Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Go down

34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  Rainy Day on Thu Jul 19, 2012 3:41 pm

I am 34 years old. My dad died 7 months ago of short, horrible battle with cancer. After that, my immune system took a crap. A couple months later, I ended up having sex...taking a hot tub bath later in the week with some bath oils...and then I got the worst UTI of my life. After being on antiobiotics for about 5 days, I could tell I was getting some sort of infection. Treated it with OTC Monistat twice in a row, and it wasn't killing it. Then, went on yeast diet and I started to get rid of it. Cheated on my yeast diet, and it came back with a vengeance. So, doctor prescribed me Metro Gel (over the phone--didn't have time to see me)...then prescrived topical steroid over the phone (didn't have time again). Finally 1 1/2 months later he gets me in...and NO evidence of infection. So, here I am now 5 months later and I still have pain. Dr. prescrived 600 mg of Gabapentin. It slowly started working, and by week 6 I was 100% normal. THEN, I get the news that my mom has cancer. I decide to go for a run (with underwear), and immediately afterward I feel the pain come back. As of yesterday, Dr. uppped my dosage to 900 mg...but for some reason I don't think that is going to be the final answer to my problems...but moreso just a 'patch'. My pain doesn't really affect my vagina. It's moreso where the outside of the underwear rub (inner thigh) and down thighs. It's hard to sit because of it. Sex doesn't bother me much. I can't get any doctor to run any tests bsides that first Yeast/Bacteria/STD test. I finally found a homeopathic that i have an appointment with next week. She can take blood, urine, anything I want. I need some recomendations on tests I should start with please! Also, I have started acupuncture and chiro (I was doing that until mom was diagnosed with cancer...adn then I had to stop since she had so many appointments for 3 weeks straight). Also, I am starting a healthy diet again (and taking supplements to boost my immune system (that I read about in the Yeast Infection No More book). I am not taking Yeast Cleanse stuff though. I want to boost immune first.

I had gone to a different naturalpath a couple months ago that hooked me up to some goofy machine that reads your bodies signals from the organs. I guess its something from Europe. It seems sort of quackery. She said my intestines and stomach were sending signals that I have some sort of parasite. I didn't really take her seriously though since I have never seen a machine like that in my life...so I didn't take her herbs.

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

View user profile

Back to top Go down

natural

Post  stacym918 on Sat Jul 21, 2012 11:12 am

i have had this condition for 5 years. the only thing that helped me was a natural doctor. I did a parasite cleanse, liver cleanse, yeast cleanse, etc. it did help, although not cure my condition.

stacym918

Posts : 6
Join date : 2012-07-15

View user profile

Back to top Go down

raw food

Post  Rainy Day on Sat Jul 21, 2012 2:25 pm

Have you also tried the raw food diet too? Just wondering if the natural doctor had you do that too. I don't know if this has anythign to do with my problem, but I just started measuring the ph of my urine...and its really acidic. I wonder if everyone with V has acidic urine though...

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

View user profile

Back to top Go down

Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 3:40 pm

I upped my water intake to 80 ounces a day, and ph balanced my water to at least 7. I bought a juicer, and added green veggies to every meal. I reduced my sugar consumption to one cheat day a week.I never drink coffee tea or soda or alcohol. I started this in jan 2010. It reduced my burning, which was three weeks each month (every day but the week out of my period) by about 80%. I also rotated high doses of natural antifungals.
I sometimes seem to have setbacks. I bought a nutrabullet, so yes now I am having some meals raw. its hard to do completely raw though, because even on a loose candida diet, you are so limited (i can't have vinegar, fermented food, dairy, etc.)
I cheated last night with a veggie pizza, It was my one cheat day of the week.

this has been the only thing that has helped me. I won't touch another pharmaceutical drug. In my opinion doctors do not know what to do with this condition.

stacym918

Posts : 6
Join date : 2012-07-15

View user profile

Back to top Go down

Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 3:42 pm

oh and I also take senna or some type of bowel cleanse every day. my natural doctor says it is very important to keep the bowels moving a lot so you are ridding of toxins. so before using any type of cleansing product be sure you are pooping 2-3 times a day.

stacym918

Posts : 6
Join date : 2012-07-15

View user profile

Back to top Go down

Agree with your ideas

Post  Rainy Day on Sat Jul 21, 2012 4:07 pm

I think I am thinking along the same lines as you. There has got to be some bacteria/yeast that isn't being seen by doctors since foods/cleanses have such an impact for people. Have you read the thing that Ria did on here...a total juicing cleanse? I tried e-mailing her for more details. I can tell doctors are clueless too. I have seen 2 gynos, 1 derm, and 1 natural doctor idiot. Before doing any tests or listening to me the vulvar pain 'specialist' says its nerve damage. I don't buy that since I find it pretty unlikely I had nerve damage 5 days after that UTI. I asked the gyno to run some tests on me...and she didn't think any 'tests' are necessary. The jerk....

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

View user profile

Back to top Go down

gees

Post  grassy on Sat Jul 21, 2012 8:01 pm

gees, me too. Could not find a doctor who would run a test! unbelievable. One day I called three, they all said no. Sorry about your parents! thats a hard thing to go thru! thats creating alot of stress on you too. hang in there! cindy

grassy

Posts : 52
Join date : 2011-07-04

View user profile

Back to top Go down

Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 10:11 pm

yes, I am going to email ria for more info. I am willing to do a juice cleanse, or raw food diet. my diet has been so limited the past couple years that it really doesn't matter anymore. And btw, I have ph tested my urine, but after I started cleansing etc. It was always lower in the morning, which is normal, but usually hovered around 7. testing urine is actually unreliable because it is so dependent on what you just ate or drank.

stacym918

Posts : 6
Join date : 2012-07-15

View user profile

Back to top Go down

testing

Post  Rainy Day on Sun Jul 22, 2012 1:24 am

Did your natural doctor do allergy testing too on you? Is that how you learned what foods to avoid? Or, was it just trial and error? I did do purely raw for about 1 week back in May I think...and I thought I got worse during that week so I stopped cold turkey on it. Now, I wonder if maybe everyone gets worse at first when cleansing their body. Not sure. Did you get worse before better while going to the natural doctor?

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

View user profile

Back to top Go down

stress

Post  Rainy Day on Sun Jul 22, 2012 1:27 am

Also, does stress affect your condition? I don't think you can get much more stressed than what I have had to deal with for the past year. And, its not easy trying to focus on being happy while watching another parent get diagnosed with cancer. Although, this time its breast cancer Stage 2, versus De-Differentiated Chondrosarcoma Stage 4 (which is what dad had).

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

View user profile

Back to top Go down

Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum