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» Vulvodynia pain and discomfort in remission
Fri Feb 12, 2016 8:07 am by PainBlogger

» Flare up from hell!
Wed Feb 10, 2016 5:23 am by WaahwaahUK

» Pain after Vestibulectomy - Solved ?
Tue Feb 09, 2016 1:09 pm by amyhopexoxo

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Feb 03, 2016 5:54 am by sarisbaris

» My story so far!
Wed Feb 03, 2016 5:19 am by meelie

» MUST READ- ALL MEMBERS
Wed Feb 03, 2016 2:22 am by meelie

» Botox and acupuncture for unprovoked burning pain INSIDE the vagina?
Tue Feb 02, 2016 8:03 am by tinkerbelle2

» Hello again! It's been ages
Tue Feb 02, 2016 7:57 am by tinkerbelle2

» New member - did your problems start with a UTI
Tue Feb 02, 2016 7:54 am by tinkerbelle2

Pain after Vestibulectomy - Solved ?

Tue Feb 09, 2016 6:19 am by jen007

Hi Ladies,

For those of you who haven't seen my more recent posts, you can type in "vestibulectomy" in the search bar to see my most recent posts on my recent new pain.

Luckily enough, I got an opportunity to be seen by my surgeon, Dr. Andrew Goldstein, this past Saturday. He examined me quite a bit before finding what he felt was the source of my newly discovered pain. He found a …

Comments: 3

Hello again! It's been ages

Wed Apr 22, 2015 10:28 am by naomi

Apologies for being away so long!! I married and changed my email address and didn't receive any alert messages (Surprise surprise!).

I didn't log on as no alert messages (places head in palms!!!) so would visit the forum from time to time but would find it difficult to deal with the lack of relief or cure. So it was easier to try to ignore and get on with my life (after the last consultant …

Comments: 2

New member - did your problems start with a UTI

Sat Nov 21, 2015 3:21 am by Niknak

Well at last I think I may have an answer to my problems! Things started 5 months ago when I got what I thought was cystitis - quick call to the doc and I got prescribed antibiotics, the burning urine feeling went but I was left with a constant soreness - I was prescribed more antibiotics, then 2 lots of thrush treatment (even though I had no symptoms of thrush) steroid cream then more …

Comments: 8

Post Vestibulectomy Scar Pain

Wed Oct 14, 2015 1:51 pm by jen007

Hi Ladies!

Sorry I have neglected the forum for a while...things had been going pretty well since my surgery, until recently.

I've been experiencing pain on my scar from my vestibulectomy - mainly where the hymenectomy occurred. At first, I had what I believed to be a average yeast infection. I called up the doctor and got the usual, Diflucan. All seemed when after a couple of days accept for …

Comments: 4

20 years old - just need advice or someone to talk to.

Thu Nov 19, 2015 7:04 am by AvaElizabeth

Hi everyone I'm new to this, I was searching on Google about this stuff because I just want someone to talk to, there's nobody that understands what I'm going through.
I've been with my boyfriend for 2.5 years and before this August I had maybe 2 or 3 flare ups that only last maybe a week so I thought it was dry down there or something. I got diagnosed in August because I was having constant …

Comments: 10

Anyone Completely Cured?

Sun Nov 29, 2015 6:55 am by senozs1

Hello everyone!

I've been struggling with provoked localized vulvodynia for some time. I feel like I can't take it anyome, and what I wanted to know is if there's anyone out there who's completely cured? Thank you, and I hope all of us get better

Comments: 2

I'm terrified.

Sun Nov 22, 2015 11:10 pm by aaj12345

I'm 21. 99% sure I have vulvodynia. Have been tested for STD's I am clean, have been treated for a yeast infection and BV yet for three+ weeks I have been experienced an unbearable pins and needles sensation that is sometimes so intense it feels like my skin is burning, then sometimes it just throbs in pain. All around my vulva, the "pain" changes areas. I'm so scared. I cannot live …

Comments: 5

Laser Hair Removal questions

Sat Dec 12, 2015 5:33 am by senozs1

Hello everyone. I have some questions regarding laser hair removal. When my symptoms started I had already went to 3 sessions and had no problem. But during the last time, I remember my vagina burning a lot and I told her to stop doing whatever she was doing. But later I completely forgot about it. After my symptoms got worse, I started to wonder if laser hair removal could have caused this? …

Comments: 2

I'm new here, I'm so scared :( looking for girls who are new in this

Wed Dec 02, 2015 6:28 pm by Ewa

Hi everyone, I'm from Poland, I'm 28 and I think I have vulvodynia. It all started with a bacterial infection. There is no infections anymore and I'm still suffering, painfull bladder and painfull vulva, it lasts already 8 months. Hard to get any support in Poland, hard to get to a good doctor... I am so so scared, that I will suffer for the rest of my life, that I will end up alone, no man, no …

Comments: 11


Evening Primrose Oil

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Evening Primrose Oil

Post  Grateful on Wed Jul 04, 2012 1:08 pm

I have been suffering with vulvar pain for eight years - just assumed it was part of menopause and growing older. I was using Vagifem vaginal hormone supplements and my doctor said everything looked fine but I was still experiencing excruciating pain whenever I had intercourse with a lot of burning and pain afterwards. I also experienced vulvar pain when bathing or using bath tissue. I finally turned to the internet and found the term for what I was actually experiencing. It was wonderful to know I wasn't alone and to read other women's advice. After reading some user's comments, I started using Evening Primrose Oil. I rub the oil from 2 500mg softgels on my vulvar area each evening before bed. The difference has been miraculous! Within one week I could tell a difference and within a month I was having intercourse again without pain. I feel like I have gotten my life and my marriage back. I would encourage every woman to at least try evening primrose oil to see if it will make a difference for them.

Grateful

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something else to try....

Post  blessed on Thu Jul 05, 2012 10:30 am

thanks for sharing this.. at this point i am trying anything that worked for others.. i have started primrose oil but have been taking i orally. i guess it makes sense to apply it directly. i am going to try this from today. hopefully i have some good results...my marriage could use a bit of good news.. thanks and God bless..

blessed

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Re: Evening Primrose Oil

Post  bluekangeroo on Thu Jul 05, 2012 10:39 pm

This is very interesting, thanks for sharing. What is the theory behind eve primrose oil being helpful?

I have found co-incidentally that during my period my pain eases off, and during my period I take eve primrose oil?! Hmmm maybe I shouldn't stop taking it when my period ends?

I had never considered getting the oil out of the pills and rubbing it on topically though. Can you really do that? And if so, how come nobody sells the oil in topical form? Or do they?

I would love to hear how anyone else gets on with this method if you try it.

bluekangeroo

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Primrose Oil

Post  Grateful on Fri Jul 06, 2012 10:24 am

I have tried to find Evening Primrose in just the oil form not caplets but haven't been able to find it so far. I just pierce a hole in the tablets and squeeze the oil out - it's a little messy, but well worth the effort. I do wish you could find it bottled as just oil.

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Essential oils are giving me a chance at an actual sex life

Post  lavrose on Fri Jul 06, 2012 12:29 pm

Ok guys. I promised God that if he helped me find a cure for this horrible, life ruining, afflicting, 24/7 misunderstood condition, I would share it with everyone, as I have done TIRELESS research, read every book, scoured the net, and consulted with many doctors. Im 32 years old.
Ive always had a problem with painful sex, and a constant burning vag, but recently I was diagnosed with something far more horrible. Interstitial Cystitus.
Painful Bladder syndrome. Many women with Vulvodynia, many times have interstitial cystitus aswell, and I do frequent UTI's and I control them with a daily probiotic, but this particular bladder infection would not go away. Guys, this condition has literally ruined lives. Women hav e to go on disability for it. Imagine a voracious, raging UTI that never goes away. ever. and there is no cure. Its one thing not to be able to have sex, or sit for too long, or wear anything tight. But to be aware of constant, swollen, urethral frequency and burning, having to go to the bathroom every five minutes, cant sleep thru the night, the pain is compared to Cancer. People have to go on methadone, and antidepressants over it. Anywho, After I wept and begged on my knees for God to cure me, and help me, and even called a prayer line (LOL!!) and cried on my moms shoulder, (she prayed with me for a cure also) I made an appointment with a Urologist in Cleveland, Ohio at the Cleveland clinic. The best in the country. I got diagnosed with Ureaplasma, and Im currently on a strong 30 day course of antibiotics, (augmentin, zithromax, doxicycline) then I will be on long term antibiotics for the duration, until I test negative, which could take over a year.
Many people dont know too much about Ureaplasma, so please, please google it, and try to find a doctor that will hear you ,and test you. There are links to this with V too.
The test is expensive, and many doctors havnt even heard of it, so you have to shop around. because Ureaplasma is linked to IC, (urethritis) it is also linked to infertilty, miscarriage, and premature birth. Maybe shop around for fertility doctors, say your trying to get pregnant, and your concerned about Ureaplasma. Its worth it guys, I feel 100% better now that I am taking the proper treatment. This little bacteria is prolly the the one responsible for a lifetime of pain, and ruined relationships.
The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm Smile), but currently single again Sad(..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.Theyve been working out great for me, but it has been such a long road. Ive read about many women just giving up, but dont please.
Wise women of antiquity have known about essential oils treating women's problems and vaginal infections for many centuries now. I admit, I was scared too and hesitant about putting strange smelly substances up there, but it is so worth it. Some days, I feel almost normal down there. Like when I was young. Also, change of diet, (more fiber, vegetables, green smothies, teas, wheatgrass shots) have made it possible to live a normal life, and be a healthy person again, and maybe a chance at a fulfilling relationship. Also, having constant vaginal infections CAN impact fertility. and I am hoping to get pregnant again. God luck and God Bless. God knows how much I have suffered and I prayed day and night for a cure. To be healed, and cured is the greatest blessing of all, the greatest blessing God can give you. And this is when he makes his presence known. When God heals you, when he has answered your prayer.

lavrose

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period

Post  lavrose on Fri Jul 06, 2012 12:35 pm

and yes, my vaginal pain and symptoms do go away on my period, and sex feels alot better too. Weird. Ive also read about women being able to control their yeast, and bladder symptoms with coconut oil. Typically 3 to 6 TBLSP a day, everyday. I do eat coconut oil, but not that much!! LoL, I saw it made my skin glow, and look great, and I felt better, but it didnt do alot for my V. so....plus it makes your hair oily Sad

lavrose

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Mucho Love

Post  lavrose on Fri Jul 06, 2012 12:38 pm

anyway, much Love guys, Its so hard feeling like your the only person in the world with a Cur-SED Vagina!!! Its rough. And guys think your frigid or something. So not true, but whatev. Theres a reason for everything, and I count my blessings everyday. Love you guys Smile flower I love you

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