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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Has anyone seen Helen Forth - physio at royal free?
4 posters
Page 1 of 1
Has anyone seen Helen Forth - physio at royal free?
I have heard good things about her on the vulva pain soc website. she has done talks and things about vulva pain.
I wondered if anyone has seen her or has heard anything good about her?
I wondered if anyone has seen her or has heard anything good about her?
bluekangeroo- Posts : 44
Join date : 2012-05-17
Re: Has anyone seen Helen Forth - physio at royal free?
Hello there
I didn't get to see Helen Forth but I did get a referral to her physio dept and just had my first appointment with another physio Amanda who was lovely. The waiting list is long....they have just introduced harsher penalties for people not turning up to appointments so hopefully this will change....but I waited around 5 months to get my initial appointment. Glad I pushed for it though as I do have pelvic floor issues and hoping that treatment for this will help. Also my therapist told me they have a specialist vulva gynae department there so you could ask to be referred to both departments if its local for you. I don't know what the vulva department is like there though. The physio seemed really knowledgeable though. I discussed my IBS being something that kicks off at the same time as my vestibulodynia and she said that its a common thing that she hears so it was worth going just to find that out
I am seeing them again in two weeks so hopefully I can post and let people know how its going!
Riv x
I didn't get to see Helen Forth but I did get a referral to her physio dept and just had my first appointment with another physio Amanda who was lovely. The waiting list is long....they have just introduced harsher penalties for people not turning up to appointments so hopefully this will change....but I waited around 5 months to get my initial appointment. Glad I pushed for it though as I do have pelvic floor issues and hoping that treatment for this will help. Also my therapist told me they have a specialist vulva gynae department there so you could ask to be referred to both departments if its local for you. I don't know what the vulva department is like there though. The physio seemed really knowledgeable though. I discussed my IBS being something that kicks off at the same time as my vestibulodynia and she said that its a common thing that she hears so it was worth going just to find that out
I am seeing them again in two weeks so hopefully I can post and let people know how its going!
Riv x
riv- Posts : 10
Join date : 2011-10-27
Re: Has anyone seen Helen Forth - physio at royal free?
Hi Riv,
How did you get a referral there? Is the royal free your local hospital?
I get affected by IBS too, which is triggered and then compounds my pelvic pain, so any tips you pick up about manging them together would be much appreciated!
thanks
xx
How did you get a referral there? Is the royal free your local hospital?
I get affected by IBS too, which is triggered and then compounds my pelvic pain, so any tips you pick up about manging them together would be much appreciated!
thanks
xx
londonlady- Posts : 12
Join date : 2012-05-04
Re: Has anyone seen Helen Forth - physio at royal free?
Hello London Lady!
You can ask for a referral anywhere you like with the NHS now - just ask your GP - you get much better results with the GP if you go armed with print outs! So contacts for the department, who you want to me referred to etc- if you can hand something to your GP they are happier to refer you where you want. I am with Guys for dermatology (although Royal Free have a Vulva clinic too) but heard good things about the royal free and didn't know where else I could go for the vulvodynia physio
In terms of managing the IBS with physio its not such good news - apparently fixing pelvic floor probs doesn't help with the IBS but my phsio said they do tend to flare at the same time so Im hoping if I can reduce my flare ups in my fanny then my IBS will be less likely to flare - here's hoping anyway - I also think Im going to try the oxalate diet for IBS and V but it doesn't great reviews - Im going to try it anyway. It cant make it any worse!
Riv x
You can ask for a referral anywhere you like with the NHS now - just ask your GP - you get much better results with the GP if you go armed with print outs! So contacts for the department, who you want to me referred to etc- if you can hand something to your GP they are happier to refer you where you want. I am with Guys for dermatology (although Royal Free have a Vulva clinic too) but heard good things about the royal free and didn't know where else I could go for the vulvodynia physio
In terms of managing the IBS with physio its not such good news - apparently fixing pelvic floor probs doesn't help with the IBS but my phsio said they do tend to flare at the same time so Im hoping if I can reduce my flare ups in my fanny then my IBS will be less likely to flare - here's hoping anyway - I also think Im going to try the oxalate diet for IBS and V but it doesn't great reviews - Im going to try it anyway. It cant make it any worse!
Riv x
riv- Posts : 10
Join date : 2011-10-27
Re: Has anyone seen Helen Forth - physio at royal free?
I am with Amanda as well! How did you found her!?
Melian- Posts : 15
Join date : 2015-02-17
Similar topics
» New Physio
» Royal College of Obstetricians and Gynaecologists couldnt give a stuff...
» nothing is working!
» Royal College of Obstetricians and Gynaecologists couldnt give a stuff...
» nothing is working!
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer