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» I don't know what to do anymore
Yesterday at 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Went to first physio assessment - trigger points everywhere!

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Went to first physio assessment - trigger points everywhere!

Post  bluekangeroo on Tue Jun 19, 2012 9:58 am

Went to see physio yesterday - I have soooo many trigger points... Ouch! So sore! I had no idea, I was convinced that as I couldn't feel that my muscles were tight then that wasn't part of my problem. But oh boy do I have a lot of work to do to get these muscles to release and behave themselves... I am quite shocked... is this good news or bad news though...? I am not sure?

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Re: Went to first physio assessment - trigger points everywhere!

Post  Kate1981 on Fri Jan 11, 2013 1:08 am

Hi
I hope your physio is going well. I have also just been diagnosed with hypertonic pelvic floor muscles with a trigger point inside me on the right. I'm interested how you are with physio if it has helped. I've read so many positive articles about people being cured from this in just 6 months. My pain is better from doing stretching exercised walking and now known can do the internal massage which hurts at the time but is easier the more I do it. Looking forward to hearing about your progress.

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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 2:05 am

Please explain what physio is?

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Re: Went to first physio assessment - trigger points everywhere!

Post  Sarah001 on Sat Jan 12, 2013 1:51 pm

I'm not sure where you're from meelie but physiotherapy is the same as physical therapy.
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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 3:25 pm

Okay, cool. I'm from the States. I thought maybe that was what it was but wasn't sure. Until I got this horrible curse and started reading I had never heard of it.
Hope your day is good. Very Happy

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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 3:35 pm

Okay, so do most PT s know about this pelvic floor stuff? I live in a small town over an hour away from Atlanta, Ga. where I'm sure someone must this, but am wondering wouldn't any good PT know about it. And is it absolutely necessary for a PT to he/her fingers into the vagina to do therapy? Just don't think I can go there, just can't every make myself think about that. Anyway, at least I believe I am on the right track here and will continue to chiropractor. I'd love to hear more about what PT does when you go there. Maybe someone can get their PT to recommend one here in Georgia that really knows what to do. I'm open to suggestions and help. Smile

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Re: Went to first physio assessment - trigger points everywhere!

Post  Sarah001 on Sat Jan 12, 2013 5:42 pm

I can't recommend a specific PT as I'm in the UK but you need a Women's Health physio, a bog standard physio won't know how to treat the pelvic floor and likely wouldn't be licensed for internal work. And yes, the only way to stretch and remove trigger points from the PF is internally, you can reach a small amount yourself but not very well. If you use a trigger point ball on the floor and place it along the edge of the sacrum you catch some of the PF if you let it sink in deeply through the glutes/hip rotators but it isn't going to be enough to solve the whole problem. Most women with V have very tight superficial areas so just inside the vaginal opening and you can hook the thumb of your opposite hand into those and give them a stretch yourself to see if it helps. Physios will usually teach you how to stop clenching first because clenching in between sessions will undo any internal work so you might feel a bit more relaxed about the internal work once you learn to consciously relax the muscles. "Heal Pelvic Pain" by Amy Stein is a good book to read as she includes some verbal cues for learning to relax the PF, it's truly amazing how much it can be clenched without us realising we are doing it!
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Re: Went to first physio assessment - trigger points everywhere!

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