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» Honey decreased my pain considerably!
Yesterday at 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Yesterday at 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
Tue Jul 10, 2018 12:27 am by srbry

» Hello. In Need of Advice, Please and Thank You. Long Read.
Sun Jul 08, 2018 3:58 am by cg1991

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


rookie!! need help!!

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rookie!! need help!!

Post  sailirish23 on Thu May 10, 2012 11:16 pm

I was recently told I have vulodynia this week. I need someone who can understand my depression and decreasing hope. I need someone to talk to in the same situation.


sailirish23

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Location : florida

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You are not alone!

Post  bCherie on Thu Jul 12, 2012 10:22 am

Hi there! My heart bleeds for you Sad I know how painful this can be emotionally!
I've had this for 5 1/2 years. It can be so horrible to feel this alone! Despite what men think, us women don't sit around talking to each other about our vaginas! Hell most of us have never even looked at our own vagina before it started hurting!!

I bottled my pain up and told NO ONE for the longest time! I was too embarrassed to even tell my partner and only fessed up when it just hurt to much to have sex anymore. I didn't tell friends. I didn't tell my mum. I felt very alone. Like a broken and imperfect human. Like I wasn't a woman.

It took my relationship and my mental well being imploding for me to realize that it is SO important to talk to people! Even if they don't 'get it' having a good friend or mum/aunt/grandparent to share with makes this a lot less lonesome. I actually saw a therapist long before I told a friend or my mum. The therapist convinced me that we both can't and shouldn't do this alone. When I told my best friend she cried for me. She can't change anything or help me or even fully understand but it felt like I no longer had a 'dirty' secret!

Don't despair either there are so many different causes. And SO many GP's and Gynacologists that don't know ANYTHING about vulvadynia! And this is a good thing! Keep seeing specialists and asking who is considered to be the expert in this field where you live, push to see only the best!! This is still a mysterious problem and if your gyno says they 'don't know' what causes this keep looking for a better more right specialist for you!! If you keep asking you will find the person to help you!

I finally found a dermatologist who explained that my vulvadnyia is caused by compressed disc's in my lower spine sending out pain messages. Like when you get rsi in your wrist from slouching at your desk!
She is considered to be an expert in this medicine in australia (where I live). I start treatment with a physio and pilates this week and am finally feeling positive!

Please don't feel alone! You are not! Talk to a friend, a trusted family member or a therapist. and take care of yourself! I would give you a hug if I could!


bCherie

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Join date : 2012-07-12

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