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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Went to first physio assessment - trigger points everywhere!

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Went to first physio assessment - trigger points everywhere!

Post  bluekangeroo on Tue Jun 19, 2012 9:58 am

Went to see physio yesterday - I have soooo many trigger points... Ouch! So sore! I had no idea, I was convinced that as I couldn't feel that my muscles were tight then that wasn't part of my problem. But oh boy do I have a lot of work to do to get these muscles to release and behave themselves... I am quite shocked... is this good news or bad news though...? I am not sure?

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Re: Went to first physio assessment - trigger points everywhere!

Post  Kate1981 on Fri Jan 11, 2013 1:08 am

Hi
I hope your physio is going well. I have also just been diagnosed with hypertonic pelvic floor muscles with a trigger point inside me on the right. I'm interested how you are with physio if it has helped. I've read so many positive articles about people being cured from this in just 6 months. My pain is better from doing stretching exercised walking and now known can do the internal massage which hurts at the time but is easier the more I do it. Looking forward to hearing about your progress.

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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 2:05 am

Please explain what physio is?

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Re: Went to first physio assessment - trigger points everywhere!

Post  Sarah001 on Sat Jan 12, 2013 1:51 pm

I'm not sure where you're from meelie but physiotherapy is the same as physical therapy.
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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 3:25 pm

Okay, cool. I'm from the States. I thought maybe that was what it was but wasn't sure. Until I got this horrible curse and started reading I had never heard of it.
Hope your day is good. Very Happy

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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 3:35 pm

Okay, so do most PT s know about this pelvic floor stuff? I live in a small town over an hour away from Atlanta, Ga. where I'm sure someone must this, but am wondering wouldn't any good PT know about it. And is it absolutely necessary for a PT to he/her fingers into the vagina to do therapy? Just don't think I can go there, just can't every make myself think about that. Anyway, at least I believe I am on the right track here and will continue to chiropractor. I'd love to hear more about what PT does when you go there. Maybe someone can get their PT to recommend one here in Georgia that really knows what to do. I'm open to suggestions and help. Smile

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Re: Went to first physio assessment - trigger points everywhere!

Post  Sarah001 on Sat Jan 12, 2013 5:42 pm

I can't recommend a specific PT as I'm in the UK but you need a Women's Health physio, a bog standard physio won't know how to treat the pelvic floor and likely wouldn't be licensed for internal work. And yes, the only way to stretch and remove trigger points from the PF is internally, you can reach a small amount yourself but not very well. If you use a trigger point ball on the floor and place it along the edge of the sacrum you catch some of the PF if you let it sink in deeply through the glutes/hip rotators but it isn't going to be enough to solve the whole problem. Most women with V have very tight superficial areas so just inside the vaginal opening and you can hook the thumb of your opposite hand into those and give them a stretch yourself to see if it helps. Physios will usually teach you how to stop clenching first because clenching in between sessions will undo any internal work so you might feel a bit more relaxed about the internal work once you learn to consciously relax the muscles. "Heal Pelvic Pain" by Amy Stein is a good book to read as she includes some verbal cues for learning to relax the PF, it's truly amazing how much it can be clenched without us realising we are doing it!
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Re: Went to first physio assessment - trigger points everywhere!

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