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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Went to first physio assessment - trigger points everywhere!

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Went to first physio assessment - trigger points everywhere!

Post  bluekangeroo on Tue Jun 19, 2012 9:58 am

Went to see physio yesterday - I have soooo many trigger points... Ouch! So sore! I had no idea, I was convinced that as I couldn't feel that my muscles were tight then that wasn't part of my problem. But oh boy do I have a lot of work to do to get these muscles to release and behave themselves... I am quite shocked... is this good news or bad news though...? I am not sure?

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Re: Went to first physio assessment - trigger points everywhere!

Post  Kate1981 on Fri Jan 11, 2013 1:08 am

Hi
I hope your physio is going well. I have also just been diagnosed with hypertonic pelvic floor muscles with a trigger point inside me on the right. I'm interested how you are with physio if it has helped. I've read so many positive articles about people being cured from this in just 6 months. My pain is better from doing stretching exercised walking and now known can do the internal massage which hurts at the time but is easier the more I do it. Looking forward to hearing about your progress.

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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 2:05 am

Please explain what physio is?

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Re: Went to first physio assessment - trigger points everywhere!

Post  Sarah001 on Sat Jan 12, 2013 1:51 pm

I'm not sure where you're from meelie but physiotherapy is the same as physical therapy.
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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 3:25 pm

Okay, cool. I'm from the States. I thought maybe that was what it was but wasn't sure. Until I got this horrible curse and started reading I had never heard of it.
Hope your day is good. Very Happy

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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 3:35 pm

Okay, so do most PT s know about this pelvic floor stuff? I live in a small town over an hour away from Atlanta, Ga. where I'm sure someone must this, but am wondering wouldn't any good PT know about it. And is it absolutely necessary for a PT to he/her fingers into the vagina to do therapy? Just don't think I can go there, just can't every make myself think about that. Anyway, at least I believe I am on the right track here and will continue to chiropractor. I'd love to hear more about what PT does when you go there. Maybe someone can get their PT to recommend one here in Georgia that really knows what to do. I'm open to suggestions and help. Smile

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Re: Went to first physio assessment - trigger points everywhere!

Post  Sarah001 on Sat Jan 12, 2013 5:42 pm

I can't recommend a specific PT as I'm in the UK but you need a Women's Health physio, a bog standard physio won't know how to treat the pelvic floor and likely wouldn't be licensed for internal work. And yes, the only way to stretch and remove trigger points from the PF is internally, you can reach a small amount yourself but not very well. If you use a trigger point ball on the floor and place it along the edge of the sacrum you catch some of the PF if you let it sink in deeply through the glutes/hip rotators but it isn't going to be enough to solve the whole problem. Most women with V have very tight superficial areas so just inside the vaginal opening and you can hook the thumb of your opposite hand into those and give them a stretch yourself to see if it helps. Physios will usually teach you how to stop clenching first because clenching in between sessions will undo any internal work so you might feel a bit more relaxed about the internal work once you learn to consciously relax the muscles. "Heal Pelvic Pain" by Amy Stein is a good book to read as she includes some verbal cues for learning to relax the PF, it's truly amazing how much it can be clenched without us realising we are doing it!
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Re: Went to first physio assessment - trigger points everywhere!

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