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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Anyone Have a Vestibulectomy that Failed?

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Anyone Have a Vestibulectomy that Failed?

Post  sandrasyz on Mon Jun 25, 2012 3:37 am

I'm new here and I'm happy to have found this forum!

I just had a vestibulectomy 12 days ago. The original pain wasn't too bad, although I did cut through a couple of stitches which was extremely painful. Aside from that, the recovery was going smoothly until yesterday when I felt that familiar painful feeling (just like the q-tip test at the doc) when I was patting myself dry with toilet paper. I took a peek and noticed that the skin/tissue was red just like it used to be before the surgery, whereas a few days prior, it looked like I had a brand new vag. I'm scared that the irritation is back, not even 2 weeks after the surgery. I go back to the doc on Tuesday, but I can't help but be worried over this.

Anyone had this problem? Thanks!

sandrasyz

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Re: Anyone Have a Vestibulectomy that Failed?

Post  MissMissy21 on Tue Jul 31, 2012 5:09 pm

I know this isnt a reply but i am considering the surgery. Did it work for you?

MissMissy21

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Re: Anyone Have a Vestibulectomy that Failed?

Post  amtali on Sat Aug 04, 2012 3:00 am

Hey sandrasyz,

I had a vestibulectomy 6 1/2 weeks ago. My last few stitches just came out over the past week. My 2 week post-op, I still couldn't sit properly from the pain. The doc put a finger in to check me (idk why) but it was excruciating. I still have a lot of pain down there and redness, but it is definitely from the surgery. A few times I have felt the familar twinge of pain that comes unprovoked, which makes me wonder how well the surgery really worked. However, because I am still very tender down there, I am trying to keep my hopes up that it's just from healing. I see my doctor again in a week. So hang in there. I think for me, and especially for you, it is just too early to tell.
I'll keep you updated!

Just wondering, where did you have your surgery?

amtali

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Re: Anyone Have a Vestibulectomy that Failed?

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