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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Has anyone seen Helen Forth - physio at royal free?

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Has anyone seen Helen Forth - physio at royal free?

Post  bluekangeroo on Fri May 18, 2012 9:07 am

I have heard good things about her on the vulva pain soc website. she has done talks and things about vulva pain.

I wondered if anyone has seen her or has heard anything good about her?


bluekangeroo

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Re: Has anyone seen Helen Forth - physio at royal free?

Post  riv on Sat Jun 09, 2012 9:43 pm

Hello there

I didn't get to see Helen Forth but I did get a referral to her physio dept and just had my first appointment with another physio Amanda who was lovely. The waiting list is long....they have just introduced harsher penalties for people not turning up to appointments so hopefully this will change....but I waited around 5 months to get my initial appointment. Glad I pushed for it though as I do have pelvic floor issues and hoping that treatment for this will help. Also my therapist told me they have a specialist vulva gynae department there so you could ask to be referred to both departments if its local for you. I don't know what the vulva department is like there though. The physio seemed really knowledgeable though. I discussed my IBS being something that kicks off at the same time as my vestibulodynia and she said that its a common thing that she hears so it was worth going just to find that out


I am seeing them again in two weeks so hopefully I can post and let people know how its going!

Riv x


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Re: Has anyone seen Helen Forth - physio at royal free?

Post  londonlady on Thu Jun 21, 2012 10:17 pm

Hi Riv,

How did you get a referral there? Is the royal free your local hospital?

I get affected by IBS too, which is triggered and then compounds my pelvic pain, so any tips you pick up about manging them together would be much appreciated!

thanks

xx

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Re: Has anyone seen Helen Forth - physio at royal free?

Post  riv on Fri Jun 22, 2012 9:28 pm

Hello London Lady!

You can ask for a referral anywhere you like with the NHS now - just ask your GP - you get much better results with the GP if you go armed with print outs! So contacts for the department, who you want to me referred to etc- if you can hand something to your GP they are happier to refer you where you want. I am with Guys for dermatology (although Royal Free have a Vulva clinic too) but heard good things about the royal free and didn't know where else I could go for the vulvodynia physio

In terms of managing the IBS with physio its not such good news - apparently fixing pelvic floor probs doesn't help with the IBS but my phsio said they do tend to flare at the same time so Im hoping if I can reduce my flare ups in my fanny then my IBS will be less likely to flare - here's hoping anyway - I also think Im going to try the oxalate diet for IBS and V but it doesn't great reviews - Im going to try it anyway. It cant make it any worse!

Riv x

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Re: Has anyone seen Helen Forth - physio at royal free?

Post  Melian on Wed Aug 26, 2015 11:00 pm

I am with Amanda as well! How did you found her!?

Melian

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Re: Has anyone seen Helen Forth - physio at royal free?

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