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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Newbie here

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Newbie here

Post  Dandelion on Fri May 25, 2012 6:19 am

Hey all,

I'm Danni. I'm a 20 year old student from New Zealand and I've been suffering with Vulvodynia for almost two years now. The impact it has on my life has gotten worse over the last 6 or so months, to the point where I have been diagnosed with severe depression. I am about to start counselling with a psychologist who specialises in this sort of thing, and am on medication for it. I have a really amazing partner who has been with my from the very start, and is really supportive of me.

I'm really glad I found this forum, it'll be good to be able to chat with people who know what its like, and hopefully it won't feel so isolating anymore Smile


Dandelion

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Age : 25
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Another kiwi

Post  Em on Thu May 31, 2012 12:29 am

Hi, Am really sorry to hear how depressed you are but completely understand it. I have had this condition for a number of years and found most things havent worked, but that isnt to say that they won't for you. Mine started with pregnancy and has never gone away. I have 2 kids now and the reason that is even possible is that i use 2% lignacaine (that they use prior to inserting catheters it comes in a pre prepared syringe so east to use) to numb the pain. Initally it is sore, but after a minute or so it is fine once the lignacaine is doing its thing. So at least I can keep my sex life going this way otherwise it would be impossible. I find that there is very little support here in New Zealand, I have a bit more time now now so I am going to keep looking into things alot more and see what I can come up with as I am sick and tired of it and cant imagine that there is nothing that can be done about it. The important thing is that you are not alone with it and there is a lot more information coming out now than there was afew years ago.

Em

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Re: Newbie here

Post  Dandelion on Thu May 31, 2012 5:15 am

I have found that amitriptyline has worked for me a fair amount - I have minimal everyday discomfort now, which is amazing. I haven't heard about that gel before, i might look into it though. I've been doing my research too, but luckily I didn't have the same struggle to be diagnosed that a lot of other people seem to have had. Its good to have found somewhere where other people know what its like - other people tend to not get it, or understand the affect it has on you.

Dandelion

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Re: Newbie here

Post  Em on Thu May 31, 2012 10:36 pm

Hi Danni, the lignacaine is just used prior to make sex possible, it isnt something that I would use all the time during the day. And to be honest still does hurt a bit to start with during sex but comes right. I have tried Amitriptylline as well but hated the zombie feeling it gave me. Onwards and upwards!

Em

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Re: Newbie here

Post  Dandelion on Fri Jun 01, 2012 1:48 am

I realised that its used before sex, and it's still something that I would like to look into at least as the strain that this is putting on my relationship is getting worse. As supportive as my partner is the lack of contact we have (I've stopped be interested in anything relating to sex) is getting to both of us and our relationship is struggling because of it.

Dandelion

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Re: Newbie here

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