Vulvodynia Support
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» Hope to all my suffering ladies
rookie!! need help!! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
rookie!! need help!! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
rookie!! need help!! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
rookie!! need help!! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
rookie!! need help!! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
rookie!! need help!! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
rookie!! need help!! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
rookie!! need help!! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
rookie!! need help!! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


rookie!! need help!!

2 posters

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rookie!! need help!! Empty rookie!! need help!!

Post  sailirish23 Thu May 10, 2012 11:16 pm

I was recently told I have vulodynia this week. I need someone who can understand my depression and decreasing hope. I need someone to talk to in the same situation.


sailirish23

Posts : 3
Join date : 2012-05-10
Location : florida

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rookie!! need help!! Empty You are not alone!

Post  bCherie Thu Jul 12, 2012 10:22 am

Hi there! My heart bleeds for you Sad I know how painful this can be emotionally!
I've had this for 5 1/2 years. It can be so horrible to feel this alone! Despite what men think, us women don't sit around talking to each other about our vaginas! Hell most of us have never even looked at our own vagina before it started hurting!!

I bottled my pain up and told NO ONE for the longest time! I was too embarrassed to even tell my partner and only fessed up when it just hurt to much to have sex anymore. I didn't tell friends. I didn't tell my mum. I felt very alone. Like a broken and imperfect human. Like I wasn't a woman.

It took my relationship and my mental well being imploding for me to realize that it is SO important to talk to people! Even if they don't 'get it' having a good friend or mum/aunt/grandparent to share with makes this a lot less lonesome. I actually saw a therapist long before I told a friend or my mum. The therapist convinced me that we both can't and shouldn't do this alone. When I told my best friend she cried for me. She can't change anything or help me or even fully understand but it felt like I no longer had a 'dirty' secret!

Don't despair either there are so many different causes. And SO many GP's and Gynacologists that don't know ANYTHING about vulvadynia! And this is a good thing! Keep seeing specialists and asking who is considered to be the expert in this field where you live, push to see only the best!! This is still a mysterious problem and if your gyno says they 'don't know' what causes this keep looking for a better more right specialist for you!! If you keep asking you will find the person to help you!

I finally found a dermatologist who explained that my vulvadnyia is caused by compressed disc's in my lower spine sending out pain messages. Like when you get rsi in your wrist from slouching at your desk!
She is considered to be an expert in this medicine in australia (where I live). I start treatment with a physio and pilates this week and am finally feeling positive!

Please don't feel alone! You are not! Talk to a friend, a trusted family member or a therapist. and take care of yourself! I would give you a hug if I could!


bCherie

Posts : 14
Join date : 2012-07-12

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