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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


It isn't Vulvodynia

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It isn't Vulvodynia

Post  It Hurts on Thu May 31, 2012 7:13 pm

I saw a specialist, Dr. McClure, a few weeks ago. He was very interested in the degree of arthritis I have (very visible in my joints in my feet). At times I really find it hard to walk, and now I can't lift my right arm above my shoulder level - the arthritis in my shoulder has caused rotator cuff disease and frozen shoulder. All that aside, this was a clue before Dr McClure even did a physical exam. Within one minute he said, "you realize you got a false negative on lichen sclerosus because that is exactly what you have". It had been suspected I had lichen sclerosus (another auto-immune disorder) but I had a biopsy done and it came back negative. That is why my OBGYN, on doing the "Q-Tip" testing said it must be Vulvodynia. Dr. McClure said that lichen sclerosus is fairly uncommon but more common in arthritic women over 40, perimenopausal and menopausal women. I waited until I was 39 to have my first (and only) child and I can't even lift her into a carseat anymore (I feel like such an old mother!). So I am in my early 40's and probably getting close to being perimenopausal although I thought it might be a bit further away (I am showing symptoms like lots of leg and foot cramps etc). Dr McClure said that in order to get enough tissue sample to confirm lichen sclerosus you really need to be in the OR, which I may get scheduled to do just to be absolutely sure, although Dr. McClure said he is positive about this, it is something he can see. So for all you arthritic women who have Vulvodynia, you may actually have lichen sclerosus. I looked at lichen sclerosus and thought, "maybe I have that" and when I looked at the symptoms of Vulvodynia, I thought that was indeed what I had - they symptoms matched better than the lichen sclerosus symptoms. So now I am on a steroid cream that has not made intercourse any easier. I see Dr. McClure again in July to look at next steps. I guess a next step for me is to find a lichen sclerosus support forum!

It Hurts

Posts : 3
Join date : 2012-04-03
Age : 46
Location : Olympia, Washington

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