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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Advice needed please

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Advice needed please

Post  April lily on Sun Jun 10, 2012 7:49 pm

Hi everyone,

I am very new to this i have never been on a forum before, so i don't really know what i'm doing or how to work it.

I have had Vulvodynia for about 2years, i have found it really difficult and i was hoping for some advice and some people who i can relate too.
My family and my boyfriend have been very supported throughout my vulvoynia although i find it very difficult to explain to them what i feel like, as they don't understand or cant relate to what i'm feeling.

I have managed to finally find medication which takes most of the pain away threw intercourse, which i am over the moon with! It took a while but we got there in the end. Although because of the trauma my sexual drive went to 0 and now even though the pain has got better my drive is very low and this is putting a strain on my relationship with my boyfriend who i have been with for 3 years. My boyfriend has been amazing threw my difficult time, but i find it really hard to express how i feel and its making it really hard for him, which i do not want.
At the beginning of our relationship i did not have vulvodynia and our sex life was out of this world! So it is really difficult for us both now i have no desire for it. My feelings for my boyfriend have not changed from the start if anything they have got much more stronger, he doesn't understand why i don't have any sex drive and i cant explain it to him very well as i dont understand fully my self or what to do about it. We are just stuck in one place and i don't want to loose him.

Can anyone relate to how i'm feeling?
Does anyone have any advise how to build my sexual drive up?

Any advice will be appreciated Smile

Thank you for reading

April x

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Re: Advice needed please

Post  BpCookie on Mon Jun 11, 2012 5:19 pm

Hello April, What medication are you taking, including any others not used for Vulvodynia? Some medication and lower your sex drive. I am Bipolar and some Bipolar medication such as anti depressants can lower your sex drive. I went from a VERY healthy sex drive to a non existent one after starting anti depressants. Once I was taken off the med. my sex drive came back. So perhaps its because of one of the meds you are on. hugs
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Re: Advice needed please

Post  April lily on Mon Jun 11, 2012 9:23 pm

Hi, Thank you soooo much for replying i really appreciate it Smile

I'm on Amitriptyline, The pill(Dianette) and Iron supplements.

If it is my Amitriptyline do you know what i could do about it, as i need to be on them to control my pain when i do have intercourse.

Thank you very much

April xx

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Re: Advice needed please

Post  BpCookie on Tue Jun 12, 2012 1:36 am

Hello, I wasnt able to take amitriptyline because it caused awful dry mouth, so instead I use Amitriptyline ointment. The ointment numbs the area. I use it twice a day. Also before I have sex I will fill a plunger (the kind that you use when you have a YI) with KY jelly to make sure I have enough inside. Then I put a bunch on my hubby and also on the entire vulva area. I used to have painful sex because I was way too dry but now there is hardly ever any pain during sex. Also Im taking Lyrica which seems to help with the daily pain that I have.

So I hope that helps you a bit. Take care. hugs
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Re: Advice needed please

Post  April lily on Tue Jun 12, 2012 10:01 am

Ok great thank you for the advise i will book an appointment to see my Dr. too see if she can change my meds and see if that improves my sex .

I purchased the 'Yes' lubricant which comes in little Disposable applicators and i find them very useful too, as my pain when having sex was sometimes due to dryness as well.
They are a bit pricey but worth it as other lubricants irritated my skin and gave me thrush, how ever i have no problems what so ever with 'Yes' as it is water based and is recommended to women who have vulvodynia. You will find this website if you just search 'yes lubricant' on Google Smile


Thank you soo much for your help and advice i really have appreciated it Smile

Take care

April xx

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Re: Advice needed please

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