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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Husbands?

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Husbands?

Post  gbook on Sun Aug 01, 2010 2:18 am

My wife has suffered from this condition for our entire marriage, and for some time before we met. A total of more than 10 years. She's never known sex to be anything but painful and always something to be avoided. It took me a long long time to understand this, and I'm still coming to terms with it.

Any husbands or boyfriends out there? What's your story and how did you support your woman during the hard times?

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Re: Husbands?

Post  lisa98 on Sun Aug 01, 2010 8:51 am

I don't know what i would do without my partner's love and support. The most valuable thing he can do for me when I'm having a hard time is to express his affection for and attraction to me- to remind me that I am still sexually attractive, wanted and capable of having a mutually enjoyable (if limited) physical relationship.

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Re: Husbands?

Post  Sarah001 on Sun Aug 01, 2010 11:19 am

gbook if you go to www.vulvodynia.com and have a look in the guestbooks there's a guy on there called Frank who's wife has vulvodynia and I'm sure he'd be willing to talk to you.
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Re: Husbands?

Post  Sebby (Admin) on Sun Aug 01, 2010 3:23 pm


Welcome gbook, its great to hear from the husbands/boyfriends.

If you guys have been together for 10 years now it already sounds like you are very understanding!

Im not currently in a relationship but I know what does help is like Lisa said is for him to still express his attraction and affection. Many cuddles pleaseeee lol

Even if I have found intercourse too painful It doesnt mean im not longing for sexual contact...to be able to do all sorts of other fun things and for my partner to enjoy this as well is fantastic..also I find that the more you do this the more relaxed you are to attempt intercourse.

Also (unlike my previous partner) its great to know your boyfriend/husband genuinally cares about the fact you are in pain. So empathy is greatly appreciated.

You say you are still coming to terms with it and this is soo understandable. So also get sum support for yourself...this forum is also for those who lives are affected indirectly by Vulval Pain..so if you need to get a few things off your chest by all means do so.

Good Luck and Take Care

Sebby
xx
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Re: Husbands?

Post  gbook on Fri Aug 06, 2010 3:46 pm

Thanks for the replies and advice. The toughest part of this is that my wife is no longer in pain. After the vestibulectomy surgery, she's 99% pain free. But... she still avoids any intimacy like the plague. She refuses to seek any kind of therapy or counseling. The only thing she wants from me is for me to not touch her at all. No making out, no non-penetrative sex, no fondling, nada.

It feels like the only outcome she's comfortable with is no intimacy, and that's tough for me. Either I can accept that, not accept it, or preferably find a way to meet half way. I really want to figure out how we can both be comfortable with our sex life together. I'm also more than happy to go to therapy, but it's not too helpful if I go by myself.

Any discussion for treatment/therapy on my side is met with resistance. So I strongly feel her and I need to do something, but I have no idea how to we're going to do it Sad

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Re: Husbands?

Post  Sarah001 on Fri Aug 06, 2010 6:50 pm

That's tricky because obviously with some help she could probably resume sex without too many problems now she's painfree without but at the same time I can understand her fears, I'm sure she thinks sex will send her spiralling back into the hell she was in before. The only thing I can think of is to buy some dilators online and for her to try them very slowly on her own at home to see how penetration feels (lots of lube), the sets have some very small ones and build up in size. I would have thought however the hospital that performed the surgery would have advised this afterwards to get the tissue in optimum condition anyway? If they did'nt it will likely be a necessity to remain painfree anyway.

It might benefit you to go to a therapist on your own anyway as they may have some helpful suggestions about how to approach the situation with your wife, sometimes a slightly different approach can be more helpful and a good therapist will probably have come across similar situations with couples in the past.
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Re: Husbands?

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