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Very very long introduction (new and miserable)

Wed May 25, 2016 6:45 am by Haze

Okay... I set out keep this as short as possible but boy, it's hard to condense 4+ years of pain. I've got an appointment tomorrow and am losing my mind. Any advice or ideas would be seriously appreciated if anybody can bear to read through.

Female, 25 years old, living the UK.

Pain begins January 2012, about an hour into intercourse with the SO. A "honey, I'm getting sore, can we take a …

Comments: 11

What on earth is wrong with my hoo-hah?

Tue May 24, 2016 12:16 am by tensetensetense

Hi all
Will try to be brief. 40s female, 15 years married, childless by choice.  Sorry if TMI!

My entire life sex has been tight. Painful. I can't relax. Same with pelvic exams.  Tampons? Hell no.  No sexual trauma in my past and I am sex-positive, comfortable with my body.

My husband is normal size. Very patient.  The reason it has taken a back seat is that we have an otherwise nice …

Comments: 3

ALMOST CURED....

Fri May 20, 2016 2:22 pm by mac2011

Hi,

I've just joined today. I was finally diagnosed with Vulvodynia a few months back, after I'd had it for over a year. A year and a half later I feel I am 99% cured. I just want to say that it can get better because for long time I didn't believe that.

I sympathise with anyone going through this because it's hard to discuss with anyone as it's such a sensitive topic. These forums were the …

Comments: 2

My vulva feels bruised is this Volvodynia? Just started when I stopped Vagifem

Mon May 23, 2016 8:28 pm by emmasmudge

I have an appointment on June 3rd. I was on vagifem suppositories for vaginal dryness. Could not tolerate the vagifem as it was causing me serious itching in my bits. I stayed on it 5 weeks. As soon as I stopped taking it, my vulva became sore. Just on the lower right side (just outside the vaginal opening). It's been sore for 4 weeks. Seems a bit better than to start with. There is …

Comments: 3

Did your doctor tell you that the birth control pill caused it?

Sat Apr 23, 2016 12:29 am by orangelight

Hey Everyone,

I started having pain after taking yaz birth control pill for 5 months, that was 6 years ago. My doctor said Yaz was one of the worst offenders, and that the 'low estrogen' pills like it cause the most vestibulodynia. Apparently the estrogen in bcp is from horse urine and highly potent, and it shuts down your body's production of testosterone (by increasing sex hormone binding …

Comments: 2

Hello from Northern Norway

Wed May 11, 2016 6:06 pm by Antaea

Hi, very glad that I just found this forum. Today my fears became confirmed: The burning, itching everlasting pain in all parts of the vulva and the labia major is indeed generalized vulvodynia.
But let me introduce myself:
I am writing from Northern Norway, only a few hours drive south of the North Cape. Born German, I live there for nearly 30 years, teaching music at the local School for …

Comments: 3

Hello I'm newly diagnosed too!

Sun May 01, 2016 5:54 pm by Annmaria

Hello everyone I am so happy to have found you!
I'm a 56 year old woman recently diagnosed although I suspect I have had this a long time but it has crept up on me.
I first noticed painful sex with a partner who lived away (about 4 years ago) and who I only saw about every month. I thought my problem was 'tightening' because I didn't have intercourse so frequently plus I was newly through the …

Comments: 3

NEW member - I want my life back

Thu Apr 21, 2016 8:35 am by LouR

Since before Christmas I have had problems and after antibiotics, OTC pessaries and everything else, last month the burning pain became so unbearable that all I could do was stay in bed.  I have been taking 25mg Amitriptyline now for 2 weeks, which I think has taken away the burning, but I still have constant soreness at the opening of my vagina.  I have an appointment with the Gynae on …

Comments: 5

Q Tip test was not painful /but stil DX with vulvodynia?

Thu Apr 21, 2016 9:51 pm by Castle16

I've been suffering for almost 6 months with burning - started out with frequency/UTI symptoms - so after months of constant burning (always worse with repeated UTI's) I was finally diagnosed a week ago with vulvodynia by they Gyno I went back to who I had initially seen last Dec 2015 - she diagnosed vaginal atrophy at that time - this time the opening to my vagina was very red - thus the …

Comments: 13


Evening Primrose Oil

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Evening Primrose Oil

Post  Grateful on Wed Jul 04, 2012 2:08 am

I have been suffering with vulvar pain for eight years - just assumed it was part of menopause and growing older. I was using Vagifem vaginal hormone supplements and my doctor said everything looked fine but I was still experiencing excruciating pain whenever I had intercourse with a lot of burning and pain afterwards. I also experienced vulvar pain when bathing or using bath tissue. I finally turned to the internet and found the term for what I was actually experiencing. It was wonderful to know I wasn't alone and to read other women's advice. After reading some user's comments, I started using Evening Primrose Oil. I rub the oil from 2 500mg softgels on my vulvar area each evening before bed. The difference has been miraculous! Within one week I could tell a difference and within a month I was having intercourse again without pain. I feel like I have gotten my life and my marriage back. I would encourage every woman to at least try evening primrose oil to see if it will make a difference for them.

Grateful

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something else to try....

Post  blessed on Wed Jul 04, 2012 11:30 pm

thanks for sharing this.. at this point i am trying anything that worked for others.. i have started primrose oil but have been taking i orally. i guess it makes sense to apply it directly. i am going to try this from today. hopefully i have some good results...my marriage could use a bit of good news.. thanks and God bless..

blessed

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Re: Evening Primrose Oil

Post  bluekangeroo on Thu Jul 05, 2012 11:39 am

This is very interesting, thanks for sharing. What is the theory behind eve primrose oil being helpful?

I have found co-incidentally that during my period my pain eases off, and during my period I take eve primrose oil?! Hmmm maybe I shouldn't stop taking it when my period ends?

I had never considered getting the oil out of the pills and rubbing it on topically though. Can you really do that? And if so, how come nobody sells the oil in topical form? Or do they?

I would love to hear how anyone else gets on with this method if you try it.

bluekangeroo

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Primrose Oil

Post  Grateful on Thu Jul 05, 2012 11:24 pm

I have tried to find Evening Primrose in just the oil form not caplets but haven't been able to find it so far. I just pierce a hole in the tablets and squeeze the oil out - it's a little messy, but well worth the effort. I do wish you could find it bottled as just oil.

Grateful

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Essential oils are giving me a chance at an actual sex life

Post  lavrose on Fri Jul 06, 2012 1:29 am

Ok guys. I promised God that if he helped me find a cure for this horrible, life ruining, afflicting, 24/7 misunderstood condition, I would share it with everyone, as I have done TIRELESS research, read every book, scoured the net, and consulted with many doctors. Im 32 years old.
Ive always had a problem with painful sex, and a constant burning vag, but recently I was diagnosed with something far more horrible. Interstitial Cystitus.
Painful Bladder syndrome. Many women with Vulvodynia, many times have interstitial cystitus aswell, and I do frequent UTI's and I control them with a daily probiotic, but this particular bladder infection would not go away. Guys, this condition has literally ruined lives. Women hav e to go on disability for it. Imagine a voracious, raging UTI that never goes away. ever. and there is no cure. Its one thing not to be able to have sex, or sit for too long, or wear anything tight. But to be aware of constant, swollen, urethral frequency and burning, having to go to the bathroom every five minutes, cant sleep thru the night, the pain is compared to Cancer. People have to go on methadone, and antidepressants over it. Anywho, After I wept and begged on my knees for God to cure me, and help me, and even called a prayer line (LOL!!) and cried on my moms shoulder, (she prayed with me for a cure also) I made an appointment with a Urologist in Cleveland, Ohio at the Cleveland clinic. The best in the country. I got diagnosed with Ureaplasma, and Im currently on a strong 30 day course of antibiotics, (augmentin, zithromax, doxicycline) then I will be on long term antibiotics for the duration, until I test negative, which could take over a year.
Many people dont know too much about Ureaplasma, so please, please google it, and try to find a doctor that will hear you ,and test you. There are links to this with V too.
The test is expensive, and many doctors havnt even heard of it, so you have to shop around. because Ureaplasma is linked to IC, (urethritis) it is also linked to infertilty, miscarriage, and premature birth. Maybe shop around for fertility doctors, say your trying to get pregnant, and your concerned about Ureaplasma. Its worth it guys, I feel 100% better now that I am taking the proper treatment. This little bacteria is prolly the the one responsible for a lifetime of pain, and ruined relationships.
The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm Smile), but currently single again Sad(..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.Theyve been working out great for me, but it has been such a long road. Ive read about many women just giving up, but dont please.
Wise women of antiquity have known about essential oils treating women's problems and vaginal infections for many centuries now. I admit, I was scared too and hesitant about putting strange smelly substances up there, but it is so worth it. Some days, I feel almost normal down there. Like when I was young. Also, change of diet, (more fiber, vegetables, green smothies, teas, wheatgrass shots) have made it possible to live a normal life, and be a healthy person again, and maybe a chance at a fulfilling relationship. Also, having constant vaginal infections CAN impact fertility. and I am hoping to get pregnant again. God luck and God Bless. God knows how much I have suffered and I prayed day and night for a cure. To be healed, and cured is the greatest blessing of all, the greatest blessing God can give you. And this is when he makes his presence known. When God heals you, when he has answered your prayer.

lavrose

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period

Post  lavrose on Fri Jul 06, 2012 1:35 am

and yes, my vaginal pain and symptoms do go away on my period, and sex feels alot better too. Weird. Ive also read about women being able to control their yeast, and bladder symptoms with coconut oil. Typically 3 to 6 TBLSP a day, everyday. I do eat coconut oil, but not that much!! LoL, I saw it made my skin glow, and look great, and I felt better, but it didnt do alot for my V. so....plus it makes your hair oily Sad

lavrose

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Mucho Love

Post  lavrose on Fri Jul 06, 2012 1:38 am

anyway, much Love guys, Its so hard feeling like your the only person in the world with a Cur-SED Vagina!!! Its rough. And guys think your frigid or something. So not true, but whatev. Theres a reason for everything, and I count my blessings everyday. Love you guys Smile flower I love you

lavrose

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Re: Evening Primrose Oil

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