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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Advice on Surgery

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Advice on Surgery

Post  Cheryl82 on Tue May 15, 2012 7:07 pm

I'm new to this site and have had vulvodynia for 2.5yrs. It all started after the birth of my son, I tore so badly. Since, I have gone to a new practice, but all doctors swear child birth was not the cause. I went through physical therapy, then found a new doctor how has been amazing at trying to work with me. I have tried, Lidocaine, Desipramine, Gabapentine compound, and now I'm just taking Zoloft for my depression with it. I'm at my ropes end and just want off this roller coaster! My husband and I have been trying to conceive, but with now luck, probably because you have to have sex to get pregnant, lol! When we do have sex it is not good, it's me laying stif and my husband trying to hurry up with out hurting me Sad My doctor always thought I might benefit from surgery because my pain is so localized. It is near my peri area at the bottom of the vaginal opening, on the out/inner part, that's it. I can feel my husbands in and on the sides and it's "good" but the pain is like a razor blade with every move. I shut down and get kinda mean to him, in hopes that he'll just leave me alone, so sad. QUESTION IS: has anyone had any surgery to correct their vulvodynia and did it work for you? Would you recommend it? I read one girls story that was posted a few years ago. I try Googleing and nothing really comes up either.


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Age : 34

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Re: Advice on Surgery

Post  amtali on Fri Jun 08, 2012 4:17 pm

Hi Cheryl,

I am getting surgery this month. I have had vestibulodynia for almost 5 years. It started at the 7 o'clock area for a while, then spread to 3 o'clock, and now I have a reoccurring fissure at 11 0'oclock. Long story short, after trying SEVERAL treatments, surgery was my last and only option. It took about 3 years before my symptoms got worse, and I would hate for that to happen to you as well. With the surgery now-a-days, they usually remove all of the vestibule tissue, even if you only have a specific area of pain, so that it doesn't happen somewhere else later. As invasive and tedious as it is, surgery might be worth considering. I will try to let you know about my recovery post-surgery. Hopefully I can provide some hope for you and others. I'm not sure where you're located, but Dr. Libby Edwards in NC is a specialist for this. Dr. Hope Heafner in Michigan is supposed to be top-notch for surgery.


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Join date : 2012-05-29

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