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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

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Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Fri May 18, 2012 9:05 am

Anyone had any luck with chiropractors - like ivyrose did with anyone around this area?

I am willing to drive a distance to get help but it would be fantastic if there was someone good nearby.

I am willing to try anything right now!


bluekangeroo

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re chiropractor

Post  londonlady on Mon Jun 11, 2012 9:13 pm

hi,

I am currently seeing a chiropractor called Michael Durtnall, at the Sayer Clinic in Kensington (http://www.sayerclinics.com/chiropractors/). I went to see him partly because I read about the Mctimoney chiropractic trial that had helped people, and partly because I sit in a funny way because of the pain, and so I had started to get achey hips and back.

I was kind of hoping that he would find something obvious wrong in the alignment of my spine/hips/pelvis i.e. something bone related, so that there was an obvious cause, but there wasn't anything. (he x-rayed).

As well as doing treatment to sort out my posture and help unlock my pelvis & hips, he is also doing some soft tissue work, i.e. trying to manually stretch my pelvic floor muscles and do some internal massage to help reduce muscle knots. My muscles are really tight and I can actually feel separate tendons which isn't good!

I have been seeing him for about a month now and I think it is helping. I have been able to reduce my amitryptaline dosage a little bit since seeing him. Although it's still quite high, I've never been able to reduce it before without immediately feeling awful, so it is making me hopeful.

He is not cheap (£120 for the first 90 minute consultation, £85 after that), which is quite expensive for me, but I am going to keep going for a while.

I decided to go to him because he specialises in pelvic pain and I think he has quite a lot of experience.

I'll let people know how I get on!

xxx

londonlady

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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Mon Jun 11, 2012 9:17 pm

Sounds interesting, yes do let me know how you get on. How many sessions have you had with him in the last month?

Kensington is the other side of London for me so still quite a long trip, but if he's really good...

I have an appointment now with the lady in Worthing who ivy rose saw. It's a 3 hour train ride, but worth it to get her to have a look and say yes or no to a pelvic misalignment.

I am like you, really hoping she'll see something obvious!

Bet she won't!

Ax

bluekangeroo

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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Mon Jun 25, 2012 8:26 am

Hey London Lady - how are you getting on with your Chiropractor? Are you still feeling like it is helping?

I went to see the lady in Worthing at the weekend and she found that I do have a misalignment which explains a lot about my vulva pain, back pain and possibly my digestive problems, I didn't understand the theory behind chirorpactice before, but now I do, it makes a lot of sense!


bluekangeroo

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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  londonlady on Thu Jun 28, 2012 7:41 am

Hi Blue Kangeroo,

sorry about the delayed reply!

I'm glad that the chiropractor is helping!

I have decided to stop seeing my chiropractor for a while. I think it has been helpful - he has helped unlock my hips and definitely started some good internal stretching with my pelvis. he's also helped me to sort out some back issues and made me realise that I can use massage to help reduce tension in my hips and tummy which is related to the pelvic pain and IBS. At the same time, I think that I might be better off seeing a specialist physio and spending my money that way at the moment, as I didn't have any serious misalignments.

I hope the lady in worthing helps Smile

xz


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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

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