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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Scared and hurting

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Scared and hurting

Post  BELLE.S on Tue Jul 24, 2012 5:50 am

I've been diagnosed with vulvodynia. Sadly, I was told a few months ago that my pain was due to still having some of my hymen so I had a very costly (and painful!!!!!!) hymenectomy. Unfortunately, the surgery did not help at all with sex. I am now able to use a tampon, but that is all. Sex is so painful. I don't understand how it can ever be fun. I'm in my twenties and I have a very supportive mother whom I told everything and she is helping me find treatment. Not only am I horrified but I waited so so long to lose my virginity to someone I love. It was excruciating. I have the most wonderful, understanding boyfriend and we are moving in together in August, but I really wish I could have sex. Lubes don't help, special condoms don't help. I don't know what to do. I'm so overwhelmed and scared. I want to be able to have a normal sex life. Does anyone have any advice? I really want to stay with my boyfriend and I want to be able to love normally. What can I do???????


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Re: Scared and hurting

Post  MissMissy21 on Fri Jul 27, 2012 5:16 pm

I dont have much advice on pain manaent but i can tell to toufrom my experience its not easy. Ive had this since at least 16 im now 22. My boufriend and i have been together nearly 3 and a half years and we live together. I couldnt askfor a better bf. he helps me and trys his best to understand me. Lubes codoms nummig cream anti depressants and physical therapy have done nothing for me. Im looking into the surgery to have nerve endings removed in hopes that my only problem is over active nerve enddings. So heres hoping. I cant tell you itll just go away and i cant give you a magic cure. Just stay strong try as many things as you can to help and invest in icepacks. Its not easy or fun but obe day you might be able to be "normal" and thats all any of us could ask for at this point


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Age : 27

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On the sex question

Post  Mandadity on Fri Jul 27, 2012 10:13 pm

So I am 22 and I have severe pain also although mine isnt constant(all the time), how I am able to cope with sex is get a clitoral vibrator...works WAYYYY better then your hand and believe me its a huge distraction from the pain, im sad that I didnt think of it before(Doesnt work for me at 10/10 pain).

I have also noticed that having your butt in the air(hate the name for it)but not having sex anally seems to help a lot also. In combination with a vibrator(unless your in 10/10 pain) and omg you will "Climax" harder then ever before.

I am sorry to everyone who thinks this is a little too detailed but I wanted to explain just how much it worked for me. Honestly, from the girls I know, being a female in your 20s is like being a horny teenage boy and I want to express the big difference between having sex and not while dealing with this pain.

I hope I didnt offend, disgust or any other negative thing to anyone. Just expressing.

Most people on here say your not alone, which is very true but im not about to tell you the same thing everyone else is because I dont feel that does a whole lot knowing that over and over again. Ill be brutally honest(if you ever want to ask me anything else).

Good luck. :]


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Re: Scared and hurting

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