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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Advice needed please

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Advice needed please

Post  April lily on Sun Jun 10, 2012 7:49 pm

Hi everyone,

I am very new to this i have never been on a forum before, so i don't really know what i'm doing or how to work it.

I have had Vulvodynia for about 2years, i have found it really difficult and i was hoping for some advice and some people who i can relate too.
My family and my boyfriend have been very supported throughout my vulvoynia although i find it very difficult to explain to them what i feel like, as they don't understand or cant relate to what i'm feeling.

I have managed to finally find medication which takes most of the pain away threw intercourse, which i am over the moon with! It took a while but we got there in the end. Although because of the trauma my sexual drive went to 0 and now even though the pain has got better my drive is very low and this is putting a strain on my relationship with my boyfriend who i have been with for 3 years. My boyfriend has been amazing threw my difficult time, but i find it really hard to express how i feel and its making it really hard for him, which i do not want.
At the beginning of our relationship i did not have vulvodynia and our sex life was out of this world! So it is really difficult for us both now i have no desire for it. My feelings for my boyfriend have not changed from the start if anything they have got much more stronger, he doesn't understand why i don't have any sex drive and i cant explain it to him very well as i dont understand fully my self or what to do about it. We are just stuck in one place and i don't want to loose him.

Can anyone relate to how i'm feeling?
Does anyone have any advise how to build my sexual drive up?

Any advice will be appreciated Smile

Thank you for reading

April x

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Re: Advice needed please

Post  BpCookie on Mon Jun 11, 2012 5:19 pm

Hello April, What medication are you taking, including any others not used for Vulvodynia? Some medication and lower your sex drive. I am Bipolar and some Bipolar medication such as anti depressants can lower your sex drive. I went from a VERY healthy sex drive to a non existent one after starting anti depressants. Once I was taken off the med. my sex drive came back. So perhaps its because of one of the meds you are on. hugs
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Re: Advice needed please

Post  April lily on Mon Jun 11, 2012 9:23 pm

Hi, Thank you soooo much for replying i really appreciate it Smile

I'm on Amitriptyline, The pill(Dianette) and Iron supplements.

If it is my Amitriptyline do you know what i could do about it, as i need to be on them to control my pain when i do have intercourse.

Thank you very much

April xx

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Re: Advice needed please

Post  BpCookie on Tue Jun 12, 2012 1:36 am

Hello, I wasnt able to take amitriptyline because it caused awful dry mouth, so instead I use Amitriptyline ointment. The ointment numbs the area. I use it twice a day. Also before I have sex I will fill a plunger (the kind that you use when you have a YI) with KY jelly to make sure I have enough inside. Then I put a bunch on my hubby and also on the entire vulva area. I used to have painful sex because I was way too dry but now there is hardly ever any pain during sex. Also Im taking Lyrica which seems to help with the daily pain that I have.

So I hope that helps you a bit. Take care. hugs
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Re: Advice needed please

Post  April lily on Tue Jun 12, 2012 10:01 am

Ok great thank you for the advise i will book an appointment to see my Dr. too see if she can change my meds and see if that improves my sex .

I purchased the 'Yes' lubricant which comes in little Disposable applicators and i find them very useful too, as my pain when having sex was sometimes due to dryness as well.
They are a bit pricey but worth it as other lubricants irritated my skin and gave me thrush, how ever i have no problems what so ever with 'Yes' as it is water based and is recommended to women who have vulvodynia. You will find this website if you just search 'yes lubricant' on Google Smile


Thank you soo much for your help and advice i really have appreciated it Smile

Take care

April xx

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Re: Advice needed please

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