Log in

I forgot my password

Latest topics
» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Scared and hurting

Go down

Scared and hurting

Post  BELLE.S on Tue Jul 24, 2012 5:50 am

I've been diagnosed with vulvodynia. Sadly, I was told a few months ago that my pain was due to still having some of my hymen so I had a very costly (and painful!!!!!!) hymenectomy. Unfortunately, the surgery did not help at all with sex. I am now able to use a tampon, but that is all. Sex is so painful. I don't understand how it can ever be fun. I'm in my twenties and I have a very supportive mother whom I told everything and she is helping me find treatment. Not only am I horrified but I waited so so long to lose my virginity to someone I love. It was excruciating. I have the most wonderful, understanding boyfriend and we are moving in together in August, but I really wish I could have sex. Lubes don't help, special condoms don't help. I don't know what to do. I'm so overwhelmed and scared. I want to be able to have a normal sex life. Does anyone have any advice? I really want to stay with my boyfriend and I want to be able to love normally. What can I do???????


Posts : 1
Join date : 2012-07-24

View user profile

Back to top Go down

Re: Scared and hurting

Post  MissMissy21 on Fri Jul 27, 2012 5:16 pm

I dont have much advice on pain manaent but i can tell to toufrom my experience its not easy. Ive had this since at least 16 im now 22. My boufriend and i have been together nearly 3 and a half years and we live together. I couldnt askfor a better bf. he helps me and trys his best to understand me. Lubes codoms nummig cream anti depressants and physical therapy have done nothing for me. Im looking into the surgery to have nerve endings removed in hopes that my only problem is over active nerve enddings. So heres hoping. I cant tell you itll just go away and i cant give you a magic cure. Just stay strong try as many things as you can to help and invest in icepacks. Its not easy or fun but obe day you might be able to be "normal" and thats all any of us could ask for at this point


Posts : 12
Join date : 2012-07-16
Age : 27

View user profile

Back to top Go down

On the sex question

Post  Mandadity on Fri Jul 27, 2012 10:13 pm

So I am 22 and I have severe pain also although mine isnt constant(all the time), how I am able to cope with sex is get a clitoral vibrator...works WAYYYY better then your hand and believe me its a huge distraction from the pain, im sad that I didnt think of it before(Doesnt work for me at 10/10 pain).

I have also noticed that having your butt in the air(hate the name for it)but not having sex anally seems to help a lot also. In combination with a vibrator(unless your in 10/10 pain) and omg you will "Climax" harder then ever before.

I am sorry to everyone who thinks this is a little too detailed but I wanted to explain just how much it worked for me. Honestly, from the girls I know, being a female in your 20s is like being a horny teenage boy and I want to express the big difference between having sex and not while dealing with this pain.

I hope I didnt offend, disgust or any other negative thing to anyone. Just expressing.

Most people on here say your not alone, which is very true but im not about to tell you the same thing everyone else is because I dont feel that does a whole lot knowing that over and over again. Ill be brutally honest(if you ever want to ask me anything else).

Good luck. :]


Posts : 7
Join date : 2012-07-24
Age : 27
Location : Tigard, Oregon

View user profile

Back to top Go down

Re: Scared and hurting

Post  Sponsored content

Sponsored content

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum