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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Struggling with motivation

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Struggling with motivation

Post  Shuriken on Sat Jun 30, 2012 3:13 am

Hi,
I"m 20 and I first started having pain with sex when I was 19, about 10 months ago. It wasn't my first time, although it was a new boyfriend and he was maybe a little larger than my previous 2 boyfriends. Looking back, I think the problem was not new, as I had never used a tampon as i could always feel it, and having sex more than once a night was a no-go due to no lubrication = ouchies. To be honest, even sex that lasted too long made me rub a little raw. funnily enough, getting a guy to finish quickly is never an issue. So I went to see my GP who sent me, after several standard tests, to a specialist who diagnosed me and sent me to the physiotherapist. This took time, and if I didn't have health insurance would've been way more expensive than I could afford. But the physio lady is so nice, and so helpful and we pinpointed what the problem may be. I spent 6 weeks on an excavation in Italy where I was squatting in the dirt for 10 hours a day, drinking litres of water and avoiding going to the horribly smelly and hot portaloos - I appear to have overtrained my pelvic muscles and when the sex hurt I fell into a cycle of pain and tension. I also have guttate psoriasis which may have contributed a little. I understand this, but its so hard to switch all that apprehension off, even when its just me and tiny tampon (much cheaper than a dilator). By relationship with that initial boyfriend eventually ended (he was an asshole) and I'm seeing a much more understanding guy who seems ok with the no-sex aspect - although we do a fair number of other things. I'm not uncomfortable with intimacy and I don't have a problem with arousal anymore and on a good day he can use his hands. I know that some women are in far worse situations and I know I've come a long way from where I was, but I'm not satisfied with this result, I like sex and I want to be able to have when I want without having to worry about it not working out. Yet, at the same time, with my full-time post-graduate study and all the crazy stress in my life, the motivation to actually do my exercises every night is lacking. I just want to sleep, or read my book. Not to mention, that trying to use a dilator when you are not in the mood just makes it harder and I get discouraged. I know its silly to expect things to just get better without doing much about it, but the good days and the bad days don't seem to have any rythme or reason. In fact, doing my exercises seems to make it harder to do the same thing later that day (or the next) with my man, especially if it didn't go too well, so I do my exercises even less.
Does anyone have any advice? How did you keep up the work for so long and stay positive?
Also, is there a support group in Auckland, New Zealand? It would be nice to talk with people in person, the internet always seems so far away and impersonal.

Shuriken

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Re struggling with motivation

Post  Sunflower82 on Sat Jun 30, 2012 8:58 am

Hi,
Just read your message, think it is very normal for you to feel they way u are feeling, I have physio exercises and should be using my dilators every other night and doing perinal massage, which to be honest has helped I have made my way through the dialators and have made it up to the scary largest one. They are great for stretching and trying to get me to relax, however it's very different to sex as there is no movement. I go through periods of extreme motivation and I will do it all the time but then I end up with urine infection and I'm make to where I started. It helped me to use the dilators in the bath as this will help you to relax, use an oil based lube check out this lube it's called yes, it doesn't have any nasty chemicals. Hope this helps


Katie

Sunflower82

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Interesting

Post  jmcmil on Sat Jul 07, 2012 4:07 am

Hello,
I am from the US and am curious about the dilators you are talking about. I would be interested in exercises and trying anything down there to help the pain. Please explain. Thanks!

jmcmil

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Re: Struggling with motivation

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