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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Birth control pills can cause vestibulitis

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Birth control pills can cause vestibulitis

Post  Boulderfemme on Sat Jun 09, 2012 6:07 am

I went on Yasmin to mitigate symptoms of perimenopause. I'm 49. I was sexually inactive so didn't discover I had developed vulvar vestibulitis until about 8 months later, the next time I had sex. Researched it online, read the forums, panicked... went back to my gyno, who ran the usual drill: 1) stop using irritating products. 2) run lab culture (showed nothing). 3) try steroid cream (made irritation worse). 4) estrogen cream (did nothing.) Never did 2 different docs suggest that the Pill could be the cause. So, in an effort to rule it out, I went off the Yasmin. The vestibulitis was gone within a month, along with my other symptoms of vaginal irritation (a persistent, vague itch). If you're on any birth control pill, and you haven't tried going off it to see if your symptoms improve, GO OFF THE PILL. It was so simple I was kicking myself. Other good news was, my perimenopausal problems didn't return (the time spent on the Pill did act as a "re-set" to get mood issues and periods back to normal), and I didn't realize that the Pill also was causing crushing depression-- and that lifted, too. Please spread the word! I'm amazed at the posters who talk about being on the pill who haven't tried going off of it.

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Re: Birth control pills can cause vestibulitis

Post  SisterAwake on Tue Aug 21, 2012 8:47 pm

It's so simple to say "go off the pill" but what about for those of us who can't? I had to go on the pill because I have fibromyalgia and the ONLY thing that stopped the excruciating pain affraid I had during my period was to go on the pill. If I go off, I will be bedridden for days again during my period.
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Re: Birth control pills can cause vestibulitis

Post  JemimaSurrender on Wed Aug 22, 2012 11:14 am

This is pretty much exactly what happened to me.

I had these symptoms for around 8 months when one gyno suggested I stopped the pill. My symptoms vaninshed within a couple of weeks and I was perfectly normal for a good 5 months. Sadly they returned with a vengeance and I went another 18 months before having 3 months off.

The pill definitely plays a massive role in this for some people I'm sure, but I've been off all birth control for about 13 months now and am still in pain.


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Re: Birth control pills can cause vestibulitis

Post  mars215 on Fri Aug 24, 2012 12:48 am

Hi there...

What birth control were you on? I'm curious... because I know that in the US, Yaz has gotten into a lot trouble for making women sick...

Mars

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Re: Birth control pills can cause vestibulitis

Post  JemimaSurrender on Fri Aug 24, 2012 12:40 pm

Is that for meee? If so, I was on Microgynon. I tried different strengths of it that had different levels of estrogen which made no difference. I've also tried Cerazette and another one beginning with L that I can't remember!

Has anyone found a good one they can use that doesn't make their symptoms worse, or can even make them better?

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Re: Birth control pills can cause vestibulitis

Post  SisterAwake on Mon Aug 27, 2012 8:09 pm

I take Tri Cyclen and it works very well.
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Re: Birth control pills can cause vestibulitis

Post  Aussie on Mon Aug 27, 2012 11:29 pm

I am way better off the pill. I was on it due to painful irregular periods (now diagnosed as pcos) I went off the pill to get pregnant and found that sex became way, way less painful (daily pain did not change).

I will never go on the pill again, it does not fix problems just masks them!!!! Why would anyone want to suppress a bodys natural function, your shutting down your overies for gods sake, it's beyond me why so many people are on this stuff without knowing the function behind it or without trying other methods.. I used acupuncture to help with the painful periods - sisterawake - give it ago. I found it helped a lot, I have a few friends over on the ICNetwork forum with fibriomyalgia so I am sorry to hear you suffer with that. .

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To sister awake about bad periods

Post  Rainy Day on Mon Aug 27, 2012 11:40 pm

I also had periods so bad that I would puke every time I got it. Not sure if you had a child yet, but that gets way better after having a child. I used to take about 15 ibuprofen a day just to function during my period...and now I take maybe 2 pills during the 1st day of my period. And, my little boy is 2 1/2...and it still isn't bad.

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Re: Birth control pills can cause vestibulitis

Post  kalinikta77 on Mon Nov 05, 2012 2:58 am

I'm a 21-year-old with provoked localized vestobulodynia, a form of vulvodynia. I was on beyaz, which is associated with my condition, so she took me off of it. I have only has sex once since I stopped using it-about a week after I stopped taking the pill. The problem was still there. I haven't given up hope that it will help-after all, a week isn't a very long time; however, my birth control is only one of several possible causes. So while quitting the pill may help, don't freak out and doom yourself if it doesn't. There's more possibilities and treatment available.

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Re: Birth control pills can cause vestibulitis

Post  cba321 on Mon Nov 05, 2012 10:47 am

I have provoked vestibuldynia or vulva vestibulitis and I had it before ever taking the pill, so in my case it wasn't the cause, and going on it and now off it made little to no difference. The pill can irritated the skin of the vulva and that being gone since stopping the pill has helped me to a limited extent. In saying that other things have helped! Everyone is so different yet with similar symptoms...

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Re: Birth control pills can cause vestibulitis

Post  Alana3 on Mon Nov 05, 2012 6:32 pm

Yeah, mine started about the time I started Yaz. Unfortunately, I can't prove it started. But I can't get off birth control. I have since changed to Mircette, and still have problems, but my periods are way too bad to get off. Were talking bleeding for 2 weeks every 2 weeks, I was having 24 periods in a year off the pill. It was terrible. I really wish they would just give me a hysterectomy and be done with it (I don't want kids after what I have been thru I do NOT want my body changing again too much of a risk). ugh.

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Microgynon 30mg for 7 years have vulvodynia

Post  Amylouise on Mon Nov 26, 2012 1:20 am

When I was 16years old I was diagnosed with polysystic ovaries which are cysts in my ovaries rather than eggs due to them being larger than eggs it was agony, i also got diagnosed with haemophilia which is a bleeding disorder where my blood does not clot this combination made periods impossible.

Therefore I was referred to a specialist family clinic where a lady who specialised in the pill put me on the microgynon permanently I am still currently using it and was told at the time I would not require a break at all throughout this time. I had rare break through bleeding and my periods eventually stopped.

I then got into a long term relationship in which I discovered I couldn't cope with the agony of sex I went to a gynaecologist in Cambridge uk who diagnosed me of vulvodynia they said mine was quite bad as it affecting all around the opening and inside.

I only recently made the connection on here of the long term use of my pill being possible for the pain I experience inside.

I have no idea what to do I am 23 and have been in a 5year relationship in which we haven't had sex for 3.5 years. I can't come off the pill but I fear it will worsen if I don't.

Many thanks for reading.

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Isn't listed in the side effects

Post  painfulvag on Thu Nov 29, 2012 6:40 pm

When I first started birth control, I was taking tri-cyclen or the generic. No problem. I switched to Loestrin a few years ago, and if I remember correctly it was around the time the pain during sex started (that's the only time I am in severe pain). However, I was off the Loestrin for about a month or two for unrelated reasons about a year or so ago, with no relief. Do you think the Loestrin could still be the culprit and I just didn't give it enough time? I wish I could remember more accurately when I switched... Argh

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Re: Birth control pills can cause vestibulitis

Post  A2015 on Thu Aug 13, 2015 2:45 pm

I wanted to post about my story to reiterate that there are DEFINITELY cases where VVS is caused by hormonal contraceptives, even when not immediately obvious.
I want to desperately encourage anyone who has VVS to come off hormonal contraceptives if possible.

In 2012, I had unprotected sex and took the morning after pill. I developed vestibule redness/soreness/itchiness. The clinic confirmed a Yeast & BV infection, explaining that this was common after sex (though I had never had any vaginal problems for years before). They also put me on the Pill (Microgynon 30). The infections cleared (tested negative) but my symptoms remained constant.

My symptoms extended beyond vestibule pain. I also had itchiness, redness & subtle inflammation of the whole vestibule (localised to this area), my vestibule skin started to tear during sex, get more inflammed & very regularly develop new infections (Yeast/Bacterial). I also had a lot of discomfort/itchiness in & around my anus.

Firstly, this made me question whether I had VVS because I didn't just have pain of the vestibule, as I kept getting infections too (now I understand that women with VVS are often simply more prone to infections & discomfort of the whole area).
Secondly, I assumed my VVS must have been caused by the infections (proliferation of nerves in the vestibule after infection), because the symptoms I had felt like they were permanent, that the skin itself was not normal anymore & seemed irreparable.

I didn't come off the Pill until mid 2013, when I had read more info about a link. I felt I should just come off it in case it might have been making anything worse.

The reality was (by my complete surprise and total elation) that within a month, my vestibule returned to completely normal and ALL other related symptoms also disappeared — the anal discomfort/itchiness & bring prone to developing infections.

I hadn't thought the Pill could be causing my VVS, because I had developed the infections before I started the Pill (I didn't consider at the time that just before I got the infections, I had taken the morning after pill which is a huge dose of progesterone). I also had no understanding of hormones & no idea how they could cause pain in a specific area of the body like this! Every doctor I asked said there was no way the Pill was relevant, which made me have little hope.

I believe there are 2 main causes for VVS — hormonal or a response to an infection. But there can be an overlap, and I didn't consider the Pill could be the cause because I kept getting the infections. But I was mistaken (and so were over 10 doctors & specialists).

I really hope this can help any women suffering.

As a side point, unfortunately, after being perfectly normal for 18 months, this year I developed infections (no hormones involved) and VVS has fully returned. I feel that my body has learned how it responded to infections when I was on the Pill, and now the nerves are irritated again = VVS Sad

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Re: Birth control pills can cause vestibulitis

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