Log in

I forgot my password

Latest topics
» I don't know what to do anymore
Today at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Go down

Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Fri May 18, 2012 9:05 am

Anyone had any luck with chiropractors - like ivyrose did with anyone around this area?

I am willing to drive a distance to get help but it would be fantastic if there was someone good nearby.

I am willing to try anything right now!


bluekangeroo

Posts : 44
Join date : 2012-05-17

View user profile

Back to top Go down

re chiropractor

Post  londonlady on Mon Jun 11, 2012 9:13 pm

hi,

I am currently seeing a chiropractor called Michael Durtnall, at the Sayer Clinic in Kensington (http://www.sayerclinics.com/chiropractors/). I went to see him partly because I read about the Mctimoney chiropractic trial that had helped people, and partly because I sit in a funny way because of the pain, and so I had started to get achey hips and back.

I was kind of hoping that he would find something obvious wrong in the alignment of my spine/hips/pelvis i.e. something bone related, so that there was an obvious cause, but there wasn't anything. (he x-rayed).

As well as doing treatment to sort out my posture and help unlock my pelvis & hips, he is also doing some soft tissue work, i.e. trying to manually stretch my pelvic floor muscles and do some internal massage to help reduce muscle knots. My muscles are really tight and I can actually feel separate tendons which isn't good!

I have been seeing him for about a month now and I think it is helping. I have been able to reduce my amitryptaline dosage a little bit since seeing him. Although it's still quite high, I've never been able to reduce it before without immediately feeling awful, so it is making me hopeful.

He is not cheap (£120 for the first 90 minute consultation, £85 after that), which is quite expensive for me, but I am going to keep going for a while.

I decided to go to him because he specialises in pelvic pain and I think he has quite a lot of experience.

I'll let people know how I get on!

xxx

londonlady

Posts : 12
Join date : 2012-05-04

View user profile

Back to top Go down

Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Mon Jun 11, 2012 9:17 pm

Sounds interesting, yes do let me know how you get on. How many sessions have you had with him in the last month?

Kensington is the other side of London for me so still quite a long trip, but if he's really good...

I have an appointment now with the lady in Worthing who ivy rose saw. It's a 3 hour train ride, but worth it to get her to have a look and say yes or no to a pelvic misalignment.

I am like you, really hoping she'll see something obvious!

Bet she won't!

Ax

bluekangeroo

Posts : 44
Join date : 2012-05-17

View user profile

Back to top Go down

Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Mon Jun 25, 2012 8:26 am

Hey London Lady - how are you getting on with your Chiropractor? Are you still feeling like it is helping?

I went to see the lady in Worthing at the weekend and she found that I do have a misalignment which explains a lot about my vulva pain, back pain and possibly my digestive problems, I didn't understand the theory behind chirorpactice before, but now I do, it makes a lot of sense!


bluekangeroo

Posts : 44
Join date : 2012-05-17

View user profile

Back to top Go down

Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  londonlady on Thu Jun 28, 2012 7:41 am

Hi Blue Kangeroo,

sorry about the delayed reply!

I'm glad that the chiropractor is helping!

I have decided to stop seeing my chiropractor for a while. I think it has been helpful - he has helped unlock my hips and definitely started some good internal stretching with my pelvis. he's also helped me to sort out some back issues and made me realise that I can use massage to help reduce tension in my hips and tummy which is related to the pelvic pain and IBS. At the same time, I think that I might be better off seeing a specialist physio and spending my money that way at the moment, as I didn't have any serious misalignments.

I hope the lady in worthing helps Smile

xz


londonlady

Posts : 12
Join date : 2012-05-04

View user profile

Back to top Go down

Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum