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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Anyone tried nortriptyline?

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Anyone tried nortriptyline?

Post  TheresaA. on Wed Jul 18, 2012 4:23 am

Has anyone tried nortriptyline? My doctor has prescribed it for me, I've been taking it for about 10 days now and don't see much improvement. My doctor says it could take several weeks to notice a difference.
I'm hoping it will provide some relief. I've been dealing with this for about 10 years. In the past it was only a few times a month, but now it is only a few times a month that I DON'T have it.

This is taking a real toll on my self image/self worth. It's put a definite strain on my marriage, my husband was more supportive in the past, but now that this has become more of an everyday thing our sex life is pretty non existent. I feel terrible about not having sex, but I feel way worse having it. I don't see things changing anytime soon as far as sex goes. Sex = pain, and not just during but also for several days after. It's very hard to communicate that to someone who has no idea of what it is like. I'm sure he thinks I am using this as an excuse. He knows i have pain but i am not vocal about my pain, I just live with it. I don't want to become one of those people that only talks about my pain/dr visits/treatments so he is not aware of how much pain I live with. Sad.

We went to a movie recently and it was a struggle to sit for that length of time. I need to get up every 15 minutes or so or the burning/pain becomes unbearable. I am unable to wear pants, and have only worn skirts or dresses for the last several years. I so wish I could wear pants!

Hoping for some relief soon.
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TheresaA.

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About Nortriptolene

Post  Mandadity on Tue Jul 24, 2012 7:53 am

It did me wonders but put me to sleep within 20min. At the time I HAD to work so i had to just deal with being not really there at work, but if you can take a hard core nap afterwards its a great med. Although at least my body got used to it cuz i was using amnitriptolene before that.

Mandadity

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Age : 27
Location : Tigard, Oregon

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