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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Losing Hope Big Time

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Losing Hope Big Time

Post  Chelsea1991 on Wed May 09, 2012 11:08 am

Hi, I'm 21 anyway I am losing hope in my treatment i have had at least five tablets none work i am currently on neurontin, I have been on so many stuff i started to lose hope, i dont feel nothing work and worst i feel depressed by this all, i just dont understand how nothing come work, I think i might have ic too which i got another set of tablets, i am thinking about the surgery but scared of it because i am not sure if i can have it as i got provoked vulvodynia, to be truthful i dont even understand that. has anyone had surgery who has provoked vulvodynia or any tablets that work, i am at the stage where i dont want to do how many more tablets can i take as i took around five (It could be four) already. I am getting to the point when i dont want to do them kegel excerises and using my dilators i feel like it no point.

Chelsea1991

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Re: Losing Hope Big Time

Post  smile22 on Wed May 09, 2012 9:24 pm

Hi, sorry to hear that you feel so bad. Provoked pain is pain when the area is touched. I have unprovoked pain where it hurts all the time and have tried everything from creams to tablets to injections down there, so I know how you feel having to keep taking things for it all the time, you're not alone. My consultant said to me that often surgery's best candidates are those with provoked pain as it is more effective. I can't explain why because I have forgotten the explanation sorry!! But just wanted to let you know that it might be worth considering surgery as it could help you, but it's generally a last resort and not something to be taken lightly as it holds no guarantees, so the best thing would be to talk through it with a doctor who knows all the facts and can give you proper advice. I have also come across a couple of women that have said that lyrica has helped with their provoked pain. It didn't help me but like I said, mine's different so it might help you if you haven't already tried it. Some also say that tricyclic antidepressants such as amitriptyline helped them, you may have already tried these tablets but if not mention them to your doctor and give them a try. Good luck with finding a solution and don't give up. Also just to let you know that I am 19 and have suffered with this since I was 15, so if like me, you feel that you're too young to be going through this, you really aren't alone. Hope you feel better soon!

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Re Losing Hope big time

Post  Sunflower82 on Thu May 10, 2012 5:39 am

Hi,

Have you tried seeing a women's health physiotherapist ? Where abouts are u based ?

Katie

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Re: Losing Hope Big Time

Post  ivyrose on Thu May 17, 2012 9:47 pm

Hello,
Please read my post about seeing a chiropractor: http://www.vulvodyniasupportforum.com/t849-i-am-cured-read-this#5393

I have spoken to my chiropractor about surgery for this condition and she does not recommend it at all. She has been in the medical profession for some years and in many cases surgery only makes women with the condition worse. It can actually worsen the pain and is not worth the cost of treatment or the time wasted being bedridden afterwards.

I'm also relatively young to have had this, I'm almost 19 and the pain started about 2 years ago. I know how horrible it feels, there were days when I didn't get out of bed because I felt so hopeless. I really hope you consider looking into chiropractic treatment because it has been a godsend for me. Please don't give up, you still so young and have so many years of happiness ahead of you. Good luck x

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Re: Losing Hope Big Time

Post  Chelsea1991 on Fri May 18, 2012 5:12 pm

I'm from south wales, when you method in your reply about back pain it triggered a though in my head when i was 15 my knee cap keep coming out of place and when it did that i would fall on the floor and i tried physco they discharged me saying nothing they can do for me, but i think i might got IC too.
Also earlier my boyfriend said i feel tight is there anyway to untight myself if that make sense
Thanks for replying to me
xx

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Re: Losing Hope Big Time

Post  ivyrose on Fri May 18, 2012 6:06 pm

Its interesting, the pain I had was in my left foot mainly and travelled up my leg... it shows that everything is linked so theres a possibility that your pain might come from a mechanical problem too. Definitely worth checking out!
I think if you're tight maybe its down to not being relaxed enough, and if you experience pain then it's not surprising you don't feel relaxed!
x


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Re: Losing Hope Big Time

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