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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Hi,a newbie here who's at the end of her rope :(

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Hi,a newbie here who's at the end of her rope :(

Post  deprived of sanity on Sun Jul 08, 2012 8:44 am

Hi everyone,
I'm not sure if I even have this but this forum seems like a good place to start. I have had this debilitating condition for 1 year that started off as burning everywhere,now its localised to two areas that range from burn to itch to irritation depending on what day it is,but it is always constant.. Ive had numerous STD checks,spent thousands of dollars on different gyno's.dermo's and other specialists and I still don't have a diagnosis. A recent biopsy after 1 year of dealing with this revealed Lichen Simplex Chronicus but thats about all. I have been suicidal with this condition and the pain associated with it.When i get thrush it makes the situation all the worse. I feel like I never want to have sex again,I've lost any desire for for it.My condition is irritated by excersise,friction,hair growing back there,sweat,sex,any contact Sad
I am dying for the day when I can wake up and not feel vulva pain.Just writing these words is making me cry.It's not something you can discuss nor want to with people.
There's even been implication by gp's that it could be psychosomatic.Are you kidding me?? I'm currently taking antidepressants,steroid tablets and using Advantan Fatty ointment morning and night. I'm not seeing much improvement. Does anyone know of any groups in Brisbane that exist? I'm 36 and feel like I'm going crazy with this.
Is there any hope for people like me?

deprived of sanity

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Situation similar

Post  jmcmil on Mon Jul 09, 2012 2:57 am

Hello, Oh my gosh..I can totally relate to what you just wrote. I am 36 and will be 37 next month. I have a constant burning down there and everything can aggravate it too, from hair growing back, exercise, walking long distances, wearing underwear, etc..you name it. I was also diagnosed with Lichen Simplex Chronicus, as well as vulvodynia. I don't know the difference and to tell you the truth, I don't think the doctors do either! It has been very frustrating and debilitating. I have had this for 7 months and give up hope all of the time. Today has been a very low day for me because the burn has been worse today for some reason. I constantly don't know how to plan my day because of my pain/burning. I hate wearing clothes. I am on a low dose of Amitryptaline, however when I increased it to 75 mg, it didn't really help so I lowered the dose back down. I like you have spent numerous of dollars on doctors, tests, products, prescriptions, you name it to still be miserable and suffering. I read where you are using Advantan Fatty ointment. What is that? Please don't feel alone and feel free to reach out to me anytime. I'm glad to find someone I can relate to, however pray that we find the relief that we deserve!

Take Care,


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there's always hope

Post  toosore on Thu Jul 12, 2012 11:46 pm

You are certainly not alone - and your problem is not in your head! I can relate to what you are going through - I have the same troubles - bothered by my own pubic hair touching me! And don't even mention peeing and wiping - ouch! I've had this for years and found a few things that help. Amy Stein's book Healing Pelvic Pain is very good - well worth getting. Narcotic pain killers help me, but I limit their use to extreme flares when I feel like death is preferable. I figure then that it's okay to take one pill, rather than the whole bottle! LOL! I use hydromorphone, and I am very sensitive to meds, so the lowest dose of 2 mg is enough to help. I take it with some tylenol and coffee, which helps to increase the pain killing effect and stop the "high" feeling. I was told by the vulvar specialist that I should treat the pain like any other pain condition, with pain medications, such as ibuprofen or tylenol. I find those OTC products too weak now, so I use stonger prescription meds as well. I have found that any kind of cream usually just burns more.

When this condition gets bad, it is life altering. But it doesn't need to be life ending. You need better pain management from your doctor. And do not doubt yourself - it is not a psychological illness - it's psychologically distressing, but not caused by any sort of mental problems. Studies have confirmed this. Hang in there, and keep seeing the doc until you get some relief. Maybe a referral to a pain specialist, if your doc doesn't want to give you anything stronger. Good luck. Hope you find some help soon.


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Post  grassy on Sat Jul 21, 2012 7:53 pm

At one point i was told i had lichen planus. So after googling that, i was totally shocked to read that a couple of blood pressure medicines i was on were known to cause it. One being HCTZ. google your medicines, google the lichen simplex along with any medicines you may be on. It may be a long shot, but what the heck. worth a try. Now a days you never know. cindy


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Re: Hi,a newbie here who's at the end of her rope :(

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