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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Scared and hurting

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Scared and hurting

Post  BELLE.S on Tue Jul 24, 2012 5:50 am

I've been diagnosed with vulvodynia. Sadly, I was told a few months ago that my pain was due to still having some of my hymen so I had a very costly (and painful!!!!!!) hymenectomy. Unfortunately, the surgery did not help at all with sex. I am now able to use a tampon, but that is all. Sex is so painful. I don't understand how it can ever be fun. I'm in my twenties and I have a very supportive mother whom I told everything and she is helping me find treatment. Not only am I horrified but I waited so so long to lose my virginity to someone I love. It was excruciating. I have the most wonderful, understanding boyfriend and we are moving in together in August, but I really wish I could have sex. Lubes don't help, special condoms don't help. I don't know what to do. I'm so overwhelmed and scared. I want to be able to have a normal sex life. Does anyone have any advice? I really want to stay with my boyfriend and I want to be able to love normally. What can I do???????


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Re: Scared and hurting

Post  MissMissy21 on Fri Jul 27, 2012 5:16 pm

I dont have much advice on pain manaent but i can tell to toufrom my experience its not easy. Ive had this since at least 16 im now 22. My boufriend and i have been together nearly 3 and a half years and we live together. I couldnt askfor a better bf. he helps me and trys his best to understand me. Lubes codoms nummig cream anti depressants and physical therapy have done nothing for me. Im looking into the surgery to have nerve endings removed in hopes that my only problem is over active nerve enddings. So heres hoping. I cant tell you itll just go away and i cant give you a magic cure. Just stay strong try as many things as you can to help and invest in icepacks. Its not easy or fun but obe day you might be able to be "normal" and thats all any of us could ask for at this point


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Join date : 2012-07-16
Age : 26

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On the sex question

Post  Mandadity on Fri Jul 27, 2012 10:13 pm

So I am 22 and I have severe pain also although mine isnt constant(all the time), how I am able to cope with sex is get a clitoral vibrator...works WAYYYY better then your hand and believe me its a huge distraction from the pain, im sad that I didnt think of it before(Doesnt work for me at 10/10 pain).

I have also noticed that having your butt in the air(hate the name for it)but not having sex anally seems to help a lot also. In combination with a vibrator(unless your in 10/10 pain) and omg you will "Climax" harder then ever before.

I am sorry to everyone who thinks this is a little too detailed but I wanted to explain just how much it worked for me. Honestly, from the girls I know, being a female in your 20s is like being a horny teenage boy and I want to express the big difference between having sex and not while dealing with this pain.

I hope I didnt offend, disgust or any other negative thing to anyone. Just expressing.

Most people on here say your not alone, which is very true but im not about to tell you the same thing everyone else is because I dont feel that does a whole lot knowing that over and over again. Ill be brutally honest(if you ever want to ask me anything else).

Good luck. :]


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Age : 27
Location : Tigard, Oregon

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Re: Scared and hurting

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