Log in

I forgot my password

Latest topics
» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


DUAL DIAGNOSIS?

View previous topic View next topic Go down

DUAL DIAGNOSIS?

Post  Sore on Sat Jul 07, 2012 11:34 am

Hi guys

I've read quite a few posts on this forum to try and get an understanding of other peoples' experiences and to see if they relate to my own. I feel comforted to know I am not alone. However it is clear to me now that our experiences are all so different. My vulva pain began in March 2011 (although I do remember experiencing occassions of pain as an adolescent). I initially ignored the pain for several months, expecting the problem to 'just disapear'. However, it just got worse. I eventually went to the GP thinking they'd know what the problem was and have a straightforward cure. Boy was I wrong! So there began my path to Nowhereville. After seeing various doctors and specialists, I am still suffering from vulva pain most days of the week. I saw a Melbourne gyno at St Vincents who said I had Contact Irritant Dermatitis. When I mentioned Vulvodynia (as I'd done some research before the apt.) he said he didn't believe in that diagnosis and reccommended all the ususal advice off the net, such as white cotton dax, hypoallergic toilet paper, no soap, no hot baths, etc, which I have pretty much followed to the letter for several months to no avail. I also got reffered to the Royal Womens for a second opinion and the Dermo-Gyno said there nothing visably wrong with my vulva and diagnosed Vulvodynia. Although when I saw the specialist physio there she said I did have redness down there. So I just feel confused. I have tried various remedies, including creams, vitamins, cleaning regimes, Endep, ice packs, Ural, etc. but nothing has gotten rid of the pain for good. Sometimes something I try will help with relief, but not always. So basically my burning, stinging pain comes and goes. Somedays it won't be there, but mostly it is to some degree. It could come in the morning, day or night. The biggest trigger is after urinating. But there isn't anything on the net about pain after urinating, only during. Also heat is a problem. I tend to overheat very easily, most because I'm obese and don't exercise (I suffer from depression which is currently under control). I love to be healthy again, so I knew whether my obesity was contributing to my problems. I read somewhere that being of a healthy weight was the single best thing you can do for vulva pain. Housework or electric blanket use also doesn't help with the overheating. Can anyone else relate to my experiences? I'd be greatful to know I'm not alone.

Nicole
avatar
Sore

Posts : 3
Join date : 2012-07-07
Location : Melbourne, Australia

View user profile

Back to top Go down

Re: DUAL DIAGNOSIS?

Post  Sebby (Admin) on Sat Jul 07, 2012 11:05 pm


Welcome to the forum

I hope you find our community supportive and helpful.

Are you on or have you tried any medication such as anticonvulsants/antidepressants specifically for the pain?


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 749
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: DUAL DIAGNOSIS?

Post  Sore on Sun Jul 08, 2012 7:09 am

Hi and thanks for the reply Sebby. Yes I'm currently on 70mg Enep (Amitriptyline), which I was told was the max dose. However, it has done nothing for me so am thinking of stopping, but will be discussing with GP this week hopefully. I've been on this medication for over 3 months and figure it would have done its job by now.

Nicole
avatar
Sore

Posts : 3
Join date : 2012-07-07
Location : Melbourne, Australia

View user profile

Back to top Go down

Re: DUAL DIAGNOSIS?

Post  amtali on Mon Jul 09, 2012 1:13 am

70 mg may be the max dose for depression, but my doctor said the max dose is 150. That's what I went up to. I noticed a slight difference with unprovoked pain, but my provoked pain during intercourse stayed. It's definitely worth looking into though. Everyone is different.

Let me just say, I am so glad that you went and got a 2nd opinion after that ass of a doctor. Doesn't believe? What does he know?

Good Luck!

amtali

Posts : 19
Join date : 2012-05-29

View user profile

Back to top Go down

Re: DUAL DIAGNOSIS?

Post  Sore on Mon Jul 09, 2012 6:03 am

Thanks for taking the time to reply Amtali.

The prescribing specalist did say 70mg for vulva pain was the max for this medication, although I know as you have mentioned that some doctors prescribe higher doses of medications depending on the needs of the individual they are treating. I believe she also mentioned there were other medications I could try if Endep didn't work, but my next apt. is months away due to the clinic being so busy. So I guess I'll just wait until then, as I just don't feel this is the drug for me, but I'll discuss it with her when I see her. I've made a GP apt. in the mean time about what to do in the mean time.

By the way, the gyno I mentioned in my first post was a lovely man but I just think he was 'old school', as in he was from an older generation and not into newer diagnosis such as Vulvodynia.

Take care

avatar
Sore

Posts : 3
Join date : 2012-07-07
Location : Melbourne, Australia

View user profile

Back to top Go down

Re: DUAL DIAGNOSIS?

Post  Sebby (Admin) on Mon Jul 09, 2012 7:46 am


I am already on Sertraline for depression and anxiety so cannot go on ami. I am on Lyrica (anticonvulsant) 400mg.

I have also found relief with the unprovoked but yes provoked pain is still there...think it always will be but I manage it as I have always had to do.

Deff discuss pain killing options with your doctor...

Good luck and don't give up


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 749
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: DUAL DIAGNOSIS?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum