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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

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34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  Rainy Day on Thu Jul 19, 2012 3:41 pm

I am 34 years old. My dad died 7 months ago of short, horrible battle with cancer. After that, my immune system took a crap. A couple months later, I ended up having sex...taking a hot tub bath later in the week with some bath oils...and then I got the worst UTI of my life. After being on antiobiotics for about 5 days, I could tell I was getting some sort of infection. Treated it with OTC Monistat twice in a row, and it wasn't killing it. Then, went on yeast diet and I started to get rid of it. Cheated on my yeast diet, and it came back with a vengeance. So, doctor prescribed me Metro Gel (over the phone--didn't have time to see me)...then prescrived topical steroid over the phone (didn't have time again). Finally 1 1/2 months later he gets me in...and NO evidence of infection. So, here I am now 5 months later and I still have pain. Dr. prescrived 600 mg of Gabapentin. It slowly started working, and by week 6 I was 100% normal. THEN, I get the news that my mom has cancer. I decide to go for a run (with underwear), and immediately afterward I feel the pain come back. As of yesterday, Dr. uppped my dosage to 900 mg...but for some reason I don't think that is going to be the final answer to my problems...but moreso just a 'patch'. My pain doesn't really affect my vagina. It's moreso where the outside of the underwear rub (inner thigh) and down thighs. It's hard to sit because of it. Sex doesn't bother me much. I can't get any doctor to run any tests bsides that first Yeast/Bacteria/STD test. I finally found a homeopathic that i have an appointment with next week. She can take blood, urine, anything I want. I need some recomendations on tests I should start with please! Also, I have started acupuncture and chiro (I was doing that until mom was diagnosed with cancer...adn then I had to stop since she had so many appointments for 3 weeks straight). Also, I am starting a healthy diet again (and taking supplements to boost my immune system (that I read about in the Yeast Infection No More book). I am not taking Yeast Cleanse stuff though. I want to boost immune first.

I had gone to a different naturalpath a couple months ago that hooked me up to some goofy machine that reads your bodies signals from the organs. I guess its something from Europe. It seems sort of quackery. She said my intestines and stomach were sending signals that I have some sort of parasite. I didn't really take her seriously though since I have never seen a machine like that in my life...so I didn't take her herbs.

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natural

Post  stacym918 on Sat Jul 21, 2012 11:12 am

i have had this condition for 5 years. the only thing that helped me was a natural doctor. I did a parasite cleanse, liver cleanse, yeast cleanse, etc. it did help, although not cure my condition.

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raw food

Post  Rainy Day on Sat Jul 21, 2012 2:25 pm

Have you also tried the raw food diet too? Just wondering if the natural doctor had you do that too. I don't know if this has anythign to do with my problem, but I just started measuring the ph of my urine...and its really acidic. I wonder if everyone with V has acidic urine though...

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 3:40 pm

I upped my water intake to 80 ounces a day, and ph balanced my water to at least 7. I bought a juicer, and added green veggies to every meal. I reduced my sugar consumption to one cheat day a week.I never drink coffee tea or soda or alcohol. I started this in jan 2010. It reduced my burning, which was three weeks each month (every day but the week out of my period) by about 80%. I also rotated high doses of natural antifungals.
I sometimes seem to have setbacks. I bought a nutrabullet, so yes now I am having some meals raw. its hard to do completely raw though, because even on a loose candida diet, you are so limited (i can't have vinegar, fermented food, dairy, etc.)
I cheated last night with a veggie pizza, It was my one cheat day of the week.

this has been the only thing that has helped me. I won't touch another pharmaceutical drug. In my opinion doctors do not know what to do with this condition.

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 3:42 pm

oh and I also take senna or some type of bowel cleanse every day. my natural doctor says it is very important to keep the bowels moving a lot so you are ridding of toxins. so before using any type of cleansing product be sure you are pooping 2-3 times a day.

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Agree with your ideas

Post  Rainy Day on Sat Jul 21, 2012 4:07 pm

I think I am thinking along the same lines as you. There has got to be some bacteria/yeast that isn't being seen by doctors since foods/cleanses have such an impact for people. Have you read the thing that Ria did on here...a total juicing cleanse? I tried e-mailing her for more details. I can tell doctors are clueless too. I have seen 2 gynos, 1 derm, and 1 natural doctor idiot. Before doing any tests or listening to me the vulvar pain 'specialist' says its nerve damage. I don't buy that since I find it pretty unlikely I had nerve damage 5 days after that UTI. I asked the gyno to run some tests on me...and she didn't think any 'tests' are necessary. The jerk....

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gees

Post  grassy on Sat Jul 21, 2012 8:01 pm

gees, me too. Could not find a doctor who would run a test! unbelievable. One day I called three, they all said no. Sorry about your parents! thats a hard thing to go thru! thats creating alot of stress on you too. hang in there! cindy

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 10:11 pm

yes, I am going to email ria for more info. I am willing to do a juice cleanse, or raw food diet. my diet has been so limited the past couple years that it really doesn't matter anymore. And btw, I have ph tested my urine, but after I started cleansing etc. It was always lower in the morning, which is normal, but usually hovered around 7. testing urine is actually unreliable because it is so dependent on what you just ate or drank.

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testing

Post  Rainy Day on Sun Jul 22, 2012 1:24 am

Did your natural doctor do allergy testing too on you? Is that how you learned what foods to avoid? Or, was it just trial and error? I did do purely raw for about 1 week back in May I think...and I thought I got worse during that week so I stopped cold turkey on it. Now, I wonder if maybe everyone gets worse at first when cleansing their body. Not sure. Did you get worse before better while going to the natural doctor?

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stress

Post  Rainy Day on Sun Jul 22, 2012 1:27 am

Also, does stress affect your condition? I don't think you can get much more stressed than what I have had to deal with for the past year. And, its not easy trying to focus on being happy while watching another parent get diagnosed with cancer. Although, this time its breast cancer Stage 2, versus De-Differentiated Chondrosarcoma Stage 4 (which is what dad had).

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

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