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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Advice on Surgery

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Advice on Surgery

Post  Cheryl82 on Tue May 15, 2012 7:07 pm

I'm new to this site and have had vulvodynia for 2.5yrs. It all started after the birth of my son, I tore so badly. Since, I have gone to a new practice, but all doctors swear child birth was not the cause. I went through physical therapy, then found a new doctor how has been amazing at trying to work with me. I have tried, Lidocaine, Desipramine, Gabapentine compound, and now I'm just taking Zoloft for my depression with it. I'm at my ropes end and just want off this roller coaster! My husband and I have been trying to conceive, but with now luck, probably because you have to have sex to get pregnant, lol! When we do have sex it is not good, it's me laying stif and my husband trying to hurry up with out hurting me Sad My doctor always thought I might benefit from surgery because my pain is so localized. It is near my peri area at the bottom of the vaginal opening, on the out/inner part, that's it. I can feel my husbands in and on the sides and it's "good" but the pain is like a razor blade with every move. I shut down and get kinda mean to him, in hopes that he'll just leave me alone, so sad. QUESTION IS: has anyone had any surgery to correct their vulvodynia and did it work for you? Would you recommend it? I read one girls story that was posted a few years ago. I try Googleing and nothing really comes up either.


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Age : 35

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Re: Advice on Surgery

Post  amtali on Fri Jun 08, 2012 4:17 pm

Hi Cheryl,

I am getting surgery this month. I have had vestibulodynia for almost 5 years. It started at the 7 o'clock area for a while, then spread to 3 o'clock, and now I have a reoccurring fissure at 11 0'oclock. Long story short, after trying SEVERAL treatments, surgery was my last and only option. It took about 3 years before my symptoms got worse, and I would hate for that to happen to you as well. With the surgery now-a-days, they usually remove all of the vestibule tissue, even if you only have a specific area of pain, so that it doesn't happen somewhere else later. As invasive and tedious as it is, surgery might be worth considering. I will try to let you know about my recovery post-surgery. Hopefully I can provide some hope for you and others. I'm not sure where you're located, but Dr. Libby Edwards in NC is a specialist for this. Dr. Hope Heafner in Michigan is supposed to be top-notch for surgery.


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Join date : 2012-05-29

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