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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Has anyone experienced more pain after doing pelvic floor exercises?
4 posters
Page 1 of 1
Has anyone experienced more pain after doing pelvic floor exercises?
Hi,
I've been seeing a women's health physio for a year and a bit, worked on lots of massage a release work. Adventually I got referred on the Nhs the first session I got told to do pelvic floor exercises. I tried but experienced pain in my tummy,my stomached muscels when I started this whole physio process were so tight and I have spend a lot of time trying to relax them so I stopped do the pelvic floor exercise and went back. This time I was examined and I find it hard to tell the difference between squeezing and releasing and most of the time I'm not releasing completley.
Anyway to cut a long story short within a hour it felt like someone was pulling in my stomach muscles in and I got so much pain that has lasted a week over the pubic symphysis bone it's like someone has kicked me really hard in that area, been putting ice there but don't know what else to do ?
Anyone experienced this?
Many thanks
Kt
I've been seeing a women's health physio for a year and a bit, worked on lots of massage a release work. Adventually I got referred on the Nhs the first session I got told to do pelvic floor exercises. I tried but experienced pain in my tummy,my stomached muscels when I started this whole physio process were so tight and I have spend a lot of time trying to relax them so I stopped do the pelvic floor exercise and went back. This time I was examined and I find it hard to tell the difference between squeezing and releasing and most of the time I'm not releasing completley.
Anyway to cut a long story short within a hour it felt like someone was pulling in my stomach muscles in and I got so much pain that has lasted a week over the pubic symphysis bone it's like someone has kicked me really hard in that area, been putting ice there but don't know what else to do ?
Anyone experienced this?
Many thanks
Kt
Sunflower82- Posts : 82
Join date : 2012-02-17
Re: Has anyone experienced more pain after doing pelvic floor exercises?
Yes, if I do kegels my pain shoots through the roof and if you can't tell the difference between contracting and releasing chances are you're not releasing properly. You can buy feedback items to tell you when you're doing this, there's one and the name escapes me I'm afraid but it's really cheap and consists of a plastic probe with a plastic wand on the outside and the wand moves down when you contract and up when you release so you know what you're doing. Has the physio not got access to a biofeedback machine to give you some sessions so you get used to how it feels? Just sending you away with kegels after all your hard work to relax the muscles is very sloppy practice and you need to stop them until you've either had a go on a machine with the physio or you get something to give you feedback. I've got one of the ones with a plastic wand and I'm pretty sure I bought it on Amazon so have a look on there for pelvic floor exercisers and you'll see what it is, cost about £10 I think. Also you need to start slowly, low reps at first so you don't overdo it. The transversus abs co-contracts with the pelvic floor which could be your abdominal pain or it could be you're doing them completely wrong and hitting the rectus abs instead.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Has anyone experienced more pain after doing pelvic floor exercises?
I get conflicting advice from my drs and physical therapist. Kegels make my vulvodynia worse. the physical therapist insisted upon it. saying to focus more on the release than the contraction because my pelvic muscles are too tight. my gyn and urologist say no kegels at all. Who do you listen too? mY urologist just recommended a new physical therapist and I am going for an evaluation tomorrow.
riag- Posts : 10
Join date : 2013-01-07
Re: Has anyone experienced more pain after doing pelvic floor exercises?
I have a tight pelvic floor, no one has ever suggested kegels. I have done biofeedback and increasing awareness of muscles while attempting to release the pelvic floor and surrounding hip stomach and butt muscles. My pelvic floor physio gets me to squeeze or contract first then release as much as possible but never exercise. I get quite a bit of pain after release with the physio and also chiro appts in my stomach, SI joint, lumbar spine, butt and sometimes thigh adductors. I have been told this is normal as I am cchanging a lot in my body, changing things to where they should be and my body is it is not used to it.
cba321- Posts : 69
Join date : 2012-07-14
Re: Has anyone experienced more pain after doing pelvic floor exercises?
I've tried both doing kegels and not doing kegels and I think it's which one works for you, if kegels cause more pain you shouldn't be doing them at this stage, fully relax the pelvic floor then reassess and see if you need kegels is what I would go with.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Similar topics
» Just joined - lots of questions - let's beat this thing!
» Recently diagnosed but having to take antibiotics!
» pelvic floor theraph??
» Recently diagnosed but having to take antibiotics!
» pelvic floor theraph??
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer