that natural horomonal changes take place in your body when you hit your early twenties and that it can affect the way HBC works so she switched me to Loestrin. Loestrin seemed fine at first, but shortly after starting the same thing happened. Only this time there was breakthrough bleeding that lasted for weeks. I decided to go back to my GP to be switched to something new, but I couldn't get an appointment in time and my withdrawal bleed was due to start on the day of an important interview so I thought "I'll just stack to skip this period, and when I come to the end of this pack I'll go back to the doctor". I figured I could endure the weird symptoms for one more month. But since Loestrin was messing me up way more than the microgynon ever did, and since I had some microgynon left over from before, I decided to just take the microgynon this month

Bad idea. The day after I started, I felt a burning sensation in my vagina. Sort of like when I am having a flare-up after penetration. It has been with me for the past three days now. It is not terribly painful, just an uncomfortable constant burning. This is worrying me, because my pain has never been constant before, it's usually only provoked. Again, it's not severe, and when I'm lying still I'm not really aware of it. It's just an uncomfortable niggling burn that is a little scary because the last thing in the world that I want is for this condition to get worse. I haven't tried any kind of penetration, so I don't know if my prrovoked pain has worsened, but I don't think it has because when I shower and am sort of 'feeling around' down there everything feels normal and I'm not in any more discomfort than usual. Anyway, I stopped taking the pills immediately and have decided to just go HBC free for the next few months to see if my periods have improved since my teens. If I can handle them now, then I'm staying off HBC for good.

I was just wondering if anyone knows more about the HBC/vulvodynia connction? I know I have heard that for some women their pain began when they started taking HBC, or was worsened. Is that something that is permanent? Or does it go away if you stop taking the pills? My vulvodynia definitely was not caused by HBC, it started way before that. But this burning is worrying me.

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Re: Some questions about HBC

Post  smile22 on Tue May 08, 2012 9:28 pm

Hi, I can't give a great answer to your questions but I just wanted to say that the first pill I went on was microgynon, then I have also been on 2 others for like a month or 2 at a time (a few years ago), but I haven't been on the pill since I was 16. I am now 19 and I have constant pain that means I'm always stuck in the house with pretty much no life. To my understanding, I think that the pill initially caused a bad bout of thrush, which damaged my nerves and I am now stuck like this (for the time being hopefully no longer!!!!!!!) even though I haven't been on the pill for around 3 years and was only ever on it from age 15-16 anyway. So I would advise you to (if your periods let you!) definitely stay away from the pill, and from reading other womens stories 'flare ups' with provoked pain like yours can last for a few days. So try to steer clear of the pill if possible (maybe ask doc of any other ways to calm periods down?) mine were always awful but since being on the pill, they have never gone back to being as heavy as they were when I was younger, so hopefully the same will happen with you if you come off the pill altogether. Don't worry too much about it being constant pain for a few days, if your problem has always been provoked I would presume that perhaps you changing the pill pattern caused a bit of a change in your bodies balance of 'stuff' (crap with scientific language sorry haha!) and caused this flare up and it should go down soon. But I can't stress enough how much I hate the pill as I do blame it for my pain, and in (sort of) answer to your question about the link, I think it just upsets the balance down there which causes thrush thrush thrush and other probs which then lead to more problems.

Sorry I realise I got a bit carried away there typing away! But overall, I think it would be a great idea to ditch the pill and with any luck, as your pain is usually provoked only, it might go away once the pill is totally out of your system, or atleast go back to being provoked only. These are just my thoughts, but I think lots of people definitely agree that the pill is a no go for us pain sufferers, good luck with everything and I hope it all settles down for you asap! Smile

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Re: Some questions about HBC

Post  Sarah001 on Wed May 09, 2012 9:09 am

I started on Microgynon when a teenager and it stopped working when I hit 21 then it was pill after pill for me and they all caused bleeding until I started on Yasmin which was fine for a few years but then the bleeding started on that too. I haven't been on the pill since my early thirties (I'm now 38) and my V didn't start until I was 36 so I don't really think for me there is a connection but some women are alot better off the pill completely.

My pain started as provoked and while I was waiting for my dermatology appointment it spread and worsened and became generalised unprovoked but it doesn't mean yours will, you have to give it time to see what's happened with all the pill stuff you've recently been through. However I would say if you haven't looked at pelvic floor options I would just in case that's what's happened, if penetration causes pain you may well be tensing and that can take it from provoked only to unprovoked if it gets bad enough so if it has become constant please do look into that angle. My physios (Women's Health) don't think lidocaine and sex are a very good idea because it doesn't stop the tensing up and sex can make the pain worse after the lidocaine has worn off so you then clench because of the extra pain. According to the 3 I've seen it's a very old fashioned method and not recommended if there are any pelvic floor issues.
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Re: Some questions about HBC

Post  lolainslacks on Wed May 09, 2012 11:49 am

Thank you both for your help. I do intend to stay away from it as long as I can now. I am hoping, like you suggested, that since I was a teenger my periods will have calmed down and will now not be so horrible.

Sarah -- I have been to physio in the past and now have no problem tensing. I used to be really bad and have absolutely no control of the muscles but I saw a physiotherapist for several months and did some biofeedback which taught me how to control them and now it's not an issue for me. When I first started using the lidocaine it would not remove all of my pain because, as you said, it didn't stop the muscles from spasming and contracting, but now that I am able to relax them at will, there is no longer any problem with that. Thaank you for the suggestion though.

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Re: Some questions about HBC

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