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» Honey decreased my pain considerably!
Yesterday at 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Yesterday at 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
Tue Jul 10, 2018 12:27 am by srbry

» Hello. In Need of Advice, Please and Thank You. Long Read.
Sun Jul 08, 2018 3:58 am by cg1991

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Surgery in 2 weeks!

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Surgery in 2 weeks!

Post  amtali on Tue May 29, 2012 3:31 pm

I am new to this whole forum-writing thing, but I have jumped on the bandwagon in the hopes that I may be able to help others.

I am 23 years old and have suffered from vestibulodynia for over 4 1/2 years. My boyfriend of over 5 years has been with me from the start of it all, and I could not be more thankful for him. We actually had a normal sexual relationship for about 6 months before symptoms started presenting themselves in Fall '07.

Basically, I had localized pain at about 6-8 o'clock during intercourse and upon touching the area. It took several months and doctors before I was correctly diagnosed. I was first given Lidocaine .05% to use before intercourse. 4 1/2 years later- I'm using 5% and it's still not always enough.

Needless to say, here are the treatments I have tried:

Lidocaine
topical estrogen
topical steroids
Amitriptyline
Nortriptyline
Gabapentin
Venlafaxin
Physical Therapy/Biofeedback


None have worked well, so I am opting for surgery.

On top of my initial pain, my pain began to spread over the years, presenting itself at 3 o'clock. For the past 2 years, I have also been battling with something called a fissure, or a reoccurring cut, that keeps opening itself at 11 o'clock during intercourse. The specialist I finally went to, Dr. Libby Edwards in Charlotte, NC, said that these are common with vestibulodynia, but they do not know the exact link. Nevertheless, the only option left for me was surgery, so I was referred to Dr. Bernard Taylor in Charlotte, NC. (Keep in mind, these doctors are 4+ hours from where I live.)

The surgeon examined me and determined that I was a good candidate for a vestibulectomy and hymenectomy (to remove left over hymen tissue that could contribute to the source of the nerve pain.) I am very anxious about the surgery, but am hopeful that it will be worth it in the end.

I am very open to talking about my issues, the surgery, etc, so PLEASE ask any and all questions an I'll try to keep you guys posted through my journey!

Thanks!

amtali

amtali

Posts : 19
Join date : 2012-05-29

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Re: Surgery in 2 weeks!

Post  junobug85 on Fri Jun 29, 2012 10:55 pm

Hello - my story is extremely similar. The doctor I am seeing now says that he stopped doing the surgery because the success rate was low but then some places I read it has the highest success rate. Please keep us updated on your story! Best wishes

junobug85

Posts : 14
Join date : 2012-04-22

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