Log in

I forgot my password

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Advice on Surgery

View previous topic View next topic Go down

Advice on Surgery

Post  Cheryl82 on Tue May 15, 2012 7:07 pm

I'm new to this site and have had vulvodynia for 2.5yrs. It all started after the birth of my son, I tore so badly. Since, I have gone to a new practice, but all doctors swear child birth was not the cause. I went through physical therapy, then found a new doctor how has been amazing at trying to work with me. I have tried, Lidocaine, Desipramine, Gabapentine compound, and now I'm just taking Zoloft for my depression with it. I'm at my ropes end and just want off this roller coaster! My husband and I have been trying to conceive, but with now luck, probably because you have to have sex to get pregnant, lol! When we do have sex it is not good, it's me laying stif and my husband trying to hurry up with out hurting me Sad My doctor always thought I might benefit from surgery because my pain is so localized. It is near my peri area at the bottom of the vaginal opening, on the out/inner part, that's it. I can feel my husbands in and on the sides and it's "good" but the pain is like a razor blade with every move. I shut down and get kinda mean to him, in hopes that he'll just leave me alone, so sad. QUESTION IS: has anyone had any surgery to correct their vulvodynia and did it work for you? Would you recommend it? I read one girls story that was posted a few years ago. I try Googleing and nothing really comes up either.


Posts : 1
Join date : 2012-05-15
Age : 35

View user profile

Back to top Go down

Re: Advice on Surgery

Post  amtali on Fri Jun 08, 2012 4:17 pm

Hi Cheryl,

I am getting surgery this month. I have had vestibulodynia for almost 5 years. It started at the 7 o'clock area for a while, then spread to 3 o'clock, and now I have a reoccurring fissure at 11 0'oclock. Long story short, after trying SEVERAL treatments, surgery was my last and only option. It took about 3 years before my symptoms got worse, and I would hate for that to happen to you as well. With the surgery now-a-days, they usually remove all of the vestibule tissue, even if you only have a specific area of pain, so that it doesn't happen somewhere else later. As invasive and tedious as it is, surgery might be worth considering. I will try to let you know about my recovery post-surgery. Hopefully I can provide some hope for you and others. I'm not sure where you're located, but Dr. Libby Edwards in NC is a specialist for this. Dr. Hope Heafner in Michigan is supposed to be top-notch for surgery.


Posts : 19
Join date : 2012-05-29

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum