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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

rookie!! need help!!

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rookie!! need help!!

Post  sailirish23 on Thu May 10, 2012 11:16 pm

I was recently told I have vulodynia this week. I need someone who can understand my depression and decreasing hope. I need someone to talk to in the same situation.


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You are not alone!

Post  bCherie on Thu Jul 12, 2012 10:22 am

Hi there! My heart bleeds for you Sad I know how painful this can be emotionally!
I've had this for 5 1/2 years. It can be so horrible to feel this alone! Despite what men think, us women don't sit around talking to each other about our vaginas! Hell most of us have never even looked at our own vagina before it started hurting!!

I bottled my pain up and told NO ONE for the longest time! I was too embarrassed to even tell my partner and only fessed up when it just hurt to much to have sex anymore. I didn't tell friends. I didn't tell my mum. I felt very alone. Like a broken and imperfect human. Like I wasn't a woman.

It took my relationship and my mental well being imploding for me to realize that it is SO important to talk to people! Even if they don't 'get it' having a good friend or mum/aunt/grandparent to share with makes this a lot less lonesome. I actually saw a therapist long before I told a friend or my mum. The therapist convinced me that we both can't and shouldn't do this alone. When I told my best friend she cried for me. She can't change anything or help me or even fully understand but it felt like I no longer had a 'dirty' secret!

Don't despair either there are so many different causes. And SO many GP's and Gynacologists that don't know ANYTHING about vulvadynia! And this is a good thing! Keep seeing specialists and asking who is considered to be the expert in this field where you live, push to see only the best!! This is still a mysterious problem and if your gyno says they 'don't know' what causes this keep looking for a better more right specialist for you!! If you keep asking you will find the person to help you!

I finally found a dermatologist who explained that my vulvadnyia is caused by compressed disc's in my lower spine sending out pain messages. Like when you get rsi in your wrist from slouching at your desk!
She is considered to be an expert in this medicine in australia (where I live). I start treatment with a physio and pilates this week and am finally feeling positive!

Please don't feel alone! You are not! Talk to a friend, a trusted family member or a therapist. and take care of yourself! I would give you a hug if I could!


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