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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Went to first physio assessment - trigger points everywhere!

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Went to first physio assessment - trigger points everywhere!

Post  bluekangeroo on Tue Jun 19, 2012 9:58 am

Went to see physio yesterday - I have soooo many trigger points... Ouch! So sore! I had no idea, I was convinced that as I couldn't feel that my muscles were tight then that wasn't part of my problem. But oh boy do I have a lot of work to do to get these muscles to release and behave themselves... I am quite shocked... is this good news or bad news though...? I am not sure?

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Re: Went to first physio assessment - trigger points everywhere!

Post  Kate1981 on Fri Jan 11, 2013 1:08 am

Hi
I hope your physio is going well. I have also just been diagnosed with hypertonic pelvic floor muscles with a trigger point inside me on the right. I'm interested how you are with physio if it has helped. I've read so many positive articles about people being cured from this in just 6 months. My pain is better from doing stretching exercised walking and now known can do the internal massage which hurts at the time but is easier the more I do it. Looking forward to hearing about your progress.

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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 2:05 am

Please explain what physio is?

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Re: Went to first physio assessment - trigger points everywhere!

Post  Sarah001 on Sat Jan 12, 2013 1:51 pm

I'm not sure where you're from meelie but physiotherapy is the same as physical therapy.
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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 3:25 pm

Okay, cool. I'm from the States. I thought maybe that was what it was but wasn't sure. Until I got this horrible curse and started reading I had never heard of it.
Hope your day is good. Very Happy

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Re: Went to first physio assessment - trigger points everywhere!

Post  meelie on Sat Jan 12, 2013 3:35 pm

Okay, so do most PT s know about this pelvic floor stuff? I live in a small town over an hour away from Atlanta, Ga. where I'm sure someone must this, but am wondering wouldn't any good PT know about it. And is it absolutely necessary for a PT to he/her fingers into the vagina to do therapy? Just don't think I can go there, just can't every make myself think about that. Anyway, at least I believe I am on the right track here and will continue to chiropractor. I'd love to hear more about what PT does when you go there. Maybe someone can get their PT to recommend one here in Georgia that really knows what to do. I'm open to suggestions and help. Smile

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Re: Went to first physio assessment - trigger points everywhere!

Post  Sarah001 on Sat Jan 12, 2013 5:42 pm

I can't recommend a specific PT as I'm in the UK but you need a Women's Health physio, a bog standard physio won't know how to treat the pelvic floor and likely wouldn't be licensed for internal work. And yes, the only way to stretch and remove trigger points from the PF is internally, you can reach a small amount yourself but not very well. If you use a trigger point ball on the floor and place it along the edge of the sacrum you catch some of the PF if you let it sink in deeply through the glutes/hip rotators but it isn't going to be enough to solve the whole problem. Most women with V have very tight superficial areas so just inside the vaginal opening and you can hook the thumb of your opposite hand into those and give them a stretch yourself to see if it helps. Physios will usually teach you how to stop clenching first because clenching in between sessions will undo any internal work so you might feel a bit more relaxed about the internal work once you learn to consciously relax the muscles. "Heal Pelvic Pain" by Amy Stein is a good book to read as she includes some verbal cues for learning to relax the PF, it's truly amazing how much it can be clenched without us realising we are doing it!
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Re: Went to first physio assessment - trigger points everywhere!

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