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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 3

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


Surgery in 2 weeks!

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Surgery in 2 weeks!

Post  amtali on Tue May 29, 2012 3:31 pm

I am new to this whole forum-writing thing, but I have jumped on the bandwagon in the hopes that I may be able to help others.

I am 23 years old and have suffered from vestibulodynia for over 4 1/2 years. My boyfriend of over 5 years has been with me from the start of it all, and I could not be more thankful for him. We actually had a normal sexual relationship for about 6 months before symptoms started presenting themselves in Fall '07.

Basically, I had localized pain at about 6-8 o'clock during intercourse and upon touching the area. It took several months and doctors before I was correctly diagnosed. I was first given Lidocaine .05% to use before intercourse. 4 1/2 years later- I'm using 5% and it's still not always enough.

Needless to say, here are the treatments I have tried:

Lidocaine
topical estrogen
topical steroids
Amitriptyline
Nortriptyline
Gabapentin
Venlafaxin
Physical Therapy/Biofeedback


None have worked well, so I am opting for surgery.

On top of my initial pain, my pain began to spread over the years, presenting itself at 3 o'clock. For the past 2 years, I have also been battling with something called a fissure, or a reoccurring cut, that keeps opening itself at 11 o'clock during intercourse. The specialist I finally went to, Dr. Libby Edwards in Charlotte, NC, said that these are common with vestibulodynia, but they do not know the exact link. Nevertheless, the only option left for me was surgery, so I was referred to Dr. Bernard Taylor in Charlotte, NC. (Keep in mind, these doctors are 4+ hours from where I live.)

The surgeon examined me and determined that I was a good candidate for a vestibulectomy and hymenectomy (to remove left over hymen tissue that could contribute to the source of the nerve pain.) I am very anxious about the surgery, but am hopeful that it will be worth it in the end.

I am very open to talking about my issues, the surgery, etc, so PLEASE ask any and all questions an I'll try to keep you guys posted through my journey!

Thanks!

amtali

amtali

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Join date : 2012-05-29

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Re: Surgery in 2 weeks!

Post  junobug85 on Fri Jun 29, 2012 10:55 pm

Hello - my story is extremely similar. The doctor I am seeing now says that he stopped doing the surgery because the success rate was low but then some places I read it has the highest success rate. Please keep us updated on your story! Best wishes

junobug85

Posts : 14
Join date : 2012-04-22

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