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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Does anyone else test the ph of their urine?

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Does anyone else test the ph of their urine?

Post  Rainy Day on Sat Jul 21, 2012 2:34 pm

Just wondering if everyone else has acidic urine too? Wondering if that is part of the puzzle? I have a urine ph of 5.75 in the morning and then 6.0 before bed. It never gets close to 7 in morn or at night.

Rainy Day

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Hmmm...

Post  Mandadity on Sat Jul 28, 2012 2:41 am

I never check my own ph levels but I most definitely feel I have acidic urine. I been saying that for years, all because if im even in a little bit of pain, and i pee....my pain can shoot up from 2/10 to 7/10 in the split second it takes for urine to hit that part of me that hurts...then as im peeing, the pain gets worse and/or just doesnt go away until urine has passed for a min or two.

So I dont test it, I have had it tested before and it was horrible(dunno the #) but it could have souly been about me taking hot baths for hours so the pain would stop(at the time) but I dunno.

Mandadity

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acidity

Post  Think Inside The Box on Fri Aug 10, 2012 8:28 pm

I'm not sure about acidity, what I do know is that (sorry if this is major tmi, Embarassed ) my healthy urine tastes - (yes, tastes, again, sorry, if peeing feels uncomfortable i touch my urethra with a clean fingertip and then touch my tongue, not like I drink a glass of pee) of nothing but a little salt. I can tell the instant I begin to get a UTI because it becomes bitter, the more bitter the worse the infection. Bitter = alkaline, the larger the pH number the more alkaline something is. Very alkaline urine also burns and stings horribly and makes urinating excruciating (and seriously increases the misery of my vulvodynia). Yeah, the fingertip dip is a bit gross, but it's instantly available the second something feels 'off', totally private, free, and 100% reliable.


Maybe acidic urine can be caused by a different kind of bacteria or fungus??


Mandadity - try something called "d-mannose powder" (or d-mannose sugar, same thing). You can get it at a health food store, it's a concentrated form of the same sugar that's in cranberries and it can stop a UTI (at least it stops mine) dead in its tracks. You just mix a small spoonful in water and drink it. I have never been so grateful for a treatment. Between the D-M powder and my fingertip dip I can stop most infections before they're a problem at all.


from chemcraft-net

Urine pH values:

In a pH balanced body. urine is slightly acid in the morning, (pH = 6.5 - 7.0) generally becoming more alkaline (pH = 7.5 - 8.0) by evening in healthy people primarily because no food or beverages are consumed while sleeping. Whereas, during the day the body buffers the pH of the food and beverages consumed by releasing electrolytes and the pH level goes up. This process allows the kidneys to begin the elimination process slowly.

Outside the range implies that cells are being burdened with caustic pH fluids within and without surroundings. Long term experience outside this range is unhealthy. However, the pH of urine can range from an extremely unhealthy low of 4.5 to a high if 8.5, which it tolerates a little easier, depending on the acid/base status of the extracellular fluids. A high pH value may indicate the body is over buffering to compensate for a physiological system that is too acidic.



Figure 4. Range of Urine pH Values.
UNHEALTHY pH < 6.0
NEUTRAL pH = 6.5 TO 8.0
UNHEALTHY pH > 8.5

When urine pH is 6.0 and below for extended periods of time, it is an indication that the body's fluids elsewhere are too acid, and it is working overtime to rid itself of an acid medium. Thus, when urine pH is normal, then the blood pH is normal, but when the urine pH is overly acid, the body releases too many electrolytes to keep the pH level normal and maintain life.



Think Inside The Box

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pH makes a huge difference for me!

Post  Lulu on Mon Jan 05, 2015 6:10 pm

I know I'm posting on a very old thread, but I wanted to address this for future searchers. I have 7 years of slowly getting worse and trying everything. HRT, various Rx, low-ox diet, PT, etc. etc. Things helped a little but never got rid of the burning pain. (I mostly have vestibulitis). I came across someone mentioning pH and decided to start testing. Sure enough, I'm a 5 or as low as the strip will go, all day long. SO! I googled and found a few sources with info. alkaline sisters.com has some good info and a very hand food list. I started eating cucumber though out the day, eating more veggies, less bread and meat. (I wasn't a big meat eater anyway). I take cal/mag liquid (Solary) first thing before my coffee. I do a green drink daily- you can juice kale, cucumber, etc., but I buy a powdered Spirulina-based drink called Super Food from Dr. Schulze. I also take Cell Food - which will have a fast alkalizing effect, but it's $$ and getting too alkaline can be uncomfortable too. Anyway! I'm a week in and haven't had the burning pain for 3 days! Yay!! I think I will add Spirulina or similar greens in tablet form for when I'm out and about and decide to have pizza or coffee or other acid-spiking stuff. **Small note about the acidic food list, lemon is on the list as alkalizing, though it is acidic, but it does not have an alkalizing effect on me at all! (ouch!). I'm gonna miss having lemon in my water, as I have always done at restaurants. :/

I have always been a carboholic. I love bread, pasta, rice, and chocolate more than anything. So, even though I thought I had a healthy diet with very little meat and dairy intake, I think my diet was a perfect storm for having acidic urine which was burning me daily.

I want to add that if you have urinary issues - UTI, urgent need to pee, UTI symptoms without an infection... I was greatly helped by my PT putting me on a pee schedule. Every 3 hours. AND I no longer drink a whole bunch of water at a time, but sip all day. Boom! No more UT issues. I used to guzzle 8-16 oz of water whenever I got thirsty. Now I make sure not to drink more than 4 oz at a time. Can't believe what a diff it makes!

I hope this is helpful to someone!!

Lulu

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