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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Advice on Surgery

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Advice on Surgery

Post  Cheryl82 on Tue May 15, 2012 7:07 pm

I'm new to this site and have had vulvodynia for 2.5yrs. It all started after the birth of my son, I tore so badly. Since, I have gone to a new practice, but all doctors swear child birth was not the cause. I went through physical therapy, then found a new doctor how has been amazing at trying to work with me. I have tried, Lidocaine, Desipramine, Gabapentine compound, and now I'm just taking Zoloft for my depression with it. I'm at my ropes end and just want off this roller coaster! My husband and I have been trying to conceive, but with now luck, probably because you have to have sex to get pregnant, lol! When we do have sex it is not good, it's me laying stif and my husband trying to hurry up with out hurting me Sad My doctor always thought I might benefit from surgery because my pain is so localized. It is near my peri area at the bottom of the vaginal opening, on the out/inner part, that's it. I can feel my husbands in and on the sides and it's "good" but the pain is like a razor blade with every move. I shut down and get kinda mean to him, in hopes that he'll just leave me alone, so sad. QUESTION IS: has anyone had any surgery to correct their vulvodynia and did it work for you? Would you recommend it? I read one girls story that was posted a few years ago. I try Googleing and nothing really comes up either.


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Age : 35

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Re: Advice on Surgery

Post  amtali on Fri Jun 08, 2012 4:17 pm

Hi Cheryl,

I am getting surgery this month. I have had vestibulodynia for almost 5 years. It started at the 7 o'clock area for a while, then spread to 3 o'clock, and now I have a reoccurring fissure at 11 0'oclock. Long story short, after trying SEVERAL treatments, surgery was my last and only option. It took about 3 years before my symptoms got worse, and I would hate for that to happen to you as well. With the surgery now-a-days, they usually remove all of the vestibule tissue, even if you only have a specific area of pain, so that it doesn't happen somewhere else later. As invasive and tedious as it is, surgery might be worth considering. I will try to let you know about my recovery post-surgery. Hopefully I can provide some hope for you and others. I'm not sure where you're located, but Dr. Libby Edwards in NC is a specialist for this. Dr. Hope Heafner in Michigan is supposed to be top-notch for surgery.


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