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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Struggling with motivation

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Struggling with motivation

Post  Shuriken on Sat Jun 30, 2012 3:13 am

Hi,
I"m 20 and I first started having pain with sex when I was 19, about 10 months ago. It wasn't my first time, although it was a new boyfriend and he was maybe a little larger than my previous 2 boyfriends. Looking back, I think the problem was not new, as I had never used a tampon as i could always feel it, and having sex more than once a night was a no-go due to no lubrication = ouchies. To be honest, even sex that lasted too long made me rub a little raw. funnily enough, getting a guy to finish quickly is never an issue. So I went to see my GP who sent me, after several standard tests, to a specialist who diagnosed me and sent me to the physiotherapist. This took time, and if I didn't have health insurance would've been way more expensive than I could afford. But the physio lady is so nice, and so helpful and we pinpointed what the problem may be. I spent 6 weeks on an excavation in Italy where I was squatting in the dirt for 10 hours a day, drinking litres of water and avoiding going to the horribly smelly and hot portaloos - I appear to have overtrained my pelvic muscles and when the sex hurt I fell into a cycle of pain and tension. I also have guttate psoriasis which may have contributed a little. I understand this, but its so hard to switch all that apprehension off, even when its just me and tiny tampon (much cheaper than a dilator). By relationship with that initial boyfriend eventually ended (he was an asshole) and I'm seeing a much more understanding guy who seems ok with the no-sex aspect - although we do a fair number of other things. I'm not uncomfortable with intimacy and I don't have a problem with arousal anymore and on a good day he can use his hands. I know that some women are in far worse situations and I know I've come a long way from where I was, but I'm not satisfied with this result, I like sex and I want to be able to have when I want without having to worry about it not working out. Yet, at the same time, with my full-time post-graduate study and all the crazy stress in my life, the motivation to actually do my exercises every night is lacking. I just want to sleep, or read my book. Not to mention, that trying to use a dilator when you are not in the mood just makes it harder and I get discouraged. I know its silly to expect things to just get better without doing much about it, but the good days and the bad days don't seem to have any rythme or reason. In fact, doing my exercises seems to make it harder to do the same thing later that day (or the next) with my man, especially if it didn't go too well, so I do my exercises even less.
Does anyone have any advice? How did you keep up the work for so long and stay positive?
Also, is there a support group in Auckland, New Zealand? It would be nice to talk with people in person, the internet always seems so far away and impersonal.

Shuriken

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Join date : 2012-06-30

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Re struggling with motivation

Post  Sunflower82 on Sat Jun 30, 2012 8:58 am

Hi,
Just read your message, think it is very normal for you to feel they way u are feeling, I have physio exercises and should be using my dilators every other night and doing perinal massage, which to be honest has helped I have made my way through the dialators and have made it up to the scary largest one. They are great for stretching and trying to get me to relax, however it's very different to sex as there is no movement. I go through periods of extreme motivation and I will do it all the time but then I end up with urine infection and I'm make to where I started. It helped me to use the dilators in the bath as this will help you to relax, use an oil based lube check out this lube it's called yes, it doesn't have any nasty chemicals. Hope this helps


Katie

Sunflower82

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Interesting

Post  jmcmil on Sat Jul 07, 2012 4:07 am

Hello,
I am from the US and am curious about the dilators you are talking about. I would be interested in exercises and trying anything down there to help the pain. Please explain. Thanks!

jmcmil

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Location : US

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Re: Struggling with motivation

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