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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


My vulvadynia pain started at 17. I am 22 now. :'/

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My vulvadynia pain started at 17. I am 22 now. :'/

Post  Mandadity on Tue Jul 24, 2012 8:13 am

I am very young and used to be very confident and my self worth was pretty normal for a 17 yr old. The onset to it was ~3 months(maybe less) after I had sex THE VERY FIRST TIME of my life. Being as both me and the guy were virgins I didnt expect a disease but I got tested anyways several times by multiple doctors and over and over again it was negative for STDS.

Fast forward to the now:

I really really need as much support as possible..I have a 1 year old and a bf I been with for 4 years, but now I need to get a job to see more money come into the house(living with another family) and I just have no idea how im going to do this...my pain has been acting up, I might get a call for an interview tomorrow and I just dunno what to do. My boyfriend isnt exactly the comforting kind at all and really could have no idea what im going through...I cant just "work through it" or "take a pill for it"(like ibu, acetaminophen, stuff like that). My 1yr old is the only one with medical insurance and im in the process of SSI so I can live but I just have no idea what to think really.

A thought I have stuck in my mind is that my mom had a yeast infection while giving birth to me and i've ALWAYS had yeast infections even since potty training(idk about diapers). So did my mom make me pron to this? Will my daughter be the same? How do I prevent her from getting this?

I have so many questions and I feel my life is so worthless, it happened so young, I didnt get to "live" only reason sex even happens is because SOMEHOW I have a high sex drive. So im 22, never like to go out, kinda bad people skills because, well idk anymore(I wasnt always like this), I have a freaking psyco, irritable grandma like attitude all the time...I used to be bubby and fun and like the outdoors. Now I feel like my daughter is suffering cuz I am having one hell of a time dealing with this pain and all the other big stressors in my life...

Someone PLEASE help....I need anything... :'/

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 28
Location : Tigard, Oregon

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You aren't alone

Post  Rainy Day on Tue Jul 24, 2012 4:48 pm

I have been dealing with this for about 5 months! It totally sux. I have a 2 yr at home, work 4 days a week, and farm on the side with my husband. And, my hubby isn't the most supportive either. He thinks I should still be happy go lucky like normal. Ummmm....NO!

are you just having a flare, or is it always there?

I almost got mine to go away at first by diet and by acidipholous tablets. Then, I cheated big time by eating 1/2 my son's birthday cake...and this beast came back with a vengence. But, doctors say its not yeast.

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

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Yaay, support. :]

Post  Mandadity on Tue Jul 24, 2012 7:46 pm

Well from 17 to a few months pregnant I had it NON-STOP with the worst pain ever a 10/10 Pain, Sex or not it was ALWAYS there. While pregnant and until my daughter was 6 months old, I had almost no pain, the worst it EVER got was a 2/10 pain and it was a very short time period. Since shes 1 now, the last 6 months have been getting worse. Just last night was a 7/10 pain and I was sitting on a heating pad and it wouldnt go away..I was burning my thighs off more then having the pain go away.

I, about half the time, have a yeast infection or bacterial infection on top of vulvadynia pain. The way I tell the difference is I only itch during yi or bi, never vulva pain.

I knew I wasnt alone but I am just praying it'll go away(Not religious either). I just dont know what to do and I dont know if im the only one out there like this but when I have 10/10 pain, I cant think, im gaining weight since 17, I think just because im bored and im eating everything. Cant afford to get insurance or get the weight down. So i think very little of myself.

Oh and what I meant about first sentence is that my pain isnt always there now/yet again but used to be non stop.

I really appreciate the support/reply. :]

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 28
Location : Tigard, Oregon

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Re: My vulvadynia pain started at 17. I am 22 now. :'/

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