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» I'm sorry im rambling
Today at 5:49 am by Jet227

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 0

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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How did you find this forum?

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How did you find this forum?

Post  Sebby (Admin) on Sun Aug 01, 2010 4:36 pm

Please state which search engine, forum or directory you found this forum on...fanx!


Last edited by Sebby (Admin) on Wed Mar 02, 2011 10:27 pm; edited 1 time in total

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Re: How did you find this forum?

Post  naomi on Sun Aug 01, 2010 6:04 pm

I put 'other womans forum' but im not sure as I saw Sebbys link on the Daily Mail online on the health section. I hope thats right? Shocked
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Re: How did you find this forum?

Post  Sarah001 on Sun Aug 01, 2010 6:10 pm

Google for me Sebby and I see you've got to grips with the scrolling text function!! Laughing
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Re: How did you find this forum?

Post  naomi on Sun Aug 01, 2010 6:13 pm

I know! Im dead impressed with this site Sebby! You should pat yourself on the back!! cheers
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Re: How did you find this forum?

Post  Sebby (Admin) on Sun Aug 01, 2010 7:08 pm


awww fanx guys lol.... I had the scrolling text whizzing by at one point..like far to fast for anyone to read! hahaa

Yes Naomi you got it right, I fink I had posted it in the womens health section?

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Re: How did you find this forum?

Post  key_lime_teddy on Thu Oct 07, 2010 12:32 pm

Google... I just google the word online support groups for vulvodynia... and here I am.. But if you google the opposite way, then you will not find this site..
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Re: How did you find this forum?

Post  Sebby (Admin) on Sun Oct 10, 2010 8:46 am


Thanks and welcome key_lime_teddy

I have tried to put as many link words a I can think of for search engines..I would probably have to pay for anything more specific..

I will take another look though and see If I can make it more specific without paying lol
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Re: How did you find this forum?

Post  Sebby (Admin) on Tue Nov 16, 2010 9:23 pm


Hmmmm it seems the search engine is doing an ok job lol that why I see the Google bot hanging around ere! lol
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Re: How did you find this forum?

Post  jules on Mon Nov 22, 2010 4:36 am

it's been awhile. i remember doing a Google search. i looked up vulvodynia support groups

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Re: How did you find this forum?

Post  Sebby (Admin) on Mon Feb 14, 2011 10:09 pm


Got to grips with the whole bloody meta tags thing Shocked a little confusing lol but am deff getting more hits so its working great on Google Very Happy
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Re: How did you find this forum?

Post  itchyandscratchy on Wed Apr 27, 2011 5:50 pm

Googled "vulvodynia forum".
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Re: How did you find this forum?

Post  Sassymel on Sat May 07, 2011 10:49 am

I was googling looking for anything about vulvadynia and tampon use...and suddenly came accross this as there was a post about tampons hehe!

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Re: How did you find this forum?

Post  riv on Thu Oct 27, 2011 8:04 pm

I searched vulva pain forum uk on google

glad I did! got diagnosed today and very happy to find other people to speak to about it

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Search Engine Reply

Post  Aceladi on Mon Oct 31, 2011 4:47 pm

I belonged to this site years ago and check every once in awhile but couldn't sign in as a member so signed up again... with remembering the website name.

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Finding this website

Post  Aceladi on Sat Nov 05, 2011 4:06 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!


I'm pretty sure I found this forum through Google. It has been about 8 years at least. Not sure if this is the original but seems to be pretty much the same. I had some trouble navigating it at the time but did read much of the content that pertained to my situation... Millie

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found it through google! :)

Post  sadone on Tue Jan 24, 2012 4:03 pm

google

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Where I found you...

Post  Tinabeauxbina on Wed Jan 25, 2012 11:38 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!
I found this forum listed on a Wikipedia article on Vulvodynia and I used Google to get to Wikipedia. Very Happy

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Re: How did you find this forum?

Post  Sabrinalaura on Tue Jun 18, 2013 11:53 am

Through a doctor

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Google

Post  Jenn89 on Mon Aug 19, 2013 1:23 am

I began typing in Vulvodynia support... and vulvodynia support forum came up, and this was at the top of the search results!

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New member

Post  fking on Sun Sep 15, 2013 8:01 am

I found this forum from goggle. I have been suffering from vulvadynia in awful pain until i was diagnoised a few months ago. I wanted to speak to other people who suffer from this.

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Re: How did you find this forum?

Post  lonelyone48 on Wed Dec 04, 2013 3:46 pm

I googled vulva pain.

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Re: How did you find this forum?

Post  mary jane on Wed Dec 04, 2013 7:42 pm

I googled "persistent vulvar pain", although the first result was pudendal neuralgia
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Re: How did you find this forum?

Post  nanmark3 on Tue Mar 25, 2014 12:09 am

Today I googled "Vulvodynia support groups" I like what I see, thank you for all of your hard work!

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Google

Post  sammykramer on Fri Jul 04, 2014 12:45 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!

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Re: How did you find this forum?

Post  mrs.optimistic on Thu May 14, 2015 8:20 pm

Google search!

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Re: How did you find this forum?

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