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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


My vulvadynia pain started at 17. I am 22 now. :'/

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My vulvadynia pain started at 17. I am 22 now. :'/

Post  Mandadity on Tue Jul 24, 2012 8:13 am

I am very young and used to be very confident and my self worth was pretty normal for a 17 yr old. The onset to it was ~3 months(maybe less) after I had sex THE VERY FIRST TIME of my life. Being as both me and the guy were virgins I didnt expect a disease but I got tested anyways several times by multiple doctors and over and over again it was negative for STDS.

Fast forward to the now:

I really really need as much support as possible..I have a 1 year old and a bf I been with for 4 years, but now I need to get a job to see more money come into the house(living with another family) and I just have no idea how im going to do this...my pain has been acting up, I might get a call for an interview tomorrow and I just dunno what to do. My boyfriend isnt exactly the comforting kind at all and really could have no idea what im going through...I cant just "work through it" or "take a pill for it"(like ibu, acetaminophen, stuff like that). My 1yr old is the only one with medical insurance and im in the process of SSI so I can live but I just have no idea what to think really.

A thought I have stuck in my mind is that my mom had a yeast infection while giving birth to me and i've ALWAYS had yeast infections even since potty training(idk about diapers). So did my mom make me pron to this? Will my daughter be the same? How do I prevent her from getting this?

I have so many questions and I feel my life is so worthless, it happened so young, I didnt get to "live" only reason sex even happens is because SOMEHOW I have a high sex drive. So im 22, never like to go out, kinda bad people skills because, well idk anymore(I wasnt always like this), I have a freaking psyco, irritable grandma like attitude all the time...I used to be bubby and fun and like the outdoors. Now I feel like my daughter is suffering cuz I am having one hell of a time dealing with this pain and all the other big stressors in my life...

Someone PLEASE help....I need anything... :'/

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 27
Location : Tigard, Oregon

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You aren't alone

Post  Rainy Day on Tue Jul 24, 2012 4:48 pm

I have been dealing with this for about 5 months! It totally sux. I have a 2 yr at home, work 4 days a week, and farm on the side with my husband. And, my hubby isn't the most supportive either. He thinks I should still be happy go lucky like normal. Ummmm....NO!

are you just having a flare, or is it always there?

I almost got mine to go away at first by diet and by acidipholous tablets. Then, I cheated big time by eating 1/2 my son's birthday cake...and this beast came back with a vengence. But, doctors say its not yeast.

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

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Yaay, support. :]

Post  Mandadity on Tue Jul 24, 2012 7:46 pm

Well from 17 to a few months pregnant I had it NON-STOP with the worst pain ever a 10/10 Pain, Sex or not it was ALWAYS there. While pregnant and until my daughter was 6 months old, I had almost no pain, the worst it EVER got was a 2/10 pain and it was a very short time period. Since shes 1 now, the last 6 months have been getting worse. Just last night was a 7/10 pain and I was sitting on a heating pad and it wouldnt go away..I was burning my thighs off more then having the pain go away.

I, about half the time, have a yeast infection or bacterial infection on top of vulvadynia pain. The way I tell the difference is I only itch during yi or bi, never vulva pain.

I knew I wasnt alone but I am just praying it'll go away(Not religious either). I just dont know what to do and I dont know if im the only one out there like this but when I have 10/10 pain, I cant think, im gaining weight since 17, I think just because im bored and im eating everything. Cant afford to get insurance or get the weight down. So i think very little of myself.

Oh and what I meant about first sentence is that my pain isnt always there now/yet again but used to be non stop.

I really appreciate the support/reply. :]

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 27
Location : Tigard, Oregon

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Re: My vulvadynia pain started at 17. I am 22 now. :'/

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