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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Never had un-painful sex

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Never had un-painful sex

Post  cba321 on Sat Jul 14, 2012 7:06 am

I guess I first suspected something was wrong when I was around 15 and tried to use a tampon...there was absolutely no way it was going in, and to this day I don't wear tampons.

My first experience with sex was when I was 19. It was very unpleasant and his penis maybe went in 2 cm. After a while I could finally let him come into me completely but was still unpleasant to say the least, awful actually, most of the time I would have to stop and a lot of the time I couldn't cope with the pain and would bring me to tears. It felt like something was tearing and ripping the skin. I went to the GP, to which she told me I was anxious about sex and that was causing me to tense up and cause the pain. I didn't really agree with this but what else could I say, I was inexperienced. I continued to have painful sex for at least a year, then I went back to the doctor who then sent me to a gyno. The gyno was so irrelevant, his final conclusions after seeing me for approximately 20 minutes over two session was that I had an anxiety disorder and that I would have trouble conceiving children in the future??? I nearly collapsed when I left the office. Luckily for me my partner was understanding and helped me somewhat with the condition until we broke up, mostly for other reasons than vulvadynia, but it didn't help, but would have happened anyway. During this time I tried Endep (antidepressant), low oxalate diet, antibiotics and huge amounts of anti fungal tablets - it did nothing at all

I then started seeing Marek Jantos from a google search. I did the biofeedback for a few months I think, it did help to minimise my emotional reaction to the pain and let me relax somewhat despite the pain, but I could not maintain the relaxed muscle. I stopped seeing him due to how expensive it was and limited changes and plateau of change

I then went to another GP who sent me to a gyno in Burwood NSW Australia, Dr. Ann Prys Davies, who was amazing and suggested I try Botox, being at university, poor and single I ended up not going down that pathway at the time. No one else knew of my diagnosis and my family being very religious was also not somewhere I could turn...therefore I blocked it all out, I "forgot" about vulvadynia, relationships and sex for about three years....I don't think I could bear to think about any of it, so I pretended it didn't exist.

I started seeing a guy late last year (2011) and realised that I just could not cope with telling him, things faded between us and he disappeared. It was the awakening I needed I guess, I made an appointment to see Dr. Ann Prys Davies again, I cried the entire appointment, I felt so sorry for her, she was on the receiving end of 3 years of pent up anguish. She suggested I see Sherin Jarvis a physiotherapist at the women health and research institute. An appointment that I think may change my life. She was amazing and knowledgeable. I have always had digestive issues and for the first time someone finally knew about the link. I had suggested it to a dr as I believed the pain was caused by a tight muscle that goes between both the bowel and vagina opening, he laughed at me...I was right though Smile I have meet with Professor Thierry Vancaillie who will be doing Botox treatment. I cried in front of both of them as well...they were very understanding. I also saw the psychologist there for three sessions, but it wasn't for me and I don't think it would have helped me with anticipatory pain, and is something I could practice myself as I have already done sessions with Marek Jantos about relaxing despite the pain as it does decrease the pain somewhat.

At the moment I am 2 weeks away from getting a botox treatment...I am scared but I am happy that I have been able to face my fears and try something even though it may not work or work enough...I have seen the thread about Botox and will add how this goes in 2 weeks time...



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Re: Never had un-painful sex

Post  abcdefg on Sun Jan 13, 2013 8:00 am

I have had the "it's all in your head" lecture as well. I've been told it's because I'm too stressed, despite my telling my gyno that I'm a fairly laid-back person. I have never had sex during which I did not tear up from the horrible burning pain. I decided that I was just pathetic and kept trying to have sex in hopes that it would get better. It did not. I was placed on amitriptaline for my migraines, and that has actually helped some of the pain. I am also using the dilator method, which I have hope for. I'm not supposed to have sex until I can use them with no pain. I hope that the botox works for you! I know how stressful the condition can be!!

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Re: Never had un-painful sex

Post  cba321 on Sun Jan 13, 2013 10:46 am

Very sad that a lot of people have the "it's all in your head" lecture.I think it would be more helpful if health professional just said, we don't know what the cause is. Even if it was all in our heads, which it isn't, health professionals should be pointing us towards psychological help! Not just palming us off...very sad indeed no matter how you look at it.

The botox has been helping a lot. I had sex for the first time in while and the pain was significantly diminished, i was blown away. HOWEVER...the botox is still working in my system, and should do for another month. I have been stretching and using dialators and HOPEFULLY even when the botox is gone the muscle will remain stretchec. I have also started with a chiro and had my first session of remedial massage, specifically myofascial massage so see how that goes. In my case it is not just the pelvic floor muscles it is all the muscles involved in stabilising the pelvis that are tight

All the best with your journey!! Smile

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Re: Never had un-painful sex

Post  Alana3 on Mon Jan 14, 2013 6:25 pm

Hey,



Does the botox hurt when they do it? I am maybe heading in that direction, I had a vestibulectomy, but my muscles are totally ridiculous and they are really spasmed. This is all over my body not just the hooha, but I might be headed in that direction. What's it like?

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Re: Never had un-painful sex

Post  cba321 on Tue Jan 15, 2013 7:30 am

Hi alana,

I went under general anaesthetic, had to apparently to ensure i dont move. It hurt for a day or two but then went away. Took about 5 days to start working. It was very weird for a number of weeks, felt like mypelvis was bouncing around everywhere! But after a while that went away. I had to do daily stretches with a dialator im up to 45 mins every day with the largest dialator. Hope fully that will stretch out the muscle permanently

I should change the name of my post as i had sex a few days ago (been a long while) and it wasnt painful wasnt that pleasurable either but ill take it as a win! First time. There was discomfort but definitely bearable! All thanks to botox! However, see if that lasts after the botox has gone....

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Re: Never had un-painful sex

Post  Alana3 on Wed Jan 16, 2013 5:15 pm

Yeah, I don't think so. They like rape you in your sleep with dilators not cool. Plus the side effects freak me out. I don't want to be knocked out again, as I don't handle the anesthesia well. Do you think its worth it?

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Re: Never had un-painful sex

Post  cba321 on Thu Jan 17, 2013 9:31 am

Yeah definitely not nice going under. My doctor does it under general but i have heard others say that they didnt. It was for me but really does depend on each person

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Re: Never had un-painful sex

Post  Alana3 on Thu Jan 17, 2013 1:58 pm

I just had a vestibulectomy, I do not want to go under again! haha I'm working on strecthing and breathing exercises, and it's been a little better everyday, so hopefully I won't have to do botox, I just don't want poison in my vagina lol

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Re: Never had un-painful sex

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