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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
WHY ME - Life is so unfair sometimes
3 posters
Page 1 of 1
WHY ME - Life is so unfair sometimes
So I posted a few months back not long after I was diagnosed with this stupid thing. And I was going pretty well with my physiotherapy and I felt pretty positive. The last few months though I have really let go. Im lucky if I do my exercises once a week. I don't want to do it, I don't see the point when it hasn't helped the core issue (nerve pain) and I hate the fact that I am going to have to live with this for the rest of my life
I've become quite angry at life it's fair to say. I think anyone with this condition would feel similarly - in fact seeing the things you guys write on here confirms I am correct. But I am also anaemic (recently had an iron infusion hoping it will kick in soon) was recently told I am lactose AND gluten intolerant and have had to go on an extreme diet. WHY ME?
I don't see the point in doing my exercises and I'm pretty sure my boyfriend is getting sick of tired/sexually frustrated as I am not allowed to have sex (and have had to start seeing a psychologist as I cannot fathom the IDEA of sex - as my whole sexual experience has been one of extreme pain).
I feel like I am seeing some doctor or something every day. I can barely afford it to start with - adding yet another stress - and it makes me feel so overwhelmed all the time.
This forum was perfect for me because really I just wanted a rant. But another reason I wanted to write is because my gyno recently prescribed me ENDEP (an anti depressant) not for depression but as a muscle relaxant because I'm in so much pain. I wanted to hear of people's experience with this drug - has it or has it not worked? What are the side effects etc?
Please tell me everything will be ok and make me feel guilty about not doing my exercises :p
I've become quite angry at life it's fair to say. I think anyone with this condition would feel similarly - in fact seeing the things you guys write on here confirms I am correct. But I am also anaemic (recently had an iron infusion hoping it will kick in soon) was recently told I am lactose AND gluten intolerant and have had to go on an extreme diet. WHY ME?
I don't see the point in doing my exercises and I'm pretty sure my boyfriend is getting sick of tired/sexually frustrated as I am not allowed to have sex (and have had to start seeing a psychologist as I cannot fathom the IDEA of sex - as my whole sexual experience has been one of extreme pain).
I feel like I am seeing some doctor or something every day. I can barely afford it to start with - adding yet another stress - and it makes me feel so overwhelmed all the time.
This forum was perfect for me because really I just wanted a rant. But another reason I wanted to write is because my gyno recently prescribed me ENDEP (an anti depressant) not for depression but as a muscle relaxant because I'm in so much pain. I wanted to hear of people's experience with this drug - has it or has it not worked? What are the side effects etc?
Please tell me everything will be ok and make me feel guilty about not doing my exercises :p
Young aussie girl- Posts : 7
Join date : 2012-02-02
Re: WHY ME - Life is so unfair sometimes
Saddly i cant say either physiotherapy or anti depressant have worked for me. I have nerve problems and spasm problems for starts plus i have endometriotious which is scar tissue build up which causes cramping diring sex so while i can eat what ever i want i want to saw off my waist and just be done with it. Im sorry to hear all of this has happened to you and somtimes it doesnt seem fair to any of us. At age 18 i wa told i prpb cant have kids and now at ge 22 im told if i do its doubtfull ill survive without being in a coma to avoid the pain. Its ridiculous and i hate it and i wonder what i did wrong for this to happen and all that depressing shit but after 6 years of nt bring able to sit properly ive just sucked it up and said it could be worse
MissMissy21- Posts : 12
Join date : 2012-07-16
Age : 33
You Aussie
Hello there, Ive never tried ENDEP but I have been on other anti depressants. I tried Gabba Pentin but it didnt work and I couldnt stand the side effects. I was put on Amitryptiline (sp) but that didnt work. Then I was put on Lyrica which helped more than any other med. and the dose was just recently upped by my pain specialist. I am also using Amitryptiline ointment that numbs the skin. You may want to try Lyrica along with Amitryptiline ointment, both of those together may help. Thats just a suggestion and everyone reacts differently to different meds.
I want you to know that Ive asked the question "why me?" and I wanted to know what I did that was so wrong to be tortured like this. Of course I never got an answer. Just as you, I became angry, angry at the world. So I know where your coming from. Just wanted you to know that your not alone. hugs
I want you to know that Ive asked the question "why me?" and I wanted to know what I did that was so wrong to be tortured like this. Of course I never got an answer. Just as you, I became angry, angry at the world. So I know where your coming from. Just wanted you to know that your not alone. hugs
BpCookie- Posts : 209
Join date : 2012-01-25
Location : Arizona
thanks guys
thanks for the responses - yes our lives suck!
i have endo too sucks as can be quite painful also told I probably wont have kids.. it isn't fair and i listen to my friends talk about great sex and so on and i have no idea what they are talking about!!
they say misery loves company but i guess it makes me sadder that im not alone. i wouldnt wish these things on anyone.
i have endo too sucks as can be quite painful also told I probably wont have kids.. it isn't fair and i listen to my friends talk about great sex and so on and i have no idea what they are talking about!!
they say misery loves company but i guess it makes me sadder that im not alone. i wouldnt wish these things on anyone.
Young aussie girl- Posts : 7
Join date : 2012-02-02
Re: WHY ME - Life is so unfair sometimes
Just a comment on Endo. I know over a dozen women whk have endo and multiple kids some of who were accodents hana. So dont give up hope on having kids i know im not
MissMissy21- Posts : 12
Join date : 2012-07-16
Age : 33
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer