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» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

My Vulvodynia maybe caused by over-treated Yeast Infection?

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My Vulvodynia maybe caused by over-treated Yeast Infection?

Post  debmommy22 on Wed Jun 20, 2012 1:17 am

I'm new here and need help too. I am 45 years old and this problem started off small back in Feb. 2012 with a yeast infection that went on too long. I didn't reconized it as a yeast infection because the symptoms were nothing like it. I itched at first around my urettha I think, it was weird. I thought I had a UTI. They found nothing. I went to a NP who said she found yeast and treated me for it. Then I thought I was fine. I had my period next and after was over, I felt sore on my vulva area and thought it was yeast again, so I treated it myself, dumb thing to do. I used Monistate and it did not improved and I used my left over yeast infection cream applied to my outer area/vulva only. It got worse so I go a pill from my GYN for yeast infection. Nothing changed. When I went back, I was red and irratated. I had suffered for over a month with terrible burning, stinging pain, also a pulling and tightening feeling down there. I stupidly thought if I kept using the yeast infection cream I would get better. It was so bad I could not sleep at night. I cried and cried at night to my husband who had no idea what was happening either. I "finally" realized when I didn't use the cream, my pain let up, but by then the damaged was done. I believe the cream burned and damaged the nerves and before that I was probably developing the vulvodynia and didn't know it. I think the 2nd yeast infection was not one at all now. I did this to myself or made worse something that had been coming onto me since Feb.

It has been over three months of pain seeing my GYN for steroids and estrogen cream that did nothing, in fact the steroid cream seem to irrated my skin more. Too much touch or activy especially while wearing underwear always makes it worse. I have seem my Nurse Practioner who gave me antiboitics then antivals, tested for STD's-negaitve results. I could have told her that! I married and we don't fool around but oh well...must rule everything out. I am now taking a Opiate-Percocet for pain so I can sleep at and function during the day. Otherwise I have to walk around without underwear all the time and just feel like isolating mostly. I don't work and could not if I wanted to again. I get SS Disabilty because I also have Bipolar II depression. This has only made things worse. I "want" to be cured, normal again. Why and what caused this for sure? I just want it to go away. I have felt broken, no sex with husband in months and I am terrified to try. I have a sore areas on my vulva on one side that even the opiates can't completely numb, I use Lidocane part of the time, but using it more than once a day can irrated the area more. I feel like I am sitting on sandpaper all the time. I was on Pristiq which really helped the VV and my depression added to the opiate and lidocane, I at times, felt very little pain at all. I felt normal, but I knew it was still there, just masked by the drugs. Crying or Very sad
I feel pain with and without touch. Touch is very bad. I can't even wash the area with soap anymore which drives me crazy! I do during my period because I just can't stand not to, but I never had douched or anything. I just use soap and water though I tended to rinse too much which left my skin dried out a lot, my husband and I always used a lubricant...but the extra rinsing has gone of for many years, no problems. I wonder if that contributed to me developing the condition?

Sorry this got so long. Probably not the right place to tell my story, but I need help advice from anyone and anyone who may have had the same experiences with this. I need some HOPE that I can heal...ALL of us can heal. No one treatment seems to help everyone, I have learned online. I am just going to have to keep trying and seeing the doctors and not giving up until I can find the right one to help me who, I hope, has compassion and understanding of my condition and truly wants to help. I hope it is someone with insight into this.

Thanks for any help!
debmommy (Deb.)


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Forgot to tell you

Post  debmommy22 on Wed Jun 20, 2012 1:28 am

Sorry I forgot to tell you that the Pristiq caused a terrible rash with raised welts at times and other time they were flatter and less red that appeared on my arms, legs, and trunk of my body. I found out after trying to stay on the med that this was a severe allergic reaction to Pristiq and I have stopped it. My face started swelling around my eyes and my lips swelling up like balloons, not both at the same time thank goodness. Got a steroid shot and benedryl. The "poison" is still in my system so still having a rash and swelling, but I think it is improving. Takes 5 to 7 days for the Pristiq to get out of my system. Need to find an antidepressant that helps that I am not allergic to. I do think they help the pain for me, for my Vulvodynia.

Thanks agian!
Deb. Smile


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Re: My Vulvodynia maybe caused by over-treated Yeast Infection?

Post  bluekangeroo on Wed Jun 20, 2012 9:06 am

Oh Deb, that sounds awful, what a horrible time you've been having...

Have you seen this; http://www.theglobeandmail.com/life/health-and-fitness/yeast-infections-linked-to-chronic-genital-pain/article595188/

thought you might find it interesting.

as you are at early stage, maybe they can do something about it if they understand what is going on?



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Thank You for the article

Post  debmommy22 on Wed Jun 20, 2012 6:29 pm

Thank you for posting the link. This really helps me. I can't believe how much sense this makes. It very well maybe what caused my nerve damage or V, I think they maybe the same thing. This is what happened to me for the most part. This is knowledge I can take to doctors if I need it, someone who will listen I hope. Smile The infections may have cause more nerve growth or irrated nerves I have, I may have more nerve endings than some women, just speculation.

Thank you so much again!... and for the private message. I will try to answer it later tonight.

Deb. Smile


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Response to over treated yeast infection

Post  Debbie627 on Mon Jul 30, 2012 11:58 pm

You are telling my story. But I figured it out. There is an ingredient called propylene glycol that is in yeast meds, steroids, lidocaine, personal lubricants, cottonelle pads, liquid laundry detergent, estrogen creams, shampoos, toothpaste, mouthwash etc. read your labels on any and all products that may potentially come in contact with your vulva. If you stop Using ALL of these, you will see improvement in 24 hours.

Let me know how it goes.



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Re: My Vulvodynia maybe caused by over-treated Yeast Infection?

Post  Loulou on Wed Aug 08, 2012 8:38 pm

Deb - i feel for you. I'm a similar age (47) and I too think my vvd was started or at least exacerbated by overuse of canesten cream and pessaries (like you i thought i had thrush but all the tests kept coming back negative tho my doc kept treating me for thrush!).

Once I was diagnosed, and after trying lidocaine which didnt work for me - made it worse, I decided to put AS LITTLE AS POSSIBLE on my vjay to try and help things calm down. Now I only use E45 wash/shower emollient to wash down there and I only wear knickers that have a high front gusset seam (usually 'granny' knickers so not very sexy i'm afraid!) so it doesn't rub on my tender bits. I found it definitely helped to leave it alone - things we/docs think will help can make it worse if the soreness and inflammation IS a reaction to overuse of thrush creams.

When the pain was really bad I relied on painkillers, camomile tea and relaxation techniques. The only thing I put on down there was a cold compress to relieve the burning. It took a while but my pain levels did decrease and I think it was because my body was able to heal to some degree without 'interference' from irritating topical creams.

Also pain causes you to tense internal muscles (without you being aware of it) so you might find some of your pain is from that. If you can see a physio to have your PF and other related muscles assessed I'm sure you will be able to get some relief from learning how to de-tense those muscles. Also get your pelvic alignment checked. My chiro diagnosed me with a tilted pelvis which she thinks has caused or contributed to my vvd. I never knew my pelvis was out of kilter or that my muscles were tense so i never would've thought of it as a cause or factor in my vvd. But since dealing with those issues I have been much better. (i also sleep with a small cushion between my knees and find this helps)

So there is definitely hope. i think the positive for you is that you've only had this since Feb (which isn't long compared to some tho I understand it will feel like an eternity for you) I started with my vvd in Nov last year and after a few months of agony decided on a 'do nothing to my vjay' policy because i hadn't had it long so thought there was a chance for this to work. Everyone's different but thought i'd share my experience in case its of some help to you.

Last edited by Loulou on Wed Aug 08, 2012 8:48 pm; edited 1 time in total (Reason for editing : explain why i was using canesten)


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Re: My Vulvodynia maybe caused by over-treated Yeast Infection?

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