Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Finally - the NHS have a page on vulvodynia!

Go down

Finally - the NHS have a page on vulvodynia!

Post  ButterflyLiz on Mon Jun 04, 2012 10:07 am

Sooo, it came to my attention last year that the NHS' online medical condition website, NHS Choices (www.nhs.uk ), did NOT have a page on vulvodynia. How could this be possible - I asked myself - when they have been treating me for it for 10 years!! I have regularly visited NHS choices / sister site NHS direct over the years to check out symptoms of various illnesses I've had and they have just about every conceivable condition on there...but nothing on v.

So I emailed them and asked them to put something up last December. They said they would. Come April - still nothing. So I mentioned it on the secret facebook group & several lovely ladies also wrote to them. Then come May - success!!! There is finally a page for vulvodynia! It's actually pretty good, too.

http://www.nhs.uk/conditions/vulvodynia/Pages/Introduction.aspx

I think this is a big step forward for several reasons:

1) Women who have vulval pain who have not yet worked up to going to see their doctor can get info from a reliable site on what the problem might be - leading to less confusion & fear about symptoms & the condition in general.

2) It will be harder for anyone to tell women this condition doesn't exist / it's all in their heads. Especially NHS practitioners - this page can be printed out & taken to appointments with clueless doctors.

3) It should help to raise awareness of this condition generally - it would have been pretty hard to convince people this is a common, serious condition when our national health service didn't even have public info about it.
avatar
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 32
Location : UK

View user profile

Back to top Go down

Re: Finally - the NHS have a page on vulvodynia!

Post  londonlady on Mon Jun 11, 2012 9:01 pm

that is a great thing to do - well done!


londonlady

Posts : 12
Join date : 2012-05-04

View user profile

Back to top Go down

Re: Finally - the NHS have a page on vulvodynia!

Post  Sebby (Admin) on Sat Jul 07, 2012 10:31 pm


Thats Amazing well done! Smile
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Finally - the NHS have a page on vulvodynia!

Post  tinkerbelle2 on Wed Dec 11, 2013 5:24 pm

Liz, that is amazing! It is that very page that actually made me feel I perhaps wasn't crazy! We've got to spread the word about this horrible condition
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 26
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Finally - the NHS have a page on vulvodynia!

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum