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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Husbands?

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Husbands?

Post  gbook on Sun Aug 01, 2010 2:18 am

My wife has suffered from this condition for our entire marriage, and for some time before we met. A total of more than 10 years. She's never known sex to be anything but painful and always something to be avoided. It took me a long long time to understand this, and I'm still coming to terms with it.

Any husbands or boyfriends out there? What's your story and how did you support your woman during the hard times?

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Re: Husbands?

Post  lisa98 on Sun Aug 01, 2010 8:51 am

I don't know what i would do without my partner's love and support. The most valuable thing he can do for me when I'm having a hard time is to express his affection for and attraction to me- to remind me that I am still sexually attractive, wanted and capable of having a mutually enjoyable (if limited) physical relationship.

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Re: Husbands?

Post  Sarah001 on Sun Aug 01, 2010 11:19 am

gbook if you go to www.vulvodynia.com and have a look in the guestbooks there's a guy on there called Frank who's wife has vulvodynia and I'm sure he'd be willing to talk to you.
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Re: Husbands?

Post  Sebby (Admin) on Sun Aug 01, 2010 3:23 pm


Welcome gbook, its great to hear from the husbands/boyfriends.

If you guys have been together for 10 years now it already sounds like you are very understanding!

Im not currently in a relationship but I know what does help is like Lisa said is for him to still express his attraction and affection. Many cuddles pleaseeee lol

Even if I have found intercourse too painful It doesnt mean im not longing for sexual contact...to be able to do all sorts of other fun things and for my partner to enjoy this as well is fantastic..also I find that the more you do this the more relaxed you are to attempt intercourse.

Also (unlike my previous partner) its great to know your boyfriend/husband genuinally cares about the fact you are in pain. So empathy is greatly appreciated.

You say you are still coming to terms with it and this is soo understandable. So also get sum support for yourself...this forum is also for those who lives are affected indirectly by Vulval Pain..so if you need to get a few things off your chest by all means do so.

Good Luck and Take Care

Sebby
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Re: Husbands?

Post  gbook on Fri Aug 06, 2010 3:46 pm

Thanks for the replies and advice. The toughest part of this is that my wife is no longer in pain. After the vestibulectomy surgery, she's 99% pain free. But... she still avoids any intimacy like the plague. She refuses to seek any kind of therapy or counseling. The only thing she wants from me is for me to not touch her at all. No making out, no non-penetrative sex, no fondling, nada.

It feels like the only outcome she's comfortable with is no intimacy, and that's tough for me. Either I can accept that, not accept it, or preferably find a way to meet half way. I really want to figure out how we can both be comfortable with our sex life together. I'm also more than happy to go to therapy, but it's not too helpful if I go by myself.

Any discussion for treatment/therapy on my side is met with resistance. So I strongly feel her and I need to do something, but I have no idea how to we're going to do it Sad

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Re: Husbands?

Post  Sarah001 on Fri Aug 06, 2010 6:50 pm

That's tricky because obviously with some help she could probably resume sex without too many problems now she's painfree without but at the same time I can understand her fears, I'm sure she thinks sex will send her spiralling back into the hell she was in before. The only thing I can think of is to buy some dilators online and for her to try them very slowly on her own at home to see how penetration feels (lots of lube), the sets have some very small ones and build up in size. I would have thought however the hospital that performed the surgery would have advised this afterwards to get the tissue in optimum condition anyway? If they did'nt it will likely be a necessity to remain painfree anyway.

It might benefit you to go to a therapist on your own anyway as they may have some helpful suggestions about how to approach the situation with your wife, sometimes a slightly different approach can be more helpful and a good therapist will probably have come across similar situations with couples in the past.
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