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» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


DUAL DIAGNOSIS?

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DUAL DIAGNOSIS?

Post  Sore on Sat Jul 07, 2012 11:34 am

Hi guys

I've read quite a few posts on this forum to try and get an understanding of other peoples' experiences and to see if they relate to my own. I feel comforted to know I am not alone. However it is clear to me now that our experiences are all so different. My vulva pain began in March 2011 (although I do remember experiencing occassions of pain as an adolescent). I initially ignored the pain for several months, expecting the problem to 'just disapear'. However, it just got worse. I eventually went to the GP thinking they'd know what the problem was and have a straightforward cure. Boy was I wrong! So there began my path to Nowhereville. After seeing various doctors and specialists, I am still suffering from vulva pain most days of the week. I saw a Melbourne gyno at St Vincents who said I had Contact Irritant Dermatitis. When I mentioned Vulvodynia (as I'd done some research before the apt.) he said he didn't believe in that diagnosis and reccommended all the ususal advice off the net, such as white cotton dax, hypoallergic toilet paper, no soap, no hot baths, etc, which I have pretty much followed to the letter for several months to no avail. I also got reffered to the Royal Womens for a second opinion and the Dermo-Gyno said there nothing visably wrong with my vulva and diagnosed Vulvodynia. Although when I saw the specialist physio there she said I did have redness down there. So I just feel confused. I have tried various remedies, including creams, vitamins, cleaning regimes, Endep, ice packs, Ural, etc. but nothing has gotten rid of the pain for good. Sometimes something I try will help with relief, but not always. So basically my burning, stinging pain comes and goes. Somedays it won't be there, but mostly it is to some degree. It could come in the morning, day or night. The biggest trigger is after urinating. But there isn't anything on the net about pain after urinating, only during. Also heat is a problem. I tend to overheat very easily, most because I'm obese and don't exercise (I suffer from depression which is currently under control). I love to be healthy again, so I knew whether my obesity was contributing to my problems. I read somewhere that being of a healthy weight was the single best thing you can do for vulva pain. Housework or electric blanket use also doesn't help with the overheating. Can anyone else relate to my experiences? I'd be greatful to know I'm not alone.

Nicole
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Re: DUAL DIAGNOSIS?

Post  Sebby (Admin) on Sat Jul 07, 2012 11:05 pm


Welcome to the forum

I hope you find our community supportive and helpful.

Are you on or have you tried any medication such as anticonvulsants/antidepressants specifically for the pain?


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Re: DUAL DIAGNOSIS?

Post  Sore on Sun Jul 08, 2012 7:09 am

Hi and thanks for the reply Sebby. Yes I'm currently on 70mg Enep (Amitriptyline), which I was told was the max dose. However, it has done nothing for me so am thinking of stopping, but will be discussing with GP this week hopefully. I've been on this medication for over 3 months and figure it would have done its job by now.

Nicole
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Re: DUAL DIAGNOSIS?

Post  amtali on Mon Jul 09, 2012 1:13 am

70 mg may be the max dose for depression, but my doctor said the max dose is 150. That's what I went up to. I noticed a slight difference with unprovoked pain, but my provoked pain during intercourse stayed. It's definitely worth looking into though. Everyone is different.

Let me just say, I am so glad that you went and got a 2nd opinion after that ass of a doctor. Doesn't believe? What does he know?

Good Luck!

amtali

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Re: DUAL DIAGNOSIS?

Post  Sore on Mon Jul 09, 2012 6:03 am

Thanks for taking the time to reply Amtali.

The prescribing specalist did say 70mg for vulva pain was the max for this medication, although I know as you have mentioned that some doctors prescribe higher doses of medications depending on the needs of the individual they are treating. I believe she also mentioned there were other medications I could try if Endep didn't work, but my next apt. is months away due to the clinic being so busy. So I guess I'll just wait until then, as I just don't feel this is the drug for me, but I'll discuss it with her when I see her. I've made a GP apt. in the mean time about what to do in the mean time.

By the way, the gyno I mentioned in my first post was a lovely man but I just think he was 'old school', as in he was from an older generation and not into newer diagnosis such as Vulvodynia.

Take care

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Re: DUAL DIAGNOSIS?

Post  Sebby (Admin) on Mon Jul 09, 2012 7:46 am


I am already on Sertraline for depression and anxiety so cannot go on ami. I am on Lyrica (anticonvulsant) 400mg.

I have also found relief with the unprovoked but yes provoked pain is still there...think it always will be but I manage it as I have always had to do.

Deff discuss pain killing options with your doctor...

Good luck and don't give up


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Re: DUAL DIAGNOSIS?

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