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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


rookie!! need help!!

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rookie!! need help!!

Post  sailirish23 on Thu May 10, 2012 11:16 pm

I was recently told I have vulodynia this week. I need someone who can understand my depression and decreasing hope. I need someone to talk to in the same situation.


sailirish23

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Location : florida

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You are not alone!

Post  bCherie on Thu Jul 12, 2012 10:22 am

Hi there! My heart bleeds for you Sad I know how painful this can be emotionally!
I've had this for 5 1/2 years. It can be so horrible to feel this alone! Despite what men think, us women don't sit around talking to each other about our vaginas! Hell most of us have never even looked at our own vagina before it started hurting!!

I bottled my pain up and told NO ONE for the longest time! I was too embarrassed to even tell my partner and only fessed up when it just hurt to much to have sex anymore. I didn't tell friends. I didn't tell my mum. I felt very alone. Like a broken and imperfect human. Like I wasn't a woman.

It took my relationship and my mental well being imploding for me to realize that it is SO important to talk to people! Even if they don't 'get it' having a good friend or mum/aunt/grandparent to share with makes this a lot less lonesome. I actually saw a therapist long before I told a friend or my mum. The therapist convinced me that we both can't and shouldn't do this alone. When I told my best friend she cried for me. She can't change anything or help me or even fully understand but it felt like I no longer had a 'dirty' secret!

Don't despair either there are so many different causes. And SO many GP's and Gynacologists that don't know ANYTHING about vulvadynia! And this is a good thing! Keep seeing specialists and asking who is considered to be the expert in this field where you live, push to see only the best!! This is still a mysterious problem and if your gyno says they 'don't know' what causes this keep looking for a better more right specialist for you!! If you keep asking you will find the person to help you!

I finally found a dermatologist who explained that my vulvadnyia is caused by compressed disc's in my lower spine sending out pain messages. Like when you get rsi in your wrist from slouching at your desk!
She is considered to be an expert in this medicine in australia (where I live). I start treatment with a physio and pilates this week and am finally feeling positive!

Please don't feel alone! You are not! Talk to a friend, a trusted family member or a therapist. and take care of yourself! I would give you a hug if I could!


bCherie

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Join date : 2012-07-12

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