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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

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34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  Rainy Day on Thu Jul 19, 2012 3:41 pm

I am 34 years old. My dad died 7 months ago of short, horrible battle with cancer. After that, my immune system took a crap. A couple months later, I ended up having sex...taking a hot tub bath later in the week with some bath oils...and then I got the worst UTI of my life. After being on antiobiotics for about 5 days, I could tell I was getting some sort of infection. Treated it with OTC Monistat twice in a row, and it wasn't killing it. Then, went on yeast diet and I started to get rid of it. Cheated on my yeast diet, and it came back with a vengeance. So, doctor prescribed me Metro Gel (over the phone--didn't have time to see me)...then prescrived topical steroid over the phone (didn't have time again). Finally 1 1/2 months later he gets me in...and NO evidence of infection. So, here I am now 5 months later and I still have pain. Dr. prescrived 600 mg of Gabapentin. It slowly started working, and by week 6 I was 100% normal. THEN, I get the news that my mom has cancer. I decide to go for a run (with underwear), and immediately afterward I feel the pain come back. As of yesterday, Dr. uppped my dosage to 900 mg...but for some reason I don't think that is going to be the final answer to my problems...but moreso just a 'patch'. My pain doesn't really affect my vagina. It's moreso where the outside of the underwear rub (inner thigh) and down thighs. It's hard to sit because of it. Sex doesn't bother me much. I can't get any doctor to run any tests bsides that first Yeast/Bacteria/STD test. I finally found a homeopathic that i have an appointment with next week. She can take blood, urine, anything I want. I need some recomendations on tests I should start with please! Also, I have started acupuncture and chiro (I was doing that until mom was diagnosed with cancer...adn then I had to stop since she had so many appointments for 3 weeks straight). Also, I am starting a healthy diet again (and taking supplements to boost my immune system (that I read about in the Yeast Infection No More book). I am not taking Yeast Cleanse stuff though. I want to boost immune first.

I had gone to a different naturalpath a couple months ago that hooked me up to some goofy machine that reads your bodies signals from the organs. I guess its something from Europe. It seems sort of quackery. She said my intestines and stomach were sending signals that I have some sort of parasite. I didn't really take her seriously though since I have never seen a machine like that in my life...so I didn't take her herbs.

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natural

Post  stacym918 on Sat Jul 21, 2012 11:12 am

i have had this condition for 5 years. the only thing that helped me was a natural doctor. I did a parasite cleanse, liver cleanse, yeast cleanse, etc. it did help, although not cure my condition.

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raw food

Post  Rainy Day on Sat Jul 21, 2012 2:25 pm

Have you also tried the raw food diet too? Just wondering if the natural doctor had you do that too. I don't know if this has anythign to do with my problem, but I just started measuring the ph of my urine...and its really acidic. I wonder if everyone with V has acidic urine though...

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 3:40 pm

I upped my water intake to 80 ounces a day, and ph balanced my water to at least 7. I bought a juicer, and added green veggies to every meal. I reduced my sugar consumption to one cheat day a week.I never drink coffee tea or soda or alcohol. I started this in jan 2010. It reduced my burning, which was three weeks each month (every day but the week out of my period) by about 80%. I also rotated high doses of natural antifungals.
I sometimes seem to have setbacks. I bought a nutrabullet, so yes now I am having some meals raw. its hard to do completely raw though, because even on a loose candida diet, you are so limited (i can't have vinegar, fermented food, dairy, etc.)
I cheated last night with a veggie pizza, It was my one cheat day of the week.

this has been the only thing that has helped me. I won't touch another pharmaceutical drug. In my opinion doctors do not know what to do with this condition.

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 3:42 pm

oh and I also take senna or some type of bowel cleanse every day. my natural doctor says it is very important to keep the bowels moving a lot so you are ridding of toxins. so before using any type of cleansing product be sure you are pooping 2-3 times a day.

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Agree with your ideas

Post  Rainy Day on Sat Jul 21, 2012 4:07 pm

I think I am thinking along the same lines as you. There has got to be some bacteria/yeast that isn't being seen by doctors since foods/cleanses have such an impact for people. Have you read the thing that Ria did on here...a total juicing cleanse? I tried e-mailing her for more details. I can tell doctors are clueless too. I have seen 2 gynos, 1 derm, and 1 natural doctor idiot. Before doing any tests or listening to me the vulvar pain 'specialist' says its nerve damage. I don't buy that since I find it pretty unlikely I had nerve damage 5 days after that UTI. I asked the gyno to run some tests on me...and she didn't think any 'tests' are necessary. The jerk....

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gees

Post  grassy on Sat Jul 21, 2012 8:01 pm

gees, me too. Could not find a doctor who would run a test! unbelievable. One day I called three, they all said no. Sorry about your parents! thats a hard thing to go thru! thats creating alot of stress on you too. hang in there! cindy

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 10:11 pm

yes, I am going to email ria for more info. I am willing to do a juice cleanse, or raw food diet. my diet has been so limited the past couple years that it really doesn't matter anymore. And btw, I have ph tested my urine, but after I started cleansing etc. It was always lower in the morning, which is normal, but usually hovered around 7. testing urine is actually unreliable because it is so dependent on what you just ate or drank.

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testing

Post  Rainy Day on Sun Jul 22, 2012 1:24 am

Did your natural doctor do allergy testing too on you? Is that how you learned what foods to avoid? Or, was it just trial and error? I did do purely raw for about 1 week back in May I think...and I thought I got worse during that week so I stopped cold turkey on it. Now, I wonder if maybe everyone gets worse at first when cleansing their body. Not sure. Did you get worse before better while going to the natural doctor?

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stress

Post  Rainy Day on Sun Jul 22, 2012 1:27 am

Also, does stress affect your condition? I don't think you can get much more stressed than what I have had to deal with for the past year. And, its not easy trying to focus on being happy while watching another parent get diagnosed with cancer. Although, this time its breast cancer Stage 2, versus De-Differentiated Chondrosarcoma Stage 4 (which is what dad had).

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

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