Log in

I forgot my password

Latest topics
» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


It isn't Vulvodynia

Go down

It isn't Vulvodynia

Post  It Hurts on Thu May 31, 2012 7:13 pm

I saw a specialist, Dr. McClure, a few weeks ago. He was very interested in the degree of arthritis I have (very visible in my joints in my feet). At times I really find it hard to walk, and now I can't lift my right arm above my shoulder level - the arthritis in my shoulder has caused rotator cuff disease and frozen shoulder. All that aside, this was a clue before Dr McClure even did a physical exam. Within one minute he said, "you realize you got a false negative on lichen sclerosus because that is exactly what you have". It had been suspected I had lichen sclerosus (another auto-immune disorder) but I had a biopsy done and it came back negative. That is why my OBGYN, on doing the "Q-Tip" testing said it must be Vulvodynia. Dr. McClure said that lichen sclerosus is fairly uncommon but more common in arthritic women over 40, perimenopausal and menopausal women. I waited until I was 39 to have my first (and only) child and I can't even lift her into a carseat anymore (I feel like such an old mother!). So I am in my early 40's and probably getting close to being perimenopausal although I thought it might be a bit further away (I am showing symptoms like lots of leg and foot cramps etc). Dr McClure said that in order to get enough tissue sample to confirm lichen sclerosus you really need to be in the OR, which I may get scheduled to do just to be absolutely sure, although Dr. McClure said he is positive about this, it is something he can see. So for all you arthritic women who have Vulvodynia, you may actually have lichen sclerosus. I looked at lichen sclerosus and thought, "maybe I have that" and when I looked at the symptoms of Vulvodynia, I thought that was indeed what I had - they symptoms matched better than the lichen sclerosus symptoms. So now I am on a steroid cream that has not made intercourse any easier. I see Dr. McClure again in July to look at next steps. I guess a next step for me is to find a lichen sclerosus support forum!

It Hurts

Posts : 3
Join date : 2012-04-03
Age : 47
Location : Olympia, Washington

View user profile

Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum