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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


How did you find this forum?

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Total Votes : 109

How did you find this forum?

Post  Sebby (Admin) on Sun Aug 01, 2010 4:36 pm

Please state which search engine, forum or directory you found this forum on...fanx!


Last edited by Sebby (Admin) on Wed Mar 02, 2011 10:27 pm; edited 1 time in total

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Re: How did you find this forum?

Post  naomi on Sun Aug 01, 2010 6:04 pm

I put 'other womans forum' but im not sure as I saw Sebbys link on the Daily Mail online on the health section. I hope thats right? Shocked
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Re: How did you find this forum?

Post  Sarah001 on Sun Aug 01, 2010 6:10 pm

Google for me Sebby and I see you've got to grips with the scrolling text function!! Laughing
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Re: How did you find this forum?

Post  naomi on Sun Aug 01, 2010 6:13 pm

I know! Im dead impressed with this site Sebby! You should pat yourself on the back!! cheers
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Re: How did you find this forum?

Post  Sebby (Admin) on Sun Aug 01, 2010 7:08 pm


awww fanx guys lol.... I had the scrolling text whizzing by at one point..like far to fast for anyone to read! hahaa

Yes Naomi you got it right, I fink I had posted it in the womens health section?

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Re: How did you find this forum?

Post  key_lime_teddy on Thu Oct 07, 2010 12:32 pm

Google... I just google the word online support groups for vulvodynia... and here I am.. But if you google the opposite way, then you will not find this site..
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Re: How did you find this forum?

Post  Sebby (Admin) on Sun Oct 10, 2010 8:46 am


Thanks and welcome key_lime_teddy

I have tried to put as many link words a I can think of for search engines..I would probably have to pay for anything more specific..

I will take another look though and see If I can make it more specific without paying lol
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Re: How did you find this forum?

Post  Sebby (Admin) on Tue Nov 16, 2010 9:23 pm


Hmmmm it seems the search engine is doing an ok job lol that why I see the Google bot hanging around ere! lol
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Re: How did you find this forum?

Post  jules on Mon Nov 22, 2010 4:36 am

it's been awhile. i remember doing a Google search. i looked up vulvodynia support groups

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Re: How did you find this forum?

Post  Sebby (Admin) on Mon Feb 14, 2011 10:09 pm


Got to grips with the whole bloody meta tags thing Shocked a little confusing lol but am deff getting more hits so its working great on Google Very Happy
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Re: How did you find this forum?

Post  itchyandscratchy on Wed Apr 27, 2011 5:50 pm

Googled "vulvodynia forum".
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Re: How did you find this forum?

Post  Sassymel on Sat May 07, 2011 10:49 am

I was googling looking for anything about vulvadynia and tampon use...and suddenly came accross this as there was a post about tampons hehe!

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Re: How did you find this forum?

Post  riv on Thu Oct 27, 2011 8:04 pm

I searched vulva pain forum uk on google

glad I did! got diagnosed today and very happy to find other people to speak to about it

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Search Engine Reply

Post  Aceladi on Mon Oct 31, 2011 4:47 pm

I belonged to this site years ago and check every once in awhile but couldn't sign in as a member so signed up again... with remembering the website name.

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Finding this website

Post  Aceladi on Sat Nov 05, 2011 4:06 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!


I'm pretty sure I found this forum through Google. It has been about 8 years at least. Not sure if this is the original but seems to be pretty much the same. I had some trouble navigating it at the time but did read much of the content that pertained to my situation... Millie

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found it through google! :)

Post  sadone on Tue Jan 24, 2012 4:03 pm

google

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Where I found you...

Post  Tinabeauxbina on Wed Jan 25, 2012 11:38 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!
I found this forum listed on a Wikipedia article on Vulvodynia and I used Google to get to Wikipedia. Very Happy

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Re: How did you find this forum?

Post  Sabrinalaura on Tue Jun 18, 2013 11:53 am

Through a doctor

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Google

Post  Jenn89 on Mon Aug 19, 2013 1:23 am

I began typing in Vulvodynia support... and vulvodynia support forum came up, and this was at the top of the search results!

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New member

Post  fking on Sun Sep 15, 2013 8:01 am

I found this forum from goggle. I have been suffering from vulvadynia in awful pain until i was diagnoised a few months ago. I wanted to speak to other people who suffer from this.

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Re: How did you find this forum?

Post  lonelyone48 on Wed Dec 04, 2013 3:46 pm

I googled vulva pain.

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Re: How did you find this forum?

Post  mary jane on Wed Dec 04, 2013 7:42 pm

I googled "persistent vulvar pain", although the first result was pudendal neuralgia
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Re: How did you find this forum?

Post  nanmark3 on Tue Mar 25, 2014 12:09 am

Today I googled "Vulvodynia support groups" I like what I see, thank you for all of your hard work!

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Google

Post  sammykramer on Fri Jul 04, 2014 12:45 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!

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Re: How did you find this forum?

Post  mrs.optimistic on Thu May 14, 2015 8:20 pm

Google search!

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Re: How did you find this forum?

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