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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

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AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

Post  BpCookie on Fri Jun 15, 2012 8:17 pm

Im so glad I found this rant page because Im ssssssssooooo tired of this friggin burning. Ive had it for over a year, constant burning. It started out as such a small thing, a bit of burning here and there, kinda felt like a YI. Then the burning pain increased It starting hurting more, hurting every day, all day, all night, it spread to the entire vulva area, all the way to the pubic hair, down the buttocks and finally my inner thighs. WTH is going on? About two months ago I thought the Dr. had found the magic cure for my pain, Lyrica. At first it worked wonders, then it started not to work as well and for the past two weeks, the burning bush is back and she is pissed off!!!! Im not sure what changed *shrug*. My depression is back, Im crying off and on again. I cant allow for my husband to know how depressed I am because right now he is under major stress at work and I dont want to add to it.

So Im back to sitting on ice packs, back to not being able to sit down. Right now I am on my knees as I type this. This is so frustrating. I feel like Im at a loss. Ive tried everything, even some expensive things that the Dr. used me as a guinea pig for.

Im tired of this. I hate mother nature. If I ever get my hands on her..........Im going to set HER bush on fire and see how she likes that. Anyone have her address?
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Any change in your symptoms

Post  Barbie2 on Wed Apr 08, 2015 6:40 pm

Hi Cookie

Read this old post, are your symptoms any better.

Thanx


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Re: AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

Post  BpCookie on Thu Apr 09, 2015 7:17 pm

Hello Barbie, Since the time that I wrote this post, things have improved by about 50%. I found a great gyno. He has done two surgeries and procedures that consist of him injecting alcohol under the skin to burn the nerves. It hurts like a motha when he does it but it does seem to help. Unfortunately it only has helped for 2 months and now I have to go back to see him. I try to have hope that he will find the magic cure.

Thanks for replying

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Re: AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

Post  Sparkle on Tue Apr 28, 2015 7:12 pm

Have your tried not using any purfumes products down Ther? I manage to get rid of my burning pain through only using aqueous creme to wash with and washing my hair ovwr bath (not wile im in it) so shampoo doesn't get into my bits. I also changed my washing powder to non bio and no Softner for all my knickers and pj bottoms, lidocaine also helped my recovery. I also use coconut oil everyday and that stuff is amazing.

That might just be the little extra you need to get that other 50% back x

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Re: AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

Post  BpCookie on Wed Apr 29, 2015 7:01 pm

Hi Sparkle, I stopped using all perfumed products a few years ago and I also use dove bar soap to wash with. I try not to get any soap down there. I also only use Ultra soft Charmin. I usually go with out undies unless I have to leave the house. I hardly even go swimming now because the chemicals cause me more pain. I do use Lidocaine 5% ointment to numb the area but it only numbs the top layers and I need something to numb deeper. I use A and D ointment which seems to help. I used to use Emu oil but that stuff costs a fortune. I may try the coconut oil that you use.

I see my Dr. in a few more weeks and he may plan to do another procedure. If he is planning to do it, he better do it quickly because I just received an email saying that he is retiring June 1st. I am very depressed about it because he was the only Dr. who has ever helped me and I have seen many.

Thank you for your reply

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Re: AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

Post  mikan92 on Thu Apr 30, 2015 3:47 am

Hi BpCookie,

Do you mind sharing how your burning started? and what caused the burning to spread to the entire vulva/aggravated your symptom?
Mine started with a tissue trauma i think, so I'm trying to use remedies that reduce the inflammation there:)

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Re: AAAAAAAAAAHHHHHHHH The Burning Bush!!!!!

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