Log in

I forgot my password

Latest topics
» Newly diagnosed
Today at 10:35 am by drivenbyambition

» Physical Therapy Tips
Today at 5:04 am by stsissy

» Probiotics
Fri Feb 27, 2015 9:01 am by toosore

» I am cured - Lyrica helped!!!
Fri Feb 27, 2015 2:39 am by BpCookie

» relationships/suicidal
Wed Feb 25, 2015 2:01 pm by sadone

» Newly Diagnosed, I have been suffering now for 6 months.
Tue Feb 24, 2015 3:20 pm by meelie

Tue Feb 24, 2015 8:07 am by Nichlas B.

» Amitriptyline Success and new-found love
Tue Feb 24, 2015 1:41 am by Jo44

» AMH Hormone Levels
Mon Feb 23, 2015 8:26 am by Melian

Newly diagnosed

Tue Mar 03, 2015 10:35 am by drivenbyambition

My story started when I noticed a burning sensation last year. My period was late and I wore a maxi pad in fear of my period starting unexpectedly. I got very irritated and eventually ended up with bacterial vaginosis (that I believe happened due to the maxi pads). When I went for my pelvic exam, I was diagnosed with the previous mentioned condition, but was told treating it would not heal my …

Comments: 0

Physical Therapy Tips

Tue Mar 03, 2015 5:04 am by stsissy

I'm trying to get a physical therapist--I'm pretty sure it will help--but my new insurance is proving to be super complicated and I won't be able to make an appointment for at least another month in all likeliness. Is there anyone whose had some success with PT who can give me some tips on what to do for self massage or stretches. I'd like to start working on it ASAP! Thanks!

Comments: 0

Newly Diagnosed, I have been suffering now for 6 months.

Tue Feb 10, 2015 3:21 pm by OBRN2007sms

I am 45 have recently moved to another state; under a lot of stress because we cannot sell our house and are carrying two mortgages. Three days before I started to have problems with this I went to my orthopedic and had a steroid shot in my hip but something went wrong and the injection went into my sciatica nerve and I and a reaction to the lidicaine I ended up in a wheel chair because I was …

Comments: 1


Sun Dec 04, 2011 5:19 am by ria

Hello everyone,

I am now pain free no medication. Please look up Dr Robert Morse on youtube he has helped me with my constant pain he is a Naturopathic doctor in America. I did not go and see him I had a telephone consultation, but please feel free to call the clinic advice is there for free can you beleive it Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy

If you need any advice please contact me I …

Comments: 82

stop drinking tea and coffee! I cured myself!

Sun Feb 22, 2015 9:21 am by Milla2015a

I would like to tell how I cured myself from this awful condition. Three years ago I had this condition for about 8 months! I suffered a lot! Nothing helped, when they prescribed antidepressants, I fell asleep immediately after the first tablet for 8 hours (daytime), so I never took these tablets any more. One professor looked at the creams that were prescribed and said to me that they make more …

Comments: 1

Newly diagnosed, seriously down right now

Tue Feb 10, 2015 1:49 pm by ndal-trea

Warning: I am going to whine a lot here.
I was diagnosed today with vulvodynia. 45 year old woman with no other health problems. I am living in a new city and went to an MD I was referred to by friends who loved him. He was very nice, but he was so matter of fact about it during the exam "I see nothing there. Does it hurt when I push here? How about there? You have vulvodynia" and then …

Comments: 9

miserable for years

Fri Feb 20, 2015 5:00 am by cdrocab

I've ridden and shown horses for years and for the last 18 years carried Lidocaine cream in my saddle bags They say if you suffer from Vulvodynia stop riding horses and bikes. I no longer ride motorcycles but still try to bicycle and if armed, am able to ride the trails on my horse for about 2 hours. I had to find a home for my ungaited horse since the bouncing made it worse. No jeans allowed so …

Comments: 1

honestly no idea what's wrong with me =(

Thu Feb 12, 2015 6:00 am by tiramisu

My butt has been moist and in some pain for maybe a week and a half now. Boyfriend has hemmoroids right now so we figured maybe I did too somehow. But then last Friday my vagina started hurting and has been extremely sore. One day it did hurt to urinate, but not much on the other days. I've been on my period since it started, but I can tell it's also more moist down there than normal. It is …

Comments: 4

scared to take Pregabalin/lyrica

Tue Feb 10, 2015 9:44 pm by Jo44


Last Friday I was diagnosed by my gynocologist with Vulva Vestibulitus. He's given me 150mg of Pregabalin/lyrica to take, once a day plus Dermovate cream to apply twice a day!
I'm scared to try the meds & would like to hear from anyone whose had success with it please?

Last year I came off Mirtazapine which is been taking for anxiety. It took me from Feb -Oct to wean off it & was …

Comments: 3

Evening Primrose Oil

View previous topic View next topic Go down

Evening Primrose Oil

Post  Grateful on Wed Jul 04, 2012 1:08 pm

I have been suffering with vulvar pain for eight years - just assumed it was part of menopause and growing older. I was using Vagifem vaginal hormone supplements and my doctor said everything looked fine but I was still experiencing excruciating pain whenever I had intercourse with a lot of burning and pain afterwards. I also experienced vulvar pain when bathing or using bath tissue. I finally turned to the internet and found the term for what I was actually experiencing. It was wonderful to know I wasn't alone and to read other women's advice. After reading some user's comments, I started using Evening Primrose Oil. I rub the oil from 2 500mg softgels on my vulvar area each evening before bed. The difference has been miraculous! Within one week I could tell a difference and within a month I was having intercourse again without pain. I feel like I have gotten my life and my marriage back. I would encourage every woman to at least try evening primrose oil to see if it will make a difference for them.


Posts: 2
Join date: 2012-07-04

View user profile

Back to top Go down

something else to try....

Post  blessed on Thu Jul 05, 2012 10:30 am

thanks for sharing this.. at this point i am trying anything that worked for others.. i have started primrose oil but have been taking i orally. i guess it makes sense to apply it directly. i am going to try this from today. hopefully i have some good results...my marriage could use a bit of good news.. thanks and God bless..


Posts: 10
Join date: 2012-03-10

View user profile

Back to top Go down

Re: Evening Primrose Oil

Post  bluekangeroo on Thu Jul 05, 2012 10:39 pm

This is very interesting, thanks for sharing. What is the theory behind eve primrose oil being helpful?

I have found co-incidentally that during my period my pain eases off, and during my period I take eve primrose oil?! Hmmm maybe I shouldn't stop taking it when my period ends?

I had never considered getting the oil out of the pills and rubbing it on topically though. Can you really do that? And if so, how come nobody sells the oil in topical form? Or do they?

I would love to hear how anyone else gets on with this method if you try it.


Posts: 44
Join date: 2012-05-18

View user profile

Back to top Go down

Primrose Oil

Post  Grateful on Fri Jul 06, 2012 10:24 am

I have tried to find Evening Primrose in just the oil form not caplets but haven't been able to find it so far. I just pierce a hole in the tablets and squeeze the oil out - it's a little messy, but well worth the effort. I do wish you could find it bottled as just oil.


Posts: 2
Join date: 2012-07-04

View user profile

Back to top Go down

Essential oils are giving me a chance at an actual sex life

Post  lavrose on Fri Jul 06, 2012 12:29 pm

Ok guys. I promised God that if he helped me find a cure for this horrible, life ruining, afflicting, 24/7 misunderstood condition, I would share it with everyone, as I have done TIRELESS research, read every book, scoured the net, and consulted with many doctors. Im 32 years old.
Ive always had a problem with painful sex, and a constant burning vag, but recently I was diagnosed with something far more horrible. Interstitial Cystitus.
Painful Bladder syndrome. Many women with Vulvodynia, many times have interstitial cystitus aswell, and I do frequent UTI's and I control them with a daily probiotic, but this particular bladder infection would not go away. Guys, this condition has literally ruined lives. Women hav e to go on disability for it. Imagine a voracious, raging UTI that never goes away. ever. and there is no cure. Its one thing not to be able to have sex, or sit for too long, or wear anything tight. But to be aware of constant, swollen, urethral frequency and burning, having to go to the bathroom every five minutes, cant sleep thru the night, the pain is compared to Cancer. People have to go on methadone, and antidepressants over it. Anywho, After I wept and begged on my knees for God to cure me, and help me, and even called a prayer line (LOL!!) and cried on my moms shoulder, (she prayed with me for a cure also) I made an appointment with a Urologist in Cleveland, Ohio at the Cleveland clinic. The best in the country. I got diagnosed with Ureaplasma, and Im currently on a strong 30 day course of antibiotics, (augmentin, zithromax, doxicycline) then I will be on long term antibiotics for the duration, until I test negative, which could take over a year.
Many people dont know too much about Ureaplasma, so please, please google it, and try to find a doctor that will hear you ,and test you. There are links to this with V too.
The test is expensive, and many doctors havnt even heard of it, so you have to shop around. because Ureaplasma is linked to IC, (urethritis) it is also linked to infertilty, miscarriage, and premature birth. Maybe shop around for fertility doctors, say your trying to get pregnant, and your concerned about Ureaplasma. Its worth it guys, I feel 100% better now that I am taking the proper treatment. This little bacteria is prolly the the one responsible for a lifetime of pain, and ruined relationships.
The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm Smile), but currently single again Sad(..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.Theyve been working out great for me, but it has been such a long road. Ive read about many women just giving up, but dont please.
Wise women of antiquity have known about essential oils treating women's problems and vaginal infections for many centuries now. I admit, I was scared too and hesitant about putting strange smelly substances up there, but it is so worth it. Some days, I feel almost normal down there. Like when I was young. Also, change of diet, (more fiber, vegetables, green smothies, teas, wheatgrass shots) have made it possible to live a normal life, and be a healthy person again, and maybe a chance at a fulfilling relationship. Also, having constant vaginal infections CAN impact fertility. and I am hoping to get pregnant again. God luck and God Bless. God knows how much I have suffered and I prayed day and night for a cure. To be healed, and cured is the greatest blessing of all, the greatest blessing God can give you. And this is when he makes his presence known. When God heals you, when he has answered your prayer.


Posts: 146
Join date: 2012-04-29

View user profile

Back to top Go down


Post  lavrose on Fri Jul 06, 2012 12:35 pm

and yes, my vaginal pain and symptoms do go away on my period, and sex feels alot better too. Weird. Ive also read about women being able to control their yeast, and bladder symptoms with coconut oil. Typically 3 to 6 TBLSP a day, everyday. I do eat coconut oil, but not that much!! LoL, I saw it made my skin glow, and look great, and I felt better, but it didnt do alot for my V. so....plus it makes your hair oily Sad


Posts: 146
Join date: 2012-04-29

View user profile

Back to top Go down

Mucho Love

Post  lavrose on Fri Jul 06, 2012 12:38 pm

anyway, much Love guys, Its so hard feeling like your the only person in the world with a Cur-SED Vagina!!! Its rough. And guys think your frigid or something. So not true, but whatev. Theres a reason for everything, and I count my blessings everyday. Love you guys Smile flower I love you


Posts: 146
Join date: 2012-04-29

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum