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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

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34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  Rainy Day on Thu Jul 19, 2012 3:41 pm

I am 34 years old. My dad died 7 months ago of short, horrible battle with cancer. After that, my immune system took a crap. A couple months later, I ended up having sex...taking a hot tub bath later in the week with some bath oils...and then I got the worst UTI of my life. After being on antiobiotics for about 5 days, I could tell I was getting some sort of infection. Treated it with OTC Monistat twice in a row, and it wasn't killing it. Then, went on yeast diet and I started to get rid of it. Cheated on my yeast diet, and it came back with a vengeance. So, doctor prescribed me Metro Gel (over the phone--didn't have time to see me)...then prescrived topical steroid over the phone (didn't have time again). Finally 1 1/2 months later he gets me in...and NO evidence of infection. So, here I am now 5 months later and I still have pain. Dr. prescrived 600 mg of Gabapentin. It slowly started working, and by week 6 I was 100% normal. THEN, I get the news that my mom has cancer. I decide to go for a run (with underwear), and immediately afterward I feel the pain come back. As of yesterday, Dr. uppped my dosage to 900 mg...but for some reason I don't think that is going to be the final answer to my problems...but moreso just a 'patch'. My pain doesn't really affect my vagina. It's moreso where the outside of the underwear rub (inner thigh) and down thighs. It's hard to sit because of it. Sex doesn't bother me much. I can't get any doctor to run any tests bsides that first Yeast/Bacteria/STD test. I finally found a homeopathic that i have an appointment with next week. She can take blood, urine, anything I want. I need some recomendations on tests I should start with please! Also, I have started acupuncture and chiro (I was doing that until mom was diagnosed with cancer...adn then I had to stop since she had so many appointments for 3 weeks straight). Also, I am starting a healthy diet again (and taking supplements to boost my immune system (that I read about in the Yeast Infection No More book). I am not taking Yeast Cleanse stuff though. I want to boost immune first.

I had gone to a different naturalpath a couple months ago that hooked me up to some goofy machine that reads your bodies signals from the organs. I guess its something from Europe. It seems sort of quackery. She said my intestines and stomach were sending signals that I have some sort of parasite. I didn't really take her seriously though since I have never seen a machine like that in my life...so I didn't take her herbs.

Rainy Day

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natural

Post  stacym918 on Sat Jul 21, 2012 11:12 am

i have had this condition for 5 years. the only thing that helped me was a natural doctor. I did a parasite cleanse, liver cleanse, yeast cleanse, etc. it did help, although not cure my condition.

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raw food

Post  Rainy Day on Sat Jul 21, 2012 2:25 pm

Have you also tried the raw food diet too? Just wondering if the natural doctor had you do that too. I don't know if this has anythign to do with my problem, but I just started measuring the ph of my urine...and its really acidic. I wonder if everyone with V has acidic urine though...

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 3:40 pm

I upped my water intake to 80 ounces a day, and ph balanced my water to at least 7. I bought a juicer, and added green veggies to every meal. I reduced my sugar consumption to one cheat day a week.I never drink coffee tea or soda or alcohol. I started this in jan 2010. It reduced my burning, which was three weeks each month (every day but the week out of my period) by about 80%. I also rotated high doses of natural antifungals.
I sometimes seem to have setbacks. I bought a nutrabullet, so yes now I am having some meals raw. its hard to do completely raw though, because even on a loose candida diet, you are so limited (i can't have vinegar, fermented food, dairy, etc.)
I cheated last night with a veggie pizza, It was my one cheat day of the week.

this has been the only thing that has helped me. I won't touch another pharmaceutical drug. In my opinion doctors do not know what to do with this condition.

stacym918

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 3:42 pm

oh and I also take senna or some type of bowel cleanse every day. my natural doctor says it is very important to keep the bowels moving a lot so you are ridding of toxins. so before using any type of cleansing product be sure you are pooping 2-3 times a day.

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Agree with your ideas

Post  Rainy Day on Sat Jul 21, 2012 4:07 pm

I think I am thinking along the same lines as you. There has got to be some bacteria/yeast that isn't being seen by doctors since foods/cleanses have such an impact for people. Have you read the thing that Ria did on here...a total juicing cleanse? I tried e-mailing her for more details. I can tell doctors are clueless too. I have seen 2 gynos, 1 derm, and 1 natural doctor idiot. Before doing any tests or listening to me the vulvar pain 'specialist' says its nerve damage. I don't buy that since I find it pretty unlikely I had nerve damage 5 days after that UTI. I asked the gyno to run some tests on me...and she didn't think any 'tests' are necessary. The jerk....

Rainy Day

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gees

Post  grassy on Sat Jul 21, 2012 8:01 pm

gees, me too. Could not find a doctor who would run a test! unbelievable. One day I called three, they all said no. Sorry about your parents! thats a hard thing to go thru! thats creating alot of stress on you too. hang in there! cindy

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

Post  stacym918 on Sat Jul 21, 2012 10:11 pm

yes, I am going to email ria for more info. I am willing to do a juice cleanse, or raw food diet. my diet has been so limited the past couple years that it really doesn't matter anymore. And btw, I have ph tested my urine, but after I started cleansing etc. It was always lower in the morning, which is normal, but usually hovered around 7. testing urine is actually unreliable because it is so dependent on what you just ate or drank.

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testing

Post  Rainy Day on Sun Jul 22, 2012 1:24 am

Did your natural doctor do allergy testing too on you? Is that how you learned what foods to avoid? Or, was it just trial and error? I did do purely raw for about 1 week back in May I think...and I thought I got worse during that week so I stopped cold turkey on it. Now, I wonder if maybe everyone gets worse at first when cleansing their body. Not sure. Did you get worse before better while going to the natural doctor?

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stress

Post  Rainy Day on Sun Jul 22, 2012 1:27 am

Also, does stress affect your condition? I don't think you can get much more stressed than what I have had to deal with for the past year. And, its not easy trying to focus on being happy while watching another parent get diagnosed with cancer. Although, this time its breast cancer Stage 2, versus De-Differentiated Chondrosarcoma Stage 4 (which is what dad had).

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Re: 34 Yr Old onset after bad UTI...need advice on tests to run by naturalpath

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