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Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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rookie!! need help!!

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rookie!! need help!!

Post  sailirish23 on Thu May 10, 2012 11:16 pm

I was recently told I have vulodynia this week. I need someone who can understand my depression and decreasing hope. I need someone to talk to in the same situation.


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You are not alone!

Post  bCherie on Thu Jul 12, 2012 10:22 am

Hi there! My heart bleeds for you Sad I know how painful this can be emotionally!
I've had this for 5 1/2 years. It can be so horrible to feel this alone! Despite what men think, us women don't sit around talking to each other about our vaginas! Hell most of us have never even looked at our own vagina before it started hurting!!

I bottled my pain up and told NO ONE for the longest time! I was too embarrassed to even tell my partner and only fessed up when it just hurt to much to have sex anymore. I didn't tell friends. I didn't tell my mum. I felt very alone. Like a broken and imperfect human. Like I wasn't a woman.

It took my relationship and my mental well being imploding for me to realize that it is SO important to talk to people! Even if they don't 'get it' having a good friend or mum/aunt/grandparent to share with makes this a lot less lonesome. I actually saw a therapist long before I told a friend or my mum. The therapist convinced me that we both can't and shouldn't do this alone. When I told my best friend she cried for me. She can't change anything or help me or even fully understand but it felt like I no longer had a 'dirty' secret!

Don't despair either there are so many different causes. And SO many GP's and Gynacologists that don't know ANYTHING about vulvadynia! And this is a good thing! Keep seeing specialists and asking who is considered to be the expert in this field where you live, push to see only the best!! This is still a mysterious problem and if your gyno says they 'don't know' what causes this keep looking for a better more right specialist for you!! If you keep asking you will find the person to help you!

I finally found a dermatologist who explained that my vulvadnyia is caused by compressed disc's in my lower spine sending out pain messages. Like when you get rsi in your wrist from slouching at your desk!
She is considered to be an expert in this medicine in australia (where I live). I start treatment with a physio and pilates this week and am finally feeling positive!

Please don't feel alone! You are not! Talk to a friend, a trusted family member or a therapist. and take care of yourself! I would give you a hug if I could!


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