Vulvodynia Support
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» Hope to all my suffering ladies
Has anyone seen Helen Forth - physio at royal free? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Has anyone seen Helen Forth - physio at royal free? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Has anyone seen Helen Forth - physio at royal free? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Has anyone seen Helen Forth - physio at royal free? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Has anyone seen Helen Forth - physio at royal free? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Has anyone seen Helen Forth - physio at royal free? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Has anyone seen Helen Forth - physio at royal free? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Has anyone seen Helen Forth - physio at royal free? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Has anyone seen Helen Forth - physio at royal free? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Has anyone seen Helen Forth - physio at royal free?

4 posters

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Has anyone seen Helen Forth - physio at royal free? Empty Has anyone seen Helen Forth - physio at royal free?

Post  bluekangeroo Fri May 18, 2012 9:07 am

I have heard good things about her on the vulva pain soc website. she has done talks and things about vulva pain.

I wondered if anyone has seen her or has heard anything good about her?


bluekangeroo

Posts : 44
Join date : 2012-05-17

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Has anyone seen Helen Forth - physio at royal free? Empty Re: Has anyone seen Helen Forth - physio at royal free?

Post  riv Sat Jun 09, 2012 9:43 pm

Hello there

I didn't get to see Helen Forth but I did get a referral to her physio dept and just had my first appointment with another physio Amanda who was lovely. The waiting list is long....they have just introduced harsher penalties for people not turning up to appointments so hopefully this will change....but I waited around 5 months to get my initial appointment. Glad I pushed for it though as I do have pelvic floor issues and hoping that treatment for this will help. Also my therapist told me they have a specialist vulva gynae department there so you could ask to be referred to both departments if its local for you. I don't know what the vulva department is like there though. The physio seemed really knowledgeable though. I discussed my IBS being something that kicks off at the same time as my vestibulodynia and she said that its a common thing that she hears so it was worth going just to find that out


I am seeing them again in two weeks so hopefully I can post and let people know how its going!

Riv x


riv

Posts : 10
Join date : 2011-10-27

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Post  londonlady Thu Jun 21, 2012 10:17 pm

Hi Riv,

How did you get a referral there? Is the royal free your local hospital?

I get affected by IBS too, which is triggered and then compounds my pelvic pain, so any tips you pick up about manging them together would be much appreciated!

thanks

xx

londonlady

Posts : 12
Join date : 2012-05-04

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Post  riv Fri Jun 22, 2012 9:28 pm

Hello London Lady!

You can ask for a referral anywhere you like with the NHS now - just ask your GP - you get much better results with the GP if you go armed with print outs! So contacts for the department, who you want to me referred to etc- if you can hand something to your GP they are happier to refer you where you want. I am with Guys for dermatology (although Royal Free have a Vulva clinic too) but heard good things about the royal free and didn't know where else I could go for the vulvodynia physio

In terms of managing the IBS with physio its not such good news - apparently fixing pelvic floor probs doesn't help with the IBS but my phsio said they do tend to flare at the same time so Im hoping if I can reduce my flare ups in my fanny then my IBS will be less likely to flare - here's hoping anyway - I also think Im going to try the oxalate diet for IBS and V but it doesn't great reviews - Im going to try it anyway. It cant make it any worse!

Riv x

riv

Posts : 10
Join date : 2011-10-27

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Post  Melian Wed Aug 26, 2015 11:00 pm

I am with Amanda as well! How did you found her!?

Melian

Posts : 15
Join date : 2015-02-17

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