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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

Hello I am new, and am looking forward for some support

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Hello I am new, and am looking forward for some support

Post  Feegal on Sat May 12, 2012 11:21 am

Hello wow, ( I feel soo silly for years I have had this pain for soo long, originally I thought I had vaginismus) for all those years talk more soon not feeling well wil write more later sorry all. I cant wait to connect with you al and explain my story to you all how its effecting myself & my husband soo not fun thats for sure. Sad

I feel I had vaginismus for years, but really didnt know what I had, & why was soo painful all the gyno exams, every time we had sex soo painful and frustrating, could never use tampons soo painful. I now am soo happy to actually find out what i really had, my gyno told me about a a really good therapist in Adelaide, his names marek Jantos.
At this stage, have only seen him once, he also does myofacial release too its amazing at what he does, afer i had some internal stuff done that day, found out how inner thigh pain can radiate up to that area, also buttock pain can do that too. I am not happy atm, as bleeding its just not a good time to get back into doing them. Where is everyone else re with this, any support any help will help me out soo much, just needing anyones feedback anything to help me though this makes it soo much better knowing a freind heard of this forum.
I feel i hve had this for years, but never knew it. I have anxiety too, we also went through ivf also, and unfortunately didnt work out. That was back when i didnt know about the vulvodynia just thought I had vaginismus.


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Re: Hello I am new, and am looking forward for some support

Post  sailirish23 on Sat May 12, 2012 9:42 pm


I'm new too. I didnt know anything about vulodynia until my symptoms appearred three months ago. If you would like to share some thoughts, let me know.



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Location : florida

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Vaginismus diagnosis

Post  vulvarpainsurvivor on Sun May 13, 2012 12:52 am

Hi Folks,
Just wanted to comment that although I am not among those people who thinks "vaginismus" is a myth, I do want to emphasize that a lot of different types of vulvar pain get unhelpfully lumped under that diagnosis when it is not necessarily correct, or not comprehensive enough. I spent several years thinking I had vaginismus, too, when it turned out to be a (probably) congenital overgrowth of nerve endings in the vestibule. The result--extremely painful sex--is the same, so it's easy to be fooled into thinking your muscles are just too tight or you're getting tense when you have sex. And then there are the doctors who tell you to "just relax," as if you could relax when you're in severe pain.

When I started the physical therapy which I though would cure me of my "vaginismus," I eventually figured out that the tension or relaxation of my pelvic muscles had nothing to do with my pain. I used a biofeedback machine with a vaginal probe which showed whether or not my muscles were "firing." (The machine is available from Empi, by the way.) The higher the number, the higher the tension in the muscles and vice versa. I found that I could have a 0 or 1 showing on the machine and still have severe pain when touched at the opening of the vagina. So while the physical therapy did not solve anything in the end, it was very useful for getting me to try biofeedback, which helped me figure out that tension was *not* the problem. And, as a bonus, I did learn how to control those muscles really well, and probably strengthened them--good for your sex life in the long run!


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Re: Hello I am new, and am looking forward for some support

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