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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


My Vulvodynia maybe caused by over-treated Yeast Infection?

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My Vulvodynia maybe caused by over-treated Yeast Infection?

Post  debmommy22 on Wed Jun 20, 2012 1:17 am

I'm new here and need help too. I am 45 years old and this problem started off small back in Feb. 2012 with a yeast infection that went on too long. I didn't reconized it as a yeast infection because the symptoms were nothing like it. I itched at first around my urettha I think, it was weird. I thought I had a UTI. They found nothing. I went to a NP who said she found yeast and treated me for it. Then I thought I was fine. I had my period next and after was over, I felt sore on my vulva area and thought it was yeast again, so I treated it myself, dumb thing to do. I used Monistate and it did not improved and I used my left over yeast infection cream applied to my outer area/vulva only. It got worse so I go a pill from my GYN for yeast infection. Nothing changed. When I went back, I was red and irratated. I had suffered for over a month with terrible burning, stinging pain, also a pulling and tightening feeling down there. I stupidly thought if I kept using the yeast infection cream I would get better. It was so bad I could not sleep at night. I cried and cried at night to my husband who had no idea what was happening either. I "finally" realized when I didn't use the cream, my pain let up, but by then the damaged was done. I believe the cream burned and damaged the nerves and before that I was probably developing the vulvodynia and didn't know it. I think the 2nd yeast infection was not one at all now. I did this to myself or made worse something that had been coming onto me since Feb.

It has been over three months of pain seeing my GYN for steroids and estrogen cream that did nothing, in fact the steroid cream seem to irrated my skin more. Too much touch or activy especially while wearing underwear always makes it worse. I have seem my Nurse Practioner who gave me antiboitics then antivals, tested for STD's-negaitve results. I could have told her that! I married and we don't fool around but oh well...must rule everything out. I am now taking a Opiate-Percocet for pain so I can sleep at and function during the day. Otherwise I have to walk around without underwear all the time and just feel like isolating mostly. I don't work and could not if I wanted to again. I get SS Disabilty because I also have Bipolar II depression. This has only made things worse. I "want" to be cured, normal again. Why and what caused this for sure? I just want it to go away. I have felt broken, no sex with husband in months and I am terrified to try. I have a sore areas on my vulva on one side that even the opiates can't completely numb, I use Lidocane part of the time, but using it more than once a day can irrated the area more. I feel like I am sitting on sandpaper all the time. I was on Pristiq which really helped the VV and my depression added to the opiate and lidocane, I at times, felt very little pain at all. I felt normal, but I knew it was still there, just masked by the drugs. Crying or Very sad
I feel pain with and without touch. Touch is very bad. I can't even wash the area with soap anymore which drives me crazy! I do during my period because I just can't stand not to, but I never had douched or anything. I just use soap and water though I tended to rinse too much which left my skin dried out a lot, my husband and I always used a lubricant...but the extra rinsing has gone of for many years, no problems. I wonder if that contributed to me developing the condition?

Sorry this got so long. Probably not the right place to tell my story, but I need help advice from anyone and anyone who may have had the same experiences with this. I need some HOPE that I can heal...ALL of us can heal. No one treatment seems to help everyone, I have learned online. I am just going to have to keep trying and seeing the doctors and not giving up until I can find the right one to help me who, I hope, has compassion and understanding of my condition and truly wants to help. I hope it is someone with insight into this.

Thanks for any help!
debmommy (Deb.)

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Forgot to tell you

Post  debmommy22 on Wed Jun 20, 2012 1:28 am

Sorry I forgot to tell you that the Pristiq caused a terrible rash with raised welts at times and other time they were flatter and less red that appeared on my arms, legs, and trunk of my body. I found out after trying to stay on the med that this was a severe allergic reaction to Pristiq and I have stopped it. My face started swelling around my eyes and my lips swelling up like balloons, not both at the same time thank goodness. Got a steroid shot and benedryl. The "poison" is still in my system so still having a rash and swelling, but I think it is improving. Takes 5 to 7 days for the Pristiq to get out of my system. Need to find an antidepressant that helps that I am not allergic to. I do think they help the pain for me, for my Vulvodynia.

Thanks agian!
Deb. Smile

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Re: My Vulvodynia maybe caused by over-treated Yeast Infection?

Post  bluekangeroo on Wed Jun 20, 2012 9:06 am

Oh Deb, that sounds awful, what a horrible time you've been having...

Have you seen this; http://www.theglobeandmail.com/life/health-and-fitness/yeast-infections-linked-to-chronic-genital-pain/article595188/

thought you might find it interesting.

as you are at early stage, maybe they can do something about it if they understand what is going on?

A

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Thank You for the article

Post  debmommy22 on Wed Jun 20, 2012 6:29 pm

Thank you for posting the link. This really helps me. I can't believe how much sense this makes. It very well maybe what caused my nerve damage or V, I think they maybe the same thing. This is what happened to me for the most part. This is knowledge I can take to doctors if I need it, someone who will listen I hope. Smile The infections may have cause more nerve growth or irrated nerves I have, I may have more nerve endings than some women, just speculation.

Thank you so much again!... and for the private message. I will try to answer it later tonight.

Deb. Smile

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Response to over treated yeast infection

Post  Debbie627 on Mon Jul 30, 2012 11:58 pm

You are telling my story. But I figured it out. There is an ingredient called propylene glycol that is in yeast meds, steroids, lidocaine, personal lubricants, cottonelle pads, liquid laundry detergent, estrogen creams, shampoos, toothpaste, mouthwash etc. read your labels on any and all products that may potentially come in contact with your vulva. If you stop Using ALL of these, you will see improvement in 24 hours.

Let me know how it goes.

Debbie

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Re: My Vulvodynia maybe caused by over-treated Yeast Infection?

Post  Loulou on Wed Aug 08, 2012 8:38 pm

Deb - i feel for you. I'm a similar age (47) and I too think my vvd was started or at least exacerbated by overuse of canesten cream and pessaries (like you i thought i had thrush but all the tests kept coming back negative tho my doc kept treating me for thrush!).

Once I was diagnosed, and after trying lidocaine which didnt work for me - made it worse, I decided to put AS LITTLE AS POSSIBLE on my vjay to try and help things calm down. Now I only use E45 wash/shower emollient to wash down there and I only wear knickers that have a high front gusset seam (usually 'granny' knickers so not very sexy i'm afraid!) so it doesn't rub on my tender bits. I found it definitely helped to leave it alone - things we/docs think will help can make it worse if the soreness and inflammation IS a reaction to overuse of thrush creams.

When the pain was really bad I relied on painkillers, camomile tea and relaxation techniques. The only thing I put on down there was a cold compress to relieve the burning. It took a while but my pain levels did decrease and I think it was because my body was able to heal to some degree without 'interference' from irritating topical creams.

Also pain causes you to tense internal muscles (without you being aware of it) so you might find some of your pain is from that. If you can see a physio to have your PF and other related muscles assessed I'm sure you will be able to get some relief from learning how to de-tense those muscles. Also get your pelvic alignment checked. My chiro diagnosed me with a tilted pelvis which she thinks has caused or contributed to my vvd. I never knew my pelvis was out of kilter or that my muscles were tense so i never would've thought of it as a cause or factor in my vvd. But since dealing with those issues I have been much better. (i also sleep with a small cushion between my knees and find this helps)

So there is definitely hope. i think the positive for you is that you've only had this since Feb (which isn't long compared to some tho I understand it will feel like an eternity for you) I started with my vvd in Nov last year and after a few months of agony decided on a 'do nothing to my vjay' policy because i hadn't had it long so thought there was a chance for this to work. Everyone's different but thought i'd share my experience in case its of some help to you.


Last edited by Loulou on Wed Aug 08, 2012 8:48 pm; edited 1 time in total (Reason for editing : explain why i was using canesten)

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Re: My Vulvodynia maybe caused by over-treated Yeast Infection?

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