Vulvodynia Support
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» Hope to all my suffering ladies
Scared and hurting EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Scared and hurting EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Scared and hurting EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Scared and hurting EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Scared and hurting EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Scared and hurting EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Scared and hurting EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Scared and hurting EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Scared and hurting EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Scared and hurting

3 posters

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Post  BELLE.S Tue Jul 24, 2012 5:50 am

I've been diagnosed with vulvodynia. Sadly, I was told a few months ago that my pain was due to still having some of my hymen so I had a very costly (and painful!!!!!!) hymenectomy. Unfortunately, the surgery did not help at all with sex. I am now able to use a tampon, but that is all. Sex is so painful. I don't understand how it can ever be fun. I'm in my twenties and I have a very supportive mother whom I told everything and she is helping me find treatment. Not only am I horrified but I waited so so long to lose my virginity to someone I love. It was excruciating. I have the most wonderful, understanding boyfriend and we are moving in together in August, but I really wish I could have sex. Lubes don't help, special condoms don't help. I don't know what to do. I'm so overwhelmed and scared. I want to be able to have a normal sex life. Does anyone have any advice? I really want to stay with my boyfriend and I want to be able to love normally. What can I do???????

BELLE.S

Posts : 1
Join date : 2012-07-24

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Post  MissMissy21 Fri Jul 27, 2012 5:16 pm

I dont have much advice on pain manaent but i can tell to toufrom my experience its not easy. Ive had this since at least 16 im now 22. My boufriend and i have been together nearly 3 and a half years and we live together. I couldnt askfor a better bf. he helps me and trys his best to understand me. Lubes codoms nummig cream anti depressants and physical therapy have done nothing for me. Im looking into the surgery to have nerve endings removed in hopes that my only problem is over active nerve enddings. So heres hoping. I cant tell you itll just go away and i cant give you a magic cure. Just stay strong try as many things as you can to help and invest in icepacks. Its not easy or fun but obe day you might be able to be "normal" and thats all any of us could ask for at this point

MissMissy21

Posts : 12
Join date : 2012-07-16
Age : 33

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Scared and hurting Empty On the sex question

Post  Mandadity Fri Jul 27, 2012 10:13 pm

So I am 22 and I have severe pain also although mine isnt constant(all the time), how I am able to cope with sex is get a clitoral vibrator...works WAYYYY better then your hand and believe me its a huge distraction from the pain, im sad that I didnt think of it before(Doesnt work for me at 10/10 pain).

I have also noticed that having your butt in the air(hate the name for it)but not having sex anally seems to help a lot also. In combination with a vibrator(unless your in 10/10 pain) and omg you will "Climax" harder then ever before.

I am sorry to everyone who thinks this is a little too detailed but I wanted to explain just how much it worked for me. Honestly, from the girls I know, being a female in your 20s is like being a horny teenage boy and I want to express the big difference between having sex and not while dealing with this pain.

I hope I didnt offend, disgust or any other negative thing to anyone. Just expressing.

Most people on here say your not alone, which is very true but im not about to tell you the same thing everyone else is because I dont feel that does a whole lot knowing that over and over again. Ill be brutally honest(if you ever want to ask me anything else).

Good luck. :]

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 33
Location : Tigard, Oregon

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