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Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Struggling with motivation

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Struggling with motivation

Post  Shuriken on Sat Jun 30, 2012 3:13 am

Hi,
I"m 20 and I first started having pain with sex when I was 19, about 10 months ago. It wasn't my first time, although it was a new boyfriend and he was maybe a little larger than my previous 2 boyfriends. Looking back, I think the problem was not new, as I had never used a tampon as i could always feel it, and having sex more than once a night was a no-go due to no lubrication = ouchies. To be honest, even sex that lasted too long made me rub a little raw. funnily enough, getting a guy to finish quickly is never an issue. So I went to see my GP who sent me, after several standard tests, to a specialist who diagnosed me and sent me to the physiotherapist. This took time, and if I didn't have health insurance would've been way more expensive than I could afford. But the physio lady is so nice, and so helpful and we pinpointed what the problem may be. I spent 6 weeks on an excavation in Italy where I was squatting in the dirt for 10 hours a day, drinking litres of water and avoiding going to the horribly smelly and hot portaloos - I appear to have overtrained my pelvic muscles and when the sex hurt I fell into a cycle of pain and tension. I also have guttate psoriasis which may have contributed a little. I understand this, but its so hard to switch all that apprehension off, even when its just me and tiny tampon (much cheaper than a dilator). By relationship with that initial boyfriend eventually ended (he was an asshole) and I'm seeing a much more understanding guy who seems ok with the no-sex aspect - although we do a fair number of other things. I'm not uncomfortable with intimacy and I don't have a problem with arousal anymore and on a good day he can use his hands. I know that some women are in far worse situations and I know I've come a long way from where I was, but I'm not satisfied with this result, I like sex and I want to be able to have when I want without having to worry about it not working out. Yet, at the same time, with my full-time post-graduate study and all the crazy stress in my life, the motivation to actually do my exercises every night is lacking. I just want to sleep, or read my book. Not to mention, that trying to use a dilator when you are not in the mood just makes it harder and I get discouraged. I know its silly to expect things to just get better without doing much about it, but the good days and the bad days don't seem to have any rythme or reason. In fact, doing my exercises seems to make it harder to do the same thing later that day (or the next) with my man, especially if it didn't go too well, so I do my exercises even less.
Does anyone have any advice? How did you keep up the work for so long and stay positive?
Also, is there a support group in Auckland, New Zealand? It would be nice to talk with people in person, the internet always seems so far away and impersonal.

Shuriken

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Re struggling with motivation

Post  Sunflower82 on Sat Jun 30, 2012 8:58 am

Hi,
Just read your message, think it is very normal for you to feel they way u are feeling, I have physio exercises and should be using my dilators every other night and doing perinal massage, which to be honest has helped I have made my way through the dialators and have made it up to the scary largest one. They are great for stretching and trying to get me to relax, however it's very different to sex as there is no movement. I go through periods of extreme motivation and I will do it all the time but then I end up with urine infection and I'm make to where I started. It helped me to use the dilators in the bath as this will help you to relax, use an oil based lube check out this lube it's called yes, it doesn't have any nasty chemicals. Hope this helps


Katie

Sunflower82

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Interesting

Post  jmcmil on Sat Jul 07, 2012 4:07 am

Hello,
I am from the US and am curious about the dilators you are talking about. I would be interested in exercises and trying anything down there to help the pain. Please explain. Thanks!

jmcmil

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Re: Struggling with motivation

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