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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Newbie here

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Newbie here

Post  Dandelion on Fri May 25, 2012 6:19 am

Hey all,

I'm Danni. I'm a 20 year old student from New Zealand and I've been suffering with Vulvodynia for almost two years now. The impact it has on my life has gotten worse over the last 6 or so months, to the point where I have been diagnosed with severe depression. I am about to start counselling with a psychologist who specialises in this sort of thing, and am on medication for it. I have a really amazing partner who has been with my from the very start, and is really supportive of me.

I'm really glad I found this forum, it'll be good to be able to chat with people who know what its like, and hopefully it won't feel so isolating anymore Smile


Dandelion

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Age : 26
Location : New Zealand

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Another kiwi

Post  Em on Thu May 31, 2012 12:29 am

Hi, Am really sorry to hear how depressed you are but completely understand it. I have had this condition for a number of years and found most things havent worked, but that isnt to say that they won't for you. Mine started with pregnancy and has never gone away. I have 2 kids now and the reason that is even possible is that i use 2% lignacaine (that they use prior to inserting catheters it comes in a pre prepared syringe so east to use) to numb the pain. Initally it is sore, but after a minute or so it is fine once the lignacaine is doing its thing. So at least I can keep my sex life going this way otherwise it would be impossible. I find that there is very little support here in New Zealand, I have a bit more time now now so I am going to keep looking into things alot more and see what I can come up with as I am sick and tired of it and cant imagine that there is nothing that can be done about it. The important thing is that you are not alone with it and there is a lot more information coming out now than there was afew years ago.

Em

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Re: Newbie here

Post  Dandelion on Thu May 31, 2012 5:15 am

I have found that amitriptyline has worked for me a fair amount - I have minimal everyday discomfort now, which is amazing. I haven't heard about that gel before, i might look into it though. I've been doing my research too, but luckily I didn't have the same struggle to be diagnosed that a lot of other people seem to have had. Its good to have found somewhere where other people know what its like - other people tend to not get it, or understand the affect it has on you.

Dandelion

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Re: Newbie here

Post  Em on Thu May 31, 2012 10:36 pm

Hi Danni, the lignacaine is just used prior to make sex possible, it isnt something that I would use all the time during the day. And to be honest still does hurt a bit to start with during sex but comes right. I have tried Amitriptylline as well but hated the zombie feeling it gave me. Onwards and upwards!

Em

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Re: Newbie here

Post  Dandelion on Fri Jun 01, 2012 1:48 am

I realised that its used before sex, and it's still something that I would like to look into at least as the strain that this is putting on my relationship is getting worse. As supportive as my partner is the lack of contact we have (I've stopped be interested in anything relating to sex) is getting to both of us and our relationship is struggling because of it.

Dandelion

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Age : 26
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Re: Newbie here

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