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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


My vulvadynia pain started at 17. I am 22 now. :'/

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My vulvadynia pain started at 17. I am 22 now. :'/

Post  Mandadity on Tue Jul 24, 2012 8:13 am

I am very young and used to be very confident and my self worth was pretty normal for a 17 yr old. The onset to it was ~3 months(maybe less) after I had sex THE VERY FIRST TIME of my life. Being as both me and the guy were virgins I didnt expect a disease but I got tested anyways several times by multiple doctors and over and over again it was negative for STDS.

Fast forward to the now:

I really really need as much support as possible..I have a 1 year old and a bf I been with for 4 years, but now I need to get a job to see more money come into the house(living with another family) and I just have no idea how im going to do this...my pain has been acting up, I might get a call for an interview tomorrow and I just dunno what to do. My boyfriend isnt exactly the comforting kind at all and really could have no idea what im going through...I cant just "work through it" or "take a pill for it"(like ibu, acetaminophen, stuff like that). My 1yr old is the only one with medical insurance and im in the process of SSI so I can live but I just have no idea what to think really.

A thought I have stuck in my mind is that my mom had a yeast infection while giving birth to me and i've ALWAYS had yeast infections even since potty training(idk about diapers). So did my mom make me pron to this? Will my daughter be the same? How do I prevent her from getting this?

I have so many questions and I feel my life is so worthless, it happened so young, I didnt get to "live" only reason sex even happens is because SOMEHOW I have a high sex drive. So im 22, never like to go out, kinda bad people skills because, well idk anymore(I wasnt always like this), I have a freaking psyco, irritable grandma like attitude all the time...I used to be bubby and fun and like the outdoors. Now I feel like my daughter is suffering cuz I am having one hell of a time dealing with this pain and all the other big stressors in my life...

Someone PLEASE help....I need anything... :'/

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 27
Location : Tigard, Oregon

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You aren't alone

Post  Rainy Day on Tue Jul 24, 2012 4:48 pm

I have been dealing with this for about 5 months! It totally sux. I have a 2 yr at home, work 4 days a week, and farm on the side with my husband. And, my hubby isn't the most supportive either. He thinks I should still be happy go lucky like normal. Ummmm....NO!

are you just having a flare, or is it always there?

I almost got mine to go away at first by diet and by acidipholous tablets. Then, I cheated big time by eating 1/2 my son's birthday cake...and this beast came back with a vengence. But, doctors say its not yeast.

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

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Yaay, support. :]

Post  Mandadity on Tue Jul 24, 2012 7:46 pm

Well from 17 to a few months pregnant I had it NON-STOP with the worst pain ever a 10/10 Pain, Sex or not it was ALWAYS there. While pregnant and until my daughter was 6 months old, I had almost no pain, the worst it EVER got was a 2/10 pain and it was a very short time period. Since shes 1 now, the last 6 months have been getting worse. Just last night was a 7/10 pain and I was sitting on a heating pad and it wouldnt go away..I was burning my thighs off more then having the pain go away.

I, about half the time, have a yeast infection or bacterial infection on top of vulvadynia pain. The way I tell the difference is I only itch during yi or bi, never vulva pain.

I knew I wasnt alone but I am just praying it'll go away(Not religious either). I just dont know what to do and I dont know if im the only one out there like this but when I have 10/10 pain, I cant think, im gaining weight since 17, I think just because im bored and im eating everything. Cant afford to get insurance or get the weight down. So i think very little of myself.

Oh and what I meant about first sentence is that my pain isnt always there now/yet again but used to be non stop.

I really appreciate the support/reply. :]

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 27
Location : Tigard, Oregon

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Re: My vulvadynia pain started at 17. I am 22 now. :'/

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