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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Newbie here

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Newbie here

Post  Dandelion on Fri May 25, 2012 6:19 am

Hey all,

I'm Danni. I'm a 20 year old student from New Zealand and I've been suffering with Vulvodynia for almost two years now. The impact it has on my life has gotten worse over the last 6 or so months, to the point where I have been diagnosed with severe depression. I am about to start counselling with a psychologist who specialises in this sort of thing, and am on medication for it. I have a really amazing partner who has been with my from the very start, and is really supportive of me.

I'm really glad I found this forum, it'll be good to be able to chat with people who know what its like, and hopefully it won't feel so isolating anymore Smile


Dandelion

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Age : 25
Location : New Zealand

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Another kiwi

Post  Em on Thu May 31, 2012 12:29 am

Hi, Am really sorry to hear how depressed you are but completely understand it. I have had this condition for a number of years and found most things havent worked, but that isnt to say that they won't for you. Mine started with pregnancy and has never gone away. I have 2 kids now and the reason that is even possible is that i use 2% lignacaine (that they use prior to inserting catheters it comes in a pre prepared syringe so east to use) to numb the pain. Initally it is sore, but after a minute or so it is fine once the lignacaine is doing its thing. So at least I can keep my sex life going this way otherwise it would be impossible. I find that there is very little support here in New Zealand, I have a bit more time now now so I am going to keep looking into things alot more and see what I can come up with as I am sick and tired of it and cant imagine that there is nothing that can be done about it. The important thing is that you are not alone with it and there is a lot more information coming out now than there was afew years ago.

Em

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Re: Newbie here

Post  Dandelion on Thu May 31, 2012 5:15 am

I have found that amitriptyline has worked for me a fair amount - I have minimal everyday discomfort now, which is amazing. I haven't heard about that gel before, i might look into it though. I've been doing my research too, but luckily I didn't have the same struggle to be diagnosed that a lot of other people seem to have had. Its good to have found somewhere where other people know what its like - other people tend to not get it, or understand the affect it has on you.

Dandelion

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Re: Newbie here

Post  Em on Thu May 31, 2012 10:36 pm

Hi Danni, the lignacaine is just used prior to make sex possible, it isnt something that I would use all the time during the day. And to be honest still does hurt a bit to start with during sex but comes right. I have tried Amitriptylline as well but hated the zombie feeling it gave me. Onwards and upwards!

Em

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Re: Newbie here

Post  Dandelion on Fri Jun 01, 2012 1:48 am

I realised that its used before sex, and it's still something that I would like to look into at least as the strain that this is putting on my relationship is getting worse. As supportive as my partner is the lack of contact we have (I've stopped be interested in anything relating to sex) is getting to both of us and our relationship is struggling because of it.

Dandelion

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Re: Newbie here

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