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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Struggling with motivation

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Struggling with motivation

Post  Shuriken on Sat Jun 30, 2012 3:13 am

Hi,
I"m 20 and I first started having pain with sex when I was 19, about 10 months ago. It wasn't my first time, although it was a new boyfriend and he was maybe a little larger than my previous 2 boyfriends. Looking back, I think the problem was not new, as I had never used a tampon as i could always feel it, and having sex more than once a night was a no-go due to no lubrication = ouchies. To be honest, even sex that lasted too long made me rub a little raw. funnily enough, getting a guy to finish quickly is never an issue. So I went to see my GP who sent me, after several standard tests, to a specialist who diagnosed me and sent me to the physiotherapist. This took time, and if I didn't have health insurance would've been way more expensive than I could afford. But the physio lady is so nice, and so helpful and we pinpointed what the problem may be. I spent 6 weeks on an excavation in Italy where I was squatting in the dirt for 10 hours a day, drinking litres of water and avoiding going to the horribly smelly and hot portaloos - I appear to have overtrained my pelvic muscles and when the sex hurt I fell into a cycle of pain and tension. I also have guttate psoriasis which may have contributed a little. I understand this, but its so hard to switch all that apprehension off, even when its just me and tiny tampon (much cheaper than a dilator). By relationship with that initial boyfriend eventually ended (he was an asshole) and I'm seeing a much more understanding guy who seems ok with the no-sex aspect - although we do a fair number of other things. I'm not uncomfortable with intimacy and I don't have a problem with arousal anymore and on a good day he can use his hands. I know that some women are in far worse situations and I know I've come a long way from where I was, but I'm not satisfied with this result, I like sex and I want to be able to have when I want without having to worry about it not working out. Yet, at the same time, with my full-time post-graduate study and all the crazy stress in my life, the motivation to actually do my exercises every night is lacking. I just want to sleep, or read my book. Not to mention, that trying to use a dilator when you are not in the mood just makes it harder and I get discouraged. I know its silly to expect things to just get better without doing much about it, but the good days and the bad days don't seem to have any rythme or reason. In fact, doing my exercises seems to make it harder to do the same thing later that day (or the next) with my man, especially if it didn't go too well, so I do my exercises even less.
Does anyone have any advice? How did you keep up the work for so long and stay positive?
Also, is there a support group in Auckland, New Zealand? It would be nice to talk with people in person, the internet always seems so far away and impersonal.

Shuriken

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Re struggling with motivation

Post  Sunflower82 on Sat Jun 30, 2012 8:58 am

Hi,
Just read your message, think it is very normal for you to feel they way u are feeling, I have physio exercises and should be using my dilators every other night and doing perinal massage, which to be honest has helped I have made my way through the dialators and have made it up to the scary largest one. They are great for stretching and trying to get me to relax, however it's very different to sex as there is no movement. I go through periods of extreme motivation and I will do it all the time but then I end up with urine infection and I'm make to where I started. It helped me to use the dilators in the bath as this will help you to relax, use an oil based lube check out this lube it's called yes, it doesn't have any nasty chemicals. Hope this helps


Katie

Sunflower82

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Interesting

Post  jmcmil on Sat Jul 07, 2012 4:07 am

Hello,
I am from the US and am curious about the dilators you are talking about. I would be interested in exercises and trying anything down there to help the pain. Please explain. Thanks!

jmcmil

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Re: Struggling with motivation

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