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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


COCONUT OIL cured me.

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Re: COCONUT OIL cured me.

Post  mrs.optimistic on Sat May 16, 2015 8:12 am

I use coconut oil all over my body as a moisturizer. Its good for my stretch marks and surgical scars. I also use it on my lips when they're chapped, on my hair before bathing when it's dried out, and I plan to try it as a dietary supplement now. Thanks so much! Good luck ladies xo

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Re: COCONUT OIL cured me.

Post  hippychick32 on Mon Jun 22, 2015 2:36 pm

Alana3 wrote:Just saying be very careful with that. If you ingest it it has.a ton of calories and makes you break out. If you put it down there it can cause bacterial infections and yeast. I asked my doctor he said maybe but sometimes it can cause more problems in the long run. If you use it everyday. I've heard of people using it with success so it's worth it but it can cause worse problems so just.be.very careful Smile

Hello! Newbie here, but just wanted to say that coconut oil has antibacterial properties and antifungal and is great for killing yeast!

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Coconut oil and digestion

Post  sweetstarfire on Fri Jul 03, 2015 4:12 pm

I have Cystic Fibrosis too and we get bowel obstructions a lot. It has been suggested in my CF support group to eat coconut oil to help get things moving. For the ladies who have been eating coconut oil to help with the pain ... have you been going to the bathroom more often? I would be afraid that it would act as a laxative too.
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Argh

Post  Ouch123 on Sat Aug 29, 2015 11:45 pm

Hi all

I see this thread is kind of old so yall may have moved on

I was just diagnosed and am miserable and in pain. I am going through what you all went through in the begining, anger, denial, despair.

Anyway... Did the coconut oil work for others

I just took two tbs

I know that coconut oil kills yeast when used intravaginally
I wonder if it kills yeast systemically when injested

Argh

This sucks

Ouch123

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Re: COCONUT OIL cured me.

Post  Ouch123 on Mon Aug 31, 2015 11:12 am

Well... No luck

I keep looking for the mirical cure. I think there is probably a different one for everyone. I am happy to know that at least one person found theirs

Ouch123

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Re: COCONUT OIL cured me.

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