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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

My Vulvodynia maybe caused by over-treated Yeast Infection?

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My Vulvodynia maybe caused by over-treated Yeast Infection?

Post  debmommy22 on Wed Jun 20, 2012 1:17 am

I'm new here and need help too. I am 45 years old and this problem started off small back in Feb. 2012 with a yeast infection that went on too long. I didn't reconized it as a yeast infection because the symptoms were nothing like it. I itched at first around my urettha I think, it was weird. I thought I had a UTI. They found nothing. I went to a NP who said she found yeast and treated me for it. Then I thought I was fine. I had my period next and after was over, I felt sore on my vulva area and thought it was yeast again, so I treated it myself, dumb thing to do. I used Monistate and it did not improved and I used my left over yeast infection cream applied to my outer area/vulva only. It got worse so I go a pill from my GYN for yeast infection. Nothing changed. When I went back, I was red and irratated. I had suffered for over a month with terrible burning, stinging pain, also a pulling and tightening feeling down there. I stupidly thought if I kept using the yeast infection cream I would get better. It was so bad I could not sleep at night. I cried and cried at night to my husband who had no idea what was happening either. I "finally" realized when I didn't use the cream, my pain let up, but by then the damaged was done. I believe the cream burned and damaged the nerves and before that I was probably developing the vulvodynia and didn't know it. I think the 2nd yeast infection was not one at all now. I did this to myself or made worse something that had been coming onto me since Feb.

It has been over three months of pain seeing my GYN for steroids and estrogen cream that did nothing, in fact the steroid cream seem to irrated my skin more. Too much touch or activy especially while wearing underwear always makes it worse. I have seem my Nurse Practioner who gave me antiboitics then antivals, tested for STD's-negaitve results. I could have told her that! I married and we don't fool around but oh well...must rule everything out. I am now taking a Opiate-Percocet for pain so I can sleep at and function during the day. Otherwise I have to walk around without underwear all the time and just feel like isolating mostly. I don't work and could not if I wanted to again. I get SS Disabilty because I also have Bipolar II depression. This has only made things worse. I "want" to be cured, normal again. Why and what caused this for sure? I just want it to go away. I have felt broken, no sex with husband in months and I am terrified to try. I have a sore areas on my vulva on one side that even the opiates can't completely numb, I use Lidocane part of the time, but using it more than once a day can irrated the area more. I feel like I am sitting on sandpaper all the time. I was on Pristiq which really helped the VV and my depression added to the opiate and lidocane, I at times, felt very little pain at all. I felt normal, but I knew it was still there, just masked by the drugs. Crying or Very sad
I feel pain with and without touch. Touch is very bad. I can't even wash the area with soap anymore which drives me crazy! I do during my period because I just can't stand not to, but I never had douched or anything. I just use soap and water though I tended to rinse too much which left my skin dried out a lot, my husband and I always used a lubricant...but the extra rinsing has gone of for many years, no problems. I wonder if that contributed to me developing the condition?

Sorry this got so long. Probably not the right place to tell my story, but I need help advice from anyone and anyone who may have had the same experiences with this. I need some HOPE that I can heal...ALL of us can heal. No one treatment seems to help everyone, I have learned online. I am just going to have to keep trying and seeing the doctors and not giving up until I can find the right one to help me who, I hope, has compassion and understanding of my condition and truly wants to help. I hope it is someone with insight into this.

Thanks for any help!
debmommy (Deb.)


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Forgot to tell you

Post  debmommy22 on Wed Jun 20, 2012 1:28 am

Sorry I forgot to tell you that the Pristiq caused a terrible rash with raised welts at times and other time they were flatter and less red that appeared on my arms, legs, and trunk of my body. I found out after trying to stay on the med that this was a severe allergic reaction to Pristiq and I have stopped it. My face started swelling around my eyes and my lips swelling up like balloons, not both at the same time thank goodness. Got a steroid shot and benedryl. The "poison" is still in my system so still having a rash and swelling, but I think it is improving. Takes 5 to 7 days for the Pristiq to get out of my system. Need to find an antidepressant that helps that I am not allergic to. I do think they help the pain for me, for my Vulvodynia.

Thanks agian!
Deb. Smile


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Re: My Vulvodynia maybe caused by over-treated Yeast Infection?

Post  bluekangeroo on Wed Jun 20, 2012 9:06 am

Oh Deb, that sounds awful, what a horrible time you've been having...

Have you seen this; http://www.theglobeandmail.com/life/health-and-fitness/yeast-infections-linked-to-chronic-genital-pain/article595188/

thought you might find it interesting.

as you are at early stage, maybe they can do something about it if they understand what is going on?



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Thank You for the article

Post  debmommy22 on Wed Jun 20, 2012 6:29 pm

Thank you for posting the link. This really helps me. I can't believe how much sense this makes. It very well maybe what caused my nerve damage or V, I think they maybe the same thing. This is what happened to me for the most part. This is knowledge I can take to doctors if I need it, someone who will listen I hope. Smile The infections may have cause more nerve growth or irrated nerves I have, I may have more nerve endings than some women, just speculation.

Thank you so much again!... and for the private message. I will try to answer it later tonight.

Deb. Smile


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Response to over treated yeast infection

Post  Debbie627 on Mon Jul 30, 2012 11:58 pm

You are telling my story. But I figured it out. There is an ingredient called propylene glycol that is in yeast meds, steroids, lidocaine, personal lubricants, cottonelle pads, liquid laundry detergent, estrogen creams, shampoos, toothpaste, mouthwash etc. read your labels on any and all products that may potentially come in contact with your vulva. If you stop Using ALL of these, you will see improvement in 24 hours.

Let me know how it goes.



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Re: My Vulvodynia maybe caused by over-treated Yeast Infection?

Post  Loulou on Wed Aug 08, 2012 8:38 pm

Deb - i feel for you. I'm a similar age (47) and I too think my vvd was started or at least exacerbated by overuse of canesten cream and pessaries (like you i thought i had thrush but all the tests kept coming back negative tho my doc kept treating me for thrush!).

Once I was diagnosed, and after trying lidocaine which didnt work for me - made it worse, I decided to put AS LITTLE AS POSSIBLE on my vjay to try and help things calm down. Now I only use E45 wash/shower emollient to wash down there and I only wear knickers that have a high front gusset seam (usually 'granny' knickers so not very sexy i'm afraid!) so it doesn't rub on my tender bits. I found it definitely helped to leave it alone - things we/docs think will help can make it worse if the soreness and inflammation IS a reaction to overuse of thrush creams.

When the pain was really bad I relied on painkillers, camomile tea and relaxation techniques. The only thing I put on down there was a cold compress to relieve the burning. It took a while but my pain levels did decrease and I think it was because my body was able to heal to some degree without 'interference' from irritating topical creams.

Also pain causes you to tense internal muscles (without you being aware of it) so you might find some of your pain is from that. If you can see a physio to have your PF and other related muscles assessed I'm sure you will be able to get some relief from learning how to de-tense those muscles. Also get your pelvic alignment checked. My chiro diagnosed me with a tilted pelvis which she thinks has caused or contributed to my vvd. I never knew my pelvis was out of kilter or that my muscles were tense so i never would've thought of it as a cause or factor in my vvd. But since dealing with those issues I have been much better. (i also sleep with a small cushion between my knees and find this helps)

So there is definitely hope. i think the positive for you is that you've only had this since Feb (which isn't long compared to some tho I understand it will feel like an eternity for you) I started with my vvd in Nov last year and after a few months of agony decided on a 'do nothing to my vjay' policy because i hadn't had it long so thought there was a chance for this to work. Everyone's different but thought i'd share my experience in case its of some help to you.

Last edited by Loulou on Wed Aug 08, 2012 8:48 pm; edited 1 time in total (Reason for editing : explain why i was using canesten)


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Re: My Vulvodynia maybe caused by over-treated Yeast Infection?

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