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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Husbands?

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Husbands?

Post  gbook on Sun Aug 01, 2010 2:18 am

My wife has suffered from this condition for our entire marriage, and for some time before we met. A total of more than 10 years. She's never known sex to be anything but painful and always something to be avoided. It took me a long long time to understand this, and I'm still coming to terms with it.

Any husbands or boyfriends out there? What's your story and how did you support your woman during the hard times?

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Re: Husbands?

Post  lisa98 on Sun Aug 01, 2010 8:51 am

I don't know what i would do without my partner's love and support. The most valuable thing he can do for me when I'm having a hard time is to express his affection for and attraction to me- to remind me that I am still sexually attractive, wanted and capable of having a mutually enjoyable (if limited) physical relationship.

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Re: Husbands?

Post  Sarah001 on Sun Aug 01, 2010 11:19 am

gbook if you go to www.vulvodynia.com and have a look in the guestbooks there's a guy on there called Frank who's wife has vulvodynia and I'm sure he'd be willing to talk to you.
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Re: Husbands?

Post  Sebby (Admin) on Sun Aug 01, 2010 3:23 pm


Welcome gbook, its great to hear from the husbands/boyfriends.

If you guys have been together for 10 years now it already sounds like you are very understanding!

Im not currently in a relationship but I know what does help is like Lisa said is for him to still express his attraction and affection. Many cuddles pleaseeee lol

Even if I have found intercourse too painful It doesnt mean im not longing for sexual contact...to be able to do all sorts of other fun things and for my partner to enjoy this as well is fantastic..also I find that the more you do this the more relaxed you are to attempt intercourse.

Also (unlike my previous partner) its great to know your boyfriend/husband genuinally cares about the fact you are in pain. So empathy is greatly appreciated.

You say you are still coming to terms with it and this is soo understandable. So also get sum support for yourself...this forum is also for those who lives are affected indirectly by Vulval Pain..so if you need to get a few things off your chest by all means do so.

Good Luck and Take Care

Sebby
xx
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Re: Husbands?

Post  gbook on Fri Aug 06, 2010 3:46 pm

Thanks for the replies and advice. The toughest part of this is that my wife is no longer in pain. After the vestibulectomy surgery, she's 99% pain free. But... she still avoids any intimacy like the plague. She refuses to seek any kind of therapy or counseling. The only thing she wants from me is for me to not touch her at all. No making out, no non-penetrative sex, no fondling, nada.

It feels like the only outcome she's comfortable with is no intimacy, and that's tough for me. Either I can accept that, not accept it, or preferably find a way to meet half way. I really want to figure out how we can both be comfortable with our sex life together. I'm also more than happy to go to therapy, but it's not too helpful if I go by myself.

Any discussion for treatment/therapy on my side is met with resistance. So I strongly feel her and I need to do something, but I have no idea how to we're going to do it Sad

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Re: Husbands?

Post  Sarah001 on Fri Aug 06, 2010 6:50 pm

That's tricky because obviously with some help she could probably resume sex without too many problems now she's painfree without but at the same time I can understand her fears, I'm sure she thinks sex will send her spiralling back into the hell she was in before. The only thing I can think of is to buy some dilators online and for her to try them very slowly on her own at home to see how penetration feels (lots of lube), the sets have some very small ones and build up in size. I would have thought however the hospital that performed the surgery would have advised this afterwards to get the tissue in optimum condition anyway? If they did'nt it will likely be a necessity to remain painfree anyway.

It might benefit you to go to a therapist on your own anyway as they may have some helpful suggestions about how to approach the situation with your wife, sometimes a slightly different approach can be more helpful and a good therapist will probably have come across similar situations with couples in the past.
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