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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


How did you find this forum?

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How did you find this forum?

Post  Sebby (Admin) on Sun Aug 01, 2010 4:36 pm

Please state which search engine, forum or directory you found this forum on...fanx!


Last edited by Sebby (Admin) on Wed Mar 02, 2011 10:27 pm; edited 1 time in total

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Re: How did you find this forum?

Post  naomi on Sun Aug 01, 2010 6:04 pm

I put 'other womans forum' but im not sure as I saw Sebbys link on the Daily Mail online on the health section. I hope thats right? Shocked
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Re: How did you find this forum?

Post  Sarah001 on Sun Aug 01, 2010 6:10 pm

Google for me Sebby and I see you've got to grips with the scrolling text function!! Laughing
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Re: How did you find this forum?

Post  naomi on Sun Aug 01, 2010 6:13 pm

I know! Im dead impressed with this site Sebby! You should pat yourself on the back!! cheers
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Re: How did you find this forum?

Post  Sebby (Admin) on Sun Aug 01, 2010 7:08 pm


awww fanx guys lol.... I had the scrolling text whizzing by at one point..like far to fast for anyone to read! hahaa

Yes Naomi you got it right, I fink I had posted it in the womens health section?

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Re: How did you find this forum?

Post  key_lime_teddy on Thu Oct 07, 2010 12:32 pm

Google... I just google the word online support groups for vulvodynia... and here I am.. But if you google the opposite way, then you will not find this site..
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Re: How did you find this forum?

Post  Sebby (Admin) on Sun Oct 10, 2010 8:46 am


Thanks and welcome key_lime_teddy

I have tried to put as many link words a I can think of for search engines..I would probably have to pay for anything more specific..

I will take another look though and see If I can make it more specific without paying lol
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Re: How did you find this forum?

Post  Sebby (Admin) on Tue Nov 16, 2010 9:23 pm


Hmmmm it seems the search engine is doing an ok job lol that why I see the Google bot hanging around ere! lol
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Re: How did you find this forum?

Post  jules on Mon Nov 22, 2010 4:36 am

it's been awhile. i remember doing a Google search. i looked up vulvodynia support groups

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Re: How did you find this forum?

Post  Sebby (Admin) on Mon Feb 14, 2011 10:09 pm


Got to grips with the whole bloody meta tags thing Shocked a little confusing lol but am deff getting more hits so its working great on Google Very Happy
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Re: How did you find this forum?

Post  itchyandscratchy on Wed Apr 27, 2011 5:50 pm

Googled "vulvodynia forum".
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Re: How did you find this forum?

Post  Sassymel on Sat May 07, 2011 10:49 am

I was googling looking for anything about vulvadynia and tampon use...and suddenly came accross this as there was a post about tampons hehe!

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Re: How did you find this forum?

Post  riv on Thu Oct 27, 2011 8:04 pm

I searched vulva pain forum uk on google

glad I did! got diagnosed today and very happy to find other people to speak to about it

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Search Engine Reply

Post  Aceladi on Mon Oct 31, 2011 4:47 pm

I belonged to this site years ago and check every once in awhile but couldn't sign in as a member so signed up again... with remembering the website name.

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Finding this website

Post  Aceladi on Sat Nov 05, 2011 4:06 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!


I'm pretty sure I found this forum through Google. It has been about 8 years at least. Not sure if this is the original but seems to be pretty much the same. I had some trouble navigating it at the time but did read much of the content that pertained to my situation... Millie

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found it through google! :)

Post  sadone on Tue Jan 24, 2012 4:03 pm

google

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Where I found you...

Post  Tinabeauxbina on Wed Jan 25, 2012 11:38 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!
I found this forum listed on a Wikipedia article on Vulvodynia and I used Google to get to Wikipedia. Very Happy

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Re: How did you find this forum?

Post  Sabrinalaura on Tue Jun 18, 2013 11:53 am

Through a doctor

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Google

Post  Jenn89 on Mon Aug 19, 2013 1:23 am

I began typing in Vulvodynia support... and vulvodynia support forum came up, and this was at the top of the search results!

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New member

Post  fking on Sun Sep 15, 2013 8:01 am

I found this forum from goggle. I have been suffering from vulvadynia in awful pain until i was diagnoised a few months ago. I wanted to speak to other people who suffer from this.

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Re: How did you find this forum?

Post  lonelyone48 on Wed Dec 04, 2013 3:46 pm

I googled vulva pain.

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Re: How did you find this forum?

Post  mary jane on Wed Dec 04, 2013 7:42 pm

I googled "persistent vulvar pain", although the first result was pudendal neuralgia
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Re: How did you find this forum?

Post  nanmark3 on Tue Mar 25, 2014 12:09 am

Today I googled "Vulvodynia support groups" I like what I see, thank you for all of your hard work!

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Google

Post  sammykramer on Fri Jul 04, 2014 12:45 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!

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Re: How did you find this forum?

Post  mrs.optimistic on Thu May 14, 2015 8:20 pm

Google search!

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Re: How did you find this forum?

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