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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Losing Hope Big Time

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Losing Hope Big Time

Post  Chelsea1991 on Wed May 09, 2012 11:08 am

Hi, I'm 21 anyway I am losing hope in my treatment i have had at least five tablets none work i am currently on neurontin, I have been on so many stuff i started to lose hope, i dont feel nothing work and worst i feel depressed by this all, i just dont understand how nothing come work, I think i might have ic too which i got another set of tablets, i am thinking about the surgery but scared of it because i am not sure if i can have it as i got provoked vulvodynia, to be truthful i dont even understand that. has anyone had surgery who has provoked vulvodynia or any tablets that work, i am at the stage where i dont want to do how many more tablets can i take as i took around five (It could be four) already. I am getting to the point when i dont want to do them kegel excerises and using my dilators i feel like it no point.

Chelsea1991

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Re: Losing Hope Big Time

Post  smile22 on Wed May 09, 2012 9:24 pm

Hi, sorry to hear that you feel so bad. Provoked pain is pain when the area is touched. I have unprovoked pain where it hurts all the time and have tried everything from creams to tablets to injections down there, so I know how you feel having to keep taking things for it all the time, you're not alone. My consultant said to me that often surgery's best candidates are those with provoked pain as it is more effective. I can't explain why because I have forgotten the explanation sorry!! But just wanted to let you know that it might be worth considering surgery as it could help you, but it's generally a last resort and not something to be taken lightly as it holds no guarantees, so the best thing would be to talk through it with a doctor who knows all the facts and can give you proper advice. I have also come across a couple of women that have said that lyrica has helped with their provoked pain. It didn't help me but like I said, mine's different so it might help you if you haven't already tried it. Some also say that tricyclic antidepressants such as amitriptyline helped them, you may have already tried these tablets but if not mention them to your doctor and give them a try. Good luck with finding a solution and don't give up. Also just to let you know that I am 19 and have suffered with this since I was 15, so if like me, you feel that you're too young to be going through this, you really aren't alone. Hope you feel better soon!

smile22

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Re Losing Hope big time

Post  Sunflower82 on Thu May 10, 2012 5:39 am

Hi,

Have you tried seeing a women's health physiotherapist ? Where abouts are u based ?

Katie

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Re: Losing Hope Big Time

Post  ivyrose on Thu May 17, 2012 9:47 pm

Hello,
Please read my post about seeing a chiropractor: http://www.vulvodyniasupportforum.com/t849-i-am-cured-read-this#5393

I have spoken to my chiropractor about surgery for this condition and she does not recommend it at all. She has been in the medical profession for some years and in many cases surgery only makes women with the condition worse. It can actually worsen the pain and is not worth the cost of treatment or the time wasted being bedridden afterwards.

I'm also relatively young to have had this, I'm almost 19 and the pain started about 2 years ago. I know how horrible it feels, there were days when I didn't get out of bed because I felt so hopeless. I really hope you consider looking into chiropractic treatment because it has been a godsend for me. Please don't give up, you still so young and have so many years of happiness ahead of you. Good luck x

ivyrose

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Re: Losing Hope Big Time

Post  Chelsea1991 on Fri May 18, 2012 5:12 pm

I'm from south wales, when you method in your reply about back pain it triggered a though in my head when i was 15 my knee cap keep coming out of place and when it did that i would fall on the floor and i tried physco they discharged me saying nothing they can do for me, but i think i might got IC too.
Also earlier my boyfriend said i feel tight is there anyway to untight myself if that make sense
Thanks for replying to me
xx

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Re: Losing Hope Big Time

Post  ivyrose on Fri May 18, 2012 6:06 pm

Its interesting, the pain I had was in my left foot mainly and travelled up my leg... it shows that everything is linked so theres a possibility that your pain might come from a mechanical problem too. Definitely worth checking out!
I think if you're tight maybe its down to not being relaxed enough, and if you experience pain then it's not surprising you don't feel relaxed!
x


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Re: Losing Hope Big Time

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