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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


My 7-month quest so far...

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My 7-month quest so far...

Post  Julie on Wed Jul 28, 2010 11:18 pm

I never thought I would be so emotionally drained and distraught as a result of a gynecological issue!

In December of 2009, I started having some uncomfortable itching and pain, and I visited a gynecologist who performed some cultures and diagnosed me with bacterial vaginosis (BV). I was prescribed a gel insert which didn't fully work, so I was then given a pill, which cleared up all of the symptoms -- except a bit of the pain. I found that over the next few weeks, sex with my boyfriend (whom I have been dating now for over 2 years... quite an understanding guy, thank goodness) was becoming more and more uncomfortable. I became more irritated (physically AND mentally!) as time wore on, and in March, I saw another gynecologist. He first suggested I try an over-the-counter hydrocortisone cream -- which, predictably, failed -- and then gave me a prescription form (i.e. slightly stronger), which still did nothing. My cultures and tests all came back normal -- no infections, no STDs, normal pap smear -- so his last move was to perform a biopsy on the vulvar skin to check for any unlikely (but scary) possibilities.

Of course, the biopsy came back all clear, and I was told to try the hydrocortisone cream once again.

At this point, I was not able to have any sex at all, and even after the biopsied spot healed, my overall irritation was so severe that I finally had to stop using tampons. The bits of time before, during, and after my period seriously exacerbated the situation, and my frustration grew. I saw one more doctor in June, who prescribed me the strongest steroidal cream he could think of -- to no avail.

At this point, my emotions were shot. I had become so discouraged and resigned myself to a sexless, uncomfortable life. I hated thinking such dramatic things, but I seriously (albeit VERY briefly) considered the pros of having a hysterectomy (no more periods, no more hormonal surges, etc.), but I wanted to have children first, so I thought...hey, IVF!... I could have a child via C-section and then get my tubes tied, and at least remove some of the issue. Obviously a ridiculous notion, but the frustration ran that deep.

I also began to experience an attack on my sense of womanhood that I never fathomed before. I am not particularly into feminism and I don't often think very deeply about gender norms, but here I was, rendered unable to be intimate with my boyfriend, unable to be comfortable during my period, and in pain while I exercised, used toilet paper, wore tight clothing/thongs, and sometimes when I just WALKED... I felt hopeless. I felt incomplete.

A lot of research led me to the term "vulvodynia" -- chronic vulvar pain -- and FINALLY, the last gynecologist I had seen mentioned the word to me as he referred me to another doctor in his practice, a woman who has been researching the condition. Merely hearing him speak that magic word lifted my spirits!

I visited this new doctor a week ago. She changed my entire regimen -- new detergent, new soap, different pads...everything to cut down on excess irritation. I asked to be put on Seasonique, a birth control on which you only get your periods every 3 months (I never felt comfortable doing this before, but once my periods became living embodiments of hell, I didn't think twice!). She also did some cultures and found that there was some sort of yeast present, so I was put on Diflucan, 6 pills, once a week.

I am still just as discouraged as I was before... my libido has hit rock-bottom and I feel that I cannot become as close to my boyfriend as I did before (although this is most DEFINITELY a testament to our bond, as a lesser person would not have wanted to put up with a dearth of sex... and I know from experience); my moods align almost perfectly with the degree of pain I am in, to the point where I just want to curl up and do nothing, see no one; and I am seriously doubting the existence of any sort of solution -- and, by extrapolation, my future as a woman/girlfriend/wife/normal human -- but at least I am getting somewhere.

I am about to pursue a master's degree in public health, starting next month, and my goal after that is to get a PhD in psychology. At this point, I've had some very interesting conversations with my boyfriend about dissertation ideas, and we converged on this working title from which to start -- "Sexual Dysfunctions and the Psychology of Femininity."

I hope to speak with people who have gone through similar issues, and to make a difference in the field regardless of my success or lack thereof. I have to remain hopeful!

Julie

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argh

Post  Julie on Thu Jul 29, 2010 2:22 pm

No matter how positive I try to be, it falls back on me and leaves me so depressed. bleh!

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Re: My 7-month quest so far...

Post  naomi on Thu Jul 29, 2010 4:00 pm

I can totally relate to you hun, seems like it came out of my mouth and head! Like many of us ladies on here Sad Its such a struggle everyday to even get out of bed, let alone try and lead a happy and fulfilling life etc etc etc

All I know is, there might not be any quick, simple answers out there but I know there is support and friendship. I dont know what I would have done if I hadnt found a site like this. It is the isolation that gets me, none of my friends or family have ever experienced anything along these lines or to this degree. I wake up some days thinking "whats the point?"...and that scares me as I have never been that type of person to be so negative and pessimistic. But I havent been given any hope, so i have nothing to go by.

We've got to get some answers soon. I dont believe there hasnt been any advances on research or treatment. WE'LL FRIGGIN GET THERE!!!! (hey that was a bit of positivity there i think!?!)

I'll write some more later Im afraid I'm totally wiped out after crappy tribunal earlier.

Love to you all

Nai xxxxxxx

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Re: My 7-month quest so far...

Post  Julie on Thu Jul 29, 2010 5:45 pm

Thanks for the response =) I hadn't until now tried to reach out for support, and the few friends with whom I've talked really can't get a feel for what's going on, so it is REALLY reassuring. Just made myself get up and go walk a few miles at the gym while reading a science magazine (nerdy, I know!) to get my mind off of things.

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Re: My 7-month quest so far...

Post  Sebby (Admin) on Thu Jul 29, 2010 7:53 pm


Welcome Julie!

I can totally relate to everything you said. I have been battling with doctors to take me seriously and have used every friggin cream under the sun! I was living on Hydrocortisone cream and canestan at one point.

At present I am due to see a pain clinic on Monday and just hope when I say the word Vulvodynia I dont get a blank stare! Shocked like ive just walked in with a chicken attached to my face lol

I also feel its robbed me of feeling like a 'woman' I felt like I should just run away to a nunnery and be done with it!

Im still trying to fight on so dont give up, keep posting and let us know how u get on.

Im hoping to try and go down the whole physcial therapy - pelvic floor road.

Take care and keep us updated

Sebby

xxxx
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Re: My 7-month quest so far...

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