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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Husbands?

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Husbands?

Post  gbook on Sun Aug 01, 2010 2:18 am

My wife has suffered from this condition for our entire marriage, and for some time before we met. A total of more than 10 years. She's never known sex to be anything but painful and always something to be avoided. It took me a long long time to understand this, and I'm still coming to terms with it.

Any husbands or boyfriends out there? What's your story and how did you support your woman during the hard times?

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Re: Husbands?

Post  lisa98 on Sun Aug 01, 2010 8:51 am

I don't know what i would do without my partner's love and support. The most valuable thing he can do for me when I'm having a hard time is to express his affection for and attraction to me- to remind me that I am still sexually attractive, wanted and capable of having a mutually enjoyable (if limited) physical relationship.

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Re: Husbands?

Post  Sarah001 on Sun Aug 01, 2010 11:19 am

gbook if you go to www.vulvodynia.com and have a look in the guestbooks there's a guy on there called Frank who's wife has vulvodynia and I'm sure he'd be willing to talk to you.
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Re: Husbands?

Post  Sebby (Admin) on Sun Aug 01, 2010 3:23 pm


Welcome gbook, its great to hear from the husbands/boyfriends.

If you guys have been together for 10 years now it already sounds like you are very understanding!

Im not currently in a relationship but I know what does help is like Lisa said is for him to still express his attraction and affection. Many cuddles pleaseeee lol

Even if I have found intercourse too painful It doesnt mean im not longing for sexual contact...to be able to do all sorts of other fun things and for my partner to enjoy this as well is fantastic..also I find that the more you do this the more relaxed you are to attempt intercourse.

Also (unlike my previous partner) its great to know your boyfriend/husband genuinally cares about the fact you are in pain. So empathy is greatly appreciated.

You say you are still coming to terms with it and this is soo understandable. So also get sum support for yourself...this forum is also for those who lives are affected indirectly by Vulval Pain..so if you need to get a few things off your chest by all means do so.

Good Luck and Take Care

Sebby
xx
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Re: Husbands?

Post  gbook on Fri Aug 06, 2010 3:46 pm

Thanks for the replies and advice. The toughest part of this is that my wife is no longer in pain. After the vestibulectomy surgery, she's 99% pain free. But... she still avoids any intimacy like the plague. She refuses to seek any kind of therapy or counseling. The only thing she wants from me is for me to not touch her at all. No making out, no non-penetrative sex, no fondling, nada.

It feels like the only outcome she's comfortable with is no intimacy, and that's tough for me. Either I can accept that, not accept it, or preferably find a way to meet half way. I really want to figure out how we can both be comfortable with our sex life together. I'm also more than happy to go to therapy, but it's not too helpful if I go by myself.

Any discussion for treatment/therapy on my side is met with resistance. So I strongly feel her and I need to do something, but I have no idea how to we're going to do it Sad

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Re: Husbands?

Post  Sarah001 on Fri Aug 06, 2010 6:50 pm

That's tricky because obviously with some help she could probably resume sex without too many problems now she's painfree without but at the same time I can understand her fears, I'm sure she thinks sex will send her spiralling back into the hell she was in before. The only thing I can think of is to buy some dilators online and for her to try them very slowly on her own at home to see how penetration feels (lots of lube), the sets have some very small ones and build up in size. I would have thought however the hospital that performed the surgery would have advised this afterwards to get the tissue in optimum condition anyway? If they did'nt it will likely be a necessity to remain painfree anyway.

It might benefit you to go to a therapist on your own anyway as they may have some helpful suggestions about how to approach the situation with your wife, sometimes a slightly different approach can be more helpful and a good therapist will probably have come across similar situations with couples in the past.
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