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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
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» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


How did you find this forum?

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Total Votes : 107

How did you find this forum?

Post  Sebby (Admin) on Sun Aug 01, 2010 4:36 pm

Please state which search engine, forum or directory you found this forum on...fanx!


Last edited by Sebby (Admin) on Wed Mar 02, 2011 10:27 pm; edited 1 time in total

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Sebby
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Re: How did you find this forum?

Post  naomi on Sun Aug 01, 2010 6:04 pm

I put 'other womans forum' but im not sure as I saw Sebbys link on the Daily Mail online on the health section. I hope thats right? Shocked
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Re: How did you find this forum?

Post  Sarah001 on Sun Aug 01, 2010 6:10 pm

Google for me Sebby and I see you've got to grips with the scrolling text function!! Laughing
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Re: How did you find this forum?

Post  naomi on Sun Aug 01, 2010 6:13 pm

I know! Im dead impressed with this site Sebby! You should pat yourself on the back!! cheers
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Re: How did you find this forum?

Post  Sebby (Admin) on Sun Aug 01, 2010 7:08 pm


awww fanx guys lol.... I had the scrolling text whizzing by at one point..like far to fast for anyone to read! hahaa

Yes Naomi you got it right, I fink I had posted it in the womens health section?

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Re: How did you find this forum?

Post  key_lime_teddy on Thu Oct 07, 2010 12:32 pm

Google... I just google the word online support groups for vulvodynia... and here I am.. But if you google the opposite way, then you will not find this site..
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Re: How did you find this forum?

Post  Sebby (Admin) on Sun Oct 10, 2010 8:46 am


Thanks and welcome key_lime_teddy

I have tried to put as many link words a I can think of for search engines..I would probably have to pay for anything more specific..

I will take another look though and see If I can make it more specific without paying lol
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Re: How did you find this forum?

Post  Sebby (Admin) on Tue Nov 16, 2010 9:23 pm


Hmmmm it seems the search engine is doing an ok job lol that why I see the Google bot hanging around ere! lol
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Re: How did you find this forum?

Post  jules on Mon Nov 22, 2010 4:36 am

it's been awhile. i remember doing a Google search. i looked up vulvodynia support groups

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Re: How did you find this forum?

Post  Sebby (Admin) on Mon Feb 14, 2011 10:09 pm


Got to grips with the whole bloody meta tags thing Shocked a little confusing lol but am deff getting more hits so its working great on Google Very Happy
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Re: How did you find this forum?

Post  itchyandscratchy on Wed Apr 27, 2011 5:50 pm

Googled "vulvodynia forum".
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Re: How did you find this forum?

Post  Sassymel on Sat May 07, 2011 10:49 am

I was googling looking for anything about vulvadynia and tampon use...and suddenly came accross this as there was a post about tampons hehe!

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Re: How did you find this forum?

Post  riv on Thu Oct 27, 2011 8:04 pm

I searched vulva pain forum uk on google

glad I did! got diagnosed today and very happy to find other people to speak to about it

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Search Engine Reply

Post  Aceladi on Mon Oct 31, 2011 4:47 pm

I belonged to this site years ago and check every once in awhile but couldn't sign in as a member so signed up again... with remembering the website name.

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Finding this website

Post  Aceladi on Sat Nov 05, 2011 4:06 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!


I'm pretty sure I found this forum through Google. It has been about 8 years at least. Not sure if this is the original but seems to be pretty much the same. I had some trouble navigating it at the time but did read much of the content that pertained to my situation... Millie

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found it through google! :)

Post  sadone on Tue Jan 24, 2012 4:03 pm

google

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Where I found you...

Post  Tinabeauxbina on Wed Jan 25, 2012 11:38 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!
I found this forum listed on a Wikipedia article on Vulvodynia and I used Google to get to Wikipedia. Very Happy

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Re: How did you find this forum?

Post  Sabrinalaura on Tue Jun 18, 2013 11:53 am

Through a doctor

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Google

Post  Jenn89 on Mon Aug 19, 2013 1:23 am

I began typing in Vulvodynia support... and vulvodynia support forum came up, and this was at the top of the search results!

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New member

Post  fking on Sun Sep 15, 2013 8:01 am

I found this forum from goggle. I have been suffering from vulvadynia in awful pain until i was diagnoised a few months ago. I wanted to speak to other people who suffer from this.

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Re: How did you find this forum?

Post  lonelyone48 on Wed Dec 04, 2013 3:46 pm

I googled vulva pain.

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Re: How did you find this forum?

Post  mary jane on Wed Dec 04, 2013 7:42 pm

I googled "persistent vulvar pain", although the first result was pudendal neuralgia
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Re: How did you find this forum?

Post  nanmark3 on Tue Mar 25, 2014 12:09 am

Today I googled "Vulvodynia support groups" I like what I see, thank you for all of your hard work!

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Google

Post  sammykramer on Fri Jul 04, 2014 12:45 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!

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Re: How did you find this forum?

Post  mrs.optimistic on Thu May 14, 2015 8:20 pm

Google search!

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Re: How did you find this forum?

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