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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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New Member Need Advise!

Sun Nov 27, 2016 6:51 am by Julie326

Hi!

I have been suffering with Vulvodynia since 2013 when I was 21. Had previously not had any problems down there other then the occasional yeast infection. It started in 2012 when I was put on Beyaz birth control. After a couple months on bc, I got a kidney/bladder infection that lasted for 5 months. First one in my life! Was placed on Bactrim (didn't work) and Cipro numerous times. My …

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Has anyone tried Reflexology as a treatment

Wed Nov 30, 2016 8:54 pm by Roselilyflower

Hi there everyone, I was diagnosed with vulvodynia about 5 months ago. It all started as an allergic reaction to some thrush cream I used to treat a yeast infection which I got agter a heafty load of antibiotics. I have been tested umteen times for herpes etc and I am all clear which is reassuring but still depressing as Inwas not sure what the hell was going on, then finally I was given an …

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How to deal at work

Sat Oct 29, 2016 12:21 am by fran

Hi everyone,

I am a 29-year old from the UK and have recently been diagnosed with Vulvodynia. I have just spent hours reading through the forum and feel reassured that I am doing the right things to address it. My symptoms have become so bad that I had to get signed off work and I have been at home for nearly 2 weeks now. At the moment, I just can't imagine sitting at a desk all day and being …

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My almost 4 year old was diagnosed today

Mon Aug 01, 2016 11:50 am by HazelsMum

Hello

This morning my daughter was diagnosed with Vulvodynia. She has been suffering pain since she was 18months and it has taken over two years to get referred to a paediatrician who diagnosed her.

Her symptoms have been intense pain, normally at night. Now she is older she can tell us about it and she says she feels like her 'front bottom's is on fire. She is SO SO distressed when happens. …

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Pain all the time

Mon Oct 03, 2016 4:39 pm by Susiejane

I have had vulvodynia for about a year and I have pain when something touches it when I pee and sex is a no go really feeling depressed about it tried some anti depressants and creams no good then had predendial nerve blocks almost 3 weeks ago and has anyone had them could someone please tell me how long they can take to work abit about me I was physically and emotionally abused since I was 7 and …

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Does anyone else have experience with this doctor?

Sat Oct 01, 2016 7:37 pm by Pavloviandoggy

I have been suffering from vestibulodynia for two years, though I have definitely had episodes of vulvar pain throughout my life. I also had a three month episode of vulvar pain four years ago following a severe UTI. My sister also has vulvodynia (though unlike me, she can have pain free sex most of the time). We both have PCOS, which makes me think our problems are due to a lack of estrogen. In …

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Does anyone else have experience with this doctor?

Sat Oct 01, 2016 7:37 pm by Pavloviandoggy

I have been suffering from vestibulodynia for two years, though I have definitely had episodes of vulvar pain throughout my life. I also had a three month episode of vulvar pain four years ago following a severe UTI. My sister also has vulvodynia (though unlike me, she can have pain free sex most of the time). We both have PCOS, which makes me think our problems are due to a lack of estrogen. In …

Comments: 0

Diagnosed and Humiliated

Thu Sep 15, 2016 4:19 pm by Valkywrite

When I was with my boyfriend a few months ago, we decided to eventually try to have sex (both virgins, believe it or not). I'm 25, and it was my first attempt (grew up in a super religious family--I've been gradually moving away from that), so I decided to go to a gynecologist to get a check up and get on birth control.

I've never found tampons comfortable or possible to wear, so I've always …

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Evening Primrose Oil

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Evening Primrose Oil

Post  Grateful on Wed Jul 04, 2012 2:08 am

I have been suffering with vulvar pain for eight years - just assumed it was part of menopause and growing older. I was using Vagifem vaginal hormone supplements and my doctor said everything looked fine but I was still experiencing excruciating pain whenever I had intercourse with a lot of burning and pain afterwards. I also experienced vulvar pain when bathing or using bath tissue. I finally turned to the internet and found the term for what I was actually experiencing. It was wonderful to know I wasn't alone and to read other women's advice. After reading some user's comments, I started using Evening Primrose Oil. I rub the oil from 2 500mg softgels on my vulvar area each evening before bed. The difference has been miraculous! Within one week I could tell a difference and within a month I was having intercourse again without pain. I feel like I have gotten my life and my marriage back. I would encourage every woman to at least try evening primrose oil to see if it will make a difference for them.

Grateful

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something else to try....

Post  blessed on Wed Jul 04, 2012 11:30 pm

thanks for sharing this.. at this point i am trying anything that worked for others.. i have started primrose oil but have been taking i orally. i guess it makes sense to apply it directly. i am going to try this from today. hopefully i have some good results...my marriage could use a bit of good news.. thanks and God bless..

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Re: Evening Primrose Oil

Post  bluekangeroo on Thu Jul 05, 2012 11:39 am

This is very interesting, thanks for sharing. What is the theory behind eve primrose oil being helpful?

I have found co-incidentally that during my period my pain eases off, and during my period I take eve primrose oil?! Hmmm maybe I shouldn't stop taking it when my period ends?

I had never considered getting the oil out of the pills and rubbing it on topically though. Can you really do that? And if so, how come nobody sells the oil in topical form? Or do they?

I would love to hear how anyone else gets on with this method if you try it.

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Primrose Oil

Post  Grateful on Thu Jul 05, 2012 11:24 pm

I have tried to find Evening Primrose in just the oil form not caplets but haven't been able to find it so far. I just pierce a hole in the tablets and squeeze the oil out - it's a little messy, but well worth the effort. I do wish you could find it bottled as just oil.

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Essential oils are giving me a chance at an actual sex life

Post  lavrose on Fri Jul 06, 2012 1:29 am

Ok guys. I promised God that if he helped me find a cure for this horrible, life ruining, afflicting, 24/7 misunderstood condition, I would share it with everyone, as I have done TIRELESS research, read every book, scoured the net, and consulted with many doctors. Im 32 years old.
Ive always had a problem with painful sex, and a constant burning vag, but recently I was diagnosed with something far more horrible. Interstitial Cystitus.
Painful Bladder syndrome. Many women with Vulvodynia, many times have interstitial cystitus aswell, and I do frequent UTI's and I control them with a daily probiotic, but this particular bladder infection would not go away. Guys, this condition has literally ruined lives. Women hav e to go on disability for it. Imagine a voracious, raging UTI that never goes away. ever. and there is no cure. Its one thing not to be able to have sex, or sit for too long, or wear anything tight. But to be aware of constant, swollen, urethral frequency and burning, having to go to the bathroom every five minutes, cant sleep thru the night, the pain is compared to Cancer. People have to go on methadone, and antidepressants over it. Anywho, After I wept and begged on my knees for God to cure me, and help me, and even called a prayer line (LOL!!) and cried on my moms shoulder, (she prayed with me for a cure also) I made an appointment with a Urologist in Cleveland, Ohio at the Cleveland clinic. The best in the country. I got diagnosed with Ureaplasma, and Im currently on a strong 30 day course of antibiotics, (augmentin, zithromax, doxicycline) then I will be on long term antibiotics for the duration, until I test negative, which could take over a year.
Many people dont know too much about Ureaplasma, so please, please google it, and try to find a doctor that will hear you ,and test you. There are links to this with V too.
The test is expensive, and many doctors havnt even heard of it, so you have to shop around. because Ureaplasma is linked to IC, (urethritis) it is also linked to infertilty, miscarriage, and premature birth. Maybe shop around for fertility doctors, say your trying to get pregnant, and your concerned about Ureaplasma. Its worth it guys, I feel 100% better now that I am taking the proper treatment. This little bacteria is prolly the the one responsible for a lifetime of pain, and ruined relationships.
The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm Smile), but currently single again Sad(..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.Theyve been working out great for me, but it has been such a long road. Ive read about many women just giving up, but dont please.
Wise women of antiquity have known about essential oils treating women's problems and vaginal infections for many centuries now. I admit, I was scared too and hesitant about putting strange smelly substances up there, but it is so worth it. Some days, I feel almost normal down there. Like when I was young. Also, change of diet, (more fiber, vegetables, green smothies, teas, wheatgrass shots) have made it possible to live a normal life, and be a healthy person again, and maybe a chance at a fulfilling relationship. Also, having constant vaginal infections CAN impact fertility. and I am hoping to get pregnant again. God luck and God Bless. God knows how much I have suffered and I prayed day and night for a cure. To be healed, and cured is the greatest blessing of all, the greatest blessing God can give you. And this is when he makes his presence known. When God heals you, when he has answered your prayer.

lavrose

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period

Post  lavrose on Fri Jul 06, 2012 1:35 am

and yes, my vaginal pain and symptoms do go away on my period, and sex feels alot better too. Weird. Ive also read about women being able to control their yeast, and bladder symptoms with coconut oil. Typically 3 to 6 TBLSP a day, everyday. I do eat coconut oil, but not that much!! LoL, I saw it made my skin glow, and look great, and I felt better, but it didnt do alot for my V. so....plus it makes your hair oily Sad

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Mucho Love

Post  lavrose on Fri Jul 06, 2012 1:38 am

anyway, much Love guys, Its so hard feeling like your the only person in the world with a Cur-SED Vagina!!! Its rough. And guys think your frigid or something. So not true, but whatev. Theres a reason for everything, and I count my blessings everyday. Love you guys Smile flower I love you

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Re: Evening Primrose Oil

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