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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

Scared and hurting

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Scared and hurting

Post  BELLE.S on Tue Jul 24, 2012 5:50 am

I've been diagnosed with vulvodynia. Sadly, I was told a few months ago that my pain was due to still having some of my hymen so I had a very costly (and painful!!!!!!) hymenectomy. Unfortunately, the surgery did not help at all with sex. I am now able to use a tampon, but that is all. Sex is so painful. I don't understand how it can ever be fun. I'm in my twenties and I have a very supportive mother whom I told everything and she is helping me find treatment. Not only am I horrified but I waited so so long to lose my virginity to someone I love. It was excruciating. I have the most wonderful, understanding boyfriend and we are moving in together in August, but I really wish I could have sex. Lubes don't help, special condoms don't help. I don't know what to do. I'm so overwhelmed and scared. I want to be able to have a normal sex life. Does anyone have any advice? I really want to stay with my boyfriend and I want to be able to love normally. What can I do???????


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Join date : 2012-07-24

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Re: Scared and hurting

Post  MissMissy21 on Fri Jul 27, 2012 5:16 pm

I dont have much advice on pain manaent but i can tell to toufrom my experience its not easy. Ive had this since at least 16 im now 22. My boufriend and i have been together nearly 3 and a half years and we live together. I couldnt askfor a better bf. he helps me and trys his best to understand me. Lubes codoms nummig cream anti depressants and physical therapy have done nothing for me. Im looking into the surgery to have nerve endings removed in hopes that my only problem is over active nerve enddings. So heres hoping. I cant tell you itll just go away and i cant give you a magic cure. Just stay strong try as many things as you can to help and invest in icepacks. Its not easy or fun but obe day you might be able to be "normal" and thats all any of us could ask for at this point


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Join date : 2012-07-16
Age : 26

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On the sex question

Post  Mandadity on Fri Jul 27, 2012 10:13 pm

So I am 22 and I have severe pain also although mine isnt constant(all the time), how I am able to cope with sex is get a clitoral vibrator...works WAYYYY better then your hand and believe me its a huge distraction from the pain, im sad that I didnt think of it before(Doesnt work for me at 10/10 pain).

I have also noticed that having your butt in the air(hate the name for it)but not having sex anally seems to help a lot also. In combination with a vibrator(unless your in 10/10 pain) and omg you will "Climax" harder then ever before.

I am sorry to everyone who thinks this is a little too detailed but I wanted to explain just how much it worked for me. Honestly, from the girls I know, being a female in your 20s is like being a horny teenage boy and I want to express the big difference between having sex and not while dealing with this pain.

I hope I didnt offend, disgust or any other negative thing to anyone. Just expressing.

Most people on here say your not alone, which is very true but im not about to tell you the same thing everyone else is because I dont feel that does a whole lot knowing that over and over again. Ill be brutally honest(if you ever want to ask me anything else).

Good luck. :]


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Join date : 2012-07-24
Age : 27
Location : Tigard, Oregon

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Re: Scared and hurting

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