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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

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34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  Rainy Day on Thu Jul 19, 2012 3:41 pm

I am 34 years old. My dad died 7 months ago of short, horrible battle with cancer. After that, my immune system took a crap. A couple months later, I ended up having sex...taking a hot tub bath later in the week with some bath oils...and then I got the worst UTI of my life. After being on antiobiotics for about 5 days, I could tell I was getting some sort of infection. Treated it with OTC Monistat twice in a row, and it wasn't killing it. Then, went on yeast diet and I started to get rid of it. Cheated on my yeast diet, and it came back with a vengeance. So, doctor prescribed me Metro Gel (over the phone--didn't have time to see me)...then prescrived topical steroid over the phone (didn't have time again). Finally 1 1/2 months later he gets me in...and NO evidence of infection. So, here I am now 5 months later and I still have pain. Dr. prescrived 600 mg of Gabapentin. It slowly started working, and by week 6 I was 100% normal. THEN, I get the news that my mom has cancer. I decide to go for a run (with underwear), and immediately afterward I feel the pain come back. As of yesterday, Dr. uppped my dosage to 900 mg...but for some reason I don't think that is going to be the final answer to my problems...but moreso just a 'patch'. My pain doesn't really affect my vagina. It's moreso where the outside of the underwear rub (inner thigh) and down thighs. It's hard to sit because of it. Sex doesn't bother me much. I can't get any doctor to run any tests bsides that first Yeast/Bacteria/STD test. I finally found a homeopathic that i have an appointment with next week. She can take blood, urine, anything I want. I need some recomendations on tests I should start with please! Also, I have started acupuncture and chiro (I was doing that until mom was diagnosed with cancer...adn then I had to stop since she had so many appointments for 3 weeks straight). Also, I am starting a healthy diet again (and taking supplements to boost my immune system (that I read about in the Yeast Infection No More book). I am not taking Yeast Cleanse stuff though. I want to boost immune first.

I had gone to a different naturalpath a couple months ago that hooked me up to some goofy machine that reads your bodies signals from the organs. I guess its something from Europe. It seems sort of quackery. She said my intestines and stomach were sending signals that I have some sort of parasite. I didn't really take her seriously though since I have never seen a machine like that in my life...so I didn't take her herbs.

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natural

Post  stacym918 on Sat Jul 21, 2012 11:12 am

i have had this condition for 5 years. the only thing that helped me was a natural doctor. I did a parasite cleanse, liver cleanse, yeast cleanse, etc. it did help, although not cure my condition.

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raw food

Post  Rainy Day on Sat Jul 21, 2012 2:25 pm

Have you also tried the raw food diet too? Just wondering if the natural doctor had you do that too. I don't know if this has anythign to do with my problem, but I just started measuring the ph of my urine...and its really acidic. I wonder if everyone with V has acidic urine though...

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 3:40 pm

I upped my water intake to 80 ounces a day, and ph balanced my water to at least 7. I bought a juicer, and added green veggies to every meal. I reduced my sugar consumption to one cheat day a week.I never drink coffee tea or soda or alcohol. I started this in jan 2010. It reduced my burning, which was three weeks each month (every day but the week out of my period) by about 80%. I also rotated high doses of natural antifungals.
I sometimes seem to have setbacks. I bought a nutrabullet, so yes now I am having some meals raw. its hard to do completely raw though, because even on a loose candida diet, you are so limited (i can't have vinegar, fermented food, dairy, etc.)
I cheated last night with a veggie pizza, It was my one cheat day of the week.

this has been the only thing that has helped me. I won't touch another pharmaceutical drug. In my opinion doctors do not know what to do with this condition.

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 3:42 pm

oh and I also take senna or some type of bowel cleanse every day. my natural doctor says it is very important to keep the bowels moving a lot so you are ridding of toxins. so before using any type of cleansing product be sure you are pooping 2-3 times a day.

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Agree with your ideas

Post  Rainy Day on Sat Jul 21, 2012 4:07 pm

I think I am thinking along the same lines as you. There has got to be some bacteria/yeast that isn't being seen by doctors since foods/cleanses have such an impact for people. Have you read the thing that Ria did on here...a total juicing cleanse? I tried e-mailing her for more details. I can tell doctors are clueless too. I have seen 2 gynos, 1 derm, and 1 natural doctor idiot. Before doing any tests or listening to me the vulvar pain 'specialist' says its nerve damage. I don't buy that since I find it pretty unlikely I had nerve damage 5 days after that UTI. I asked the gyno to run some tests on me...and she didn't think any 'tests' are necessary. The jerk....

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gees

Post  grassy on Sat Jul 21, 2012 8:01 pm

gees, me too. Could not find a doctor who would run a test! unbelievable. One day I called three, they all said no. Sorry about your parents! thats a hard thing to go thru! thats creating alot of stress on you too. hang in there! cindy

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 10:11 pm

yes, I am going to email ria for more info. I am willing to do a juice cleanse, or raw food diet. my diet has been so limited the past couple years that it really doesn't matter anymore. And btw, I have ph tested my urine, but after I started cleansing etc. It was always lower in the morning, which is normal, but usually hovered around 7. testing urine is actually unreliable because it is so dependent on what you just ate or drank.

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testing

Post  Rainy Day on Sun Jul 22, 2012 1:24 am

Did your natural doctor do allergy testing too on you? Is that how you learned what foods to avoid? Or, was it just trial and error? I did do purely raw for about 1 week back in May I think...and I thought I got worse during that week so I stopped cold turkey on it. Now, I wonder if maybe everyone gets worse at first when cleansing their body. Not sure. Did you get worse before better while going to the natural doctor?

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stress

Post  Rainy Day on Sun Jul 22, 2012 1:27 am

Also, does stress affect your condition? I don't think you can get much more stressed than what I have had to deal with for the past year. And, its not easy trying to focus on being happy while watching another parent get diagnosed with cancer. Although, this time its breast cancer Stage 2, versus De-Differentiated Chondrosarcoma Stage 4 (which is what dad had).

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

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