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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Losing Hope Big Time

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Losing Hope Big Time

Post  Chelsea1991 on Wed May 09, 2012 11:08 am

Hi, I'm 21 anyway I am losing hope in my treatment i have had at least five tablets none work i am currently on neurontin, I have been on so many stuff i started to lose hope, i dont feel nothing work and worst i feel depressed by this all, i just dont understand how nothing come work, I think i might have ic too which i got another set of tablets, i am thinking about the surgery but scared of it because i am not sure if i can have it as i got provoked vulvodynia, to be truthful i dont even understand that. has anyone had surgery who has provoked vulvodynia or any tablets that work, i am at the stage where i dont want to do how many more tablets can i take as i took around five (It could be four) already. I am getting to the point when i dont want to do them kegel excerises and using my dilators i feel like it no point.

Chelsea1991

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Re: Losing Hope Big Time

Post  smile22 on Wed May 09, 2012 9:24 pm

Hi, sorry to hear that you feel so bad. Provoked pain is pain when the area is touched. I have unprovoked pain where it hurts all the time and have tried everything from creams to tablets to injections down there, so I know how you feel having to keep taking things for it all the time, you're not alone. My consultant said to me that often surgery's best candidates are those with provoked pain as it is more effective. I can't explain why because I have forgotten the explanation sorry!! But just wanted to let you know that it might be worth considering surgery as it could help you, but it's generally a last resort and not something to be taken lightly as it holds no guarantees, so the best thing would be to talk through it with a doctor who knows all the facts and can give you proper advice. I have also come across a couple of women that have said that lyrica has helped with their provoked pain. It didn't help me but like I said, mine's different so it might help you if you haven't already tried it. Some also say that tricyclic antidepressants such as amitriptyline helped them, you may have already tried these tablets but if not mention them to your doctor and give them a try. Good luck with finding a solution and don't give up. Also just to let you know that I am 19 and have suffered with this since I was 15, so if like me, you feel that you're too young to be going through this, you really aren't alone. Hope you feel better soon!

smile22

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Re Losing Hope big time

Post  Sunflower82 on Thu May 10, 2012 5:39 am

Hi,

Have you tried seeing a women's health physiotherapist ? Where abouts are u based ?

Katie

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Re: Losing Hope Big Time

Post  ivyrose on Thu May 17, 2012 9:47 pm

Hello,
Please read my post about seeing a chiropractor: http://www.vulvodyniasupportforum.com/t849-i-am-cured-read-this#5393

I have spoken to my chiropractor about surgery for this condition and she does not recommend it at all. She has been in the medical profession for some years and in many cases surgery only makes women with the condition worse. It can actually worsen the pain and is not worth the cost of treatment or the time wasted being bedridden afterwards.

I'm also relatively young to have had this, I'm almost 19 and the pain started about 2 years ago. I know how horrible it feels, there were days when I didn't get out of bed because I felt so hopeless. I really hope you consider looking into chiropractic treatment because it has been a godsend for me. Please don't give up, you still so young and have so many years of happiness ahead of you. Good luck x

ivyrose

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Re: Losing Hope Big Time

Post  Chelsea1991 on Fri May 18, 2012 5:12 pm

I'm from south wales, when you method in your reply about back pain it triggered a though in my head when i was 15 my knee cap keep coming out of place and when it did that i would fall on the floor and i tried physco they discharged me saying nothing they can do for me, but i think i might got IC too.
Also earlier my boyfriend said i feel tight is there anyway to untight myself if that make sense
Thanks for replying to me
xx

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Re: Losing Hope Big Time

Post  ivyrose on Fri May 18, 2012 6:06 pm

Its interesting, the pain I had was in my left foot mainly and travelled up my leg... it shows that everything is linked so theres a possibility that your pain might come from a mechanical problem too. Definitely worth checking out!
I think if you're tight maybe its down to not being relaxed enough, and if you experience pain then it's not surprising you don't feel relaxed!
x


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Re: Losing Hope Big Time

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