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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Does anyone else test the ph of their urine?

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Does anyone else test the ph of their urine?

Post  Rainy Day on Sat Jul 21, 2012 2:34 pm

Just wondering if everyone else has acidic urine too? Wondering if that is part of the puzzle? I have a urine ph of 5.75 in the morning and then 6.0 before bed. It never gets close to 7 in morn or at night.

Rainy Day

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Hmmm...

Post  Mandadity on Sat Jul 28, 2012 2:41 am

I never check my own ph levels but I most definitely feel I have acidic urine. I been saying that for years, all because if im even in a little bit of pain, and i pee....my pain can shoot up from 2/10 to 7/10 in the split second it takes for urine to hit that part of me that hurts...then as im peeing, the pain gets worse and/or just doesnt go away until urine has passed for a min or two.

So I dont test it, I have had it tested before and it was horrible(dunno the #) but it could have souly been about me taking hot baths for hours so the pain would stop(at the time) but I dunno.

Mandadity

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acidity

Post  Think Inside The Box on Fri Aug 10, 2012 8:28 pm

I'm not sure about acidity, what I do know is that (sorry if this is major tmi, Embarassed ) my healthy urine tastes - (yes, tastes, again, sorry, if peeing feels uncomfortable i touch my urethra with a clean fingertip and then touch my tongue, not like I drink a glass of pee) of nothing but a little salt. I can tell the instant I begin to get a UTI because it becomes bitter, the more bitter the worse the infection. Bitter = alkaline, the larger the pH number the more alkaline something is. Very alkaline urine also burns and stings horribly and makes urinating excruciating (and seriously increases the misery of my vulvodynia). Yeah, the fingertip dip is a bit gross, but it's instantly available the second something feels 'off', totally private, free, and 100% reliable.


Maybe acidic urine can be caused by a different kind of bacteria or fungus??


Mandadity - try something called "d-mannose powder" (or d-mannose sugar, same thing). You can get it at a health food store, it's a concentrated form of the same sugar that's in cranberries and it can stop a UTI (at least it stops mine) dead in its tracks. You just mix a small spoonful in water and drink it. I have never been so grateful for a treatment. Between the D-M powder and my fingertip dip I can stop most infections before they're a problem at all.


from chemcraft-net

Urine pH values:

In a pH balanced body. urine is slightly acid in the morning, (pH = 6.5 - 7.0) generally becoming more alkaline (pH = 7.5 - 8.0) by evening in healthy people primarily because no food or beverages are consumed while sleeping. Whereas, during the day the body buffers the pH of the food and beverages consumed by releasing electrolytes and the pH level goes up. This process allows the kidneys to begin the elimination process slowly.

Outside the range implies that cells are being burdened with caustic pH fluids within and without surroundings. Long term experience outside this range is unhealthy. However, the pH of urine can range from an extremely unhealthy low of 4.5 to a high if 8.5, which it tolerates a little easier, depending on the acid/base status of the extracellular fluids. A high pH value may indicate the body is over buffering to compensate for a physiological system that is too acidic.



Figure 4. Range of Urine pH Values.
UNHEALTHY pH < 6.0
NEUTRAL pH = 6.5 TO 8.0
UNHEALTHY pH > 8.5

When urine pH is 6.0 and below for extended periods of time, it is an indication that the body's fluids elsewhere are too acid, and it is working overtime to rid itself of an acid medium. Thus, when urine pH is normal, then the blood pH is normal, but when the urine pH is overly acid, the body releases too many electrolytes to keep the pH level normal and maintain life.



Think Inside The Box

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pH makes a huge difference for me!

Post  Lulu on Mon Jan 05, 2015 6:10 pm

I know I'm posting on a very old thread, but I wanted to address this for future searchers. I have 7 years of slowly getting worse and trying everything. HRT, various Rx, low-ox diet, PT, etc. etc. Things helped a little but never got rid of the burning pain. (I mostly have vestibulitis). I came across someone mentioning pH and decided to start testing. Sure enough, I'm a 5 or as low as the strip will go, all day long. SO! I googled and found a few sources with info. alkaline sisters.com has some good info and a very hand food list. I started eating cucumber though out the day, eating more veggies, less bread and meat. (I wasn't a big meat eater anyway). I take cal/mag liquid (Solary) first thing before my coffee. I do a green drink daily- you can juice kale, cucumber, etc., but I buy a powdered Spirulina-based drink called Super Food from Dr. Schulze. I also take Cell Food - which will have a fast alkalizing effect, but it's $$ and getting too alkaline can be uncomfortable too. Anyway! I'm a week in and haven't had the burning pain for 3 days! Yay!! I think I will add Spirulina or similar greens in tablet form for when I'm out and about and decide to have pizza or coffee or other acid-spiking stuff. **Small note about the acidic food list, lemon is on the list as alkalizing, though it is acidic, but it does not have an alkalizing effect on me at all! (ouch!). I'm gonna miss having lemon in my water, as I have always done at restaurants. :/

I have always been a carboholic. I love bread, pasta, rice, and chocolate more than anything. So, even though I thought I had a healthy diet with very little meat and dairy intake, I think my diet was a perfect storm for having acidic urine which was burning me daily.

I want to add that if you have urinary issues - UTI, urgent need to pee, UTI symptoms without an infection... I was greatly helped by my PT putting me on a pee schedule. Every 3 hours. AND I no longer drink a whole bunch of water at a time, but sip all day. Boom! No more UT issues. I used to guzzle 8-16 oz of water whenever I got thirsty. Now I make sure not to drink more than 4 oz at a time. Can't believe what a diff it makes!

I hope this is helpful to someone!!

Lulu

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Re: Does anyone else test the ph of their urine?

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