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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Advice needed please

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Advice needed please

Post  April lily on Sun Jun 10, 2012 7:49 pm

Hi everyone,

I am very new to this i have never been on a forum before, so i don't really know what i'm doing or how to work it.

I have had Vulvodynia for about 2years, i have found it really difficult and i was hoping for some advice and some people who i can relate too.
My family and my boyfriend have been very supported throughout my vulvoynia although i find it very difficult to explain to them what i feel like, as they don't understand or cant relate to what i'm feeling.

I have managed to finally find medication which takes most of the pain away threw intercourse, which i am over the moon with! It took a while but we got there in the end. Although because of the trauma my sexual drive went to 0 and now even though the pain has got better my drive is very low and this is putting a strain on my relationship with my boyfriend who i have been with for 3 years. My boyfriend has been amazing threw my difficult time, but i find it really hard to express how i feel and its making it really hard for him, which i do not want.
At the beginning of our relationship i did not have vulvodynia and our sex life was out of this world! So it is really difficult for us both now i have no desire for it. My feelings for my boyfriend have not changed from the start if anything they have got much more stronger, he doesn't understand why i don't have any sex drive and i cant explain it to him very well as i dont understand fully my self or what to do about it. We are just stuck in one place and i don't want to loose him.

Can anyone relate to how i'm feeling?
Does anyone have any advise how to build my sexual drive up?

Any advice will be appreciated Smile

Thank you for reading

April x

April lily

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Re: Advice needed please

Post  BpCookie on Mon Jun 11, 2012 5:19 pm

Hello April, What medication are you taking, including any others not used for Vulvodynia? Some medication and lower your sex drive. I am Bipolar and some Bipolar medication such as anti depressants can lower your sex drive. I went from a VERY healthy sex drive to a non existent one after starting anti depressants. Once I was taken off the med. my sex drive came back. So perhaps its because of one of the meds you are on. hugs
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Re: Advice needed please

Post  April lily on Mon Jun 11, 2012 9:23 pm

Hi, Thank you soooo much for replying i really appreciate it Smile

I'm on Amitriptyline, The pill(Dianette) and Iron supplements.

If it is my Amitriptyline do you know what i could do about it, as i need to be on them to control my pain when i do have intercourse.

Thank you very much

April xx

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Re: Advice needed please

Post  BpCookie on Tue Jun 12, 2012 1:36 am

Hello, I wasnt able to take amitriptyline because it caused awful dry mouth, so instead I use Amitriptyline ointment. The ointment numbs the area. I use it twice a day. Also before I have sex I will fill a plunger (the kind that you use when you have a YI) with KY jelly to make sure I have enough inside. Then I put a bunch on my hubby and also on the entire vulva area. I used to have painful sex because I was way too dry but now there is hardly ever any pain during sex. Also Im taking Lyrica which seems to help with the daily pain that I have.

So I hope that helps you a bit. Take care. hugs
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Re: Advice needed please

Post  April lily on Tue Jun 12, 2012 10:01 am

Ok great thank you for the advise i will book an appointment to see my Dr. too see if she can change my meds and see if that improves my sex .

I purchased the 'Yes' lubricant which comes in little Disposable applicators and i find them very useful too, as my pain when having sex was sometimes due to dryness as well.
They are a bit pricey but worth it as other lubricants irritated my skin and gave me thrush, how ever i have no problems what so ever with 'Yes' as it is water based and is recommended to women who have vulvodynia. You will find this website if you just search 'yes lubricant' on Google Smile


Thank you soo much for your help and advice i really have appreciated it Smile

Take care

April xx

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Re: Advice needed please

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