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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Advice needed please

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Advice needed please

Post  April lily on Sun Jun 10, 2012 7:49 pm

Hi everyone,

I am very new to this i have never been on a forum before, so i don't really know what i'm doing or how to work it.

I have had Vulvodynia for about 2years, i have found it really difficult and i was hoping for some advice and some people who i can relate too.
My family and my boyfriend have been very supported throughout my vulvoynia although i find it very difficult to explain to them what i feel like, as they don't understand or cant relate to what i'm feeling.

I have managed to finally find medication which takes most of the pain away threw intercourse, which i am over the moon with! It took a while but we got there in the end. Although because of the trauma my sexual drive went to 0 and now even though the pain has got better my drive is very low and this is putting a strain on my relationship with my boyfriend who i have been with for 3 years. My boyfriend has been amazing threw my difficult time, but i find it really hard to express how i feel and its making it really hard for him, which i do not want.
At the beginning of our relationship i did not have vulvodynia and our sex life was out of this world! So it is really difficult for us both now i have no desire for it. My feelings for my boyfriend have not changed from the start if anything they have got much more stronger, he doesn't understand why i don't have any sex drive and i cant explain it to him very well as i dont understand fully my self or what to do about it. We are just stuck in one place and i don't want to loose him.

Can anyone relate to how i'm feeling?
Does anyone have any advise how to build my sexual drive up?

Any advice will be appreciated Smile

Thank you for reading

April x

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Re: Advice needed please

Post  BpCookie on Mon Jun 11, 2012 5:19 pm

Hello April, What medication are you taking, including any others not used for Vulvodynia? Some medication and lower your sex drive. I am Bipolar and some Bipolar medication such as anti depressants can lower your sex drive. I went from a VERY healthy sex drive to a non existent one after starting anti depressants. Once I was taken off the med. my sex drive came back. So perhaps its because of one of the meds you are on. hugs
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Re: Advice needed please

Post  April lily on Mon Jun 11, 2012 9:23 pm

Hi, Thank you soooo much for replying i really appreciate it Smile

I'm on Amitriptyline, The pill(Dianette) and Iron supplements.

If it is my Amitriptyline do you know what i could do about it, as i need to be on them to control my pain when i do have intercourse.

Thank you very much

April xx

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Re: Advice needed please

Post  BpCookie on Tue Jun 12, 2012 1:36 am

Hello, I wasnt able to take amitriptyline because it caused awful dry mouth, so instead I use Amitriptyline ointment. The ointment numbs the area. I use it twice a day. Also before I have sex I will fill a plunger (the kind that you use when you have a YI) with KY jelly to make sure I have enough inside. Then I put a bunch on my hubby and also on the entire vulva area. I used to have painful sex because I was way too dry but now there is hardly ever any pain during sex. Also Im taking Lyrica which seems to help with the daily pain that I have.

So I hope that helps you a bit. Take care. hugs
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Re: Advice needed please

Post  April lily on Tue Jun 12, 2012 10:01 am

Ok great thank you for the advise i will book an appointment to see my Dr. too see if she can change my meds and see if that improves my sex .

I purchased the 'Yes' lubricant which comes in little Disposable applicators and i find them very useful too, as my pain when having sex was sometimes due to dryness as well.
They are a bit pricey but worth it as other lubricants irritated my skin and gave me thrush, how ever i have no problems what so ever with 'Yes' as it is water based and is recommended to women who have vulvodynia. You will find this website if you just search 'yes lubricant' on Google Smile


Thank you soo much for your help and advice i really have appreciated it Smile

Take care

April xx

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Re: Advice needed please

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