Log in

I forgot my password

Latest topics
» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Advice needed please

View previous topic View next topic Go down

Advice needed please

Post  April lily on Sun Jun 10, 2012 7:49 pm

Hi everyone,

I am very new to this i have never been on a forum before, so i don't really know what i'm doing or how to work it.

I have had Vulvodynia for about 2years, i have found it really difficult and i was hoping for some advice and some people who i can relate too.
My family and my boyfriend have been very supported throughout my vulvoynia although i find it very difficult to explain to them what i feel like, as they don't understand or cant relate to what i'm feeling.

I have managed to finally find medication which takes most of the pain away threw intercourse, which i am over the moon with! It took a while but we got there in the end. Although because of the trauma my sexual drive went to 0 and now even though the pain has got better my drive is very low and this is putting a strain on my relationship with my boyfriend who i have been with for 3 years. My boyfriend has been amazing threw my difficult time, but i find it really hard to express how i feel and its making it really hard for him, which i do not want.
At the beginning of our relationship i did not have vulvodynia and our sex life was out of this world! So it is really difficult for us both now i have no desire for it. My feelings for my boyfriend have not changed from the start if anything they have got much more stronger, he doesn't understand why i don't have any sex drive and i cant explain it to him very well as i dont understand fully my self or what to do about it. We are just stuck in one place and i don't want to loose him.

Can anyone relate to how i'm feeling?
Does anyone have any advise how to build my sexual drive up?

Any advice will be appreciated Smile

Thank you for reading

April x

April lily

Posts : 7
Join date : 2012-06-08
Age : 24

View user profile

Back to top Go down

Re: Advice needed please

Post  BpCookie on Mon Jun 11, 2012 5:19 pm

Hello April, What medication are you taking, including any others not used for Vulvodynia? Some medication and lower your sex drive. I am Bipolar and some Bipolar medication such as anti depressants can lower your sex drive. I went from a VERY healthy sex drive to a non existent one after starting anti depressants. Once I was taken off the med. my sex drive came back. So perhaps its because of one of the meds you are on. hugs
avatar
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

View user profile

Back to top Go down

Re: Advice needed please

Post  April lily on Mon Jun 11, 2012 9:23 pm

Hi, Thank you soooo much for replying i really appreciate it Smile

I'm on Amitriptyline, The pill(Dianette) and Iron supplements.

If it is my Amitriptyline do you know what i could do about it, as i need to be on them to control my pain when i do have intercourse.

Thank you very much

April xx

April lily

Posts : 7
Join date : 2012-06-08
Age : 24

View user profile

Back to top Go down

Re: Advice needed please

Post  BpCookie on Tue Jun 12, 2012 1:36 am

Hello, I wasnt able to take amitriptyline because it caused awful dry mouth, so instead I use Amitriptyline ointment. The ointment numbs the area. I use it twice a day. Also before I have sex I will fill a plunger (the kind that you use when you have a YI) with KY jelly to make sure I have enough inside. Then I put a bunch on my hubby and also on the entire vulva area. I used to have painful sex because I was way too dry but now there is hardly ever any pain during sex. Also Im taking Lyrica which seems to help with the daily pain that I have.

So I hope that helps you a bit. Take care. hugs
avatar
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

View user profile

Back to top Go down

Re: Advice needed please

Post  April lily on Tue Jun 12, 2012 10:01 am

Ok great thank you for the advise i will book an appointment to see my Dr. too see if she can change my meds and see if that improves my sex .

I purchased the 'Yes' lubricant which comes in little Disposable applicators and i find them very useful too, as my pain when having sex was sometimes due to dryness as well.
They are a bit pricey but worth it as other lubricants irritated my skin and gave me thrush, how ever i have no problems what so ever with 'Yes' as it is water based and is recommended to women who have vulvodynia. You will find this website if you just search 'yes lubricant' on Google Smile


Thank you soo much for your help and advice i really have appreciated it Smile

Take care

April xx

April lily

Posts : 7
Join date : 2012-06-08
Age : 24

View user profile

Back to top Go down

Re: Advice needed please

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum