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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Newbie here

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Newbie here

Post  Dandelion on Fri May 25, 2012 6:19 am

Hey all,

I'm Danni. I'm a 20 year old student from New Zealand and I've been suffering with Vulvodynia for almost two years now. The impact it has on my life has gotten worse over the last 6 or so months, to the point where I have been diagnosed with severe depression. I am about to start counselling with a psychologist who specialises in this sort of thing, and am on medication for it. I have a really amazing partner who has been with my from the very start, and is really supportive of me.

I'm really glad I found this forum, it'll be good to be able to chat with people who know what its like, and hopefully it won't feel so isolating anymore Smile


Dandelion

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Another kiwi

Post  Em on Thu May 31, 2012 12:29 am

Hi, Am really sorry to hear how depressed you are but completely understand it. I have had this condition for a number of years and found most things havent worked, but that isnt to say that they won't for you. Mine started with pregnancy and has never gone away. I have 2 kids now and the reason that is even possible is that i use 2% lignacaine (that they use prior to inserting catheters it comes in a pre prepared syringe so east to use) to numb the pain. Initally it is sore, but after a minute or so it is fine once the lignacaine is doing its thing. So at least I can keep my sex life going this way otherwise it would be impossible. I find that there is very little support here in New Zealand, I have a bit more time now now so I am going to keep looking into things alot more and see what I can come up with as I am sick and tired of it and cant imagine that there is nothing that can be done about it. The important thing is that you are not alone with it and there is a lot more information coming out now than there was afew years ago.

Em

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Re: Newbie here

Post  Dandelion on Thu May 31, 2012 5:15 am

I have found that amitriptyline has worked for me a fair amount - I have minimal everyday discomfort now, which is amazing. I haven't heard about that gel before, i might look into it though. I've been doing my research too, but luckily I didn't have the same struggle to be diagnosed that a lot of other people seem to have had. Its good to have found somewhere where other people know what its like - other people tend to not get it, or understand the affect it has on you.

Dandelion

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Re: Newbie here

Post  Em on Thu May 31, 2012 10:36 pm

Hi Danni, the lignacaine is just used prior to make sex possible, it isnt something that I would use all the time during the day. And to be honest still does hurt a bit to start with during sex but comes right. I have tried Amitriptylline as well but hated the zombie feeling it gave me. Onwards and upwards!

Em

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Re: Newbie here

Post  Dandelion on Fri Jun 01, 2012 1:48 am

I realised that its used before sex, and it's still something that I would like to look into at least as the strain that this is putting on my relationship is getting worse. As supportive as my partner is the lack of contact we have (I've stopped be interested in anything relating to sex) is getting to both of us and our relationship is struggling because of it.

Dandelion

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Re: Newbie here

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