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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


My vulvadynia pain started at 17. I am 22 now. :'/

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My vulvadynia pain started at 17. I am 22 now. :'/

Post  Mandadity on Tue Jul 24, 2012 8:13 am

I am very young and used to be very confident and my self worth was pretty normal for a 17 yr old. The onset to it was ~3 months(maybe less) after I had sex THE VERY FIRST TIME of my life. Being as both me and the guy were virgins I didnt expect a disease but I got tested anyways several times by multiple doctors and over and over again it was negative for STDS.

Fast forward to the now:

I really really need as much support as possible..I have a 1 year old and a bf I been with for 4 years, but now I need to get a job to see more money come into the house(living with another family) and I just have no idea how im going to do this...my pain has been acting up, I might get a call for an interview tomorrow and I just dunno what to do. My boyfriend isnt exactly the comforting kind at all and really could have no idea what im going through...I cant just "work through it" or "take a pill for it"(like ibu, acetaminophen, stuff like that). My 1yr old is the only one with medical insurance and im in the process of SSI so I can live but I just have no idea what to think really.

A thought I have stuck in my mind is that my mom had a yeast infection while giving birth to me and i've ALWAYS had yeast infections even since potty training(idk about diapers). So did my mom make me pron to this? Will my daughter be the same? How do I prevent her from getting this?

I have so many questions and I feel my life is so worthless, it happened so young, I didnt get to "live" only reason sex even happens is because SOMEHOW I have a high sex drive. So im 22, never like to go out, kinda bad people skills because, well idk anymore(I wasnt always like this), I have a freaking psyco, irritable grandma like attitude all the time...I used to be bubby and fun and like the outdoors. Now I feel like my daughter is suffering cuz I am having one hell of a time dealing with this pain and all the other big stressors in my life...

Someone PLEASE help....I need anything... :'/

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 27
Location : Tigard, Oregon

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You aren't alone

Post  Rainy Day on Tue Jul 24, 2012 4:48 pm

I have been dealing with this for about 5 months! It totally sux. I have a 2 yr at home, work 4 days a week, and farm on the side with my husband. And, my hubby isn't the most supportive either. He thinks I should still be happy go lucky like normal. Ummmm....NO!

are you just having a flare, or is it always there?

I almost got mine to go away at first by diet and by acidipholous tablets. Then, I cheated big time by eating 1/2 my son's birthday cake...and this beast came back with a vengence. But, doctors say its not yeast.

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

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Yaay, support. :]

Post  Mandadity on Tue Jul 24, 2012 7:46 pm

Well from 17 to a few months pregnant I had it NON-STOP with the worst pain ever a 10/10 Pain, Sex or not it was ALWAYS there. While pregnant and until my daughter was 6 months old, I had almost no pain, the worst it EVER got was a 2/10 pain and it was a very short time period. Since shes 1 now, the last 6 months have been getting worse. Just last night was a 7/10 pain and I was sitting on a heating pad and it wouldnt go away..I was burning my thighs off more then having the pain go away.

I, about half the time, have a yeast infection or bacterial infection on top of vulvadynia pain. The way I tell the difference is I only itch during yi or bi, never vulva pain.

I knew I wasnt alone but I am just praying it'll go away(Not religious either). I just dont know what to do and I dont know if im the only one out there like this but when I have 10/10 pain, I cant think, im gaining weight since 17, I think just because im bored and im eating everything. Cant afford to get insurance or get the weight down. So i think very little of myself.

Oh and what I meant about first sentence is that my pain isnt always there now/yet again but used to be non stop.

I really appreciate the support/reply. :]

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 27
Location : Tigard, Oregon

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Re: My vulvadynia pain started at 17. I am 22 now. :'/

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