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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
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» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

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Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Fri May 18, 2012 9:05 am

Anyone had any luck with chiropractors - like ivyrose did with anyone around this area?

I am willing to drive a distance to get help but it would be fantastic if there was someone good nearby.

I am willing to try anything right now!


bluekangeroo

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re chiropractor

Post  londonlady on Mon Jun 11, 2012 9:13 pm

hi,

I am currently seeing a chiropractor called Michael Durtnall, at the Sayer Clinic in Kensington (http://www.sayerclinics.com/chiropractors/). I went to see him partly because I read about the Mctimoney chiropractic trial that had helped people, and partly because I sit in a funny way because of the pain, and so I had started to get achey hips and back.

I was kind of hoping that he would find something obvious wrong in the alignment of my spine/hips/pelvis i.e. something bone related, so that there was an obvious cause, but there wasn't anything. (he x-rayed).

As well as doing treatment to sort out my posture and help unlock my pelvis & hips, he is also doing some soft tissue work, i.e. trying to manually stretch my pelvic floor muscles and do some internal massage to help reduce muscle knots. My muscles are really tight and I can actually feel separate tendons which isn't good!

I have been seeing him for about a month now and I think it is helping. I have been able to reduce my amitryptaline dosage a little bit since seeing him. Although it's still quite high, I've never been able to reduce it before without immediately feeling awful, so it is making me hopeful.

He is not cheap (£120 for the first 90 minute consultation, £85 after that), which is quite expensive for me, but I am going to keep going for a while.

I decided to go to him because he specialises in pelvic pain and I think he has quite a lot of experience.

I'll let people know how I get on!

xxx

londonlady

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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Mon Jun 11, 2012 9:17 pm

Sounds interesting, yes do let me know how you get on. How many sessions have you had with him in the last month?

Kensington is the other side of London for me so still quite a long trip, but if he's really good...

I have an appointment now with the lady in Worthing who ivy rose saw. It's a 3 hour train ride, but worth it to get her to have a look and say yes or no to a pelvic misalignment.

I am like you, really hoping she'll see something obvious!

Bet she won't!

Ax

bluekangeroo

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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  bluekangeroo on Mon Jun 25, 2012 8:26 am

Hey London Lady - how are you getting on with your Chiropractor? Are you still feeling like it is helping?

I went to see the lady in Worthing at the weekend and she found that I do have a misalignment which explains a lot about my vulva pain, back pain and possibly my digestive problems, I didn't understand the theory behind chirorpactice before, but now I do, it makes a lot of sense!


bluekangeroo

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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

Post  londonlady on Thu Jun 28, 2012 7:41 am

Hi Blue Kangeroo,

sorry about the delayed reply!

I'm glad that the chiropractor is helping!

I have decided to stop seeing my chiropractor for a while. I think it has been helpful - he has helped unlock my hips and definitely started some good internal stretching with my pelvis. he's also helped me to sort out some back issues and made me realise that I can use massage to help reduce tension in my hips and tummy which is related to the pelvic pain and IBS. At the same time, I think that I might be better off seeing a specialist physio and spending my money that way at the moment, as I didn't have any serious misalignments.

I hope the lady in worthing helps Smile

xz


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Re: Can anyone recommend a good chiropractor for vulva pain around the london/cambridge area?

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