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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

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AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

Post  BpCookie on Fri Jun 15, 2012 8:17 pm

Im so glad I found this rant page because Im ssssssssooooo tired of this friggin burning. Ive had it for over a year, constant burning. It started out as such a small thing, a bit of burning here and there, kinda felt like a YI. Then the burning pain increased It starting hurting more, hurting every day, all day, all night, it spread to the entire vulva area, all the way to the pubic hair, down the buttocks and finally my inner thighs. WTH is going on? About two months ago I thought the Dr. had found the magic cure for my pain, Lyrica. At first it worked wonders, then it started not to work as well and for the past two weeks, the burning bush is back and she is pissed off!!!! Im not sure what changed *shrug*. My depression is back, Im crying off and on again. I cant allow for my husband to know how depressed I am because right now he is under major stress at work and I dont want to add to it.

So Im back to sitting on ice packs, back to not being able to sit down. Right now I am on my knees as I type this. This is so frustrating. I feel like Im at a loss. Ive tried everything, even some expensive things that the Dr. used me as a guinea pig for.

Im tired of this. I hate mother nature. If I ever get my hands on her..........Im going to set HER bush on fire and see how she likes that. Anyone have her address?
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Any change in your symptoms

Post  Barbie2 on Wed Apr 08, 2015 6:40 pm

Hi Cookie

Read this old post, are your symptoms any better.

Thanx


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Re: AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

Post  BpCookie on Thu Apr 09, 2015 7:17 pm

Hello Barbie, Since the time that I wrote this post, things have improved by about 50%. I found a great gyno. He has done two surgeries and procedures that consist of him injecting alcohol under the skin to burn the nerves. It hurts like a motha when he does it but it does seem to help. Unfortunately it only has helped for 2 months and now I have to go back to see him. I try to have hope that he will find the magic cure.

Thanks for replying

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Re: AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

Post  Sparkle on Tue Apr 28, 2015 7:12 pm

Have your tried not using any purfumes products down Ther? I manage to get rid of my burning pain through only using aqueous creme to wash with and washing my hair ovwr bath (not wile im in it) so shampoo doesn't get into my bits. I also changed my washing powder to non bio and no Softner for all my knickers and pj bottoms, lidocaine also helped my recovery. I also use coconut oil everyday and that stuff is amazing.

That might just be the little extra you need to get that other 50% back x

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Re: AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

Post  BpCookie on Wed Apr 29, 2015 7:01 pm

Hi Sparkle, I stopped using all perfumed products a few years ago and I also use dove bar soap to wash with. I try not to get any soap down there. I also only use Ultra soft Charmin. I usually go with out undies unless I have to leave the house. I hardly even go swimming now because the chemicals cause me more pain. I do use Lidocaine 5% ointment to numb the area but it only numbs the top layers and I need something to numb deeper. I use A and D ointment which seems to help. I used to use Emu oil but that stuff costs a fortune. I may try the coconut oil that you use.

I see my Dr. in a few more weeks and he may plan to do another procedure. If he is planning to do it, he better do it quickly because I just received an email saying that he is retiring June 1st. I am very depressed about it because he was the only Dr. who has ever helped me and I have seen many.

Thank you for your reply

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Re: AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

Post  mikan92 on Thu Apr 30, 2015 3:47 am

Hi BpCookie,

Do you mind sharing how your burning started? and what caused the burning to spread to the entire vulva/aggravated your symptom?
Mine started with a tissue trauma i think, so I'm trying to use remedies that reduce the inflammation there:)

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Re: AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

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