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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
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» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
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» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

Does anyone else test the ph of their urine?

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Does anyone else test the ph of their urine?

Post  Rainy Day on Sat Jul 21, 2012 2:34 pm

Just wondering if everyone else has acidic urine too? Wondering if that is part of the puzzle? I have a urine ph of 5.75 in the morning and then 6.0 before bed. It never gets close to 7 in morn or at night.

Rainy Day

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Post  Mandadity on Sat Jul 28, 2012 2:41 am

I never check my own ph levels but I most definitely feel I have acidic urine. I been saying that for years, all because if im even in a little bit of pain, and i pee....my pain can shoot up from 2/10 to 7/10 in the split second it takes for urine to hit that part of me that hurts...then as im peeing, the pain gets worse and/or just doesnt go away until urine has passed for a min or two.

So I dont test it, I have had it tested before and it was horrible(dunno the #) but it could have souly been about me taking hot baths for hours so the pain would stop(at the time) but I dunno.


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Post  Think Inside The Box on Fri Aug 10, 2012 8:28 pm

I'm not sure about acidity, what I do know is that (sorry if this is major tmi, Embarassed ) my healthy urine tastes - (yes, tastes, again, sorry, if peeing feels uncomfortable i touch my urethra with a clean fingertip and then touch my tongue, not like I drink a glass of pee) of nothing but a little salt. I can tell the instant I begin to get a UTI because it becomes bitter, the more bitter the worse the infection. Bitter = alkaline, the larger the pH number the more alkaline something is. Very alkaline urine also burns and stings horribly and makes urinating excruciating (and seriously increases the misery of my vulvodynia). Yeah, the fingertip dip is a bit gross, but it's instantly available the second something feels 'off', totally private, free, and 100% reliable.

Maybe acidic urine can be caused by a different kind of bacteria or fungus??

Mandadity - try something called "d-mannose powder" (or d-mannose sugar, same thing). You can get it at a health food store, it's a concentrated form of the same sugar that's in cranberries and it can stop a UTI (at least it stops mine) dead in its tracks. You just mix a small spoonful in water and drink it. I have never been so grateful for a treatment. Between the D-M powder and my fingertip dip I can stop most infections before they're a problem at all.

from chemcraft-net

Urine pH values:

In a pH balanced body. urine is slightly acid in the morning, (pH = 6.5 - 7.0) generally becoming more alkaline (pH = 7.5 - 8.0) by evening in healthy people primarily because no food or beverages are consumed while sleeping. Whereas, during the day the body buffers the pH of the food and beverages consumed by releasing electrolytes and the pH level goes up. This process allows the kidneys to begin the elimination process slowly.

Outside the range implies that cells are being burdened with caustic pH fluids within and without surroundings. Long term experience outside this range is unhealthy. However, the pH of urine can range from an extremely unhealthy low of 4.5 to a high if 8.5, which it tolerates a little easier, depending on the acid/base status of the extracellular fluids. A high pH value may indicate the body is over buffering to compensate for a physiological system that is too acidic.

Figure 4. Range of Urine pH Values.
NEUTRAL pH = 6.5 TO 8.0

When urine pH is 6.0 and below for extended periods of time, it is an indication that the body's fluids elsewhere are too acid, and it is working overtime to rid itself of an acid medium. Thus, when urine pH is normal, then the blood pH is normal, but when the urine pH is overly acid, the body releases too many electrolytes to keep the pH level normal and maintain life.

Think Inside The Box

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pH makes a huge difference for me!

Post  Lulu on Mon Jan 05, 2015 6:10 pm

I know I'm posting on a very old thread, but I wanted to address this for future searchers. I have 7 years of slowly getting worse and trying everything. HRT, various Rx, low-ox diet, PT, etc. etc. Things helped a little but never got rid of the burning pain. (I mostly have vestibulitis). I came across someone mentioning pH and decided to start testing. Sure enough, I'm a 5 or as low as the strip will go, all day long. SO! I googled and found a few sources with info. alkaline sisters.com has some good info and a very hand food list. I started eating cucumber though out the day, eating more veggies, less bread and meat. (I wasn't a big meat eater anyway). I take cal/mag liquid (Solary) first thing before my coffee. I do a green drink daily- you can juice kale, cucumber, etc., but I buy a powdered Spirulina-based drink called Super Food from Dr. Schulze. I also take Cell Food - which will have a fast alkalizing effect, but it's $$ and getting too alkaline can be uncomfortable too. Anyway! I'm a week in and haven't had the burning pain for 3 days! Yay!! I think I will add Spirulina or similar greens in tablet form for when I'm out and about and decide to have pizza or coffee or other acid-spiking stuff. **Small note about the acidic food list, lemon is on the list as alkalizing, though it is acidic, but it does not have an alkalizing effect on me at all! (ouch!). I'm gonna miss having lemon in my water, as I have always done at restaurants. :/

I have always been a carboholic. I love bread, pasta, rice, and chocolate more than anything. So, even though I thought I had a healthy diet with very little meat and dairy intake, I think my diet was a perfect storm for having acidic urine which was burning me daily.

I want to add that if you have urinary issues - UTI, urgent need to pee, UTI symptoms without an infection... I was greatly helped by my PT putting me on a pee schedule. Every 3 hours. AND I no longer drink a whole bunch of water at a time, but sip all day. Boom! No more UT issues. I used to guzzle 8-16 oz of water whenever I got thirsty. Now I make sure not to drink more than 4 oz at a time. Can't believe what a diff it makes!

I hope this is helpful to someone!!


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Re: Does anyone else test the ph of their urine?

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