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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

Does anyone else test the ph of their urine?

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Does anyone else test the ph of their urine?

Post  Rainy Day on Sat Jul 21, 2012 2:34 pm

Just wondering if everyone else has acidic urine too? Wondering if that is part of the puzzle? I have a urine ph of 5.75 in the morning and then 6.0 before bed. It never gets close to 7 in morn or at night.

Rainy Day

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Post  Mandadity on Sat Jul 28, 2012 2:41 am

I never check my own ph levels but I most definitely feel I have acidic urine. I been saying that for years, all because if im even in a little bit of pain, and i pee....my pain can shoot up from 2/10 to 7/10 in the split second it takes for urine to hit that part of me that hurts...then as im peeing, the pain gets worse and/or just doesnt go away until urine has passed for a min or two.

So I dont test it, I have had it tested before and it was horrible(dunno the #) but it could have souly been about me taking hot baths for hours so the pain would stop(at the time) but I dunno.


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Post  Think Inside The Box on Fri Aug 10, 2012 8:28 pm

I'm not sure about acidity, what I do know is that (sorry if this is major tmi, Embarassed ) my healthy urine tastes - (yes, tastes, again, sorry, if peeing feels uncomfortable i touch my urethra with a clean fingertip and then touch my tongue, not like I drink a glass of pee) of nothing but a little salt. I can tell the instant I begin to get a UTI because it becomes bitter, the more bitter the worse the infection. Bitter = alkaline, the larger the pH number the more alkaline something is. Very alkaline urine also burns and stings horribly and makes urinating excruciating (and seriously increases the misery of my vulvodynia). Yeah, the fingertip dip is a bit gross, but it's instantly available the second something feels 'off', totally private, free, and 100% reliable.

Maybe acidic urine can be caused by a different kind of bacteria or fungus??

Mandadity - try something called "d-mannose powder" (or d-mannose sugar, same thing). You can get it at a health food store, it's a concentrated form of the same sugar that's in cranberries and it can stop a UTI (at least it stops mine) dead in its tracks. You just mix a small spoonful in water and drink it. I have never been so grateful for a treatment. Between the D-M powder and my fingertip dip I can stop most infections before they're a problem at all.

from chemcraft-net

Urine pH values:

In a pH balanced body. urine is slightly acid in the morning, (pH = 6.5 - 7.0) generally becoming more alkaline (pH = 7.5 - 8.0) by evening in healthy people primarily because no food or beverages are consumed while sleeping. Whereas, during the day the body buffers the pH of the food and beverages consumed by releasing electrolytes and the pH level goes up. This process allows the kidneys to begin the elimination process slowly.

Outside the range implies that cells are being burdened with caustic pH fluids within and without surroundings. Long term experience outside this range is unhealthy. However, the pH of urine can range from an extremely unhealthy low of 4.5 to a high if 8.5, which it tolerates a little easier, depending on the acid/base status of the extracellular fluids. A high pH value may indicate the body is over buffering to compensate for a physiological system that is too acidic.

Figure 4. Range of Urine pH Values.
NEUTRAL pH = 6.5 TO 8.0

When urine pH is 6.0 and below for extended periods of time, it is an indication that the body's fluids elsewhere are too acid, and it is working overtime to rid itself of an acid medium. Thus, when urine pH is normal, then the blood pH is normal, but when the urine pH is overly acid, the body releases too many electrolytes to keep the pH level normal and maintain life.

Think Inside The Box

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pH makes a huge difference for me!

Post  Lulu on Mon Jan 05, 2015 6:10 pm

I know I'm posting on a very old thread, but I wanted to address this for future searchers. I have 7 years of slowly getting worse and trying everything. HRT, various Rx, low-ox diet, PT, etc. etc. Things helped a little but never got rid of the burning pain. (I mostly have vestibulitis). I came across someone mentioning pH and decided to start testing. Sure enough, I'm a 5 or as low as the strip will go, all day long. SO! I googled and found a few sources with info. alkaline sisters.com has some good info and a very hand food list. I started eating cucumber though out the day, eating more veggies, less bread and meat. (I wasn't a big meat eater anyway). I take cal/mag liquid (Solary) first thing before my coffee. I do a green drink daily- you can juice kale, cucumber, etc., but I buy a powdered Spirulina-based drink called Super Food from Dr. Schulze. I also take Cell Food - which will have a fast alkalizing effect, but it's $$ and getting too alkaline can be uncomfortable too. Anyway! I'm a week in and haven't had the burning pain for 3 days! Yay!! I think I will add Spirulina or similar greens in tablet form for when I'm out and about and decide to have pizza or coffee or other acid-spiking stuff. **Small note about the acidic food list, lemon is on the list as alkalizing, though it is acidic, but it does not have an alkalizing effect on me at all! (ouch!). I'm gonna miss having lemon in my water, as I have always done at restaurants. :/

I have always been a carboholic. I love bread, pasta, rice, and chocolate more than anything. So, even though I thought I had a healthy diet with very little meat and dairy intake, I think my diet was a perfect storm for having acidic urine which was burning me daily.

I want to add that if you have urinary issues - UTI, urgent need to pee, UTI symptoms without an infection... I was greatly helped by my PT putting me on a pee schedule. Every 3 hours. AND I no longer drink a whole bunch of water at a time, but sip all day. Boom! No more UT issues. I used to guzzle 8-16 oz of water whenever I got thirsty. Now I make sure not to drink more than 4 oz at a time. Can't believe what a diff it makes!

I hope this is helpful to someone!!


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Re: Does anyone else test the ph of their urine?

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