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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

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Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Fri May 18, 2012 9:05 am

Anyone had any luck with chiropractors - like ivyrose did with anyone around this area?

I am willing to drive a distance to get help but it would be fantastic if there was someone good nearby.

I am willing to try anything right now!


bluekangeroo

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re chiropractor

Post  londonlady on Mon Jun 11, 2012 9:13 pm

hi,

I am currently seeing a chiropractor called Michael Durtnall, at the Sayer Clinic in Kensington (http://www.sayerclinics.com/chiropractors/). I went to see him partly because I read about the Mctimoney chiropractic trial that had helped people, and partly because I sit in a funny way because of the pain, and so I had started to get achey hips and back.

I was kind of hoping that he would find something obvious wrong in the alignment of my spine/hips/pelvis i.e. something bone related, so that there was an obvious cause, but there wasn't anything. (he x-rayed).

As well as doing treatment to sort out my posture and help unlock my pelvis & hips, he is also doing some soft tissue work, i.e. trying to manually stretch my pelvic floor muscles and do some internal massage to help reduce muscle knots. My muscles are really tight and I can actually feel separate tendons which isn't good!

I have been seeing him for about a month now and I think it is helping. I have been able to reduce my amitryptaline dosage a little bit since seeing him. Although it's still quite high, I've never been able to reduce it before without immediately feeling awful, so it is making me hopeful.

He is not cheap (£120 for the first 90 minute consultation, £85 after that), which is quite expensive for me, but I am going to keep going for a while.

I decided to go to him because he specialises in pelvic pain and I think he has quite a lot of experience.

I'll let people know how I get on!

xxx

londonlady

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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Mon Jun 11, 2012 9:17 pm

Sounds interesting, yes do let me know how you get on. How many sessions have you had with him in the last month?

Kensington is the other side of London for me so still quite a long trip, but if he's really good...

I have an appointment now with the lady in Worthing who ivy rose saw. It's a 3 hour train ride, but worth it to get her to have a look and say yes or no to a pelvic misalignment.

I am like you, really hoping she'll see something obvious!

Bet she won't!

Ax

bluekangeroo

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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Mon Jun 25, 2012 8:26 am

Hey London Lady - how are you getting on with your Chiropractor? Are you still feeling like it is helping?

I went to see the lady in Worthing at the weekend and she found that I do have a misalignment which explains a lot about my vulva pain, back pain and possibly my digestive problems, I didn't understand the theory behind chirorpactice before, but now I do, it makes a lot of sense!


bluekangeroo

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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  londonlady on Thu Jun 28, 2012 7:41 am

Hi Blue Kangeroo,

sorry about the delayed reply!

I'm glad that the chiropractor is helping!

I have decided to stop seeing my chiropractor for a while. I think it has been helpful - he has helped unlock my hips and definitely started some good internal stretching with my pelvis. he's also helped me to sort out some back issues and made me realise that I can use massage to help reduce tension in my hips and tummy which is related to the pelvic pain and IBS. At the same time, I think that I might be better off seeing a specialist physio and spending my money that way at the moment, as I didn't have any serious misalignments.

I hope the lady in worthing helps Smile

xz


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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

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